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Caveat emptor! The biggest proponent of this is lymephotos. If you do a Google

of the two words - lymephotos hoax - you will find a lot of good information.

http://www.disease-information.com/showpost.php?p=28878 & postcount=3

" This website is a dangerous hoax set up by Ed McSweegan, the former

Lyme Program Officer at NIH who got booted out of his post for

harassing the directors of the Lyme Disease Foundation.

While in his post, McSweegan did everything in his power to ensure that

Lymies would never be able to get proper diagnosis and treatment. He

played an integral part in the revision of the CDC western blot

criteria to drastically reduce the numbes of people diagnosed, and he

helped to put the dangerous and ineffective LymeRix vaccine on the

market.

Why did he go to such trouble to set up this hoax? God only knows. But

it's an old trick that, if you want to cover up the truth about

something, you ridicule it in the hope that everyone will throw the

baby out with the bathwater. "

Fay

and

http://www.thehelparchive.com/new-880652-13.html

Reply by: de Groot -- Feb 21, 2004 02:46:07

" de Groot " <ask(at)privately.com.INVALID= Stone, the owner of

www.lymephotos.com is married to Bradley K Stone. Stone, (770) 552-9598,

335 Woodchuck Ct, Roswell, GA 30076This is where they

live:http://tinyurl.com/2r96gIf someone lives in their neighborhood, please do

something about themgiving lethal advice to Lyme patients.Her old email address

is danstone1(at)earthlink.net, which gives 973 hits onGoogle

groops.http://tinyurl.com/26a46As you see, she is quite a nutcase, cursing and

trolling on variousalternative-health and psychotheraphy groups,Various threats

back & forth are made, accusations of stalking, legalaction,Some stuff she

posted on sci.psychology.psychotherapy that applieswonderfully to her own

website: " When someone wishes to make lots of money without providing value,

whybother pouring salmoder into jars? You can make just as much moneytalking

without the hassle of manufacturing any product. The maindrawback is that

people are more suspicious when

there is nothingconcrete being given them for their money. Thus the need to

inventsome hocus-pocus that will make sense unless you inspect it tooclosely.

You tell me why an anecdote is useless when it comes totesting pharmaceuticals,

but not when it comes to talk therapy. Doyou think people are less accurate in

monitoring their physical statesthan their mental ones? "

Also

www.medscitalk.com/ftopic15754.html

lymephotos.com - Lyme Disease ... Well, the photos at the lymephotos website

certainly seem to be bogus, at least the ones I perused.

denise <kneecey53215@...> wrote:

have you heard of the vitamin c/salt protocol? ive read all about it &

wonder if its something we should try. cant seem to hurt as they are

both water soluble. access will flush out as long as you are drinking

alot of water.

any thoughts or experience with this? much love, denise

For up to date information about Lyme disease and the known co-infections

delivered to your email address see:

Robynns_Lyme_List/

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- you may want to check out this group if you are interested in

the Salt/C protocol:

lymestrategies/?yguid=63168856

As with most protocols not generated by the medical establishment,

this one is considered controversial in some circles. I find the group

to be very positive and upbeat despite many very ill members;

something that you don't see on many of the Lyme sites.

If nothing else, you can learn a lot about supplements and

naturopathic approaches. I enjoy this group very much. I don't think

Salt/C is particularly harmful for most people and so it may be worth

a try.

Diane

>

> have you heard of the vitamin c/salt protocol? ive read all about it

&

> wonder if its something we should try. cant seem to hurt as they are

> both water soluble. access will flush out as long as you are

drinking

> alot of water.

>

> any thoughts or experience with this? much love, denise

>

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This is serious disease and need serious new science and drugs to be

treated. If vitamin and salt would be solution than there would not be a

problem, no als patients at all. U can try to kill organism rebalancing

every mineral in a body and have hope treatment will kill organism

before killing Ypu.

Large amounts of salt are not safe, if You are on the sea You can`t

survive drinking salt water.

[ ] salt/vitamin c protocol

have you heard of the vitamin c/salt protocol? ive read all about it &

wonder if its something we should try. cant seem to hurt as they are

both water soluble. access will flush out as long as you are drinking

alot of water.

any thoughts or experience with this? much love, denise

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Thank you for pointing this out. What we need right now is some good science to

combat the misinformation and antiquated studies that are being referenced in

the media now.

wrotek@... wrote:This is serious disease and need serious new science and

drugs to be

treated. If vitamin and salt would be solution than there would not be a

problem, no als patients at all. U can try to kill organism rebalancing

every mineral in a body and have hope treatment will kill organism

before killing Ypu.

Large amounts of salt are not safe, if You are on the sea You can`t

survive drinking salt water.

[ ] salt/vitamin c protocol

have you heard of the vitamin c/salt protocol? ive read all about it &

wonder if its something we should try. cant seem to hurt as they are

both water soluble. access will flush out as long as you are drinking

alot of water.

any thoughts or experience with this? much love, denise

For up to date information about Lyme disease and the known co-infections

delivered to your email address see:

Robynns_Lyme_List/

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some seem to be skeptical & some swear on it.

i was very lucky & was able to speak to the owner just a few minutes

ago. i was able to access her phone number & call her.

she was very helpful & thinks i should start my aunt on the salt &

vitamin c right away. she is also very sweet & very knowledgable.

she has had lymes for 17 years & doesnt believe in the medical

profession anymore. i cant say i blame her. im loosing faith as well.

im going to be seeing my family in a couple weeks & we are all going

to sit down & talk about this. i want my aunt to start this treatment

immediately. i am excited to start it & cant wait.

im so glad i talked to her. i feel very confident about this!!!!!

please pray for us. i will keep you posted on results.

talk to you soon...much love, denise

>

> This is serious disease and need serious new science and drugs to be

> treated. If vitamin and salt would be solution than there would not

be a

> problem, no als patients at all. U can try to kill organism

rebalancing

> every mineral in a body and have hope treatment will kill organism

> before killing Ypu.

>

> Large amounts of salt are not safe, if You are on the sea You can`t

> survive drinking salt water.

>

>

>

> [ ] salt/vitamin c protocol

>

>

>

> have you heard of the vitamin c/salt protocol? ive read all about

it &

> wonder if its something we should try. cant seem to hurt as they

are

> both water soluble. access will flush out as long as you are

drinking

> alot of water.

>

> any thoughts or experience with this? much love, denise

>

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- I think you will find that many people willing to try

Salt/C are like your aunt; sick for many many years and

disillusioned with the medical establishment and its ability to

treat Lyme disease effectively.

Again, I have found the well-informed discussions of adjunct

therapies there interesting, helpful and varied. I know this

approach is not generally accepted in the mainstream but hopefully

there will be formal long-term empirical studies that emerge to

explore its effectiveness. Right now, most of the results are

anecdotally reported by members. The proof right now is in the

pudding!!

I am on the Salt/C protocol while continuing with antibiotics etc

under the supervision of my Lyme doc. Will share the results as I go

along. I think that the Lyme population as a group must be open to

consider alternate therapies, especially since the medical

establishment is so closed-minded. I hate to think that various Lyme

groups are as closed-minded as the docs in considering such

alternative therapies. It is because Lyme IS such a serious illness

and so many people are so incapacitated by it that these alternative

approaches are being explored.

As for serious science, you have to remember that serious science

brought us Vioxx,etc. Pharmaceutical studies are driven by profit

over the best interests of the consumer so I am not sure where 'good

science' is generated.

As always, the established scientific community will work hard to

maintain the status quo..that is the nature of organizations.

Getting sponsors to support the exploration of something like

Salt/C, which will probably not generate huge profits since it is so

cheap, doesn't draw much interest.

That is my personal take on the whole situation. We don't know what

we don't know and we don't know all that we need to. So, as far as I

am concerned, it pays to keep an open mind to every possibility.

Then you can use your own judgement etc to make a decision.

Diane

ears & doesnt believe in the medical

> profession anymore. i cant say i blame her. im loosing faith as

well.

>

> im going to be seeing my family in a couple weeks & we are all

going

> to sit down & talk about this. i want my aunt to start this

treatment

> immediately. i am excited to start it & cant wait.

>

> im so glad i talked to her. i feel very confident about this!!!!!

> please pray for us. i will keep you posted on results.

>

> talk to you soon...much love, denise

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ITs a mystery to me.

Of 500 who joined Marc's group, a small # are doing very well. Others

have some improvements attributable to the effect of salt and C on

blood volume, gut cleansing, lymph cleansing, and lowering of

cortisol. Others dropped out obviously, lots of folks were never

heard from again so they didn't do so well. Others claim they do well

then have herxes.

We don't know what their pathogen loads are. Many did abx previously

and who knows what was left in reality. I know that for me, even the

recommended doses don't do much. Oregano oil, now I'm on amoxicillin

for tooth stuff but its helping other stuff, or hyperbaric, all has a

much more powerful response, and I'm documented with lyme and

babesia, and not by Bowen Labs which I do not personally trust.

I don't think lymephotos is a fraud, and Stone is her name I

think, I don't know her # but I believe she's for real and is taking

a lot of salt/c and is doing better. Remember tho she did years of

abx. Who knows what was left that was actually bothering her.

My conclusion from all I've read is it is adjunctively helpful, more

so or less so on an individual basis.

>

> some seem to be skeptical & some swear on it.

>

> i was very lucky & was able to speak to the owner just a few

minutes

> ago. i was able to access her phone number & call her.

>

> she was very helpful & thinks i should start my aunt on the salt &

> vitamin c right away. she is also very sweet & very knowledgable.

>

> she has had lymes for 17 years & doesnt believe in the medical

> profession anymore. i cant say i blame her. im loosing faith as

well.

>

> im going to be seeing my family in a couple weeks & we are all

going

> to sit down & talk about this. i want my aunt to start this

treatment

> immediately. i am excited to start it & cant wait.

>

> im so glad i talked to her. i feel very confident about this!!!!!

> please pray for us. i will keep you posted on results.

>

> talk to you soon...much love, denise

>

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u can be instrested In TAO free cat's claw (Uncaria tomentosa). ,

please read on flash.lymenet.org in newbie database.

I was doing it but in very small dose, but now I would trythis in drops

(the best concentration) but I am on the Marshall Protocol at the

moment. If MP somehow won`t work I will do uncaria myself.

[ ] Re: salt/vitamin c protocol

some seem to be skeptical & some swear on it.

i was very lucky & was able to speak to the owner just a few minutes

ago. i was able to access her phone number & call her.

she was very helpful & thinks i should start my aunt on the salt &

vitamin c right away. she is also very sweet & very knowledgable.

she has had lymes for 17 years & doesnt believe in the medical

profession anymore. i cant say i blame her. im loosing faith as well.

im going to be seeing my family in a couple weeks & we are all going

to sit down & talk about this. i want my aunt to start this treatment

immediately. i am excited to start it & cant wait.

im so glad i talked to her. i feel very confident about this!!!!!

please pray for us. i will keep you posted on results.

talk to you soon...much love, denise

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Good Post Diane, you speak the truth.

-------Original Message-------

From: Diane

<snip>

That is my personal take on the whole situation. We don't know what

we don't know and we don't know all that we need to. So, as far as I

am concerned, it pays to keep an open mind to every possibility.

Then you can use your own judgement etc to make a decision.

Diane

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Jill - that is my impression as well. My doc has done a cd 57 and

will also be getting a babesia smear in the next week. I believe we

are going to use these measures to monitor. What else measures the

bacterial load?

Diane

> >

> > some seem to be skeptical & some swear on it.

> >

> > i was very lucky & was able to speak to the owner just a few

> minutes

> > ago. i was able to access her phone number & call her.

> >

> > she was very helpful & thinks i should start my aunt on the salt

&

> > vitamin c right away. she is also very sweet & very knowledgable.

> >

> > she has had lymes for 17 years & doesnt believe in the medical

> > profession anymore. i cant say i blame her. im loosing faith as

> well.

> >

> > im going to be seeing my family in a couple weeks & we are all

> going

> > to sit down & talk about this. i want my aunt to start this

> treatment

> > immediately. i am excited to start it & cant wait.

> >

> > im so glad i talked to her. i feel very confident about this!!!!!

> > please pray for us. i will keep you posted on results.

> >

> > talk to you soon...much love, denise

> >

>

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Wrotek - I would be very interested to see how the Marshall Protocol

works for you and anyone else who tries it. I don't think there are

any outcome statistics available as yet so the results are anecdotal

so far.

Diane

>

> u can be instrested In TAO free cat's claw (Uncaria

tomentosa). ,

> please read on flash.lymenet.org in newbie database.

>

> I was doing it but in very small dose, but now I would trythis in

drops

> (the best concentration) but I am on the Marshall Protocol at the

> moment. If MP somehow won`t work I will do uncaria myself.

>

>

>

>

>

> [ ] Re: salt/vitamin c protocol

>

>

>

> some seem to be skeptical & some swear on it.

>

> i was very lucky & was able to speak to the owner just a few

minutes

> ago. i was able to access her phone number & call her.

>

> she was very helpful & thinks i should start my aunt on the salt &

> vitamin c right away. she is also very sweet & very knowledgable.

>

> she has had lymes for 17 years & doesnt believe in the medical

> profession anymore. i cant say i blame her. im loosing faith as

well.

>

> im going to be seeing my family in a couple weeks & we are all

going

> to sit down & talk about this. i want my aunt to start this

treatment

> immediately. i am excited to start it & cant wait.

>

> im so glad i talked to her. i feel very confident about this!!!!!

> please pray for us. i will keep you posted on results.

>

> talk to you soon...much love, denise

>

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I would imagine the best measure of bacterial load is clinical--i.e.

your symptoms. Consider that there is individual genetics

(inflammatory response to borrelia, babesia etc, based on genetics;

as well as genetically how well you handle a pathogen), the virulence

of a strain (varies markedly), whether you have several strains, as

well as several coinfections...its all rather confusing.

>

> Jill - that is my impression as well. My doc has done a cd 57 and

> will also be getting a babesia smear in the next week. I believe we

> are going to use these measures to monitor. What else measures the

> bacterial load?

>

> Diane

>

>

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i really appreciate that diane. best of luck & i hope you can

recover. im glad that youve kept an open mind through all of this. i

think it may just pay off :) much loce, denise

>

> - I think you will find that many people willing to try

> Salt/C are like your aunt; sick for many many years and

> disillusioned with the medical establishment and its ability to

> treat Lyme disease effectively.

>

>

> Again, I have found the well-informed discussions of adjunct

> therapies there interesting, helpful and varied. I know this

> approach is not generally accepted in the mainstream but hopefully

> there will be formal long-term empirical studies that emerge to

> explore its effectiveness. Right now, most of the results are

> anecdotally reported by members. The proof right now is in the

> pudding!!

>

> I am on the Salt/C protocol while continuing with antibiotics etc

> under the supervision of my Lyme doc. Will share the results as I

go

> along. I think that the Lyme population as a group must be open to

> consider alternate therapies, especially since the medical

> establishment is so closed-minded. I hate to think that various

Lyme

> groups are as closed-minded as the docs in considering such

> alternative therapies. It is because Lyme IS such a serious illness

> and so many people are so incapacitated by it that these

alternative

> approaches are being explored.

>

> As for serious science, you have to remember that serious science

> brought us Vioxx,etc. Pharmaceutical studies are driven by profit

> over the best interests of the consumer so I am not sure

where 'good

> science' is generated.

>

> As always, the established scientific community will work hard to

> maintain the status quo..that is the nature of organizations.

> Getting sponsors to support the exploration of something like

> Salt/C, which will probably not generate huge profits since it is

so

> cheap, doesn't draw much interest.

>

> That is my personal take on the whole situation. We don't know what

> we don't know and we don't know all that we need to. So, as far as

I

> am concerned, it pays to keep an open mind to every possibility.

> Then you can use your own judgement etc to make a decision.

>

> Diane

>

>

> ears & doesnt believe in the medical

> > profession anymore. i cant say i blame her. im loosing faith as

> well.

> >

> > im going to be seeing my family in a couple weeks & we are all

> going

> > to sit down & talk about this. i want my aunt to start this

> treatment

> > immediately. i am excited to start it & cant wait.

> >

> > im so glad i talked to her. i feel very confident about this!!!!!

> > please pray for us. i will keep you posted on results.

> >

> > talk to you soon...much love, denise

>

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  • 2 years later...
Guest guest

My wife is using it now. It is giving her good results but she is also using

some other natural regimes too. Specifically 104F hot tub soaks and hot

epsom salt baths. Along with grapefruit seed extract and magnesium

supplements.

There is a separate group that discusses salt/c at

lymestrategies/

> [ ] Salt/Vitamin C Protocol

>

> Just wondering if anyone has tried the salt and vitamin c

> protocol I've

> been reading about.

>

>

> -------

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Guest guest

Yes. It's not adviseable for anyone who has compromised adrenal

function -- which is many of us.

It sent me to bed for three months, in the worst tailspin I've had in

the past three years.

I also know a number of other people who've also had serious problems

with it (I was part of a CFS support group where several of us tried

it over the course of a year). Several of us ended up much worse off

than before; and at least one of our number ended up in the hospital.

I could not recommend it to anyone in good conscience.

Sara

On Jul 7, 2008, at 10:10 AM, isedate2001 wrote:

> Just wondering if anyone has tried the salt and vitamin c protocol

> I've

> been reading about.

>

>

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Guest guest

Yes - I am doing it in combination with doxycycline. The protocol says

once an hour for 18 hours but the most I have been able to do it is 8

times a day for a few days. My herxes were so bad I would have to ease

off, then start again, and I don't think my kidneys could handle any

more salt in a day. It's inexpensive and fairly easy to do. Watch your

blood pressure. Mine is typically low, so I wasn't worried.

>

> Just wondering if anyone has tried the salt and vitamin c protocol I've

> been reading about.

>

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  • 4 months later...

We like both, but not protocols as such. I am not a big fan of most

protocols, as often do not take into account personal

idiosyncrasies/needs. Lemon water has been a regular & often daily

part of our " diet " for years. (way back when, we had intolerance

issues with vit C supps & this was my answer ;) Also, I now swish

with lemon juice occasionally, esp. when battling sinus/teeth/poss

cold & flu issues - helps immensely. High vit C foods are big here, but

generally not the citrus types. Have occasional " inhaling " of

oranges/grapefruit/etc, but tends to be during winter (like now! ;)

And the salt - totally chuckling, we just like salt...wishing you the

best, elizabeth

>

> any advice or stories to share about vitamin c/salt protocol?

>

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