Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Caveat emptor! The biggest proponent of this is lymephotos. If you do a Google of the two words - lymephotos hoax - you will find a lot of good information. http://www.disease-information.com/showpost.php?p=28878 & postcount=3 " This website is a dangerous hoax set up by Ed McSweegan, the former Lyme Program Officer at NIH who got booted out of his post for harassing the directors of the Lyme Disease Foundation. While in his post, McSweegan did everything in his power to ensure that Lymies would never be able to get proper diagnosis and treatment. He played an integral part in the revision of the CDC western blot criteria to drastically reduce the numbes of people diagnosed, and he helped to put the dangerous and ineffective LymeRix vaccine on the market. Why did he go to such trouble to set up this hoax? God only knows. But it's an old trick that, if you want to cover up the truth about something, you ridicule it in the hope that everyone will throw the baby out with the bathwater. " Fay and http://www.thehelparchive.com/new-880652-13.html Reply by: de Groot -- Feb 21, 2004 02:46:07 " de Groot " <ask(at)privately.com.INVALID= Stone, the owner of www.lymephotos.com is married to Bradley K Stone. Stone, (770) 552-9598, 335 Woodchuck Ct, Roswell, GA 30076This is where they live:http://tinyurl.com/2r96gIf someone lives in their neighborhood, please do something about themgiving lethal advice to Lyme patients.Her old email address is danstone1(at)earthlink.net, which gives 973 hits onGoogle groops.http://tinyurl.com/26a46As you see, she is quite a nutcase, cursing and trolling on variousalternative-health and psychotheraphy groups,Various threats back & forth are made, accusations of stalking, legalaction,Some stuff she posted on sci.psychology.psychotherapy that applieswonderfully to her own website: " When someone wishes to make lots of money without providing value, whybother pouring salmoder into jars? You can make just as much moneytalking without the hassle of manufacturing any product. The maindrawback is that people are more suspicious when there is nothingconcrete being given them for their money. Thus the need to inventsome hocus-pocus that will make sense unless you inspect it tooclosely. You tell me why an anecdote is useless when it comes totesting pharmaceuticals, but not when it comes to talk therapy. Doyou think people are less accurate in monitoring their physical statesthan their mental ones? " Also www.medscitalk.com/ftopic15754.html lymephotos.com - Lyme Disease ... Well, the photos at the lymephotos website certainly seem to be bogus, at least the ones I perused. denise <kneecey53215@...> wrote: have you heard of the vitamin c/salt protocol? ive read all about it & wonder if its something we should try. cant seem to hurt as they are both water soluble. access will flush out as long as you are drinking alot of water. any thoughts or experience with this? much love, denise For up to date information about Lyme disease and the known co-infections delivered to your email address see: Robynns_Lyme_List/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 - you may want to check out this group if you are interested in the Salt/C protocol: lymestrategies/?yguid=63168856 As with most protocols not generated by the medical establishment, this one is considered controversial in some circles. I find the group to be very positive and upbeat despite many very ill members; something that you don't see on many of the Lyme sites. If nothing else, you can learn a lot about supplements and naturopathic approaches. I enjoy this group very much. I don't think Salt/C is particularly harmful for most people and so it may be worth a try. Diane > > have you heard of the vitamin c/salt protocol? ive read all about it & > wonder if its something we should try. cant seem to hurt as they are > both water soluble. access will flush out as long as you are drinking > alot of water. > > any thoughts or experience with this? much love, denise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 This is serious disease and need serious new science and drugs to be treated. If vitamin and salt would be solution than there would not be a problem, no als patients at all. U can try to kill organism rebalancing every mineral in a body and have hope treatment will kill organism before killing Ypu. Large amounts of salt are not safe, if You are on the sea You can`t survive drinking salt water. [ ] salt/vitamin c protocol have you heard of the vitamin c/salt protocol? ive read all about it & wonder if its something we should try. cant seem to hurt as they are both water soluble. access will flush out as long as you are drinking alot of water. any thoughts or experience with this? much love, denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Thank you for pointing this out. What we need right now is some good science to combat the misinformation and antiquated studies that are being referenced in the media now. wrotek@... wrote:This is serious disease and need serious new science and drugs to be treated. If vitamin and salt would be solution than there would not be a problem, no als patients at all. U can try to kill organism rebalancing every mineral in a body and have hope treatment will kill organism before killing Ypu. Large amounts of salt are not safe, if You are on the sea You can`t survive drinking salt water. [ ] salt/vitamin c protocol have you heard of the vitamin c/salt protocol? ive read all about it & wonder if its something we should try. cant seem to hurt as they are both water soluble. access will flush out as long as you are drinking alot of water. any thoughts or experience with this? much love, denise For up to date information about Lyme disease and the known co-infections delivered to your email address see: Robynns_Lyme_List/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 some seem to be skeptical & some swear on it. i was very lucky & was able to speak to the owner just a few minutes ago. i was able to access her phone number & call her. she was very helpful & thinks i should start my aunt on the salt & vitamin c right away. she is also very sweet & very knowledgable. she has had lymes for 17 years & doesnt believe in the medical profession anymore. i cant say i blame her. im loosing faith as well. im going to be seeing my family in a couple weeks & we are all going to sit down & talk about this. i want my aunt to start this treatment immediately. i am excited to start it & cant wait. im so glad i talked to her. i feel very confident about this!!!!! please pray for us. i will keep you posted on results. talk to you soon...much love, denise > > This is serious disease and need serious new science and drugs to be > treated. If vitamin and salt would be solution than there would not be a > problem, no als patients at all. U can try to kill organism rebalancing > every mineral in a body and have hope treatment will kill organism > before killing Ypu. > > Large amounts of salt are not safe, if You are on the sea You can`t > survive drinking salt water. > > > > [ ] salt/vitamin c protocol > > > > have you heard of the vitamin c/salt protocol? ive read all about it & > wonder if its something we should try. cant seem to hurt as they are > both water soluble. access will flush out as long as you are drinking > alot of water. > > any thoughts or experience with this? much love, denise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 - I think you will find that many people willing to try Salt/C are like your aunt; sick for many many years and disillusioned with the medical establishment and its ability to treat Lyme disease effectively. Again, I have found the well-informed discussions of adjunct therapies there interesting, helpful and varied. I know this approach is not generally accepted in the mainstream but hopefully there will be formal long-term empirical studies that emerge to explore its effectiveness. Right now, most of the results are anecdotally reported by members. The proof right now is in the pudding!! I am on the Salt/C protocol while continuing with antibiotics etc under the supervision of my Lyme doc. Will share the results as I go along. I think that the Lyme population as a group must be open to consider alternate therapies, especially since the medical establishment is so closed-minded. I hate to think that various Lyme groups are as closed-minded as the docs in considering such alternative therapies. It is because Lyme IS such a serious illness and so many people are so incapacitated by it that these alternative approaches are being explored. As for serious science, you have to remember that serious science brought us Vioxx,etc. Pharmaceutical studies are driven by profit over the best interests of the consumer so I am not sure where 'good science' is generated. As always, the established scientific community will work hard to maintain the status quo..that is the nature of organizations. Getting sponsors to support the exploration of something like Salt/C, which will probably not generate huge profits since it is so cheap, doesn't draw much interest. That is my personal take on the whole situation. We don't know what we don't know and we don't know all that we need to. So, as far as I am concerned, it pays to keep an open mind to every possibility. Then you can use your own judgement etc to make a decision. Diane ears & doesnt believe in the medical > profession anymore. i cant say i blame her. im loosing faith as well. > > im going to be seeing my family in a couple weeks & we are all going > to sit down & talk about this. i want my aunt to start this treatment > immediately. i am excited to start it & cant wait. > > im so glad i talked to her. i feel very confident about this!!!!! > please pray for us. i will keep you posted on results. > > talk to you soon...much love, denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 ITs a mystery to me. Of 500 who joined Marc's group, a small # are doing very well. Others have some improvements attributable to the effect of salt and C on blood volume, gut cleansing, lymph cleansing, and lowering of cortisol. Others dropped out obviously, lots of folks were never heard from again so they didn't do so well. Others claim they do well then have herxes. We don't know what their pathogen loads are. Many did abx previously and who knows what was left in reality. I know that for me, even the recommended doses don't do much. Oregano oil, now I'm on amoxicillin for tooth stuff but its helping other stuff, or hyperbaric, all has a much more powerful response, and I'm documented with lyme and babesia, and not by Bowen Labs which I do not personally trust. I don't think lymephotos is a fraud, and Stone is her name I think, I don't know her # but I believe she's for real and is taking a lot of salt/c and is doing better. Remember tho she did years of abx. Who knows what was left that was actually bothering her. My conclusion from all I've read is it is adjunctively helpful, more so or less so on an individual basis. > > some seem to be skeptical & some swear on it. > > i was very lucky & was able to speak to the owner just a few minutes > ago. i was able to access her phone number & call her. > > she was very helpful & thinks i should start my aunt on the salt & > vitamin c right away. she is also very sweet & very knowledgable. > > she has had lymes for 17 years & doesnt believe in the medical > profession anymore. i cant say i blame her. im loosing faith as well. > > im going to be seeing my family in a couple weeks & we are all going > to sit down & talk about this. i want my aunt to start this treatment > immediately. i am excited to start it & cant wait. > > im so glad i talked to her. i feel very confident about this!!!!! > please pray for us. i will keep you posted on results. > > talk to you soon...much love, denise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 u can be instrested In TAO free cat's claw (Uncaria tomentosa). , please read on flash.lymenet.org in newbie database. I was doing it but in very small dose, but now I would trythis in drops (the best concentration) but I am on the Marshall Protocol at the moment. If MP somehow won`t work I will do uncaria myself. [ ] Re: salt/vitamin c protocol some seem to be skeptical & some swear on it. i was very lucky & was able to speak to the owner just a few minutes ago. i was able to access her phone number & call her. she was very helpful & thinks i should start my aunt on the salt & vitamin c right away. she is also very sweet & very knowledgable. she has had lymes for 17 years & doesnt believe in the medical profession anymore. i cant say i blame her. im loosing faith as well. im going to be seeing my family in a couple weeks & we are all going to sit down & talk about this. i want my aunt to start this treatment immediately. i am excited to start it & cant wait. im so glad i talked to her. i feel very confident about this!!!!! please pray for us. i will keep you posted on results. talk to you soon...much love, denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Good Post Diane, you speak the truth. -------Original Message------- From: Diane <snip> That is my personal take on the whole situation. We don't know what we don't know and we don't know all that we need to. So, as far as I am concerned, it pays to keep an open mind to every possibility. Then you can use your own judgement etc to make a decision. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Jill - that is my impression as well. My doc has done a cd 57 and will also be getting a babesia smear in the next week. I believe we are going to use these measures to monitor. What else measures the bacterial load? Diane > > > > some seem to be skeptical & some swear on it. > > > > i was very lucky & was able to speak to the owner just a few > minutes > > ago. i was able to access her phone number & call her. > > > > she was very helpful & thinks i should start my aunt on the salt & > > vitamin c right away. she is also very sweet & very knowledgable. > > > > she has had lymes for 17 years & doesnt believe in the medical > > profession anymore. i cant say i blame her. im loosing faith as > well. > > > > im going to be seeing my family in a couple weeks & we are all > going > > to sit down & talk about this. i want my aunt to start this > treatment > > immediately. i am excited to start it & cant wait. > > > > im so glad i talked to her. i feel very confident about this!!!!! > > please pray for us. i will keep you posted on results. > > > > talk to you soon...much love, denise > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Wrotek - I would be very interested to see how the Marshall Protocol works for you and anyone else who tries it. I don't think there are any outcome statistics available as yet so the results are anecdotal so far. Diane > > u can be instrested In TAO free cat's claw (Uncaria tomentosa). , > please read on flash.lymenet.org in newbie database. > > I was doing it but in very small dose, but now I would trythis in drops > (the best concentration) but I am on the Marshall Protocol at the > moment. If MP somehow won`t work I will do uncaria myself. > > > > > > [ ] Re: salt/vitamin c protocol > > > > some seem to be skeptical & some swear on it. > > i was very lucky & was able to speak to the owner just a few minutes > ago. i was able to access her phone number & call her. > > she was very helpful & thinks i should start my aunt on the salt & > vitamin c right away. she is also very sweet & very knowledgable. > > she has had lymes for 17 years & doesnt believe in the medical > profession anymore. i cant say i blame her. im loosing faith as well. > > im going to be seeing my family in a couple weeks & we are all going > to sit down & talk about this. i want my aunt to start this treatment > immediately. i am excited to start it & cant wait. > > im so glad i talked to her. i feel very confident about this!!!!! > please pray for us. i will keep you posted on results. > > talk to you soon...much love, denise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 I would imagine the best measure of bacterial load is clinical--i.e. your symptoms. Consider that there is individual genetics (inflammatory response to borrelia, babesia etc, based on genetics; as well as genetically how well you handle a pathogen), the virulence of a strain (varies markedly), whether you have several strains, as well as several coinfections...its all rather confusing. > > Jill - that is my impression as well. My doc has done a cd 57 and > will also be getting a babesia smear in the next week. I believe we > are going to use these measures to monitor. What else measures the > bacterial load? > > Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 i really appreciate that diane. best of luck & i hope you can recover. im glad that youve kept an open mind through all of this. i think it may just pay off much loce, denise > > - I think you will find that many people willing to try > Salt/C are like your aunt; sick for many many years and > disillusioned with the medical establishment and its ability to > treat Lyme disease effectively. > > > Again, I have found the well-informed discussions of adjunct > therapies there interesting, helpful and varied. I know this > approach is not generally accepted in the mainstream but hopefully > there will be formal long-term empirical studies that emerge to > explore its effectiveness. Right now, most of the results are > anecdotally reported by members. The proof right now is in the > pudding!! > > I am on the Salt/C protocol while continuing with antibiotics etc > under the supervision of my Lyme doc. Will share the results as I go > along. I think that the Lyme population as a group must be open to > consider alternate therapies, especially since the medical > establishment is so closed-minded. I hate to think that various Lyme > groups are as closed-minded as the docs in considering such > alternative therapies. It is because Lyme IS such a serious illness > and so many people are so incapacitated by it that these alternative > approaches are being explored. > > As for serious science, you have to remember that serious science > brought us Vioxx,etc. Pharmaceutical studies are driven by profit > over the best interests of the consumer so I am not sure where 'good > science' is generated. > > As always, the established scientific community will work hard to > maintain the status quo..that is the nature of organizations. > Getting sponsors to support the exploration of something like > Salt/C, which will probably not generate huge profits since it is so > cheap, doesn't draw much interest. > > That is my personal take on the whole situation. We don't know what > we don't know and we don't know all that we need to. So, as far as I > am concerned, it pays to keep an open mind to every possibility. > Then you can use your own judgement etc to make a decision. > > Diane > > > ears & doesnt believe in the medical > > profession anymore. i cant say i blame her. im loosing faith as > well. > > > > im going to be seeing my family in a couple weeks & we are all > going > > to sit down & talk about this. i want my aunt to start this > treatment > > immediately. i am excited to start it & cant wait. > > > > im so glad i talked to her. i feel very confident about this!!!!! > > please pray for us. i will keep you posted on results. > > > > talk to you soon...much love, denise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 My wife is using it now. It is giving her good results but she is also using some other natural regimes too. Specifically 104F hot tub soaks and hot epsom salt baths. Along with grapefruit seed extract and magnesium supplements. There is a separate group that discusses salt/c at lymestrategies/ > [ ] Salt/Vitamin C Protocol > > Just wondering if anyone has tried the salt and vitamin c > protocol I've > been reading about. > > > ------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Yes. It's not adviseable for anyone who has compromised adrenal function -- which is many of us. It sent me to bed for three months, in the worst tailspin I've had in the past three years. I also know a number of other people who've also had serious problems with it (I was part of a CFS support group where several of us tried it over the course of a year). Several of us ended up much worse off than before; and at least one of our number ended up in the hospital. I could not recommend it to anyone in good conscience. Sara On Jul 7, 2008, at 10:10 AM, isedate2001 wrote: > Just wondering if anyone has tried the salt and vitamin c protocol > I've > been reading about. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Yes - I am doing it in combination with doxycycline. The protocol says once an hour for 18 hours but the most I have been able to do it is 8 times a day for a few days. My herxes were so bad I would have to ease off, then start again, and I don't think my kidneys could handle any more salt in a day. It's inexpensive and fairly easy to do. Watch your blood pressure. Mine is typically low, so I wasn't worried. > > Just wondering if anyone has tried the salt and vitamin c protocol I've > been reading about. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 any advice or stories to share about vitamin c/salt protocol? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 We like both, but not protocols as such. I am not a big fan of most protocols, as often do not take into account personal idiosyncrasies/needs. Lemon water has been a regular & often daily part of our " diet " for years. (way back when, we had intolerance issues with vit C supps & this was my answer Also, I now swish with lemon juice occasionally, esp. when battling sinus/teeth/poss cold & flu issues - helps immensely. High vit C foods are big here, but generally not the citrus types. Have occasional " inhaling " of oranges/grapefruit/etc, but tends to be during winter (like now! And the salt - totally chuckling, we just like salt...wishing you the best, elizabeth > > any advice or stories to share about vitamin c/salt protocol? > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.