Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 I looked around on the internet when I finally figured that my daughter's issues were mito dysfunction, with help from the people here. I ended up using the info at Dana's site to put together her mito cocktail. This is what I came up with from my researching. Before adding all this, I had already added enzymes, probiotics, kefir and raw milk. Which all improved the problem some, but didn't really seem to completely address the issues she was having. What we did for the mito cocktail was USRDA 2x a day for each supplement: l-Carnatine Taurine Selenium (as selenomethionine) B-50 C 500 (which we had to cut back, then discontinue before the others, as it started causing rashes when she no longer needed the heavy dose) Zinc CoQ10 Vit E We started each individual supplement one at a time, adding to the previous ones, and didn't add the next for at least 3-5 days to make sure there were no reactions. We didn't do CLO with her either. In addition to the Mito Cocktail, we added A and Cal/Mag (which she didn't take at the same time as zinc) It's rather complicated, but simplified, the combination of supplements helps the mitochondria process properly, thus a reduction of symptoms. Here, after we started chelation, we were able to drop off the Vit E and C quite soon. We talked to an ND who had us slowly replace the load of supplements with a single algae pill. It has done a great job so far, but I'm not sure how much is the algae pill or how much is improvement from chelation. I believe it is a combination of both, since she went without a couple days and symptoms didn't return immediately as usual. We still don't give CLO to her though. Our daughter is 13yo and NT. Hope that helps some. P. Arias wrote: > > but I still don't get it. My dd reacts to cod liver oil and Dana said > her child did to until she gave it with a mito coctail. What is this. > I read her link and still don't understand it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 ----- Original Message ----- From: P. It's rather complicated, but simplified, the combination of supplements helps the mitochondria process properly, thus a reduction of symptoms. Here, after we started chelation, we were able to drop off the Vit E and C quite soon. ====>How did she get along, adults who have tried to chelate without C and E usually report extreme discomfort? We talked to an ND who had us slowly replace the load of supplements with a single algae pill. ====>What kind of algae pill? Algae, like from the ocean? P. Arias wrote: > > but I still don't get it. My dd reacts to cod liver oil and Dana said > her child did to until she gave it with a mito coctail. What is this. > I read her link and still don't understand it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 so this coctail is something that you do for just a little while? or is it for life? and do peoople do it in addition to andys protocol for the ALA? On Aug 21, 2008, at 8:54 AM, P. wrote: > I looked around on the internet when I finally figured that my > daughter's issues were mito dysfunction, with help from the people > here. I ended up using the info at Dana's site to put together her > mito > cocktail. This is what I came up with from my researching. Before > adding all this, I had already added enzymes, probiotics, kefir and > raw > milk. Which all improved the problem some, but didn't really seem to > completely address the issues she was having. > > What we did for the mito cocktail was USRDA 2x a day for each > supplement: > l-Carnatine > Taurine > Selenium (as selenomethionine) > B-50 > C 500 (which we had to cut back, then discontinue before the > others, as > it started causing rashes when she no longer needed the heavy dose) > Zinc > CoQ10 > Vit E > We started each individual supplement one at a time, adding to the > previous ones, and didn't add the next for at least 3-5 days to make > sure there were no reactions. > > We didn't do CLO with her either. In addition to the Mito Cocktail, we > added A and Cal/Mag (which she didn't take at the same time as zinc) > > It's rather complicated, but simplified, the combination of > supplements > helps the mitochondria process properly, thus a reduction of symptoms. > Here, after we started chelation, we were able to drop off the Vit > E and > C quite soon. We talked to an ND who had us slowly replace the load of > supplements with a single algae pill. It has done a great job so far, > but I'm not sure how much is the algae pill or how much is improvement > from chelation. I believe it is a combination of both, since she went > without a couple days and symptoms didn't return immediately as usual. > We still don't give CLO to her though. > > Our daughter is 13yo and NT. > Hope that helps some. > P. > > Arias wrote: > > > > but I still don't get it. My dd reacts to cod liver oil and Dana > said > > her child did to until she gave it with a mito coctail. What is > this. > > I read her link and still don't understand it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 I am not sure i even need to do this... other than my dd can't tolerate cod liver oil and some other supplements. On Aug 21, 2008, at 8:54 AM, P. wrote: > I looked around on the internet when I finally figured that my > daughter's issues were mito dysfunction, with help from the people > here. I ended up using the info at Dana's site to put together her > mito > cocktail. This is what I came up with from my researching. Before > adding all this, I had already added enzymes, probiotics, kefir and > raw > milk. Which all improved the problem some, but didn't really seem to > completely address the issues she was having. > > What we did for the mito cocktail was USRDA 2x a day for each > supplement: > l-Carnatine > Taurine > Selenium (as selenomethionine) > B-50 > C 500 (which we had to cut back, then discontinue before the > others, as > it started causing rashes when she no longer needed the heavy dose) > Zinc > CoQ10 > Vit E > We started each individual supplement one at a time, adding to the > previous ones, and didn't add the next for at least 3-5 days to make > sure there were no reactions. > > We didn't do CLO with her either. In addition to the Mito Cocktail, we > added A and Cal/Mag (which she didn't take at the same time as zinc) > > It's rather complicated, but simplified, the combination of > supplements > helps the mitochondria process properly, thus a reduction of symptoms. > Here, after we started chelation, we were able to drop off the Vit > E and > C quite soon. We talked to an ND who had us slowly replace the load of > supplements with a single algae pill. It has done a great job so far, > but I'm not sure how much is the algae pill or how much is improvement > from chelation. I believe it is a combination of both, since she went > without a couple days and symptoms didn't return immediately as usual. > We still don't give CLO to her though. > > Our daughter is 13yo and NT. > Hope that helps some. > P. > > Arias wrote: > > > > but I still don't get it. My dd reacts to cod liver oil and Dana > said > > her child did to until she gave it with a mito coctail. What is > this. > > I read her link and still don't understand it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Actually, she does very well without the extra C and E, she gets a good portion from her diet also. Those were added to address processing problems before chelation, and she started to react to the extra. She got a horrible rash from too much C. The E we slowly weaned when we added the algae. It was the first to go, along with the Zinc and A. We saved the Taurine, Selenium and l-Carnatine until last to go. We do have to add Cal/Mag while chelating still, since we did have an issue with not enough of that during chelation. The algae (BioNutrition, BioSuperfood - http://www.biosuperfood.com ) was developed by a Russian doctor, who moved to Canada at the collapse to keep up research. It was actually developed to fight a cancer that kept attacking his family. It is farmed in a controlled environment to keep mercury, and other oceanic contamination, out. The ND (can't remember his name right now, but have his card buried here somewhere) gives talks about it, and gave us a DVD about the developer and the algae. We agreed to give it a try, and so far are liking it very much. I still need to get in touch with him and let him know how it is going, when I un-bury that card. That was part of the deal. It was more a chance encounter, not an appointment. I liked what he had to say, so decided to give it a try. It helped that he had been on many of the same supplements and replaced them when he learned about this algae. He hasn't chelated with the algae for a supplement though, so wanted and update to know how it worked. Probably time to do that. One thing, it is pricey, but not as pricey as the long list of supplements she was having to take. So far, I'm liking it. I haven't tried it on our ASD son who is also chelating though. This daughter is NT and her issues aren't as great, so wanted to try it on her first. Instead, with him, we just had him add the algae, lower strength to his supplements. His progress is good, but we still notice yeast flairs as soon as he forgets his biotin and other supplements. P. Ladyshrink111@... wrote: > > > ----- Original Message ----- > From: P. > > It's rather complicated, but simplified, the combination of supplements > helps the mitochondria process properly, thus a reduction of symptoms. > Here, after we started chelation, we were able to drop off the Vit E and > C quite soon. > > ====>How did she get along, adults who have tried to chelate without C > and E usually report extreme discomfort? > > We talked to an ND who had us slowly replace the load of > supplements with a single algae pill. > > ====>What kind of algae pill? Algae, like from the ocean? > > > > P. > > Arias wrote: > > > > but I still don't get it. My dd reacts to cod liver oil and Dana said > > her child did to until she gave it with a mito coctail. What is this. > > I read her link and still don't understand it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 For us, it was just until chelation started improving her ability to process, and we found the algae supplement (BioSuperfood - went and got the bottle to answer 's question ;-) From some of what I read about it, many people do it for life, as if mito dysfunction is a permanent disease like MS or Lupus or any of those. They had message boards for mito dysfunction. I believed that the issue with the mitochondria was mercury poisoning, so approached it from that angle. For our little girls, that seems to be how it is playing out with chelation. I'm not sure how long it will take, but we've been only 3 months or so now, and seen improvement. So, I'm expecting we won't needs the mito cocktail or algae supplements sometime in the future. Yes, we did it while chelating with ALA, Andy's protocol. We haven't used DMSA, and don't plan to. P. Arias wrote: > > so this coctail is something that you do for just a little while? or > is it for life? and do peoople do it in addition to andys protocol > for the ALA? > On Aug 21, 2008, at 8:54 AM, P. wrote: > > > I looked around on the internet when I finally figured that my > > daughter's issues were mito dysfunction, with help from the people > > here. I ended up using the info at Dana's site to put together her > > mito > > cocktail. This is what I came up with from my researching. Before > > adding all this, I had already added enzymes, probiotics, kefir and > > raw > > milk. Which all improved the problem some, but didn't really seem to > > completely address the issues she was having. > > > > What we did for the mito cocktail was USRDA 2x a day for each > > supplement: > > l-Carnatine > > Taurine > > Selenium (as selenomethionine) > > B-50 > > C 500 (which we had to cut back, then discontinue before the > > others, as > > it started causing rashes when she no longer needed the heavy dose) > > Zinc > > CoQ10 > > Vit E > > We started each individual supplement one at a time, adding to the > > previous ones, and didn't add the next for at least 3-5 days to make > > sure there were no reactions. > > > > We didn't do CLO with her either. In addition to the Mito Cocktail, we > > added A and Cal/Mag (which she didn't take at the same time as zinc) > > > > It's rather complicated, but simplified, the combination of > > supplements > > helps the mitochondria process properly, thus a reduction of symptoms. > > Here, after we started chelation, we were able to drop off the Vit > > E and > > C quite soon. We talked to an ND who had us slowly replace the load of > > supplements with a single algae pill. It has done a great job so far, > > but I'm not sure how much is the algae pill or how much is improvement > > from chelation. I believe it is a combination of both, since she went > > without a couple days and symptoms didn't return immediately as usual. > > We still don't give CLO to her though. > > > > Our daughter is 13yo and NT. > > Hope that helps some. > > P. > > > > Arias wrote: > > > > > > but I still don't get it. My dd reacts to cod liver oil and Dana > > said > > > her child did to until she gave it with a mito coctail. What is > > this. > > > I read her link and still don't understand it. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 For my daughters, symptoms that let us to this were many and had been troubling her for a long time. They included headaches, stomach aches at meals, excessive ear wax, acne, and some others I can't remember right now. I've never been good at journaling, and usually don't save much info in my data base. . . if you know what I mean . . so after a year the whole revelation is a bit fuzzy. It probably doesn't help that we are dealing with her, her ASD brother, their overworked dad and the now son-in-law who showed up here unable to eat without vomiting. I do keep their supplements straight on cards so I don't forget. I do know that she was a very uncomfortable little girl, and had been since birth. All the memorable symptoms disappeared almost immediately when I got all the supplements on board. The supplements made such a big difference in her life, that at 13 she makes sure she doesn't miss a single dosing!!! There was just the time she spent overnight with her sister and brother-in-law and forgot to bring them with her. As I posted in another reply recently, it was 2 days before symptoms recurred, which is a great improvement. If not tolerating CLO is the only reason you are suspecting you may want to add a mito cocktail, I'd take note of symptoms first, then maybe ask some questions. For us, the connections were random. I never would have put the excessive ear was and stomach aches together as indication of one larger problem, or any combination of the symptoms. It's just a lot of reading on this message board, and a few well placed questions, that made the connections for me. Sometimes, this who journey is like a giant connect-the-dots puzzle that seems so random, but paints an obvious picture when you connect them in the right order. For my son, I remember that I had a revelation, again with help of this board, that his odd love of pepper was part of his puzzle. Yes, he covered things black with pepper! Now that I mention it, he's not using as much as he used to. Sometimes, the real info is in the little things like ear wax and pepper. :-) Good luck finding out just the right pattern for your unique individual!! P. Arias wrote: > > I am not sure i even need to do this... other than my dd can't > tolerate cod liver oil and some other supplements. > On Aug 21, 2008, at 8:54 AM, P. wrote: > > > I looked around on the internet when I finally figured that my > > daughter's issues were mito dysfunction, with help from the people > > here. I ended up using the info at Dana's site to put together her > > mito > > cocktail. This is what I came up with from my researching. Before > > adding all this, I had already added enzymes, probiotics, kefir and > > raw > > milk. Which all improved the problem some, but didn't really seem to > > completely address the issues she was having. > > > > What we did for the mito cocktail was USRDA 2x a day for each > > supplement: > > l-Carnatine > > Taurine > > Selenium (as selenomethionine) > > B-50 > > C 500 (which we had to cut back, then discontinue before the > > others, as > > it started causing rashes when she no longer needed the heavy dose) > > Zinc > > CoQ10 > > Vit E > > We started each individual supplement one at a time, adding to the > > previous ones, and didn't add the next for at least 3-5 days to make > > sure there were no reactions. > > > > We didn't do CLO with her either. In addition to the Mito Cocktail, we > > added A and Cal/Mag (which she didn't take at the same time as zinc) > > > > It's rather complicated, but simplified, the combination of > > supplements > > helps the mitochondria process properly, thus a reduction of symptoms. > > Here, after we started chelation, we were able to drop off the Vit > > E and > > C quite soon. We talked to an ND who had us slowly replace the load of > > supplements with a single algae pill. It has done a great job so far, > > but I'm not sure how much is the algae pill or how much is improvement > > from chelation. I believe it is a combination of both, since she went > > without a couple days and symptoms didn't return immediately as usual. > > We still don't give CLO to her though. > > > > Our daughter is 13yo and NT. > > Hope that helps some. > > P. > > > > Arias wrote: > > > > > > but I still don't get it. My dd reacts to cod liver oil and Dana > > said > > > her child did to until she gave it with a mito coctail. What is > > this. > > > I read her link and still don't understand it. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 > > so this coctail is something that you do for just a little while? or > is it for life? My kids no longer need it, so it is not for life, at least if you chelate. My kids are also fully chelated. >> and do peoople do it in addition to andys protocol > for the ALA? I did it in addition to ALA. My kids required a few additional supplements, in addition to the supps usually recommended for mito cocktail, before they were able to eat fats. Dana Quote Link to comment Share on other sites More sharing options...
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