New LDN RX......pills vs. cream

[Guest guest]

Hello,

Just wanted to let everyone know my daughter got her doctor to prescribe LDN thanks to all the input we got her. She first mentioned it to her Dr. at the consult just as an option and to plant the seed, but of course he didn't prescribe it. He first put her on Asacol for her Crohn's along with the prednisone and within a few days her condition was worse. Next was Pentasa which also made her symptoms worse so she wasn't tolerating the mesalamine in these drugs. As soon as she stopped both her symptoms improved within a few days. She new the next drug would be Imuran so she printed out all the information on LDN found a pharmacy that mixed it and gave all this info to her doctor along with a letter letting him know she wanted to give it a try. She went back to see him a few days ago and he agreed to prescribe it, but said she was his first patient he ever has done this for. He wants her to keep him posted on how she is doing as he is curious about the effects of LDN for Crohn's. She is on Prednisone 10 mg now and will be tapering to 5 mg once she starts the LDN.

Ok that was the great news now for the not so great. The doctor would only prescribe the pill form to start her on because he feels it has a better absorption, and my daughter didn't want to push him anymore. We know by reading all the posts that the cream is much better than pills as the fillers in the capsules can flare up the Crohn's. He is staring her on 2.5 mg and will increase up to 4.5mg. A few questions does anyone take the pills and do ok with them? Do you have to titrate the dose up or do some people do ok on the lower dose? If you could please give us some ideas on side effects, we know it can affect sleep. I am worried about the loosing sleep as my daughter already has problems with sleep. Does it always have to be taken at night, or is that only recommended for MS? One other thing she is on an antidepressant which is new to her since her diagnosis. I'm wondering if she will still need to be on this starting on the LDN? I would appreciate any info as we are starting new on the LDN.....Hurray! I do hope this works for her and want to go about it correctly and also make sure my daughter is well aware of what to expect so she doesn't get frustrated and not give it a fair chance. Problem is I seem to have to do all the leg work. I need to read all about LDN again since we are starting it. You notice I say "we".

Wish us luck, and I will keep you posted on her progress. Oh and we and the pharmacist are prepared to ask for the cream if she relapses, just don't want to push it too much as we feel lucky to get the RX.

Concerned Mom