Re: Anyone use L-carnitine?

[Guest guest]

hmnmm . . . I didn't know L-Carnatine required a prescription. We just

buy it from iHerb. It helps with energy, mineral/vit absorption. I

didn't see anything about seizures when starting l-Carnatine. We got

250mg l-Carnatine tabs. I didn't see on the bottle what the 'L' was

for. Wondering if maybe there are two different versions? Why did your

DAN! want to do this? That might help with your reasoning and decision.

noaholiviaian wrote:

>

> Hi,

>

> Long time no post. I've been busy with my own health issues and now

> I'm better and ready to tackle my son again.

>

> I have a scrip for Levocarnitine (330 mg tablets). L-Carnitine. Our

> DAN! wants me to work my son up to 2 tablets, 3 times/day. He has

> energy, is active, coordinated and such. No labs to show carnitine

> deficiency. Immune system OK. Kind of more like ADHD at this point

> than full blown Autism.

>

> I hate starting new things. The insert says to watch for seizures.

> Seizures? We don't have seizures and I want to avoid them, of course.

>

> Scared-y pants in need of a bit of personal experience.

>

> Pam

>

>

[Guest guest]

Pam,

My most recovered apraxic son (now 4.5) is on L-Carnitine. He did

have labs (we did them twice) that showed a deficiency, and we had

mild truncal hypotonia. He didn't have any energy issues though. In

my research I didn't come across the reference to seizures but we

have been on it for about 18 months with no real issues except the

following:

We started at 750 mg split into 3 doses. THIS WAS TOO HIGH! Within

3 days my son was literally bouncing off the walls, we had diarrhea,

and sleep trouble. I lowered the dose over a few days to 400mg given

twice/day (the last dose at snack time) and the problems all went

away. I have slowly, over the last 18 months, been able to raise the

dose to 750mg/day without problems. We did testing about 9 months

ago and his carnitine levels are now in the reference range.

My advice would be to start lower and ramp up until you see problems.

(Max's Mom)

>

> Hi,

>

> Long time no post. I've been busy with my own health issues and

now

> I'm better and ready to tackle my son again.

>

> I have a scrip for Levocarnitine (330 mg tablets). L-Carnitine.

Our

> DAN! wants me to work my son up to 2 tablets, 3 times/day. He has

> energy, is active, coordinated and such. No labs to show carnitine

> deficiency. Immune system OK. Kind of more like ADHD at this

point

> than full blown Autism.

>

> I hate starting new things. The insert says to watch for

seizures.

> Seizures? We don't have seizures and I want to avoid them, of

course.

>

> Scared-y pants in need of a bit of personal experience.

>

> Pam

>

[Guest guest]

I started my 3 year old on L-Carnitine about 8 months ago. Before that

she wasn't growing and I swear the Carnitine is what caused her to

have a major growth spurt. Her body is like a preschooler now. She has

shoulders, flat belly and is wearing a 4 and 5T now. She just suddenly

started to grow. I love the stuff.

> >

> > Hi,

> >

> > Long time no post. I've been busy with my own health issues and

> now

> > I'm better and ready to tackle my son again.

> >

> > I have a scrip for Levocarnitine (330 mg tablets). L-Carnitine.

> Our

> > DAN! wants me to work my son up to 2 tablets, 3 times/day. He has

> > energy, is active, coordinated and such. No labs to show carnitine

> > deficiency. Immune system OK. Kind of more like ADHD at this

> point

> > than full blown Autism.

> >

> > I hate starting new things. The insert says to watch for

> seizures.

> > Seizures? We don't have seizures and I want to avoid them, of

> course.

> >

> > Scared-y pants in need of a bit of personal experience.

> >

> > Pam

> >

>

[Guest guest]

Our 4 yr old takes 340 mgs of l-carnitine daily which is combined in the tablets

with 12

mgs vitamin c. He started taking it about 2 months ago for mitochondrial

support and we

haven't seen any negative response to it. Can't say we've seen any direct

positive response,

though our son does continue to improve in terms of his energy and activity

level. Maggie

d.

>

> Hi,

>

> Long time no post. I've been busy with my own health issues and now

> I'm better and ready to tackle my son again.

>

> I have a scrip for Levocarnitine (330 mg tablets). L-Carnitine. Our

> DAN! wants me to work my son up to 2 tablets, 3 times/day. He has

> energy, is active, coordinated and such. No labs to show carnitine

> deficiency. Immune system OK. Kind of more like ADHD at this point

> than full blown Autism.

>

> I hate starting new things. The insert says to watch for seizures.

> Seizures? We don't have seizures and I want to avoid them, of course.

>

> Scared-y pants in need of a bit of personal experience.

>

> Pam

>

[Guest guest]

For some reason, I've been getting error messages when I try to

reply. Maybe if you're absent for too long they don't let you back

in! I'll try one more time...

Thank you for your story. My son has a history of truncal hypotonia

as a toddler, so I can imagine we have some residual issues I just

don't see (because he is so energetic). Glad to hear you didn't get

warned about seizures. Maybe they address it on the scrip because l-

carnitine is used with Rett's patients (and seizures seem to be

common)?

And to the mom who talked about growth: I'd love some true muscle

mass. My son has put on 10 lbs since January with the addition of

pancreatic enzymes (Creon), but remains pretty slight.

I've done a bit more digging since I first posted. I think I'll

relax and give it a try. I don't want to see the gastrointestinal

problems, so I'll definitely start slow.

I appreciate your help.

Pam

> >

> > Hi,

> >

> > Long time no post. I've been busy with my own health issues and

> now

> > I'm better and ready to tackle my son again.

> >

> > I have a scrip for Levocarnitine (330 mg tablets). L-Carnitine.

> Our

> > DAN! wants me to work my son up to 2 tablets, 3 times/day. He

has

> > energy, is active, coordinated and such. No labs to show

carnitine

> > deficiency. Immune system OK. Kind of more like ADHD at this

> point

> > than full blown Autism.

> >

> > I hate starting new things. The insert says to watch for

> seizures.

> > Seizures? We don't have seizures and I want to avoid them, of

> course.

> >

> > Scared-y pants in need of a bit of personal experience.

> >

> > Pam

> >

>

[Guest guest]

> I have a scrip for Levocarnitine (330 mg tablets). L-Carnitine. Our

> DAN! wants me to work my son up to 2 tablets, 3 times/day. He has

> energy, is active, coordinated and such. No labs to show carnitine

> deficiency. Immune system OK. Kind of more like ADHD at this point

> than full blown Autism.

> I hate starting new things. The insert says to watch for seizures.

> Seizures? We don't have seizures and I want to avoid them, of course.

I used l-carnitine from my local health food store. It was one of my

son's " wonder " supplements. It was required for proper absorption of

fats, vitamin C, certain B vitamins, and TMG.

It helped with growth issues, muscle tone, and language.

Dana

[Guest guest]

We started using Acetyl-l-carnitine a few weeks ago. We give about 450 mg per

day divided

up into 3 doses or so. It has been really helpful so far, almost as much

progress from it as

we got from B12. It has helped specifically a lot with language for our son.

Irene