Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 That is pretty much the testing that we are doing. Glad to hear you have your drops now and hope all goes well. Let us know how it goes. Jane Mama to 7 ASD & 4 NT -- Re: Digest Number 1460 We've done the standard labs (CBC, etc), CDSA, and toxic metals with a DMPS challenge. Have not done the OAT or cardiogenomics. We're gonna recheck the CBC & minerals in 6 weeks and do a dmps urine challenge every 3 months so far as I know right now. We started the drops Saturday night.... mom to Owen, 3 1/2, asd, and Jordyn, 11.5 months In a message dated 11/8/2004 6:22:25 AM Eastern Standard Time, autism writes: Anybody on this list doing or considering doing chelation with td-dmps? We're getting ready to start as soon as our prescription arrives. Yes, I am also waiting for a prescription from Buttar. I am curious if you did all of the baseline testing?I do have a few friends in AZ that have been doing this and are seeing positive results (more language, etc.).Jane Mama to 7 (ASD) and 4 (NT- with gut issues) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Thanks so much for doing this, Lorene. If you get more news later this week, will you let us know? Best wishes, Abbie Floe TD-DMPS Dear all,I have called Switzerland again today and I was told that the DMPS has left the US and should arrive later this week.The cost is 160 Euro plus postage.Has anyone seen the CD Dr Buttar is giving to discuss the protocol?ThanksLorene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Hi Lorene, Does the pharmacy have an email address as I faxed them last week to ask them to let me know when we could order it but wanted to follow up with an email if possible. With many thanks TD-DMPS Dear all,I have called Switzerland again today and I was told that the DMPS has left the US and should arrive later this week.The cost is 160 Euro plus postage.Has anyone seen the CD Dr Buttar is giving to discuss the protocol?ThanksLorene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 Hi I was a bit confused when I went to the site because it was listing Vit C and Selenium etc as chelators and that were only using NDF??? How is your daughter doing? It would be great if you could post an update on how things are going for her - we have some members here who haven;t started yet and are keen to learn from those o fus that do Mandi in UK Thought you might be interested to know where I sourced my TD-DMPS. My daughter has been taking it for 6 months now. Website www.secrenase.com is run by a brilliant autism specialist who is willing to prescribe without meeting your child. He calculates the dose required by the child's weight, and prescribes accordingly. He also gives great assistance to the daily ups and downs of living with autism, and gives practical advice of what to do when we have a setback eg. altering doses of supplements, probiotics etc. Have a look at his website, let me know what you think! (His prices are about the same as you quote Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 Hi Mandi I'm not quite sure why he advocates the natural approach first, I suspect it's something to do with the cost issue in Australia where the bulk of his clients live. However, if you ask him, he is more than willing to send TD-DMPS aswell. He needs poo samples and assurances that you are using something like Kirkman's Supa-NuThera first to ensure correct mineral balance. Eleanor has started mainstream school last September about the same time as we started her mercury treatment. She was a classic mercury retainer as defined by Amy Holmes. She also had lead poisoning. (Diagnosed from hair). Her development over the last 6 months has been astounding. Her teacher says that she has never seen a child gain so much in 6 months, particularly socially. She is now mixing well and has a small group of friends, but is also happy to mix with the larger group. She joins in all activities and sits down for story time. She has never ever done this before, she had always walked away and buried her head in the floor. She is also grasping concepts and ideas. We do have bad days still, when she has a large mercury dump (particularly when you use lipoic acid aswell to cross the blood brain barrier) it totally screws her gut up and we have quite a major regression for a short time. For this reason, I only use lipoic acid when she is away from school. When the regression is over, the gains made are evident to see. Dr helps me through these regressions and advises me on changing her doses of probiotics and Super NuThera. We have had to massively increase her zinc and magnesium, since of course the TD-DMPS chelates good metals aswell. We did not do any blood tests, since I was extremely anxious to start her chelation immediately. I remembered how Amy Holmes results clearly identified that the older the child gets, the harder the mercury is to move. Since this may be two year process, I did not want to waste any time atall. Her behaviour is now good enough to allow her to attend parties and play without constant supervision (she used to bash other children and head-but them). She now sleeps through the night (this came about 4 months into the treatment) which has also had a major impact on our family. We are all calmer!! As far as I have experienced, this drug is a marvel and should be available to all. Let me know how you get on with it, it's very exciting watching it work! Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 Joy this is wonderful news, you are on the right track for sure Be sure to keep us updated as you go along - have you done any output testing yet? I am waiting to catch some pee, have the poop in the freezer and when I have both I will send to DDI and keep my fingers crossed as I need some good dumps to try and pursue NHS funding for Dr Heard. I don;t really need his advice much (IMO LOL) but I would like access to the expensive tests! Mandi in Dorset Eleanor has started mainstream school last September about the same time as we started her mercury treatment. She was a classic mercury retainer as defined by Amy Holmes. She also had lead poisoning. (Diagnosed from hair). Her development over the last 6 months has been astounding. Her teacher says that she has never seen a child gain so much in 6 months, particularly socially. She is now mixing well and has a small group of friends, but is also happy to mix with the larger group. She joins in all activities and sits down for story time. She has never ever done this before, she had always walked away and buried her head in the floor. She is also grasping concepts and ideas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Not stupid at all. No gloves - you can either get the child to rub in themselves or use a flat bottomed glass to rub it in. I have a little dumpy shot glass that works very well. If you get any on you, wash it off straight away HTH Mandi Sorry if this is a completely dumb question, but I assume we need to wear gloves when we are applying TDDMPS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Hi, I joined this group in April but have not got into reading huge inbox til now...lots going on. Anyway I'm really interested in your experience on td-dmps, we started dmsa 2 weeks ago but have stopped because of huge hyperactivity.. could you expand a bit more on how you're getting along, it would help my motivation levels a lot at the moment. Thankyou in advance.joyous2go <joymroscoe@...> wrote: Thought you might be interested to know where I sourced my TD-DMPS. My daughter has been taking it for 6 months now. Website www.secrenase.com is run by a brilliant autism specialist who is willing to prescribe without meeting your child. He calculates the dose required by the child's weight, and prescribes accordingly. He also gives great assistance to the daily ups and downs of living with autism, and gives practical advice of what to do when we have a setback eg. altering doses of supplements, probiotics etc. Have a look at his website, let me know what you think! (His prices are about the same as you quote from Switzerland) Messenger NEW - crystal clear PC to PC calling worldwide with voicemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 HI Bernard Tom used his first five word sentence today in probably three years. He's been non verbal since about the age of 4 having been diagnosed at 3 years and continuing to slide down and down. He's been on TD DMPS since APril and on sups since February. He's more alert, more friendly, more emotional, more affectionate, more assertive. He seeks us out to play with him, he flirts! He's a long, long way from normal but in many ways he's " back " . Even though it's a real pain - injections, Td stuff, nystatin, magnesium, minerals, vits, glutathione, oils the list is endless and our list is short compared to other parents we are finding it well worth it at present. HTH Stephx Thought you might be interested to know where I sourced my TD-DMPS. My > daughter has been taking it for 6 months now. Website www.secrenase.com > is run by a brilliant autism specialist who is willing to prescribe > without meeting your child. He calculates the dose required by the > child's weight, and prescribes accordingly. He also gives great > assistance to the daily ups and downs of living with autism, and gives > practical advice of what to do when we have a setback eg. altering > doses of supplements, probiotics etc. Have a look at his website, let > me know what you think! (His prices are about the same as you quote > from Switzerland) > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 In a message dated 13/06/2005 21:44:16 GMT Daylight Time, c0ff33man@... writes: Hi, I joined this group in April but have not got into reading huge inbox til now...lots going on. Anyway I'm really interested in your experience on td-dmps, we started dmsa 2 weeks ago but have stopped because of huge hyperactivity.. could you expand a bit more on how you're getting along, it would help my motivation levels a lot at the moment. Thankyou in advance. >>>>Hello We have been using TD DMPS since 14th January this year, so coming up to 5 months now. We have not seen any problems as yet, apart from odd transient rashes at the beginning, some at site of application some elsewhere. We have seen more and faster improvements in Sam during the past 6 months than we had in the previous year. We started MB2 and Lipo GSH at around the same time. Once we had worked up to full dose on the TD DMPS we added oral ALA every other weekend on a 2 hourly dosing schedule and saw another step forward. MOsts reecently we have added EDTA on the alternate weekend to ALA, we dose that 8 hourly. I think this qualifies as a gressive chelation protocol.............. Prior to this we had chelated 70 rounds with oral DMSA/ALA low frequent dosing with slow steady but small improvements. We went through yeast hell and got out the other sie at around round 50 (PHEW!!!!) So we enter our 4 th year of chelation, just as hopeful as we were when we started, I have never belived in anything more strongly than the need to get the metals out of Sam He will have spoken words, you mark my words LOL just don;t ask me when!!! Mandi in Dorset UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 .. > So we enter our 4 th year of chelation, just as hopeful as we were when we > started, I have never belived in anything more strongly than the need to get > the metals out of Sam > > He will have spoken words, you mark my words LOL just don;t ask me when!!! > > Mandi in Dorset UK Dear Mandi you are an angel of patience - an example for all of us. we are happy to have you. greetings from Greece Margarita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Does anyone here do td-dmps and if so do you use Dr. buttars office tog et it or do you get the prefilled syringes. kate Quote Link to comment Share on other sites More sharing options...
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