Re: Lab Work is critical before starting a special diet

[Guest guest]

Which chelator contains garlic?

Have you tried enzymes along with his meals? My son has so many

sensitivities I would have to feed him water to avoid them all. Enzymes

have really helped his gut.

I'm also trying to move my son away from Claritin - I'll look up the

supplements I am trying and send them to you later.

From: [mailto: ]

On Behalf Of lhryden

Sent: Sunday, November 23, 2008 12:01 PM

Subject: [ ] Lab Work is critical before starting a special

diet

Sorry this is a little long-

Maybe my story will help those who are new to the journey, and also get

some advice from seasoned experts about special diets.

My son was tested for food allergies at age 3, and he was only positive

at the time for rice, soy, tomatoes and peanuts. The allergist had us

do a challenge test for each food, and if he tolerated the foods then

she said they were safe to eat. We did not see any reactions when he

ate those foods so we kept them in his diet.

After doing my own research on leaky gut, I put him on GFCFSF diet and

Feingold. We saw immediate improvements in eye contact, speech and

less runny stools.

Fast forward to today (4 years later), and he has had recent regression

in stool problems and increased hyperactivity and stimming. It seems

to follow meals in general, and we could not pinpoint his behavior to

any specific foods.

My son's doctor just ordered a comprehensive food allergy panel and

casein and gluten antibodies. My son was negative on casein and gluten

antibodies, but tested positive for food allergies to over 50 foods.

Many of them are foods that we have as staples in the GFCFSF diet

(rice, corn, almonds, etc.) He is also very allergic to garlic, which

is in the oral chelation product.

Knowing that food allergies can develop at anytime, I wish I would have

done this testing every year or two. The doctor is requesting a

rotational diet of foods he is not allergic (it's a short list!) so

that he does not develop allergies to those foods as well.

My son has never had a rash or histamine-induced reaction to any of the

allergenic foods. The reactions are only behavioral.

We are moving to IV chelation (he is positive for 7 metals), and I know

that chelation will also help with allergies.

My son has been taking Zyrtec for 3 yrs, and I am also researching

biomedical allergy treatment if anyone has any advice on that.

In hindsight, I wish I would have done a better job monitoring his lab

work. Special diets require a lot of time and energy, and expense, and

it is better to be informed with the answers up front.

Thanks,

[Guest guest]

Thanks for sharing that story . I hope you will hold off on the IV

chelation, and maybe even the oral chelation you are using, until you've

had a chance to investigate Andy Cutler's chelation advice with ALA or

DMSA as chelators. It may help you avoid a similar story about

chelation in the future. I've not heard of an oral chelation product

using garlic, and suspect it is something that isn't as safe or as

effective as ALA or DMSA dosed in low amounts frequently. I'm very

curious what product you are currently using to chelate. It may be

safer than what you think you are switching to with IV - even with the

garlic allergy. I've heard some real horror stories about redistribution

with supposed oral chelators that seem natural though. I've also heard

similar stories about IV chelation. Unless you can hook your child up

to an IV every 3-4 hours for 3 days straight, redistribution is an

issue. Redistribution can cause regression, new symptoms, and pain for

your child.

The files section here can be very helpful informing about how to

properly chelate with safe chelators like ALA and DMSA. Also, Andy's

book - Amalgam Illness - can be purchased at http://www.noamalgam.com

.. Many docs don't know how to safely chelate, so many here are doing

it on our own. Some have convinced their doctors to work with them

using the Cutler protocol. Others use their doctors for testing,

similar to the allergy testing you had done.

Again, thanks for sharing your story. I don't think many of us realize

that allergy to food can be hidden, and not manifest in a way we

normally would expect.

P

lhryden wrote:

>

> Sorry this is a little long-

> Maybe my story will help those who are new to the journey, and also get

> some advice from seasoned experts about special diets.

>

> My son was tested for food allergies at age 3, and he was only positive

> at the time for rice, soy, tomatoes and peanuts. The allergist had us

> do a challenge test for each food, and if he tolerated the foods then

> she said they were safe to eat. We did not see any reactions when he

> ate those foods so we kept them in his diet.

>

> After doing my own research on leaky gut, I put him on GFCFSF diet and

> Feingold. We saw immediate improvements in eye contact, speech and

> less runny stools.

>

> Fast forward to today (4 years later), and he has had recent regression

> in stool problems and increased hyperactivity and stimming. It seems

> to follow meals in general, and we could not pinpoint his behavior to

> any specific foods.

>

> My son's doctor just ordered a comprehensive food allergy panel and

> casein and gluten antibodies. My son was negative on casein and gluten

> antibodies, but tested positive for food allergies to over 50 foods.

> Many of them are foods that we have as staples in the GFCFSF diet

> (rice, corn, almonds, etc.) He is also very allergic to garlic, which

> is in the oral chelation product.

>

> Knowing that food allergies can develop at anytime, I wish I would have

> done this testing every year or two. The doctor is requesting a

> rotational diet of foods he is not allergic (it's a short list!) so

> that he does not develop allergies to those foods as well.

>

> My son has never had a rash or histamine-induced reaction to any of the

> allergenic foods. The reactions are only behavioral.

>

> We are moving to IV chelation (he is positive for 7 metals), and I know

> that chelation will also help with allergies.

>

> My son has been taking Zyrtec for 3 yrs, and I am also researching

> biomedical allergy treatment if anyone has any advice on that.

>

> In hindsight, I wish I would have done a better job monitoring his lab

> work. Special diets require a lot of time and energy, and expense, and

> it is better to be informed with the answers up front.

>

> Thanks,

>

>

>

[Guest guest]

I know already does a lot to remove environmental allergens,

but I was wondering if you have heard of this ? I've recently

visited at length with a friend whose son avoids many foods, but

actually cleared up much of his allergy med dependence by removing the

carpeting in her house. That can lower the allergen burden and help

reduce the need for meds. Her son was breathing much more clearly

within a week of carpet removal and replacement with tile flooring. My

mother also did the same thing, replacing carpeting in the house with

solid surface flooring. Another friend got her insurance to pay for it

because it was recommended by the doctor that they replace all the

carpeting with solid surface flooring to treat her son's allergies.

Other problem items in the house are bedding and upholstered furniture.

They make allergy covers for mattresses and pillows. Washing bedding

regularly helps. Leather furniture is lower burden than upholstery, as

is wood. Some places to always remember to keep dust free are under and

around the refrigerator and the washer/dryer if you have them. You can

make it easy to clean there by putting those little circular furniture

moving coasters under the feet of those appliances. Then, you can move

them easily when you vacuum or sweep. Here we use Swiffer (actually, a

rag on a Swiffer handle) since it stirs up less dust and actually

removes more. We've been carpet free for many years, and it does make a

difference.

P

wrote:

>

> Which chelator contains garlic?

>

> Have you tried enzymes along with his meals? My son has so many

> sensitivities I would have to feed him water to avoid them all. Enzymes

> have really helped his gut.

>

> I'm also trying to move my son away from Claritin - I'll look up the

> supplements I am trying and send them to you later.

>

> From:

> <mailto: %40>

> [mailto:

> <mailto: %40>]

> On Behalf Of lhryden

> Sent: Sunday, November 23, 2008 12:01 PM

> Subject: [ ] Lab Work is critical before starting a special

> diet

>

> Sorry this is a little long-

> Maybe my story will help those who are new to the journey, and also get

> some advice from seasoned experts about special diets.

>

> My son was tested for food allergies at age 3, and he was only positive

> at the time for rice, soy, tomatoes and peanuts. The allergist had us

> do a challenge test for each food, and if he tolerated the foods then

> she said they were safe to eat. We did not see any reactions when he

> ate those foods so we kept them in his diet.

>

> After doing my own research on leaky gut, I put him on GFCFSF diet and

> Feingold. We saw immediate improvements in eye contact, speech and

> less runny stools.

>

> Fast forward to today (4 years later), and he has had recent regression

> in stool problems and increased hyperactivity and stimming. It seems

> to follow meals in general, and we could not pinpoint his behavior to

> any specific foods.

>

> My son's doctor just ordered a comprehensive food allergy panel and

> casein and gluten antibodies. My son was negative on casein and gluten

> antibodies, but tested positive for food allergies to over 50 foods.

> Many of them are foods that we have as staples in the GFCFSF diet

> (rice, corn, almonds, etc.) He is also very allergic to garlic, which

> is in the oral chelation product.

>

> Knowing that food allergies can develop at anytime, I wish I would have

> done this testing every year or two. The doctor is requesting a

> rotational diet of foods he is not allergic (it's a short list!) so

> that he does not develop allergies to those foods as well.

>

> My son has never had a rash or histamine-induced reaction to any of the

> allergenic foods. The reactions are only behavioral.

>

> We are moving to IV chelation (he is positive for 7 metals), and I know

> that chelation will also help with allergies.

>

> My son has been taking Zyrtec for 3 yrs, and I am also researching

> biomedical allergy treatment if anyone has any advice on that.

>

> In hindsight, I wish I would have done a better job monitoring his lab

> work. Special diets require a lot of time and energy, and expense, and

> it is better to be informed with the answers up front.

>

> Thanks,

>

>

>

[Guest guest]

I just think that until our kid's leaky guts are healed, anything they eat

repetitively they are going to become intolerant of. I think rotating can

lessen the burden and staying away from the big offenders and then get going on

chelation with a good yeast protocal in place. You are right, it is a ton of

work and sometimes I feel like I create a fair number of problems while trying

to solve others......gool luck, Alison M

-------------- Original message ----------------------

From: " lhryden " <lhryden@...>

> Sorry this is a little long-

> Maybe my story will help those who are new to the journey, and also get

> some advice from seasoned experts about special diets.

>

> My son was tested for food allergies at age 3, and he was only positive

> at the time for rice, soy, tomatoes and peanuts. The allergist had us

> do a challenge test for each food, and if he tolerated the foods then

> she said they were safe to eat. We did not see any reactions when he

> ate those foods so we kept them in his diet.

>

> After doing my own research on leaky gut, I put him on GFCFSF diet and

> Feingold. We saw immediate improvements in eye contact, speech and

> less runny stools.

>

> Fast forward to today (4 years later), and he has had recent regression

> in stool problems and increased hyperactivity and stimming. It seems

> to follow meals in general, and we could not pinpoint his behavior to

> any specific foods.

>

> My son's doctor just ordered a comprehensive food allergy panel and

> casein and gluten antibodies. My son was negative on casein and gluten

> antibodies, but tested positive for food allergies to over 50 foods.

> Many of them are foods that we have as staples in the GFCFSF diet

> (rice, corn, almonds, etc.) He is also very allergic to garlic, which

> is in the oral chelation product.

>

> Knowing that food allergies can develop at anytime, I wish I would have

> done this testing every year or two. The doctor is requesting a

> rotational diet of foods he is not allergic (it's a short list!) so

> that he does not develop allergies to those foods as well.

>

> My son has never had a rash or histamine-induced reaction to any of the

> allergenic foods. The reactions are only behavioral.

>

> We are moving to IV chelation (he is positive for 7 metals), and I know

> that chelation will also help with allergies.

>

> My son has been taking Zyrtec for 3 yrs, and I am also researching

> biomedical allergy treatment if anyone has any advice on that.

>

> In hindsight, I wish I would have done a better job monitoring his lab

> work. Special diets require a lot of time and energy, and expense, and

> it is better to be informed with the answers up front.

>

> Thanks,

>

>

>

>

>

>

>

> ------------------------------------

>

> =======================================================

>

[Guest guest]

Thanks for all of the feedback!

FYI,

The oral chelator we used previously that contained garlic was

Chelate Pro by Neurobiologix. The IV chelation we planned to start

is slow 4-6 hr drip the first day, followed by IV minerals the 2nd

day. I think they mentioned it is Yasko protocol, but am reading on

other protocols on this post. We are also using digestive enzymes for

food allergies/intolerances. We will stop using MindLinx probiotic

because I think he has a problem with apricot powder which it

contains.

My son tolerated the challenge very well, but we are waiting to see

what metals are there and in what quantities.

He is also low in cysteine and glutathione, and will get oral and IV

glutathione.

Because the entire family suffers from allergies, and we live in a

terrible city for allergies, we have removed all carpet and

upholstered furniture and have air purifiers. We also have removed

stuffed animals and books because they harbor dust. My son was 4+

allergic to house dust, but not allergic to dust mites,

interestingly. Our doc said the allergies will get better when

metals are removed.

Thanks for all other input!

>

> Which chelator contains garlic?

>

>

>

> Have you tried enzymes along with his meals? My son has so many

> sensitivities I would have to feed him water to avoid them all.

Enzymes

> have really helped his gut.

>

>

>

> I'm also trying to move my son away from Claritin - I'll look up the

> supplements I am trying and send them to you later.

>

>

>

>

>

>

>

> From: [mailto:Autism-

Mercury ]

> On Behalf Of lhryden

> Sent: Sunday, November 23, 2008 12:01 PM

>

> Subject: [ ] Lab Work is critical before starting a

special

> diet

>

>

>

> Sorry this is a little long-

> Maybe my story will help those who are new to the journey, and also

get

> some advice from seasoned experts about special diets.

>

> My son was tested for food allergies at age 3, and he was only

positive

> at the time for rice, soy, tomatoes and peanuts. The allergist had

us

> do a challenge test for each food, and if he tolerated the foods

then

> she said they were safe to eat. We did not see any reactions when

he

> ate those foods so we kept them in his diet.

>

> After doing my own research on leaky gut, I put him on GFCFSF diet

and

> Feingold. We saw immediate improvements in eye contact, speech and

> less runny stools.

>

> Fast forward to today (4 years later), and he has had recent

regression

> in stool problems and increased hyperactivity and stimming. It

seems

> to follow meals in general, and we could not pinpoint his behavior

to

> any specific foods.

>

> My son's doctor just ordered a comprehensive food allergy panel and

> casein and gluten antibodies. My son was negative on casein and

gluten

> antibodies, but tested positive for food allergies to over 50

foods.

> Many of them are foods that we have as staples in the GFCFSF diet

> (rice, corn, almonds, etc.) He is also very allergic to garlic,

which

> is in the oral chelation product.

>

> Knowing that food allergies can develop at anytime, I wish I would

have

> done this testing every year or two. The doctor is requesting a

> rotational diet of foods he is not allergic (it's a short list!) so

> that he does not develop allergies to those foods as well.

>

> My son has never had a rash or histamine-induced reaction to any of

the

> allergenic foods. The reactions are only behavioral.

>

> We are moving to IV chelation (he is positive for 7 metals), and I

know

> that chelation will also help with allergies.

>

> My son has been taking Zyrtec for 3 yrs, and I am also researching

> biomedical allergy treatment if anyone has any advice on that.

>

> In hindsight, I wish I would have done a better job monitoring his

lab

> work. Special diets require a lot of time and energy, and expense,

and

> it is better to be informed with the answers up front.

>

> Thanks,

>

>

>

>

>

>

>

[Guest guest]

Comments interspersed.

S S

Lab Work is critical before starting a special diet

Posted by: " lhryden " lhryden@... lhryden

Sun Nov 23, 2008 9:00 am (PST)

Sorry this is a little long-

Maybe my story will help those who are new to the journey, and also get

some advice from seasoned experts about special diets.

My son was tested for food allergies at age 3, and he was only positive

at the time for rice, soy, tomatoes and peanuts.

*Gluten- and casein-intolerance are not regular allergies.

The allergist had us

do a challenge test for each food, and if he tolerated the foods then

she said they were safe to eat. We did not see any reactions when he

ate those foods so we kept them in his diet.

After doing my own research on leaky gut, I put him on GFCFSF diet and

Feingold. We saw immediate improvements in eye contact, speech and

less runny stools.

Fast forward to today (4 years later), and he has had recent regression

in stool problems and increased hyperactivity and stimming. It seems

to follow meals in general, and we could not pinpoint his behavior to

any specific foods.

*Any recent vaccines? Any foods with dyes, preservatives?

My son's doctor just ordered a comprehensive food allergy panel and

casein and gluten antibodies. My son was negative on casein and gluten

antibodies, but tested positive for food allergies to over 50 foods.

*Gluten and casein will not generally show up on someone who has been gluten-

and casein-free for a while because the body hasn't needed to produce the

antibodies because it hasn't been being bombarded.

Many of them are foods that we have as staples in the GFCFSF diet

(rice, corn, almonds, etc.) He is also very allergic to garlic, which

is in the oral chelation product.

*What oral chelation product? What else is in that product? Does the doc sell

it and say you can only get it from him? There is no garlic in ALA (alpha

lipoic acid, available without prescription, chelates mercury from body and

brain and chelates arsenic) or DMSA (dimercapto succinic acid, also available

without a prescription, chelates mercury from body and chelates lead).

Knowing that food allergies can develop at anytime, I wish I would have

done this testing every year or two. The doctor is requesting a

rotational diet of foods he is not allergic (it's a short list!) so

that he does not develop allergies to those foods as well.

*Consider NAET. www.naet.com

My son has never had a rash or histamine-induced reaction to any of the

allergenic foods. The reactions are only behavioral.

We are moving to IV chelation (he is positive for 7 metals),

*Which metals? How was he tested? Not a challenge test, I hope. Have you

identified and reduced/removed sources of exposure? Does he have ANY mercury

amalgam dental fillings? Please educate yourself on Andy's protocol before you

proceed with any kind of chelation.

and I know

that chelation will also help with allergies.

*Please do NOT do IV chelation.

My son has been taking Zyrtec for 3 yrs, and I am also researching

biomedical allergy treatment if anyone has any advice on that.

In hindsight, I wish I would have done a better job monitoring his lab

work. Special diets require a lot of time and energy, and expense, and

it is better to be informed with the answers up front.

Thanks,

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[Guest guest]

Your preaching to the choir ! My child also got worse on gfcf and REALLY

got sick on the SCD diet because of this very reason, food allergies. The

specific test we did was from an independent lab like the Great Plains Lab and

the test is called the IGG food allergy panel. I recommend this before making

any changes to a child's diet!!

[Guest guest]

Once you do know the allergies, I can't stress enough the importance of

food rotation to stop further foods becoming problematic. Most of our

ASD kids just want to eat the same thing again and again and AGAIN. But

nutrition is too important to leave the decisions up to them.

Axe wrote:

>

> Your preaching to the choir ! My child also got worse on gfcf and

> REALLY got sick on the SCD diet because of this very reason, food

> allergies. The specific test we did was from an independent lab like

> the Great Plains Lab and the test is called the IGG food allergy

> panel. I recommend this before making any changes to a child's diet!!

>

>

>

>

[Guest guest]

,

I wouldn't beat myself up too much over getting more lab work done in

the past. FWIW, my son always tested negative for all food allergies.

Since he had persistent asthma, we did quite a bit of testing over

time, and came back with few answers. He is now doing well on a

GFCFSF-yeast-free diet.

Fani

[Guest guest]

We just had an awesome test done by Allertec (I think). They tested 172

foods instead of the 96 that Great Plains does. We now have so many

more options to feed our son. He tested positve for about 60% of the

foods on the 1st test we did.

>

> ,

>

> I wouldn't beat myself up too much over getting more lab work done in

> the past. FWIW, my son always tested negative for all food allergies.

> Since he had persistent asthma, we did quite a bit of testing over

> time, and came back with few answers. He is now doing well on a

> GFCFSF-yeast-free diet.

>

> Fani

>