Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 c1ndysue1@... writes: > needs an MRI. I found open MRI's that my insurance will cover >BUTT..the problem is that the primary care physician who ordered the MRI >will >not order the sedation. URGH!!!!!!!! I can get the neurologist to order >one >but I don't think the insurance will pay s Hopkins to have it there. > >I hate HMO's. is on Tim's insurance as well...his will cover 80% >and >mine was to pick up the difference. At this point, I am ready to just >pay >the 20% and let the neurologist order it (with sedation). > >Can those of you whose children have had MRI's tell me about the >experience? >Thanks!! > > Hi! Ben had an MRI. They're awfully noisy. Seems to me sedation would be a must. In Ben's situation, he fell asleep 25 min. before the MRI. Because they are so noisy, we were sure he would not sleep through the experience so, we had to wake him up so we could sedate him. :-) Take Care, Kent p.s. because of the magnetism, make sure Mathew has all his body piercings removed before he goes in. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 , recently had a chest MRI with sedation. It was a very light sedation and he was good to go home within the hour. No ill effects. This would not have been possible without sedation. He wouldn't have understoon that he had to stay perfectly still. Ask any questions you have because I don't know what else to say. They automatically ordered sedation due to the fact that he has DS and was so young (not quite 7) It was just a given. We had to go to NYU in New York City. Dawn MRI??? needs an MRI. I found open MRI's that my insurance will cover BUTT..the problem is that the primary care physician who ordered the MRI will not order the sedation. URGH!!!!!!!! I can get the neurologist to order one but I don't think the insurance will pay s Hopkins to have it there. I hate HMO's. is on Tim's insurance as well...his will cover 80% and mine was to pick up the difference. At this point, I am ready to just pay the 20% and let the neurologist order it (with sedation). Can those of you whose children have had MRI's tell me about the experience? Thanks!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 In a message dated 10/24/00 8:57:58 AM Central Daylight Time, Kent_Moreno@... writes: > Kent > > p.s. because of the magnetism, make sure Mathew has all his body piercings > removed before he goes in. :-) Hi Kent NO one told me about the magnetism and I almost lost my silver barrette that was in my hair when Sara had her MRI lololol I would definitely have sedated, Sara NEVER would have laid still for hers. We also think she had a seizure while she was strapped in. They pulled her out and gave her more sedation. I'm not sure what they used but she was mean as a snake when she came to ugggggggggg Kathy mom to Sara 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 MRI can reveal a thin corpus callosum (the brain freeway that connects the two hemispheres). Might want to read the attached: http://abcnews.go.com/GMA/OnCall/story?id=4882297 & page=1 From: Newton Family <jcnewton1@...> Subject: [ ] MRI??? Date: Thursday, August 7, 2008, 2:15 PM Sorry for the repeat (I'm sending this to all the I belong to) but I need info/advice: My 3 year old son is scheduled to have a 24 hour video EEG at the local children's hospital. We are doing this b/c he has occasional absence seizures. His neurologist now wants him to also have a brain MRI to ' " complete his evaluation.. .to get a good look at the structure of his brain'. Is this REALLY necessary? I've read papers that say MRI's are not useful for kids with ASD. They would have to put him under general anesthesia and that makes me very uncomfortable. ..I've heard stories of regression and of course they make you sign the form that says your child could die from it! He's already been under at 4 weeks, 4 months, and 21 months so that's enough as far as I'm concerned. (surgeries were for perianal abscesses and a blocked tear duct.) Unless someone has had an MRI that proved very useful (please share), I will tell her no way again...she wanted to do one of these last year when his right started crossing in...he has strabismus and now wears glasses. I asked our eye doc about the MRI for that and he said it was unnecessary. I told the neuro that and she laid off...but now she is on my case again. (Strabismus does run on my side the family - my cousin and her child have it.) Final note: my husband's father died from brain cancer in his mid-40's...would that along with the autism (and maybe the cross eye) be a good enough reason to get an MRI? (I just really don't want to put him under!!!) Thanks~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 -Always go with your gut feeling. You are right to be concerned about him with anesthetics. ASD kids can be very sensitive to them. i wis i had listened to my gut feeling when i took my son for his MMR> My gut feeling was screaming NO! All the best to you both. Sue-- In , " Newton Family " <jcnewton1@...> wrote: > > Sorry for the repeat (I'm sending this to all the I belong to) but I need info/advice: > > My 3 year old son is scheduled to have a 24 hour video EEG at the local children's hospital. We are doing this b/c he has occasional absence seizures. His neurologist now wants him to also have a brain MRI to ' " complete his evaluation...to get a good look at the structure of his brain'. Is this REALLY necessary? I've read papers that say MRI's are not useful for kids with ASD. > > They would have to put him under general anesthesia and that makes me very uncomfortable...I've heard stories of regression and of course they make you sign the form that says your child could die from it! He's already been under at 4 weeks, 4 months, and 21 months so that's enough as far as I'm concerned. (surgeries were for perianal abscesses and a blocked tear duct.) > > Unless someone has had an MRI that proved very useful (please share), I will tell her no way again...she wanted to do one of these last year when his right started crossing in...he has strabismus and now wears glasses. I asked our eye doc about the MRI for that and he said it was unnecessary. I told the neuro that and she laid off...but now she is on my case again. (Strabismus does run on my side the family - my cousin and her child have it.) > > Final note: my husband's father died from brain cancer in his mid- 40's...would that along with the autism (and maybe the cross eye) be a good enough reason to get an MRI? (I just really don't want to put him under!!!) Thanks~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 If that were my son I'd say no way. Getting the 'structure of the brain'...does his illness warrant that?...then what - heavy medications or risky surgery? Seizure disorders have been successfully healed with constitutional homeopathy along with ASD, so would be my first choice. Best wishes, Liz Brandegee Classical Homeopath > > Sorry for the repeat (I'm sending this to all the I belong to) but I need info/advice: > > My 3 year old son is scheduled to have a 24 hour video EEG at the local children's hospital. We are doing this b/c he has occasional absence seizures. His neurologist now wants him to also have a brain MRI to ' " complete his evaluation...to get a good look at the structure of his brain'. Is this REALLY necessary? I've read papers that say MRI's are not useful for kids with ASD. > > They would have to put him under general anesthesia and that makes me very uncomfortable...I've heard stories of regression and of course they make you sign the form that says your child could die from it! He's already been under at 4 weeks, 4 months, and 21 months so that's enough as far as I'm concerned. (surgeries were for perianal abscesses and a blocked tear duct.) > > Unless someone has had an MRI that proved very useful (please share), I will tell her no way again...she wanted to do one of these last year when his right started crossing in...he has strabismus and now wears glasses. I asked our eye doc about the MRI for that and he said it was unnecessary. I told the neuro that and she laid off...but now she is on my case again. (Strabismus does run on my side the family - my cousin and her child have it.) > > Final note: my husband's father died from brain cancer in his mid- 40's...would that along with the autism (and maybe the cross eye) be a good enough reason to get an MRI? (I just really don't want to put him under!!!) Thanks~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Generally, I believe MRI results in spectrum kids have been inconsistent; most consistent finding is that brain is enlarged compared to controls. That is what I remember hearing. Granted, there is always a chance you will find something significant, and I'm sure parents will jump to tell you their story. That is true in any child. What I ask myself is this: What will this test potentially show me and how will the results change my course of action? I would not do it. I haven't been given any good reason yet to risk anesthesia. DH is an anesthesiologist and he feels it is always best to avoid general anesthesia when possible (anybody). Good enough for me! I don't think any structural differences have popped up in Autism. From what I remember, there is evidence of functional and metabolic dysconnect, but finding structural evidence has been difficult. So, we know they are different but we can't see it on film! Good luck with the EEG. Pam > > Sorry for the repeat (I'm sending this to all the I belong to) but I need info/advice: > > My 3 year old son is scheduled to have a 24 hour video EEG at the local children's hospital. We are doing this b/c he has occasional absence seizures. His neurologist now wants him to also have a brain MRI to ' " complete his evaluation...to get a good look at the structure of his brain'. Is this REALLY necessary? I've read papers that say MRI's are not useful for kids with ASD. > > They would have to put him under general anesthesia and that makes me very uncomfortable...I've heard stories of regression and of course they make you sign the form that says your child could die from it! He's already been under at 4 weeks, 4 months, and 21 months so that's enough as far as I'm concerned. (surgeries were for perianal abscesses and a blocked tear duct.) > > Unless someone has had an MRI that proved very useful (please share), I will tell her no way again...she wanted to do one of these last year when his right started crossing in...he has strabismus and now wears glasses. I asked our eye doc about the MRI for that and he said it was unnecessary. I told the neuro that and she laid off...but now she is on my case again. (Strabismus does run on my side the family - my cousin and her child have it.) > > Final note: my husband's father died from brain cancer in his mid- 40's...would that along with the autism (and maybe the cross eye) be a good enough reason to get an MRI? (I just really don't want to put him under!!!) Thanks~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 " What I ask myself is this: What will this test potentially show me and how will the results change my course of action? " Me too, good advice Pam! > > > > Sorry for the repeat (I'm sending this to all the I > belong to) but I need info/advice: > > > > My 3 year old son is scheduled to have a 24 hour video EEG at the > local children's hospital. We are doing this b/c he has occasional > absence seizures. His neurologist now wants him to also have a brain > MRI to ' " complete his evaluation...to get a good look at the > structure of his brain'. Is this REALLY necessary? I've read papers > that say MRI's are not useful for kids with ASD. > > > > They would have to put him under general anesthesia and that makes > me very uncomfortable...I've heard stories of regression and of > course they make you sign the form that says your child could die > from it! He's already been under at 4 weeks, 4 months, and 21 months > so that's enough as far as I'm concerned. (surgeries were for > perianal abscesses and a blocked tear duct.) > > > > Unless someone has had an MRI that proved very useful (please > share), I will tell her no way again...she wanted to do one of these > last year when his right started crossing in...he has strabismus and > now wears glasses. I asked our eye doc about the MRI for that and he > said it was unnecessary. I told the neuro that and she laid > off...but now she is on my case again. (Strabismus does run on my > side the family - my cousin and her child have it.) > > > > Final note: my husband's father died from brain cancer in his mid- > 40's...would that along with the autism (and maybe the cross eye) be > a good enough reason to get an MRI? (I just really don't want to put > him under!!!) Thanks~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 > > Sorry for the repeat (I'm sending this to all the I belong to) but I need info/advice: > > My 3 year old son is scheduled to have a 24 hour video EEG at the local children's hospital. We are doing this b/c he has occasional absence seizures. His neurologist now wants him to also have a brain MRI to ' " complete his evaluation...to get a good look at the structure of his brain'. Is this REALLY necessary? I've read papers that say MRI's are not useful for kids with ASD. > > They would have to put him under general anesthesia and that makes me very uncomfortable...I've heard stories of regression and of course they make you sign the form that says your child could die from it! He's already been under at 4 weeks, 4 months, and 21 months so that's enough as far as I'm concerned. (surgeries were for perianal abscesses and a blocked tear duct.) > > Unless someone has had an MRI that proved very useful (please share), I will tell her no way again...she wanted to do one of these last year when his right started crossing in...he has strabismus and now wears glasses. I asked our eye doc about the MRI for that and he said it was unnecessary. I told the neuro that and she laid off...but now she is on my case again. (Strabismus does run on my side the family - my cousin and her child have it.) > > Final note: my husband's father died from brain cancer in his mid- 40's...would that along with the autism (and maybe the cross eye) be a good enough reason to get an MRI? (I just really don't want to put him under!!!) Thanks~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 > Unless someone has had an MRI that proved very useful (please share), I will tell her no way again...she wanted to do one of these last year when his right started crossing in...he has strabismus and now wears glasses. I asked our eye doc about the MRI for that and he said it was unnecessary. I told the neuro that and she laid off...but now she is on my case again. (Strabismus does run on my side the family - my cousin and her child have it.) My #4 had one eye that migrated outward. This was eliminated with chelation, anti-virals, and biotin. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 If he is having absense seizures he should be on some medication that works for them, e. g. Zarontin, Depakote, Lamictal. Absence is not an indication for an MRI. Nor is autism. The crossed eye generally isn't either. Be very careful about the inevitable referral for strabismus surgery, it is usually inapprorpiate. Most of the time vision therapy corrects strabismus (crossed eye), most of the time surgery does not - the eye just crosses again afterwards if they don't do vision therapy at that point. I would rely on the eye doctor's opinion as to whether the MRI is indicated to investigate the strabismus. The neuro has not given you a good enough reason to do the MRI. They may have one, but it is their obligation to present their reasoning to you adequately. Ask for the details. Ask about each issue below and how it folds in to the decision. Ask what treatment decisions can't be made without taking the MRI. Ask for the long list of things he wants to rule out with the MRI and why he thinks your kid could have them. Talk to us about what he says, THEN decide. Definitely get the EEG. It's a lot more benign and can be VERY informative. Unfortunately the neurologists usually say something pretty useless and uninformative when they TELL you about the EEG, so you have to listen politely and then get a copy of the interpretive report, which is a page or 2 and often VERY VERY useful. Tell us what that says. If they sedate him it is not uncommon that they don't end up seeeing absence seizures since those are most readily induced by hyperventilation and you have to get him to do that for you voluntarily. However they may see it and also may see other things that are helpful to know about. Andy > > > > Sorry for the repeat (I'm sending this to all the I > belong to) but I need info/advice: > > > > My 3 year old son is scheduled to have a 24 hour video EEG at the > local children's hospital. We are doing this b/c he has occasional > absence seizures. His neurologist now wants him to also have a brain > MRI to ' " complete his evaluation...to get a good look at the > structure of his brain'. Is this REALLY necessary? I've read papers > that say MRI's are not useful for kids with ASD. > > > > They would have to put him under general anesthesia and that makes > me very uncomfortable...I've heard stories of regression and of > course they make you sign the form that says your child could die > from it! He's already been under at 4 weeks, 4 months, and 21 months > so that's enough as far as I'm concerned. (surgeries were for > perianal abscesses and a blocked tear duct.) > > > > Unless someone has had an MRI that proved very useful (please > share), I will tell her no way again...she wanted to do one of these > last year when his right started crossing in...he has strabismus and > now wears glasses. I asked our eye doc about the MRI for that and he > said it was unnecessary. I told the neuro that and she laid > off...but now she is on my case again. (Strabismus does run on my > side the family - my cousin and her child have it.) > > > > Final note: my husband's father died from brain cancer in his mid- > 40's...would that along with the autism (and maybe the cross eye) be > a good enough reason to get an MRI? (I just really don't want to put > him under!!!) Thanks~ > > > > Quote Link to comment Share on other sites More sharing options...
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