Digest Number 5129

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Nayla,

I was able to get my PCP to prescribe LDN for me (4.5 mg at bedtime). He looked at the website I referred him to and some printouts and said "well it can't hurt you". Now my Neurologist does prescribe it but I felt my PCP was concerned with my overall health and not just my MS so there was a better chance to have him prescribe it (and he did). There is no "proof" that LDN will help anything but it won't put you in the poorhouse and there is lots of 'anecdotal' support. Hope your doctor will support your request.

Larry

From: low dose naltrexone [mailto:low dose naltrexone ] Sent: Friday, December 26, 2008 2:33 PMlow dose naltrexone Subject: [low dose naltrexone] Digest Number 5129

Low Dose Naltrexone

Messages In This Digest (15 Messages)

1a. Re: I want to try LDN but am afraid From: mtlcute

1b. Re: I want to try LDN but am afraid From: Jiencke

2a. How to get LDN From: nayla zayani

2b. Re: How to get LDN From: zahavi

2c. Re: How to get LDN From: Bren

3. , and all other non-US citizens From:

4a. Re: New FDA approval granted for Naltrexone From: Cyndi

4b. Re: New FDA approval granted for Naltrexone From: Celia

5a. a bit of a one sided question From: queeniequeenbeemalka

5b. Re: a bit of a one sided question From: Horrall

6a. Re: Dr. Bihari/FYI From: Bren

7. LDN/dogs/Dr. Skip? From: jupitersb52

8a. Re: Auto - antibodies Lab Results (ANA) for those considering LDN From: jannz2

9a. LDN & Tramadol From: Aletha Wittmann

9b. LDN & Tramadol From: Aletha Wittmann

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Messages

1a.

Re: I want to try LDN but am afraid

Posted by: "mtlcute" mtlcute@... mtlcute

Thu Dec 25, 2008 6:29 pm (PST)

> You and I now get our> LDN through the NHS which is all fine and dandy until you realise that> there is (to my knowledge) only one chemist in the UK that will accept> an NHS script. I'm far too paranoid to accept that state of affairs as> it would be all too easy for the 'dirty tricks brigade' to tamper with> supplies. So until things settle down (and by this I'm referring to> the recent ban on LDN imports), I'm making my own!> >> , any chemist in GB can order 4.5 mgs Naltrexone, it is a > special order and the chemists get it from dales in London, > dunno about any other compounders but maybe I can find out, you can > be sure I will try.......> All the very best> Celia>>

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4b.

Re: New FDA approval granted for Naltrexone

Posted by: "Celia" celia@... redharvester2001

Fri Dec 26, 2008 12:08 pm (PST)

Cyndi, will help if I can...............Celia

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5a.

a bit of a one sided question

Posted by: "queeniequeenbeemalka" debjrichards@... queeniequeenbeemalka

Fri Dec 26, 2008 9:34 am (PST)

Sorry to take up space for an issue that won't concern everyone.....Irecently upped my LDN dose to 4.5. Not long after that I startedhaving regular hot flashes throughout the day and night. I readwith interest the posts about increased menstrual cramping as I alsoexperienced that after upping to 3.0. I know I am in theperi-menopausal stage of life and the hot flashes could be completelya result of that alone. I am wondering if any of you gals - or thewives of you guys - have had the same experience.Thanks, Deb

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5b.

Re: a bit of a one sided question

Posted by: "Horrall" jmhorrall@... jhorrall2002

Fri Dec 26, 2008 9:45 am (PST)

I had the opposite experience re: hot flashes. I am 51 and my hot flashes have practically disappeared. I have been using LDN for pain management.

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6a.

Re: Dr. Bihari/FYI

Posted by: "Bren" TwisterAlley2@... b63powell

Fri Dec 26, 2008 10:31 am (PST)

Dr. Bihari does not have an email contact. Someone here with the phone number to his office can send it to you. Bihari phone consltations in the past were $500.00. There are other Doctors who will do a phone consult much cheaper. Contact Crystal on this forum for the cheaper phone consult doctors.Dr. Jaquelyn McCandless may be able to take your case via long distance. You can contact her for her fees. Dr. McCandless' email contact is jmccandlessprodigy (DOT) net

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7.

LDN/dogs/Dr. Skip?

Posted by: "jupitersb52" lrn2laph@... jupitersb52

Fri Dec 26, 2008 10:42 am (PST)

I have a 12 year old German Shorthaired Pointer that if I didn't know better would say she is having an MS flare. She woke up this way this am, her gait is off and she almost walks like she is drunk. I've checked her for ticks as I know they can cause a temporary paralysis but there are none. I am wondering if LDN would be of some benefit to her. I have a friend who is a veternarian (who I will probably take her to this weekend), just wondering what the dose would be for her.And do you have the names of a veternarian in PBCo that are familiar with the use of LDN in dogs?Thanks so much.And here's to a happy and healthy new year for us all!!

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8a.

Re: Auto - antibodies Lab Results (ANA) for those considering LDN

Posted by: "jannz2" jbreslin@... jannz2

Fri Dec 26, 2008 10:50 am (PST)

Hi Abby,Well.... I just got my lab results back -- and I'm bummed(disappointed). Not only did my TPO (thyroid antibodies) test higher,but also my ANA jumped back up to 132 -- which makes me 'positive'again. I'm trying to identify what I did differently this testing round andthe most significant change was that I changed from daytime LDN dosingto night-time dosing. I can't imagine that this change in dosingschedule would cause an INCREASE in antibodies --???-- I was expectingthe opposite since so many of the MS folks say that the LDN night-timedosing produces MORE endorphins. I also take a lot of supplements. This last testing round I also was NOT as consistent about taking the extra selenium and niacin that Ihad been taking in previous testing rounds --- so perhaps that's afactor. --??? -- Selenium is known to reduce TPO, however, I had thereduction in TPO early in my LDN trial before I started taking extraselenium...so the reduction I had clearly wasn't just related to theselenium. The truth is that there are SO MANY variables that affect antibodyproduction that the increase I experienced may have NOTHING to do withsupplements or the LDN. I do know that this last month I've hadincreased body aches...and am now thinking that it may be due to theincrease in antibodies....???.... geeeeez ~who knows. ??ANYWAY....just thought I would share my latest results. Best wishes,Jann

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9a.

LDN & Tramadol

Posted by: "Aletha Wittmann" Aletha@... wittmann.aletha

Fri Dec 26, 2008 11:44 am (PST)

Jim, Have I already sent you the posts I have saved on Pain, and the "what not to take with LDN" e-mail that Crystal put together?Please let me know if you need those. My e-mail is AletharedshiftAletha

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9b.

LDN & Tramadol

Posted by: "Aletha Wittmann" Aletha@... wittmann.aletha

Fri Dec 26, 2008 11:45 am (PST)

Jim, Have I already sent you the posts I have saved on Pain, and the "what not to take with LDN" e-mail that Crystal put together?Please let me know if you need those. My e-mail is AletharedshiftAletha

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