Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 In a message dated 3/28/02 10:56:05 PM Mountain Standard Time, bwentdg@... writes: > My overwhelming fatigue has manifested itsself into a near continous sleep > state > over the few weeks, > Has this happened to others ? Once, when I got a flu shot, I slept for at least a couple of months. Could barely make it to the kitchen and fix a bite. Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi ; I am wondering if you are having what is called "Phantom Shocks". That is when your sub concious remembers your body when shocked, for instance when you were out and they were implanting your ICD and checking it. Your body remembers the test shocks. Your subconcious is a powerful thing and of course all of this was a great trauma to your body. This is not uncommon, but most Doctors don't know anything about it. My EP at Stanford beleives it. I have not had this happen to me, but I do have sleep apnea and too sleep with a CPAP machine! Hope this gives you some explanation. ~guin (in CA) wrote: For many weeks now I have had trouble sleeping. First it began as an on & off kind of thing. Now it is becoming nightly (4 nights in a row so far). I've even been on a sleeping & anti-depression med that used to knock me out once I took it. It took dreams of and pain from needing to pee before I would straggle out of bed. Now it doesn't work. What happens is that I get tired and go to sleep. 1 1/2 to 2 hours later I wake up sort of abruptly. Sometimes I get up to pee but I go right back to bed. I can't seem to go back to sleep. I've racked my brain over what it could be. I'm not coughing, I have sleep apnea but use a CPAP and know that it isn't that, I'm not in a dream state, as far as I know, and nothing is startling me. I just can't go back to sleep. How I feel reminds me of the night I went into Cardiac Arrest and then had all that Adrenalin going thru my body. I couldn't sleep and the nurse said that was not unusual with the amount of adrenalin going thru my body. Not sure if this is insomnia or what. My doc is no help and it's gotten worse. Has anyone else had this happen to them? Does anyone have any ideas? I desperately need sleep to cope!!! in CA Please visit the Zapper homepage at http://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Guin, An interesting phenomenon for sure. I would probably agree with you knowing how strange my body react to things. It actually started mildly and only occasionaly before my hospitalization and Zapper implanting. Someone mentioned it could be the Beta RX and thinking of the timing it fits. in CA Re: Sleep Question Hi ; I am wondering if you are having what is called "Phantom Shocks". That is when your sub concious remembers your body when shocked, for instance when you were out and they were implanting your ICD and checking it. Your body remembers the test shocks. Your subconcious is a powerful thing and of course all of this was a great trauma to your body. This is not uncommon, but most Doctors don't know anything about it. My EP at Stanford beleives it. I have not had this happen to me, but I do have sleep apnea and too sleep with a CPAP machine! Hope this gives you some explanation. ~guin (in CA) wrote: For many weeks now I have had trouble sleeping. First it began as an on & off kind of thing. Now it is becoming nightly (4 nights in a row so far). I've even been on a sleeping & anti-depression med that used to knock me out once I took it. It took dreams of and pain from needing to pee before I would straggle out of bed. Now it doesn't work. What happens is that I get tired and go to sleep. 1 1/2 to 2 hours later I wake up sort of abruptly. Sometimes I get up to pee but I go right back to bed. I can't seem to go back to sleep. I've racked my brain over what it could be. I'm not coughing, I have sleep apnea but use a CPAP and know that it isn't that, I'm not in a dream state, as far as I know, and nothing is startling me. I just can't go back to sleep. How I feel reminds me of the night I went into Cardiac Arrest and then had all that Adrenalin going thru my body. I couldn't sleep and the nurse said that was not unusual with the amount of adrenalin going thru my body. Not sure if this is insomnia or what. My doc is no help and it's gotten worse. Has anyone else had this happen to them? Does anyone have any ideas? I desperately need sleep to cope!!! in CA Please visit the Zapper homepage at http://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 ..... > Not sure if this is insomnia or what. My doc is no help and it's > gotten worse. Has anyone else had this happen to them? Does anyone > have any ideas? I desperately need sleep to cope!!! > > > I'm so sorry..... that's one of MY big dread things too, not being > able to get enuff sleep. Have you > tried any OTC sleep aids, like Sominex? The active ingredient in there > is usually considered safe for > heart patient folks, but just to be sure.... check with your doc, of > course. Are you able to nap during > the day? I hope this gets better for you. > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Hi Sue; My Doc recommended that i see a physciatrist and that gentelman prescribed zoloft(anti depressant) and Clonopin(anti anxiety) and clonopin makes me sleep like a baby at night and so far i havent seen any side affects from it except for maybe being sleepy during the day but i dont take almost any i only take a half a tablet at night.(my doc prescribed 3 pills a day but half does the job and if i get panicky i take a half a pill and im fine. TURK >From: Sue Owens <susie77@...> >Reply- > >Subject: Re: Sleep Question >Date: Sat, 13 Apr 2002 20:02:45 -0500 > > > > ..... > > > Not sure if this is insomnia or what. My doc is no help and it's > > gotten worse. Has anyone else had this happen to them? Does anyone > > have any ideas? I desperately need sleep to cope!!! > > > > > > I'm so sorry..... that's one of MY big dread things too, not being > > able to get enuff sleep. Have you > > tried any OTC sleep aids, like Sominex? The active ingredient in there > > is usually considered safe for > > heart patient folks, but just to be sure.... check with your doc, of > > course. Are you able to nap during > > the day? I hope this gets better for you. > > Sue > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 hi sue, my doc gave me a prescription for ambien several years ago.....and they help me get a good nights sleep most every night....but admittedly i am hopelessly addicted to them....i tried to wean myself off them and then want about a week with about 5 hours sleep..... bob in pa --- [This E-mail scanned for viruses by IAS, an Archiventure Company] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Bob.... > hopelessly addicted to them....i tried to wean myself off them and > then > want about a week with about 5 hours sleep..... Gadz, how awful. I'll stick to my tried-n-true OTC sleepies! Sue -- " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Rich and Sue Owens http://www.geocities.com/Yosemite/Meadows/7457/index3.html http://www.nothnbut.net/~reo77/aurora.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 In a message dated 7/9/2005 8:51:28 A.M. Eastern Standard Time, janmarie21@... writes: but just wondered when she was born was she in a special care nursery with the lights on all the time This has been proven to call sensory integration issues. Sensory overload at birth! Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 In a message dated 7/9/2005 8:51:28 A.M. Eastern Standard Time, janmarie21@... writes: but just wondered when she was born was she in a special care nursery with the lights on all the time This has been proven to call sensory integration issues. Sensory overload at birth! Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Hi Sue, Sorry can't help you with your question, but just wondered when she was born was she in a special care nursery with the lights on all the time! Trent was scared of the dark for ages and would not have the light off - I suppose what helped him was he always shared a room with either his sisters or brother. At 21, he still has a light on in his room, although nearly nothing - just the glow from the CD player - but it must be on otherwise he kicks up a stink. I have always put his phobia of dark down to the fact, that he really didn't experience dark when he was a new born, having been kept in the special care nursery for 3 days. Keep smiling Jan, mother of Trent now 21yo w/DS from the LandDownUnder sleep question > Does anyone have any information on how the quality of sleep is affected > by > having an overhead light left on all night? > > Karrie has to have her room light on all night. I have tried shutting it > off > after she falls asleep (she gets up within 30 minutes and turns it back > on), > a night light (same scenario), hall light, opening blinds in her window to > let street light in....she insists on overhead light. > > Yesterday, we had a neurology visit. He ruled out Tourette's and feels she > has some sort of psychosis. He thinks it could possibly be brought on by > sleep deprivation. > > I got a packet of info from a service coordinator I haven't contacted in a > while. (LONG STORY THERE!!). I was reading through all Karrie's medical > files, starting when she was 3. From the very beginning, I have questioned > the doctors about her sleeping. Several mentions are made of the doctors > wondering if a sleep study would be needed. > > She did have a sleep study scheduled last year, only to have the ENT > cancel > it and do a T and A. He clinically diagnosed her with OSA. I have decided > to > insist on a sleep study before any other testing or visits are done. > > Thanks for reading if you made it this far!! Any input is welcomed! > > For everyone in harm's way with the weather down South/East, may He keep > you > safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > > Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Hi Sue, Sorry can't help you with your question, but just wondered when she was born was she in a special care nursery with the lights on all the time! Trent was scared of the dark for ages and would not have the light off - I suppose what helped him was he always shared a room with either his sisters or brother. At 21, he still has a light on in his room, although nearly nothing - just the glow from the CD player - but it must be on otherwise he kicks up a stink. I have always put his phobia of dark down to the fact, that he really didn't experience dark when he was a new born, having been kept in the special care nursery for 3 days. Keep smiling Jan, mother of Trent now 21yo w/DS from the LandDownUnder sleep question > Does anyone have any information on how the quality of sleep is affected > by > having an overhead light left on all night? > > Karrie has to have her room light on all night. I have tried shutting it > off > after she falls asleep (she gets up within 30 minutes and turns it back > on), > a night light (same scenario), hall light, opening blinds in her window to > let street light in....she insists on overhead light. > > Yesterday, we had a neurology visit. He ruled out Tourette's and feels she > has some sort of psychosis. He thinks it could possibly be brought on by > sleep deprivation. > > I got a packet of info from a service coordinator I haven't contacted in a > while. (LONG STORY THERE!!). I was reading through all Karrie's medical > files, starting when she was 3. From the very beginning, I have questioned > the doctors about her sleeping. Several mentions are made of the doctors > wondering if a sleep study would be needed. > > She did have a sleep study scheduled last year, only to have the ENT > cancel > it and do a T and A. He clinically diagnosed her with OSA. I have decided > to > insist on a sleep study before any other testing or visits are done. > > Thanks for reading if you made it this far!! Any input is welcomed! > > For everyone in harm's way with the weather down South/East, may He keep > you > safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > > Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Hi Jan, Yes, Karrie was in a NICU for 2.5 weeks after birth. She had a PDA at 3 days old, renal failure at 2 days old, congestive heart failure, pulmonary hypertension, jaundice and an inability to stabilize her body heat. She only required having the light on after our move to this house 3 years ago. But then that was when lots of her behavior flares started, too. Thanks for the input!!! Sue mom to Kate 15 and Karrie 9 w/ds and other issues -- Re: sleep question Hi Sue, Sorry can't help you with your question, but just wondered when she was born was she in a special care nursery with the lights on all the time! Trent was scared of the dark for ages and would not have the light off - I suppose what helped him was he always shared a room with either his sisters or brother. At 21, he still has a light on in his room, although nearly nothing - just the glow from the CD player - but it must be on otherwise he kicks up a stink. I have always put his phobia of dark down to the fact, that he really didn't experience dark when he was a new born, having been kept in the special care nursery for 3 days. Keep smiling Jan, mother of Trent now 21yo w/DS from the LandDownUnder sleep question > Does anyone have any information on how the quality of sleep is affected > by > having an overhead light left on all night? > > Karrie has to have her room light on all night. I have tried shutting it > off > after she falls asleep (she gets up within 30 minutes and turns it back > on), > a night light (same scenario), hall light, opening blinds in her window to > let street light in....she insists on overhead light. > > Yesterday, we had a neurology visit. He ruled out Tourette's and feels she > has some sort of psychosis. He thinks it could possibly be brought on by > sleep deprivation. > > I got a packet of info from a service coordinator I haven't contacted in a > while. (LONG STORY THERE!!). I was reading through all Karrie's medical > files, starting when she was 3. From the very beginning, I have questioned > the doctors about her sleeping. Several mentions are made of the doctors > wondering if a sleep study would be needed. > > She did have a sleep study scheduled last year, only to have the ENT > cancel > it and do a T and A. He clinically diagnosed her with OSA. I have decided > to > insist on a sleep study before any other testing or visits are done. > > Thanks for reading if you made it this far!! Any input is welcomed! > > For everyone in harm's way with the weather down South/East, may He keep > you > safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > > Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Don't have an answer, but won't sleep without her lights either. She has a nightlight and a bedside lamp with a very low wattage bulb in it that she needs to have on. I go in before I go to bed and turn off the lamp, and usually in the morning it is back on. We realized that she also would get up and turn on the overhead light during the night and then not be able to get back to sleep (unless she came in our room and got in bed with us, LOL). Fortunately, those lights are a ceiling fan, so we now turn the light off before bed with the pull chain, making the switch useless to her at night. That has helped a lot. She is a restless, wierd positing sleeper who usually talks (and occasionally yells) in her sleep. She had tonsils and partial adenoids out at age 4, but I don't think it has really helped her sleep that much. The ENT didn't recommend a sleep study yet, but I think she should have one to see where she's at. Some mornings she wakes up and looks really tired...... she sleeps more than her sisters, yet frequently doesn't look as rested. What happens after a sleep study? Is there any " middle ground " between doing nothing and a C-PAP machine? How are the results given....... # apenic episodes per hour? how long a apenic event lasted? Can they give an idea of how their sleep compares to " normal " sleep? , mom to (9), (7 DS), and (5) Sue Brown wrote: >Does anyone have any information on how the quality of sleep is affected by >having an overhead light left on all night? > >Karrie has to have her room light on all night. I have tried shutting it off >after she falls asleep (she gets up within 30 minutes and turns it back on), >a night light (same scenario), hall light, opening blinds in her window to >let street light in....she insists on overhead light. > >Yesterday, we had a neurology visit. He ruled out Tourette's and feels she >has some sort of psychosis. He thinks it could possibly be brought on by >sleep deprivation. > >I got a packet of info from a service coordinator I haven't contacted in a >while. (LONG STORY THERE!!). I was reading through all Karrie's medical >files, starting when she was 3. From the very beginning, I have questioned >the doctors about her sleeping. Several mentions are made of the doctors >wondering if a sleep study would be needed. > >She did have a sleep study scheduled last year, only to have the ENT cancel >it and do a T and A. He clinically diagnosed her with OSA. I have decided to >insist on a sleep study before any other testing or visits are done. > >Thanks for reading if you made it this far!! Any input is welcomed! > >For everyone in harm's way with the weather down South/East, may He keep you >safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > >Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Don't have an answer, but won't sleep without her lights either. She has a nightlight and a bedside lamp with a very low wattage bulb in it that she needs to have on. I go in before I go to bed and turn off the lamp, and usually in the morning it is back on. We realized that she also would get up and turn on the overhead light during the night and then not be able to get back to sleep (unless she came in our room and got in bed with us, LOL). Fortunately, those lights are a ceiling fan, so we now turn the light off before bed with the pull chain, making the switch useless to her at night. That has helped a lot. She is a restless, wierd positing sleeper who usually talks (and occasionally yells) in her sleep. She had tonsils and partial adenoids out at age 4, but I don't think it has really helped her sleep that much. The ENT didn't recommend a sleep study yet, but I think she should have one to see where she's at. Some mornings she wakes up and looks really tired...... she sleeps more than her sisters, yet frequently doesn't look as rested. What happens after a sleep study? Is there any " middle ground " between doing nothing and a C-PAP machine? How are the results given....... # apenic episodes per hour? how long a apenic event lasted? Can they give an idea of how their sleep compares to " normal " sleep? , mom to (9), (7 DS), and (5) Sue Brown wrote: >Does anyone have any information on how the quality of sleep is affected by >having an overhead light left on all night? > >Karrie has to have her room light on all night. I have tried shutting it off >after she falls asleep (she gets up within 30 minutes and turns it back on), >a night light (same scenario), hall light, opening blinds in her window to >let street light in....she insists on overhead light. > >Yesterday, we had a neurology visit. He ruled out Tourette's and feels she >has some sort of psychosis. He thinks it could possibly be brought on by >sleep deprivation. > >I got a packet of info from a service coordinator I haven't contacted in a >while. (LONG STORY THERE!!). I was reading through all Karrie's medical >files, starting when she was 3. From the very beginning, I have questioned >the doctors about her sleeping. Several mentions are made of the doctors >wondering if a sleep study would be needed. > >She did have a sleep study scheduled last year, only to have the ENT cancel >it and do a T and A. He clinically diagnosed her with OSA. I have decided to >insist on a sleep study before any other testing or visits are done. > >Thanks for reading if you made it this far!! Any input is welcomed! > >For everyone in harm's way with the weather down South/East, may He keep you >safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > >Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Sue, My son, Mathias- almost 3 yrs old - has a lot of sleep issues too. We did a sleep study mostly because of Obstructive Sleep Apnea issues and had a T & A done. Mathias sleeps a little better and snores less after the T & A than before. The adenoidectomy was a reduction (70% removal) rather than complete removal. Mathias was in the PICU for 35 days from the time he was 5 days old. The lights, bells, and other annoyances of the ICU may be a reason for poor sleep patterns. I attribute Mathias's problems to the fact that we live in Alaska and currently have 20 hours of daylight (4 in the winter). He responds horribly to the growing daylight and then eventually gets used to it - just in time for it to get dark again. I have heard serotonin supplements help but have not tried them. It might be something to look into. As far as the sleep study goes, I would recommend having it done. Neither one of you will sleep that great while it is being done but it will hopefully give you some answers. Barbara Misener - Mom to Mathias (3 yrs old) Sue Brown <karriemom@...> wrote: Hi Jan, Yes, Karrie was in a NICU for 2.5 weeks after birth. She had a PDA at 3 days old, renal failure at 2 days old, congestive heart failure, pulmonary hypertension, jaundice and an inability to stabilize her body heat. She only required having the light on after our move to this house 3 years ago. But then that was when lots of her behavior flares started, too. Thanks for the input!!! Sue mom to Kate 15 and Karrie 9 w/ds and other issues -- Re: sleep question Hi Sue, Sorry can't help you with your question, but just wondered when she was born was she in a special care nursery with the lights on all the time! Trent was scared of the dark for ages and would not have the light off - I suppose what helped him was he always shared a room with either his sisters or brother. At 21, he still has a light on in his room, although nearly nothing - just the glow from the CD player - but it must be on otherwise he kicks up a stink. I have always put his phobia of dark down to the fact, that he really didn't experience dark when he was a new born, having been kept in the special care nursery for 3 days. Keep smiling Jan, mother of Trent now 21yo w/DS from the LandDownUnder sleep question > Does anyone have any information on how the quality of sleep is affected > by > having an overhead light left on all night? > > Karrie has to have her room light on all night. I have tried shutting it > off > after she falls asleep (she gets up within 30 minutes and turns it back > on), > a night light (same scenario), hall light, opening blinds in her window to > let street light in....she insists on overhead light. > > Yesterday, we had a neurology visit. He ruled out Tourette's and feels she > has some sort of psychosis. He thinks it could possibly be brought on by > sleep deprivation. > > I got a packet of info from a service coordinator I haven't contacted in a > while. (LONG STORY THERE!!). I was reading through all Karrie's medical > files, starting when she was 3. From the very beginning, I have questioned > the doctors about her sleeping. Several mentions are made of the doctors > wondering if a sleep study would be needed. > > She did have a sleep study scheduled last year, only to have the ENT > cancel > it and do a T and A. He clinically diagnosed her with OSA. I have decided > to > insist on a sleep study before any other testing or visits are done. > > Thanks for reading if you made it this far!! Any input is welcomed! > > For everyone in harm's way with the weather down South/East, may He keep > you > safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > > Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Sue, My son, Mathias- almost 3 yrs old - has a lot of sleep issues too. We did a sleep study mostly because of Obstructive Sleep Apnea issues and had a T & A done. Mathias sleeps a little better and snores less after the T & A than before. The adenoidectomy was a reduction (70% removal) rather than complete removal. Mathias was in the PICU for 35 days from the time he was 5 days old. The lights, bells, and other annoyances of the ICU may be a reason for poor sleep patterns. I attribute Mathias's problems to the fact that we live in Alaska and currently have 20 hours of daylight (4 in the winter). He responds horribly to the growing daylight and then eventually gets used to it - just in time for it to get dark again. I have heard serotonin supplements help but have not tried them. It might be something to look into. As far as the sleep study goes, I would recommend having it done. Neither one of you will sleep that great while it is being done but it will hopefully give you some answers. Barbara Misener - Mom to Mathias (3 yrs old) Sue Brown <karriemom@...> wrote: Hi Jan, Yes, Karrie was in a NICU for 2.5 weeks after birth. She had a PDA at 3 days old, renal failure at 2 days old, congestive heart failure, pulmonary hypertension, jaundice and an inability to stabilize her body heat. She only required having the light on after our move to this house 3 years ago. But then that was when lots of her behavior flares started, too. Thanks for the input!!! Sue mom to Kate 15 and Karrie 9 w/ds and other issues -- Re: sleep question Hi Sue, Sorry can't help you with your question, but just wondered when she was born was she in a special care nursery with the lights on all the time! Trent was scared of the dark for ages and would not have the light off - I suppose what helped him was he always shared a room with either his sisters or brother. At 21, he still has a light on in his room, although nearly nothing - just the glow from the CD player - but it must be on otherwise he kicks up a stink. I have always put his phobia of dark down to the fact, that he really didn't experience dark when he was a new born, having been kept in the special care nursery for 3 days. Keep smiling Jan, mother of Trent now 21yo w/DS from the LandDownUnder sleep question > Does anyone have any information on how the quality of sleep is affected > by > having an overhead light left on all night? > > Karrie has to have her room light on all night. I have tried shutting it > off > after she falls asleep (she gets up within 30 minutes and turns it back > on), > a night light (same scenario), hall light, opening blinds in her window to > let street light in....she insists on overhead light. > > Yesterday, we had a neurology visit. He ruled out Tourette's and feels she > has some sort of psychosis. He thinks it could possibly be brought on by > sleep deprivation. > > I got a packet of info from a service coordinator I haven't contacted in a > while. (LONG STORY THERE!!). I was reading through all Karrie's medical > files, starting when she was 3. From the very beginning, I have questioned > the doctors about her sleeping. Several mentions are made of the doctors > wondering if a sleep study would be needed. > > She did have a sleep study scheduled last year, only to have the ENT > cancel > it and do a T and A. He clinically diagnosed her with OSA. I have decided > to > insist on a sleep study before any other testing or visits are done. > > Thanks for reading if you made it this far!! Any input is welcomed! > > For everyone in harm's way with the weather down South/East, may He keep > you > safe. My father and 2 brothers are in Florida, near Tampa and Pennscola. > > Sue mom to Kate 15 and Karrie 9 w/ds and other issues > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Nic's got some weird sleep issues too. Can you maybe change her switch to a dimmer and slowly over time fade the light down? Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Nic's got some weird sleep issues too. Can you maybe change her switch to a dimmer and slowly over time fade the light down? Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Say melatonin, chlonodine and Taurine ALL help put your child too sleep. Which one is the best to use. Is there one that is more important for your body to have. If all 3 work... which one should you pick. My dd shows suspicious spikes on her eeg's. I think its seizure activity keeping her awake at night and making her really implulsive. Which one of these supplements can be used long term? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 THANKS On Dec 1, 2008, at 9:40 PM, Reynolds wrote: > If its seizure related then I think I just answered your question with > the taurine post. > > Arias wrote: > > > > Say melatonin, chlonodine and Taurine ALL help put your child too > > sleep. Which one is the best to use. Is there one that is more > > important for your body to have. If all 3 work... which one > should you > > pick. My dd shows suspicious spikes on her eeg's. I think its > seizure > > activity keeping her awake at night and making her really > implulsive. > > Which one of these supplements can be used long term? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Taurine was a disaster for my seizure prone d. Even though she has low plasma taurine and high urine taurine on testing, supplementing taurine produced seizues the 3 times I tried it. I would vote for the melatonin. We used both a regular form with a sustained release form at some points in time. Currently, she takes just the regular form @ bedtime. > > > > > > Say melatonin, chlonodine and Taurine ALL help put your child too > > > sleep. Which one is the best to use. Is there one that is more > > > important for your body to have. If all 3 work... which one > > should you > > > pick. My dd shows suspicious spikes on her eeg's. I think its > > seizure > > > activity keeping her awake at night and making her really > > implulsive. > > > Which one of these supplements can be used long term? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 melatonin and taurine can be used long term. Melatonin is also good for the immune system. Taurine, good for many, many things in the body. You can probably use both of them if it takes that to help with sleep. Chlonodine..not sure on long term safety but in certain circumstances, such as seizure disorders...something like that may be needed. If you can get the same results with melatonin and/or taurine...it would be better to use them. If they did not work, then you are left with the chlonodine. > > Say melatonin, chlonodine and Taurine ALL help put your child too > sleep. Which one is the best to use. Is there one that is more > important for your body to have. If all 3 work... which one should you > pick. My dd shows suspicious spikes on her eeg's. I think its seizure > activity keeping her awake at night and making her really implulsive. > Which one of these supplements can be used long term? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 They tend to go through cycles where they sleep better and worse. When they go through developmental changes (crawling, walking, talking) they tend to sleep worse. We just would go in Cole's room lay him back down if he was crying (ignore him if he wasn't) and let him fall back to sleep on his own. I know it is hard in 1 room but could you put the crib in the other room for a while? Good luck! Jenn Mommy to Cole, 2.5 years, 1st brace from rochester, 2 degrees out of cast down from 47 after 10 months in 5 casts > > Hey everyone, > I was wondering if anyone had some tricks up their sleeve on ho I could get Thaddeus to sleep though the night. He was doing very well when he was younger but not it seems like he's up at 2/3 every night and then up around 6 and wants to play... I don't know what to do. We are still in a one bedroom place so I don't n ow if that has something to do with it. Could his brace be too tight? Any ideas will help .... I'm going crazy here... > > Thanks > > mommy to Thaddeus 17 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 , I had the worst time with my daughter sleeping from the time she was 5/6 mnths old until she got her last cast off in March. I dont know is she was uncomfortable or the reflux (which was just diagnosed in Feb, but I think she had it all along). It was so hard to figure out what the problem was and I never did pinpoint it. Nothing seemed to work until she got her brace on in March. So, I would think its not the brace b/c its adjustable, right? Maybe try to loosen it just a bit tonight, see if that works. Sorry, I dont have any helpful tips but I do feel ur pain, lol! Good Luck Melinda Mommy of Marlycia 17 mnths, Natalya 2.5 yrs Scranton, PA Sleep question Hey everyone,I was wondering if anyone had some tricks up their sleeve on ho I could get Thaddeus to sleep though the night. He was doing very well when he was younger but not it seems like he's up at 2/3 every night and then up around 6 and wants to play... I don't know what to do. We are still in a one bedroom place so I don't n ow if that has something to do with it. Could his brace be too tight? Any ideas will help .... I'm going crazy here...Thanksmommy to Thaddeus 17 months Quote Link to comment Share on other sites More sharing options...
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