Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 After a few months of educating my Nueroligist on LDN via books and some of the online posts he finally agreed to give me a perscription for LDN! I've been on Tysabri infusions for 9 months with no progression and I have felt pretty good but, I know in my heart and after hearing bits of great feedback from this group, I'm going to give LDN a try! My Doc is a big fan of Tysabri and is not to happy that I need to stop that treatment in order to give LDN a fair stand alone try. I recently was reading articles and feedback from many Docs that perscribe Tysabri and its clear that most of them thought that taking a " holiday " from Tysabri is recommended after a year of infusions. So I'm going to take this " holiday " from Tysabri and try LDN. I have a few questions for the group: 1. How long should I be on LDN before I can make a realistic judgement about how I've done with it? 2.Also I take several other meds as part of my MS treatment suite like Detral LA, Bachlofin and Zoloft. Should I be off all of those as well as Tysabri while I'm taking LDN? 3. Should I start with 1.5 or 4.5 dosage of LDN? Thanks for all the great posts from this group that I've read over the past 3 months. It's really given me the courage to make this treatment change. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 1. Give LDN 6-9 months, or longer, trial period. The purpose of LDN is to slow/halt disease progression, symptom improvement is a bonus not experienced by everyone. 2. You can continue taking those medications while using LDN. 3. Some say to start LDN at 1.5mgs, next month go to 3mgs, following month 4.5mgs. Art My LDN/MS Story: http://tinyurl.com/5tcp6r -- > > After a few months of educating my Nueroligist on LDN via books and > some of the online posts he finally agreed to give me a perscription > for LDN! I've been on Tysabri infusions for 9 months with no > progression and I have felt pretty good but, I know in my heart and > after hearing bits of great feedback from this group, I'm going to > give LDN a try! My Doc is a big fan of Tysabri and is not to happy > that I need to stop that treatment in order to give LDN a fair stand > alone try. I recently was reading articles and feedback from many > Docs that perscribe Tysabri and its clear that most of them thought > that taking a " holiday " from Tysabri is recommended after a year of > infusions. So I'm going to take this " holiday " from Tysabri and try > LDN. > I have a few questions for the group: > 1. How long should I be on LDN before I can make a realistic > judgement about how I've done with it? > 2.Also I take several other meds as part of my MS treatment suite > like Detral LA, Bachlofin and Zoloft. Should I be off all of those as > well as Tysabri while I'm taking LDN? > 3. Should I start with 1.5 or 4.5 dosage of LDN? > Thanks for all the great posts from this group that I've read over > the past 3 months. It's really given me the courage to make this > treatment change. > Chris > Quote Link to comment Share on other sites More sharing options...
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