Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Dana, you answered my post about my son not tolerating the b vitamins, and my concerns about adding it in as part of the mito cocktail. You said that one of your kids could not tolerate these until like round 50 or something. Should I wait awhile until I try adding it in? (We have done 11 rounds) The last time I added in b vitamins it was before chelation and yeast control measures. Is there a chance they might be better tolerated now by my son? Right now I give acetyl-l-carnitine (which is helping amazingly by the way, almost as much as b12 used to), coQ10, b12, zinc and folinic acid as part of the mito cocktail. My son gets a pretty high amount of selenium in his multi, so I don't want to add more of this, and I am waiting to try vitamin e again, since he reacted badly the last time. But I know you said the b's are pretty important. He does get them as part of his multi, would the b vitamins in a multi vitamin suffice, or do you need to give beyond what is in a multi? Also, do you recommend any particular b complex? Thanks. Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi Irene, I am in the same boat as you. I am also starting to work with the B's. I am using Solgar brand and my dd is pretty hyper already, but something in them is stopping the impulsivity at night. NOt sure what. I think I am going to have to do them one at a time. I hear that Kal brand is a really good Bcomplex. Hope you find some help. On Nov 24, 2008, at 4:05 PM, iflow97 wrote: > Dana, you answered my post about my son not tolerating the b vitamins, > and my concerns about adding it in as part of the mito cocktail. > > You said that one of your kids could not tolerate these until like > round 50 or something. Should I wait awhile until I try adding it in? > (We have done 11 rounds) The last time I added in b vitamins it was > before chelation and yeast control measures. Is there a chance they > might be better tolerated now by my son? Right now I give > acetyl-l-carnitine (which is helping amazingly by the way, almost as > much as b12 used to), coQ10, b12, zinc and folinic acid as part of the > mito cocktail. My son gets a pretty high amount of selenium in his > multi, so I don't want to add more of this, and I am waiting to try > vitamin e again, since he reacted badly the last time. But I know you > said the b's are pretty important. He does get them as part of his > multi, would the b vitamins in a multi vitamin suffice, or do you need > to give beyond what is in a multi? > > Also, do you recommend any particular b complex? > > Thanks. Irene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 > You said that one of your kids could not tolerate these until like > round 50 or something. Should I wait awhile until I try adding it in? You can wait, or try low doses now, with No-Fenol enzyme. Certain Bs require magnesium and/or carnitine for proper absorption, so you can try adding those also. > (We have done 11 rounds) The last time I added in b vitamins it was > before chelation and yeast control measures. Is there a chance they > might be better tolerated now by my son? Definitely might be better tolerated now. >> Right now I give > acetyl-l-carnitine (which is helping amazingly by the way, almost as > much as b12 used to), I used straight l-carnitine, and yes, it was one of my son's wonder supplements. Congrats! >>I am waiting to try > vitamin e again, since he reacted badly the last time. Keep trying on this one, I learned it was essential. Most vitamin E is made from soy, and my son tolerated soy with AFP Peptizyde, so you can consider that. >>But I know you > said the b's are pretty important. He does get them as part of his > multi, would the b vitamins in a multi vitamin suffice, or do you need > to give beyond what is in a multi? He probably needs a higher dose, but if this is all he tolerates now, then just keep this level for now. > Also, do you recommend any particular b complex? I used individuals for a while, so I could adjust the doses. After a while I went to B50. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 > You said that one of your kids could not tolerate these until like > round 50 or something. Should I wait awhile until I try adding it in? You can wait, or try low doses now, with No-Fenol enzyme. Certain Bs require magnesium and/or carnitine for proper absorption, so you can try adding those also. > (We have done 11 rounds) The last time I added in b vitamins it was > before chelation and yeast control measures. Is there a chance they > might be better tolerated now by my son? Definitely might be better tolerated now. >> Right now I give > acetyl-l-carnitine (which is helping amazingly by the way, almost as > much as b12 used to), I used straight l-carnitine, and yes, it was one of my son's wonder supplements. Congrats! >>I am waiting to try > vitamin e again, since he reacted badly the last time. Keep trying on this one, I learned it was essential. Most vitamin E is made from soy, and my son tolerated soy with AFP Peptizyde, so you can consider that. >>But I know you > said the b's are pretty important. He does get them as part of his > multi, would the b vitamins in a multi vitamin suffice, or do you need > to give beyond what is in a multi? He probably needs a higher dose, but if this is all he tolerates now, then just keep this level for now. > Also, do you recommend any particular b complex? I used individuals for a while, so I could adjust the doses. After a while I went to B50. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Dana, thank you for your help. As to the b vitamins, you mentioned that carnitine and magnesium help with the absorption of certain of these. Which b vitamins? I believe b6 requires magnesium. What requires carnitine? We are supplementing with both of these already, do these need to be given at the same time as the b vitamins or can they be given at separate times? Also you mention No Fenol enzyme as helping with the tolerance of the b vitamins. I would have to give the b's along with his multi, clo, etc, we give several things at once by syringe, would the enzyme interfere with any of these? And why does such an enzyme help? Also, you stated that you tried the b vitamins separately. Forgive me if you have stated this already, but what were they, B1, B2, B3 and B6? Am I missing anything else? Was there a specific order you introduced the b vitamins in? How do you determine what dosage to start with and how high to go, based on weight? My son is thin, only 30 pounds. Are there any guidelines to go by? As to vitamin E, you mention that this is very important. We tried two different natural e formulations where the soy proteins etc were supposedly all removed, and my son's reaction to it was violent, hyperactivity, stimming, eczema all over his body. (and we give a DPPIV enzyme from enzymedica and this did not help with the vitamin e.) It was horrible. So I am going to give the synthetic form of e a try next week with my son. If he does not tolerate this, then can I assume it is the e itself he can't tolerate? If it is not tolerated, what else could be given in its place? Thanks. Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 what is L-carnitine for? On Nov 25, 2008, at 8:56 AM, danasview wrote: > > > You said that one of your kids could not tolerate these until like > > round 50 or something. Should I wait awhile until I try adding it > in? > > You can wait, or try low doses now, with No-Fenol enzyme. Certain Bs > require magnesium and/or carnitine for proper absorption, so you can > try adding those also. > > > (We have done 11 rounds) The last time I added in b vitamins it was > > before chelation and yeast control measures. Is there a chance they > > might be better tolerated now by my son? > > Definitely might be better tolerated now. > > >> Right now I give > > acetyl-l-carnitine (which is helping amazingly by the way, almost as > > much as b12 used to), > > I used straight l-carnitine, and yes, it was one of my son's wonder > supplements. Congrats! > > >>I am waiting to try > > vitamin e again, since he reacted badly the last time. > > Keep trying on this one, I learned it was essential. Most vitamin E > is made from soy, and my son tolerated soy with AFP Peptizyde, so you > can consider that. > > >>But I know you > > said the b's are pretty important. He does get them as part of his > > multi, would the b vitamins in a multi vitamin suffice, or do you > need > > to give beyond what is in a multi? > > He probably needs a higher dose, but if this is all he tolerates now, > then just keep this level for now. > > > Also, do you recommend any particular b complex? > > I used individuals for a while, so I could adjust the doses. After a > while I went to B50. > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 > Dana, thank you for your help. As to the b vitamins, you mentioned > that carnitine and magnesium help with the absorption of certain of > these. Which b vitamins? I believe b6 requires magnesium. What > requires carnitine? B6 and biotin require magnesium. B12 and folic acid require carnitine. B1 also might require carnitine, not sure on that one. >>We are supplementing with both of these already, > do these need to be given at the same time as the b vitamins or can > they be given at separate times? I gave them together. Not sure if that matters tho. > Also you mention No Fenol enzyme as helping with the tolerance of the > b vitamins. I would have to give the b's along with his multi, clo, > etc, we give several things at once by syringe, would the enzyme > interfere with any of these? Not that I know of. >>And why does such an enzyme help? Because most Bs can cause a phenol-type reaction for some kids. > Also, you stated that you tried the b vitamins separately. Forgive me > if you have stated this already, but what were they, B1, B2, B3 and > B6? Am I missing anything else? I did ALL of the Bs separately, not just the ones you list above. >>Was there a specific order you > introduced the b vitamins in? Numerical order LOL >>How do you determine what dosage to > start with and how high to go, based on weight? I researched two things, USRDA and how much most autistic kids typically need. I checked the dose of each capsule I used, and usually started with 1/4 of the capsule. > As to vitamin E, you mention that this is very important. We tried > two different natural e formulations where the soy proteins etc were > supposedly all removed, and my son's reaction to it was violent, > hyperactivity, stimming, eczema all over his body. (and we give a > DPPIV enzyme from enzymedica and this did not help with the vitamin > e.) It was horrible. So I am going to give the synthetic form of e a > try next week with my son. If he does not tolerate this, then can I > assume it is the e itself he can't tolerate? If it is not tolerated, > what else could be given in its place? I don't know. My son tolerated soy with AFP Peptizyde, so that might work for you. I used a soy-based E. You can try an artificial E, see if that helps. I read somewhere that there are non-soy natural Es, altho I don't remember where I read that. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 > > what is L-carnitine for? At my house, it was required for proper absorption of fats, B12, folic acid, vitamin C, and TMG. It helped with growth issues, muscle tone, and language. Dana Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.