Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 I hope you and others try not to get too discouraged. It seems that there are alot of sad stories out there, but there are also some successes. The disease is manageable and now there is so much information out there, thanks to the internet, that more and more people are becoming aware of it and taking charge of their own health. I am in the process of composing a letter regarding my son's case and the disease itself (Oprah, Parents Magazine, as well as others). My goal is to get the information out to the general public, in the hopes of getting cholesteatoma on the map. I wasn't able to work on it during the holidays, but now that I have more time, I hope to finish it this month. I will keep you posted. Take care and God bless you. Terri Thank you > Thank you Kim and Terri and everyone else who is reading and caring > and stops to say a small prayer... > > I appreciate your frankness and concern. It helps so much just to > connect to another right now. > > Zach's Cat scan is first thing tomorrow, Wednesday. They said ENT > should have his results by Thursday. I am happy with the way it is > all being handled so far and am going to spend the next couple horrid > days of waiting to get my household organized, as I realize things > may get disrupted next week if we are to be driving to Children's > Memorial. > > I know what this all depends on is if the ENT's suspicion is correct > and if so, how extensive is the mass. > > I will post more as soon as I get info! The internet is wonderful > for people to get together for support with uncommon things such this > c-toma. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 This is by far THE BEST group I've joined. I posted about Muellen Garlic Oil with St 's Wart for ear infection a couple weeks back, we used it for 2 weeks and the infections was gone. We fired the Dr. who wanted to give us an even stronger anti biotic even after we told her that after the 1st round, my dd can no longer tolerate infant formula. We got a better Dr. this time who said to wait and see b/c the infection was not that bad and the oil wouldn't hurt and empower us to give it a try. Thank you group for all your advices Quote Link to comment Share on other sites More sharing options...
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