Re: Krigsman and then what??

[Guest guest]

It sounds like Krigsman may be one of the few GI docs that gets the

gut/autism connection in many cases. My problem with him, and other

ground breakers like him, such as Neubrander, Yasko etc, to name a

few, is that they do " get " it in a big way on a lot of things, and

have done some really good research, and have come up with some great

treatments, anti inflammatory gut healing, B12, HBOT, the whole

genetic approach, the gut approach, whatever their particular " forte "

happens to be, and for this research, I say " kudos " to them. But,

however, my problem is, they charge what appear to be exorbitant fees,

and in this way seem as exploitative in terms of money as mainstream

docs that push the shots and big Pharma drugs, IMHO. Ok, I know the

difference is, their treatments, may actually help your kid.

I know there are those who will say, they came up with the treatment,

so they can charge what they want. Ok, I guess they can. But they are

charging desperate parents a lot of money, and they know that a lot of

it is not covered by insurance, and most of us just can't afford their

treatments and pay for supps too. And, I would have to ask myself,

every minute is everything they are pushing really something my kid

needs, or is this just a money maker? We had this experience with

some prior well regarded DAN docs, who pushed certain things on us,

for questionable reasons. I guess my mistake is thinking that if you

do this vital research and go against the vast majority of your

profession in helping unravel the puzzle of autism, that you might

have more altruistic motives, and want to reach and help as many

parents as you can, not only those who are willing and able to fork

over hefty fees.

It seems I am starting to adopt Andy's disdain for the medical

profession I guess. I keep hoping that chelation will continue to

provide benefits for my child along with the other supplements and

anti virals. I know there are many here who have healed and are

healing their kids without the benefit of scopes etc, such as Dana,

and having great success. They are a beacon of hope to me and my family.

Irene

[Guest guest]

Well said, Irene. I could not have said it better myself.

I feel that if their motivation was to truly help these kids, they would and

they wouldn't be charging such exorbitant fees to do so. They're laughing

all the way to the bank while we're eating ramen noodles and kraft macaroni

and cheese.

I guess that's the difference between these doctors and many parents like us

- we share what we know without charging a dime for it. I have spent

countless amounts of time answering emails and talking to strangers on the

phone trying to help other parents - and don't expect or want anything for

it - I just have hope that the parents that all of us help pay it forward to

the next parent who needs help. Making a living is one thing, gouging

parents who are broke and going farther and farther into debt.. well, I just

don't know what to really say to accurately describe the way I feel about

that.

From: [mailto: ]

On Behalf Of iflow97

Sent: Friday, November 21, 2008 4:29 PM

Subject: [ ] RE: Krigsman and then what??

It sounds like Krigsman may be one of the few GI docs that gets the

gut/autism connection in many cases. My problem with him, and other

ground breakers like him, such as Neubrander, Yasko etc, to name a

few, is that they do " get " it in a big way on a lot of things, and

have done some really good research, and have come up with some great

treatments, anti inflammatory gut healing, B12, HBOT, the whole

genetic approach, the gut approach, whatever their particular " forte "

happens to be, and for this research, I say " kudos " to them. But,

however, my problem is, they charge what appear to be exorbitant fees,

and in this way seem as exploitative in terms of money as mainstream

docs that push the shots and big Pharma drugs, IMHO. Ok, I know the

difference is, their treatments, may actually help your kid.

I know there are those who will say, they came up with the treatment,

so they can charge what they want. Ok, I guess they can. But they are

charging desperate parents a lot of money, and they know that a lot of

it is not covered by insurance, and most of us just can't afford their

treatments and pay for supps too. And, I would have to ask myself,

every minute is everything they are pushing really something my kid

needs, or is this just a money maker? We had this experience with

some prior well regarded DAN docs, who pushed certain things on us,

for questionable reasons. I guess my mistake is thinking that if you

do this vital research and go against the vast majority of your

profession in helping unravel the puzzle of autism, that you might

have more altruistic motives, and want to reach and help as many

parents as you can, not only those who are willing and able to fork

over hefty fees.

It seems I am starting to adopt Andy's disdain for the medical

profession I guess. I keep hoping that chelation will continue to

provide benefits for my child along with the other supplements and

anti virals. I know there are many here who have healed and are

healing their kids without the benefit of scopes etc, such as Dana,

and having great success. They are a beacon of hope to me and my family.

Irene

[Guest guest]

Irene, I have that same disdain myself now. Whatever happen to being a

human being? I think it's almost criminal to exploit parents for these

sums of money to find out what they already know sometimes.

We had a DAN who wanted $500 just to see us, which required traveling,

and that fee did not include ANY testing, nor looking at ANY testing

we already had done. We would have to pay extra for that.

I thought about it and said for what? I already know the child is

metal toxic. I don't need to pay this guy to tell me that.

We saw a few specialists in our area and that was with insurance, and

they were useless. I got 'this is the way your kid is born', 'there's

not much you can do', 'his brain is just wired different'. Stupid crap

like that, despite the fact that his hair was pretty much made of LEAD

and Antimony and Arsenic and silver, tin, cadmium, But everyone I

showed the test too..dismissed. No way that could be the problem.

Rather than deal with it, they ignored it.

I went through the same thing with my daughter's thyroid. No way that

could be the problem, even though the labs say it is.

I guess, I'm saying tread carefully with doctors, be aware of how much

money they are charging you and what you will receive for that amount.

Honestly, if I were one of these breakthrough doctors, I would not be

putting profits ahead of the kids. Just like I don't charge anyone

here for any resources I provide them, or any help.

Making a living is one thing, robbing the innocent and sick is another.

I have not seen the doctor in question, hopefully someone has and can

help her make a good choice. But honestly, what i have found is either

you get no answers or you find out what you already know.

These kids have gut pathogens. yeast, bacteria, parasites. Those

things cause inflammation. will drugs help that?..I don't know. Will

removing the parasites, bacteria and yeast..yes. Will changing the

diet? yes.

But I tend to agree that if some of the doctors motivations were true,

they would not be charging insane amounts of money. Some of them see

our kids as cash cows. That is how oncologist see cancer

patients....as money. Also beware of what claims are made to you. Do

they promise cure? Treatment? Do they push supplements they also sell?

Look for conflicts of interest with pharma companies and hospitals and

grant money etc. Is the place a revolving door or patients? Do they

spent more than 3 minutes with you? Are they listening too you and

respecting you? Are they working with your or telling you what to do?

Is what they are doing, something you can do yourself?

Many things to consider.

And as always Trust your Gut! If you get a bad vibe, then trust it. If

you felt uneasy with the doctor, then trust that as your sign to leave.

>

> Well said, Irene. I could not have said it better myself.

>

>

>

> I feel that if their motivation was to truly help these kids, they

would and

> they wouldn't be charging such exorbitant fees to do so. They're

laughing

> all the way to the bank while we're eating ramen noodles and kraft

macaroni

> and cheese.

>

>

>

> I guess that's the difference between these doctors and many parents

like us

> - we share what we know without charging a dime for it. I have spent

> countless amounts of time answering emails and talking to strangers

on the

> phone trying to help other parents - and don't expect or want

anything for

> it - I just have hope that the parents that all of us help pay it

forward to

> the next parent who needs help. Making a living is one thing, gouging

> parents who are broke and going farther and farther into debt..

well, I just

> don't know what to really say to accurately describe the way I feel

about

> that.

>

>

>

> From:

[mailto: ]

> On Behalf Of iflow97

> Sent: Friday, November 21, 2008 4:29 PM

>

> Subject: [ ] RE: Krigsman and then what??

>

>

>

> It sounds like Krigsman may be one of the few GI docs that gets the

> gut/autism connection in many cases. My problem with him, and other

> ground breakers like him, such as Neubrander, Yasko etc, to name a

> few, is that they do " get " it in a big way on a lot of things, and

> have done some really good research, and have come up with some great

> treatments, anti inflammatory gut healing, B12, HBOT, the whole

> genetic approach, the gut approach, whatever their particular " forte "

> happens to be, and for this research, I say " kudos " to them. But,

> however, my problem is, they charge what appear to be exorbitant fees,

> and in this way seem as exploitative in terms of money as mainstream

> docs that push the shots and big Pharma drugs, IMHO. Ok, I know the

> difference is, their treatments, may actually help your kid.

>

> I know there are those who will say, they came up with the treatment,

> so they can charge what they want. Ok, I guess they can. But they are

> charging desperate parents a lot of money, and they know that a lot of

> it is not covered by insurance, and most of us just can't afford their

> treatments and pay for supps too. And, I would have to ask myself,

> every minute is everything they are pushing really something my kid

> needs, or is this just a money maker? We had this experience with

> some prior well regarded DAN docs, who pushed certain things on us,

> for questionable reasons. I guess my mistake is thinking that if you

> do this vital research and go against the vast majority of your

> profession in helping unravel the puzzle of autism, that you might

> have more altruistic motives, and want to reach and help as many

> parents as you can, not only those who are willing and able to fork

> over hefty fees.

>

> It seems I am starting to adopt Andy's disdain for the medical

> profession I guess. I keep hoping that chelation will continue to

> provide benefits for my child along with the other supplements and

> anti virals. I know there are many here who have healed and are

> healing their kids without the benefit of scopes etc, such as Dana,

> and having great success. They are a beacon of hope to me and my family.

>

> Irene

>

>

>

>

>

>

[Guest guest]

I reread what I just wrote and I want to make sure that I clarify

that when I said " Is it too much trouble to give them relief from

their gastro issues? " I am refering to the doctors in our society. I

am not referring to mothers. I know that all our kids are different

and the Dr. K approach is not the way to go for all and I know that

all of us mothers are consistantly going to " too much trouble " for

our kids. I am not suggesting if you haven't seen Dr. K that it is

because it is too much trouble. I am saying if we have an autistic

child with gut issues that can not be helped with diet alone, why in

our society is it so difficult to get that child help by traditional

means via a doctor.

>

> Well said, Irene. I could not have said it better myself.

>

>

>

> I feel that if their motivation was to truly help these kids, they

would and

> they wouldn't be charging such exorbitant fees to do so. They're

laughing

> all the way to the bank while we're eating ramen noodles and kraft

macaroni

> and cheese.

>

>

>

> I guess that's the difference between these doctors and many

parents like us

> - we share what we know without charging a dime for it. I have

spent

> countless amounts of time answering emails and talking to strangers

on the

> phone trying to help other parents - and don't expect or want

anything for

> it - I just have hope that the parents that all of us help pay it

forward to

> the next parent who needs help. Making a living is one thing,

gouging

> parents who are broke and going farther and farther into debt..

well, I just

> don't know what to really say to accurately describe the way I feel

about

> that.

>

>

>

> From: [mailto:Autism-

Mercury ]

> On Behalf Of iflow97

> Sent: Friday, November 21, 2008 4:29 PM

>

> Subject: [ ] RE: Krigsman and then what??

>

>

>

> It sounds like Krigsman may be one of the few GI docs that gets the

> gut/autism connection in many cases. My problem with him, and other

> ground breakers like him, such as Neubrander, Yasko etc, to name a

> few, is that they do " get " it in a big way on a lot of things, and

> have done some really good research, and have come up with some

great

> treatments, anti inflammatory gut healing, B12, HBOT, the whole

> genetic approach, the gut approach, whatever their

particular " forte "

> happens to be, and for this research, I say " kudos " to them. But,

> however, my problem is, they charge what appear to be exorbitant

fees,

> and in this way seem as exploitative in terms of money as mainstream

> docs that push the shots and big Pharma drugs, IMHO. Ok, I know the

> difference is, their treatments, may actually help your kid.

>

> I know there are those who will say, they came up with the

treatment,

> so they can charge what they want. Ok, I guess they can. But they

are

> charging desperate parents a lot of money, and they know that a lot

of

> it is not covered by insurance, and most of us just can't afford

their

> treatments and pay for supps too. And, I would have to ask myself,

> every minute is everything they are pushing really something my kid

> needs, or is this just a money maker? We had this experience with

> some prior well regarded DAN docs, who pushed certain things on us,

> for questionable reasons. I guess my mistake is thinking that if you

> do this vital research and go against the vast majority of your

> profession in helping unravel the puzzle of autism, that you might

> have more altruistic motives, and want to reach and help as many

> parents as you can, not only those who are willing and able to fork

> over hefty fees.

>

> It seems I am starting to adopt Andy's disdain for the medical

> profession I guess. I keep hoping that chelation will continue to

> provide benefits for my child along with the other supplements and

> anti virals. I know there are many here who have healed and are

> healing their kids without the benefit of scopes etc, such as Dana,

> and having great success. They are a beacon of hope to me and my

family.

>

> Irene

>

>

>

>

>

>

[Guest guest]

We are a patient of Dr. Neubrander and an appointment with him is

$$$. That is why we see the PA. It is good that they make him

available for 1/2 the cost. Also, after much debate about whether or

not to buy a HBOT through their office (due to cost) we finally

decided to go ahead and make the purchase. When I called the office

and told Rick Neubrander that I wanted to buy a HBOT through them, he

said that they had a patient that was wanting to sell their HBOT, if

I bought it used through them I could save a lot of $$$. If it was

all about money, why did they do that for me? They lost a lot of

money doing that for me. I also honestly think that office wants to

help our kids. That is not to say they aren't making money, they

are, but I do think they are interested in helping our kids and our

families too.

>

> It sounds like Krigsman may be one of the few GI docs that gets the

> gut/autism connection in many cases. My problem with him, and other

> ground breakers like him, such as Neubrander, Yasko etc, to name a

> few, is that they do " get " it in a big way on a lot of things, and

> have done some really good research, and have come up with some

great

> treatments, anti inflammatory gut healing, B12, HBOT, the whole

> genetic approach, the gut approach, whatever their

particular " forte "

> happens to be, and for this research, I say " kudos " to them. But,

> however, my problem is, they charge what appear to be exorbitant

fees,

> and in this way seem as exploitative in terms of money as mainstream

> docs that push the shots and big Pharma drugs, IMHO. Ok, I know the

> difference is, their treatments, may actually help your kid.

>

> I know there are those who will say, they came up with the

treatment,

> so they can charge what they want. Ok, I guess they can. But they

are

> charging desperate parents a lot of money, and they know that a lot

of

> it is not covered by insurance, and most of us just can't afford

their

> treatments and pay for supps too. And, I would have to ask myself,

> every minute is everything they are pushing really something my kid

> needs, or is this just a money maker? We had this experience with

> some prior well regarded DAN docs, who pushed certain things on us,

> for questionable reasons. I guess my mistake is thinking that if

you

> do this vital research and go against the vast majority of your

> profession in helping unravel the puzzle of autism, that you might

> have more altruistic motives, and want to reach and help as many

> parents as you can, not only those who are willing and able to fork

> over hefty fees.

>

> It seems I am starting to adopt Andy's disdain for the medical

> profession I guess. I keep hoping that chelation will continue to

> provide benefits for my child along with the other supplements and

> anti virals. I know there are many here who have healed and are

> healing their kids without the benefit of scopes etc, such as Dana,

> and having great success. They are a beacon of hope to me and my

family.

>

> Irene

>

[Guest guest]

Some DAN's are very reasonable and also accept insurance. Some are

expensive and

don't accept insurance and you have to pay all that up front. You have to

find a doctor that is

sincere in their desire to really help your child and it not be all about

money. There are doctors

out there that are pediatricians, accept insurance and charge a reasonable

fee.

We saw one of the most well known DAN's for 3 years and we never paid her

one dime.

She accepted all our insurance. We paid a lot for Krigsman and it was 5

years ago, but got

some back with our insurance but not all...........

Kathy

[ ] RE: Krigsman and then what??

>>

>>

>>

>> It sounds like Krigsman may be one of the few GI docs that gets the

>> gut/autism connection in many cases. My problem with him, and other

>> ground breakers like him, such as Neubrander, Yasko etc, to name a

>> few, is that they do " get " it in a big way on a lot of things, and

>> have done some really good research, and have come up with some great

>> treatments, anti inflammatory gut healing, B12, HBOT, the whole

>> genetic approach, the gut approach, whatever their particular " forte "

>> happens to be, and for this research, I say " kudos " to them. But,

>> however, my problem is, they charge what appear to be exorbitant fees,

>> and in this way seem as exploitative in terms of money as mainstream

>> docs that push the shots and big Pharma drugs, IMHO. Ok, I know the

>> difference is, their treatments, may actually help your kid.

>>

>> I know there are those who will say, they came up with the treatment,

>> so they can charge what they want. Ok, I guess they can. But they are

>> charging desperate parents a lot of money, and they know that a lot of

>> it is not covered by insurance, and most of us just can't afford their

>> treatments and pay for supps too. And, I would have to ask myself,

>> every minute is everything they are pushing really something my kid

>> needs, or is this just a money maker? We had this experience with

>> some prior well regarded DAN docs, who pushed certain things on us,

>> for questionable reasons. I guess my mistake is thinking that if you

>> do this vital research and go against the vast majority of your

>> profession in helping unravel the puzzle of autism, that you might

>> have more altruistic motives, and want to reach and help as many

>> parents as you can, not only those who are willing and able to fork

>> over hefty fees.

>>

>> It seems I am starting to adopt Andy's disdain for the medical

>> profession I guess. I keep hoping that chelation will continue to

>> provide benefits for my child along with the other supplements and

>> anti virals. I know there are many here who have healed and are

>> healing their kids without the benefit of scopes etc, such as Dana,

>> and having great success. They are a beacon of hope to me and my family.

>>

>> Irene

>>

>>

>>

>>

>>

>>