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I spoke to the dr's office about uva ursi this morning, & he says it

would have to be used for years to cause any damage... ?

Michele

> > Why is uva ursi not safe for more than 2 weeks? Her doc didn't

> > mention... he did mention she would be on all 3 for a few months,

so

> > I'm wondering.

>

>

> I have read that it is stressful on the kidneys.

>

> Dana

>

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Well you have just named our yeast protocol.

Sorry, I can't help you on dosage for a baby, mine was 16. They all taste

bad...give your child a chaser afterwards....mix the gse in some liquid..uva

ursi in liquid or milk, mct oil straight but with a chaser. chasers are best if

sour drinks such as lemonade or limeade to mask the after taste.

We rotated 2 months on each of the following one at a time:

uva ursi 3x a day for 2 mo.

mct oil caprilic acid 3x a day for 2 mo

gse 3x a day for 2 months

This was the rotation of yeast fighters that Andy told us to do two months on

each so as not to build up a resistance to any of them.

grapeseed extract I added on accident thinking it was gse at the same time we

added clo and choline and we had the hugest gains in social, eye contact,

language, and his ocd completely went away...so don't discount grapeseed extract

also. They say combined with clo, grapeseed extract kills bacteria. My son was

literally a bacteria factory. He smelled like a casket during chelation.

We used super strength oreganol at night as an antibacterial.

We used activated charcoal an hour after yeast fighters were dosed to absorb the

die off.

We used candex and probiotics, given at different times. My son recovered

almost fully but he only did the treatment 8 months and now his strong casket

bacterial smell is back.

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>

> I spoke to the dr's office about uva ursi this morning, & he says it

> would have to be used for years to cause any damage... ?

I just googled " uva ursi side effects " and several links came up,

including this one

http://www.drugs.com/npc/uva-ursi.html

Side Effects

Ingestion of uva ursi in large doses has resulted in ringing of the

ears, nausea, vomiting, cyanosis, convulsions, collapse, and death.

The product may also impart a green color to the urine and cause

gastric discomfort.

Here is another link, which mentions not to use it for infants

http://www.medicinenet.com/bearberry_arctostaphylos_uva-ursi-oral/article.htm#Pr\

ecautions

HOW TO USE: Take this product by mouth as directed. Follow all

directions on the product package. If you are uncertain about any of

the information, consult your doctor or pharmacist. Do not use this

product longer than one week. Long-term use of this product may cause

serious side effects (e.g., liver damage). Consult your doctor or

pharmacist. If you think you may have a bladder infection (symptoms

include pain during urination, frequency or urgency to urinate),

consult your doctor promptly. Prescription medication (e.g.,

antibiotics) may be necessary to treat your condition. If your

condition persists or worsens, or if you think you may have a serious

medical problem, seek immediate medical attention.

SIDE EFFECTS: Nausea or stomach upset may occur. If any of these

effects persist or worsen, contact your doctor promptly. Tell your

doctor immediately if you have any of these very unlikely but serious

side effects: yellowing eyes or skin, weakness, stomach pain, dark

urine. If you notice other effects not listed above, contact your

doctor or pharmacist.

PRECAUTIONS: If you have any of the following health problems, consult

your doctor before using this product: kidney or liver problems.

Liquid preparations of this product may contain sugar and/or alcohol.

Caution is advised if you have diabetes, alcohol dependence or liver

disease. Ask your doctor or pharmacist about the safe use of this

product. Bearberry should not be used in children. Consult your doctor

or pharmacist. Bearberry is not recommended for use during pregnancy.

Consult your doctor before using this product. Because of the

potential risk to the infant, breast-feeding while using this product

is not recommended. Consult your doctor before breast-feeding.

Dana

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She has citrobactin, I believe it's called, bacteria overgrowth. I'm

getting a custom blend from Custom Probiotics; what else can I do?

Thx, Michele

> >

> > I spoke to the dr's office about uva ursi this morning, & he says

it

> > would have to be used for years to cause any damage... ?

>

>

> I just googled " uva ursi side effects " and several links came up,

> including this one

>

> http://www.drugs.com/npc/uva-ursi.html

>

> Side Effects

>

> Ingestion of uva ursi in large doses has resulted in ringing of the

> ears, nausea, vomiting, cyanosis, convulsions, collapse, and death.

> The product may also impart a green color to the urine and cause

> gastric discomfort.

>

> Here is another link, which mentions not to use it for infants

>

> http://www.medicinenet.com/bearberry_arctostaphylos_uva-ursi-

oral/article.htm#Precautions

>

> HOW TO USE: Take this product by mouth as directed. Follow all

> directions on the product package. If you are uncertain about any of

> the information, consult your doctor or pharmacist. Do not use this

> product longer than one week. Long-term use of this product may

cause

> serious side effects (e.g., liver damage). Consult your doctor or

> pharmacist. If you think you may have a bladder infection (symptoms

> include pain during urination, frequency or urgency to urinate),

> consult your doctor promptly. Prescription medication (e.g.,

> antibiotics) may be necessary to treat your condition. If your

> condition persists or worsens, or if you think you may have a

serious

> medical problem, seek immediate medical attention.

>

> SIDE EFFECTS: Nausea or stomach upset may occur. If any of these

> effects persist or worsen, contact your doctor promptly. Tell your

> doctor immediately if you have any of these very unlikely but

serious

> side effects: yellowing eyes or skin, weakness, stomach pain, dark

> urine. If you notice other effects not listed above, contact your

> doctor or pharmacist.

>

> PRECAUTIONS: If you have any of the following health problems,

consult

> your doctor before using this product: kidney or liver problems.

> Liquid preparations of this product may contain sugar and/or

alcohol.

> Caution is advised if you have diabetes, alcohol dependence or liver

> disease. Ask your doctor or pharmacist about the safe use of this

> product. Bearberry should not be used in children. Consult your

doctor

> or pharmacist. Bearberry is not recommended for use during

pregnancy.

> Consult your doctor before using this product. Because of the

> potential risk to the infant, breast-feeding while using this

product

> is not recommended. Consult your doctor before breast-feeding.

>

> Dana

>

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>

> She has citrobactin, I believe it's called, bacteria overgrowth. I'm

> getting a custom blend from Custom Probiotics; what else can I do?

I used OLE as anti-bacterial. I also used Culturelle for a while.

Those worked here, so I did not have occasion to use anything else.

Dana

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I've often wondered why Culturelle is so good for bacteria. It's just a

probiotic right? She's getting a probiotic that has more strains. Why

is Culturelle so good for bacteria? (really wondering!)

Thanks, Michele

> >

> > She has citrobactin, I believe it's called, bacteria overgrowth.

I'm

> > getting a custom blend from Custom Probiotics; what else can I do?

>

>

> I used OLE as anti-bacterial. I also used Culturelle for a while.

> Those worked here, so I did not have occasion to use anything else.

>

> Dana

>

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>

> I've often wondered why Culturelle is so good for bacteria. It's just a

> probiotic right? She's getting a probiotic that has more strains. Why

> is Culturelle so good for bacteria? (really wondering!)

I don't know. I just know that it appears to be one of the best, for

bad bacteria problems. And I know from experience that it does work

very well for bad bacteria. Not sure if it addresses yeast overgrowth

as well as some other probiotics, tho.

Dana

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I've upgraded her regular probiotic to be a more potent blend of

bifidus & lacto acidophilus, but I've also started giving her 1/2 cap

of Culturelle/day. I'm giving it to her twin too, in case (she's

growing, but small).

I've noticed she seems a bit gassier; she's prone to that though,

which I've read gas is a sign of bad bacteria.

How far up would you go for a 12lb baby?

Thanks, Michele

> >

> > I've often wondered why Culturelle is so good for bacteria. It's

just a

> > probiotic right? She's getting a probiotic that has more strains.

Why

> > is Culturelle so good for bacteria? (really wondering!)

>

>

> I don't know. I just know that it appears to be one of the best,

for

> bad bacteria problems. And I know from experience that it does work

> very well for bad bacteria. Not sure if it addresses yeast

overgrowth

> as well as some other probiotics, tho.

>

> Dana

>

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> I've noticed she seems a bit gassier; she's prone to that though,

> which I've read gas is a sign of bad bacteria.

Might be the bacteria coming out. Culturelle does have trace milk in

it, which was not a problem here but might be a problem for very

sensitive kids.

> How far up would you go for a 12lb baby?

WOW she is small! My #2 [severe mito issues] did not process fats at

all, so he just ballooned when he was an infant. At 5 months, he

weighed 20 pounds.

I think I would wait until the current gassiness goes away, then

re-assess the situation and see whether you think increasing the dose

would be beneficial.

Dana

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> > I've noticed she seems a bit gassier; she's prone to that though,

> > which I've read gas is a sign of bad bacteria.

>

>

> Might be the bacteria coming out. Culturelle does have trace milk

in

> it, which was not a problem here but might be a problem for very

> sensitive kids.

So far she doesn't seem bothered. The increased gassiness was just

that first day with the 1/2 cap; she's pretty much her usual right

now.

>

>

> > How far up would you go for a 12lb baby?

>

>

> WOW she is small! My #2 [severe mito issues] did not process fats

at

> all, so he just ballooned when he was an infant. At 5 months, he

> weighed 20 pounds.

I didn't realize it could go either way. Most folks don't see a big

baby as a problem though. Small, yes.

>

> I think I would wait until the current gassiness goes away, then

> re-assess the situation and see whether you think increasing the

dose

> would be beneficial.

>

> Dana

>

I'm not sure yet I guess. It's only been a couple of days so maybe

I'll wait a week or so.

This has been terribly worrisome. It took me months to convince the

dr there was an issue & she wasn't just a " smaller baby " or " slow

grower " .

It's especially difficult becz there are so many GI issues going on,

I feel. I always thought she had silent reflux, but the dr said no

way this time last year. However, she has so many signs; still has a

few too.

She has such a limited few foods right now, & can only eat a little

at a time becz of that too. It seems to stay put better that way.

She also had a terrible time even starting solids. Right off there

was horrid constipation. I'm really careful about the least

allergenic foods too, given our family history. I cannot supplement

becz of that reason; just cannot tolerate anything allergenic, &

everything at least has corn in it. Tried raw goat, & she got

diarrhea, so that's out too. She won't eat/drink anything that

doesn't taste good either :-).

I did note that as soon as I started trying to push protein she was

really refluxing; projectile. She wants no part of meats & I can

understand why.

She can't/won't take the supps either. Carnitine tastes awful

(obviously, from her reaction), & so did the capryllic acid

recommended for her. Then she wouldn't eat at all so I had to stop

that. The dr said the only other thing he can offer is antibiotics, &

he feels (as do I) that would only further exacerbate her problems.

She starts up with a homeopath next week; he was supportive of us

going that route since he can't seem to do anything further. He said

a GI dr wouldn't be able to help either.

Thanks, Michele

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> I didn't realize it could go either way. Most folks don't see a big

> baby as a problem though. Small, yes.

True. But my son still needed a rear-facing car seat, and he weighed

too much for one. So he was technically illegal until he was 12

months and I could put him in a different car seat.

Plus, he was almost impossible to carry around *in* the car seat, he

weighed a ton!

>>I cannot supplement

> becz of that reason; just cannot tolerate anything allergenic, &

> everything at least has corn in it.

This is part of the reason my son did not tolerate most supps until

about round 50 of ALA chelation, he did not tolerate corn. I learned

later that corn is a carotene food, so fortunately I was able to

eliminate his corn problem when I addressed the carotene issue.

> I did note that as soon as I started trying to push protein she was

> really refluxing; projectile. She wants no part of meats & I can

> understand why.

> She can't/won't take the supps either. Carnitine tastes awful

> (obviously, from her reaction),

Aminos are essential for growth, especially carnitine, which is

actually a synthesis of two aminos. So if she avoids proteins, this

would make sense. Many autistic kids do not properly break down

proteins, so it is not an uncommon problem. I don't know how well

plant proteins might help this problem, maybe some of the vegetarians

here can help with that.

> She starts up with a homeopath next week; he was supportive of us

> going that route since he can't seem to do anything further.

Anyone who is at least supportive, is preferable to someone who has

set opinions, at least in my opinion.

Dana

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>>

> True. But my son still needed a rear-facing car seat, and he

weighed

> too much for one. So he was technically illegal until he was 12

> months and I could put him in a different car seat.

I don't know how old he is, but now they make bigger seats for

heavier babies that can face the rear, for when they outgrow the

infant seat. My babies will probably be in infant seats for a

looooooong time.

> Aminos are essential for growth, especially carnitine, which is

> actually a synthesis of two aminos. So if she avoids proteins,

this

> would make sense. Many autistic kids do not properly break down

> proteins, so it is not an uncommon problem. I don't know how well

> plant proteins might help this problem, maybe some of the

vegetarians

> here can help with that.

That would be helpful, if anyone knows. It is tough becz one must

keep in mind not just the allergy tendences, but the reflux as well.

So I'm concerned about trying beans out. I was going to do red

lentils, soaked, as they are supposedly easier to digest.

THanks again, Michele

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> That would be helpful, if anyone knows. It is tough becz one must

> keep in mind not just the allergy tendences, but the reflux as well.

> So I'm concerned about trying beans out. I was going to do red

> lentils, soaked, as they are supposedly easier to digest.

>

> THanks again, Michele

>

I'm sorry, I don't know where this discussion really began. I looked

but I can't find the full context for some of the remarks. So I don't

know what all has been said before. It sounds to me like you are

probably familiar with the idea of soaking and sprouting grains. If

not, I would encourage you to google it. It is something I considered

looking into to help address the digestive issues in my family but

never got around to. Other things turned out to be effective, so I

haven't had too much motivation to pursue it. So, it has remained

kind of an idea on the backburner of my mind.

Good luck with this.

Michele

http://www.healthgazelle.org

http://www.kidslikemine.org

http://www.solanorail.org

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> > I did note that as soon as I started trying to push protein she was

> > really refluxing; projectile. She wants no part of meats & I can

> > understand why.

***Are you looking for non-meat protein ideas?

Sherry

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Would love ideas... taking into account we're a high allergy family &

she's reflux, which so many foods aggravate.

She's tough to feed.

Thanks, Michele

>

>

> > > I did note that as soon as I started trying to push protein she

was

> > > really refluxing; projectile. She wants no part of meats & I can

> > > understand why.

>

> ***Are you looking for non-meat protein ideas?

> Sherry

>

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> I don't know how old he is, but now they make bigger seats for

> heavier babies that can face the rear, for when they outgrow the

> infant seat. My babies will probably be in infant seats for a

> looooooong time.

He is 12yo now LOL

But thanks for the suggestion.

Dana

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LOL - I posted for those with bigger babies now who have that issue :-).

Michele

> > I don't know how old he is, but now they make bigger seats for

> > heavier babies that can face the rear, for when they outgrow the

> > infant seat. My babies will probably be in infant seats for a

> > looooooong time.

>

>

> He is 12yo now LOL

>

> But thanks for the suggestion.

>

> Dana

>

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>

> Would love ideas... taking into account we're a high allergy family &

> she's reflux, which so many foods aggravate.

>

> She's tough to feed.

>

> Thanks, Michele

***My son was GFCGSF for almost three years. Now i tend to rotate

foods, rice one day, wheat (with enzymes)one day, etc. Can you do

peanut butter, your high allergy, so probably not, but you may be able

to subsutite for peanut butter balls. I use half cup p-butter, half cup

sunflower butter, half cup honey and half cup dry potato milk from

Vances Dairy free. Mix and roll into balls. You can roll them in

coconut, chopped nuts, sesame seeds, what ever. My son loves these.

There are all kinds of nut butter available.

Try this site: allrecipes.com. I have found Quinoa and black beans,

homemade black bean burgers, carrot burgers, white beans and peppers,

all types of bean soups. There is even a Garbanzo Bean chocolate cake,

GF, which isn't bad......it does use eggs. I love this site, gives

rating stars and if it isn't a 4 or 5 i don't even try it.

Kirkman's has Pea Protein, which i have put into homemade pudding. (

you don't have to use much of this)

My son can also tolorate all Quorn products, again though, i'm not

sure what all you have to avoid.

There is also rice proteins which you may use in smoothies. If rice

isn't a problem.

HTH

Sherry

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