Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 Day one and it went good, Josh was pretty calm all day, so far so good, he seemed much the same, but little things he did I noticed like he came and gave me a kiss spontaniously to say goodbye, when my Mum took him to the shop, usually I would have to ask him for a kiss and tonight he kissed my Mum and Dad goodnight which he hasnt done in ages. Also whilst he still did alot of head butting today. He didnt do it in his normal fit of rage fashion so much, were he hurts himself, but he just did it really softly makingsure not to hurt himself, so that is a HUGE result for me. My poor baby daughter is being neglected a bit. Must go and put her to sleep. Thankyou all for your support and insights Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 Sounds good ! I hope the rest of the round is peaceful. Our son never got to the fits of rage head butting, he mostly did what your son was doing - gently as so not to hurt himself. It was before we realized what was going on, but quite a hoot. Improvements will probably be slow and small, but it is worth it. My son, who is older, was having some serious fits of rage before we started, even self-harming and breaking favorite things. But, after 6 months we are noticing that any more. Now, he is able to get upset, but remain calm and discuss it. His biggest problem was language; he had it but had a road block between his brain and mouth when upset. Now! WOW!! He gets upset, and can talk to us. We used to wait hours, literally, and I had a to do a lot of talking for him in public (which made people think I was a terribly controlling mother). Now, he can communicate even when upset. I'm loving it!! Good things are ahead, but remember it is slow and steady that wins the race. P. wrote: > > Day one and it went good, Josh was pretty calm all day, so far so good, > he seemed much the same, but little things he did I noticed like he > came and gave me a kiss spontaniously to say goodbye, when my Mum took > him to the shop, usually I would have to ask him for a kiss and tonight > he kissed my Mum and Dad goodnight which he hasnt done in ages. Also > whilst he still did alot of head butting today. He didnt do it in his > normal fit of rage fashion so much, were he hurts himself, but he just > did it really softly makingsure not to hurt himself, so that is a HUGE > result for me. My poor baby daughter is being neglected a bit. Must > go and put her to sleep. Thankyou all for your support and insights > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Diane, Don't feel overwhelmed by this info link. I totally understand how it can look daunting. Just scroll down to the " File Attachment " . There are a few. The ones I use are #1: LYME FLYER and #3: Lyme disease and Tick prevention and removal tips. I don't distribute the Lyme Flyer to my students, just the tick prevention tips. Print out a few and give them to your in-laws, ex, and the health office at the kids' school. Save some for yourself to keep in your bag. When someone questions anything, hand them the info. I don't have Lyme but I can get overwhelmed explaining to friends and relatives. My daughter, who does have Lyme and co-infections, prefers not to have to explain everything to her friends. These two handy-dandy printouts are awesome! And, by the way, you DO have a title and an education. Your title is mom, protector of her children, education provider, health sentinel, and love distributor. This is the hardest, most important job in the world. Your education goes leaps and bounds beyond what most people learn about a given illness. One day you will feel better. Use your energy to heal. Let your mother help you. Try not to focus too much on the people using up your positive energy. Sleep when you have to. For everyone out there who missed the link to this great Lyme info the first time I posted it, here it is again. Use it in good health! http://www.mdjunction.com/forums/lyme-disease-support-forums/studies-research/14\ 39835-lyme-flyer-2010 batikquilt ________________________________ From: Diane Biel <dkbmama@...> Sent: Mon, October 11, 2010 11:43:23 AM Subject: Re: [ ] Re: what to expect? Bless your heart for sending me this info.......I have to take the time to sit down and print out so much stuff again - I did it last year before all the craziness started and put everything aside for a bit - I also have in-laws that do not believe my disease and there grandchildren disease.......its pure hell!! They think I am lazy and should get a full time job and for Gods sake - make those children go to school - education is important!! I had to leave my dream of college twice when I was so sick never got to go back.....had to sell my beauty salon due to this disease and they look down on me because I do not have a college degree and I job with a title.............its been pure hell - but I have my mother who is my rock and all of you who support me and let me know I am not alone with this struggle..........you are all angels to me.........you not only are saving yourself, your children, other and by being a part of this lyme posting......you have also saved my life.......I truly am not alone and never will be again with this terrible disease.........Bless you all!!!!!!! Diane ________________________________ From: Kaethe <batikquilt@...> Sent: Mon, October 11, 2010 9:11:47 AM Subject: Re: [ ] Re: what to expect? Diane, I honestly don't know how you are coping with all this. My heart and my utmost respect go out out you. Here is the link to the Lyme flier and the tick information that I use and hand out to people everywhere. They are written by a layperson, not a doctor, just to be aware. However, I have found these two things to have such a wealth of information and it's handily condensed down to something people may actually read. Click on the file attachments to read them. http://www.mdjunction.com/forums/lyme-disease-support-forums/studies-research/14\ 39835-lyme-flyer-2010 I wish you the best of luck and healing for you and your children. Give one of these Lyme fliers to your kids' school nurse and their father. Maybe they'll both be a little more understanding. Kaethe ________________________________ From: Diane Biel <dkbmama@...> Sent: Thu, October 7, 2010 10:26:07 PM Subject: Re: [ ] Re: what to expect? Do you by chance have something I can give to my daughters school nurse? Her father that has not been apart of her life but wanted child support dropped and I would not then went to the school nurse and made me out to be crazy and her llmd to be crazy - so now she thinks lyme is untrue!! I even had to get a CFS doctor to be able to help with her 504 plan at school because of her absentees....so sad...they look at me as I am a lier now and lyme disease doesn't do this to you and that the test from children's hosp says her wb is negative but it really says it unequivocal - and that doesn't mean negative - they don't understand. It's been pure hell - at least the courts now do not make my daughter see her father.......but he lingers on and tries to make me look like a crazy mom that just lets her daughter stay up all night and then stay home if she wants.........and my daughter LOVES school - she would be there everyday if she could!! Anyways, do you think you could email me something that you use as a handout or anything that would get her to try and understand again what my poor daughter lives with? Bless you for helping others as you do - I am so sorry for your daughter..........I have three girls that have lyme and myself.........it's been hard to say the least.......and when school is in the stress of being the bad people when me girls are home sick is such a terrible stress school systems put on us.............if only we had a magic wand.........Bless you!! ________________________________ From: batikquilt <batikquilt@...> Sent: Thu, October 7, 2010 8:51:45 PM Subject: [ ] Re: what to expect? I'm a school nurse. I have a huge pile of " Lyme disease and Tick prevention and removal tips " for my students to take and read. I am trying to educate everyone in the school where I work about Lyme disease and co-infections. My friend put this informative sheet together as well as a " Lyme Flyer " , which lists symptoms and resources, web pages and other helpful tips. It is exactly what I wished I had when I started this journey when my daughter became ill. I keep a supply of both printouts in my over-sized purse and hand them out to everyone I come across whether they want them or not! Well, that might be a slight exaggeration, but I would do anything to help anyone from going though what my poor daughter has gone through, and continues to endure. I have even given them to complete strangers in the checkout line at Target. Fond thoughts to all who are supporting those who are suffering from Lyme and co-infections, especially those caregivers who are ill themselves. May all find comfort and health. batikquilt Quote Link to comment Share on other sites More sharing options...
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