Vit E Disaster - help! need advice

[Guest guest]

My son is very reactive to soy - IGg allergy, courtesy of the soy formula our

ped put our

son on at 11 weeks when he developed chronic diarrhea, instead of course we

lived with

chronic constipation - Anyway, I posted here about vit E, and I gave the soy

containing

stuff a try, because it had only soy oil but no soy proteins, and my son

tolerates the CLO

with the small amount of vit e from refined soybean oil. Gave a high gamma

mixed

tocopherol that was recommended here for three days, after 3 days he developed

bad

eczema and diarrhea, just like when he was a baby.

So I stopped that and waited a couple of days, then I tried the Unique E formula

from A.C.

Grace co., which they said they remove all soy oil and soy proteins from, and

they claim is

gluten free. I gave it this am. He was fine during school, and then like all

IGg allergies,

after school all hell broke loose. He has eczema all over his body and is an

insane, crazy

maniac, running and yelling unintelligibly. I am going nuts, it is like pre

biomed all over

again. I forgot how terrible those days were... What do I do? Should I try

giving him the

synthetic stuff from Kirkman, the acetate? This has nothing whatsoever to do

with

soybeans, right? It is supposed to be gfcf too. What is this then, something

made in the

lab? Also, what to do now? I gave him an epsom salt bath. Hopefully by

tomorrow it will

pass. I don't have charcoal on hand, I do have alka seltzer gold, but I can't

get him to take

it... Should I wait a day and get his system back to normal before trying the

synthetic

stuff? Is anyone intolerant to the synthetic? If he can't tolerate that, I

guess he just is not

meant to have the vitamin e. I haven't added anything to his regimen for so

long, and now

this.

I feel so bad that I inadvertently did this to him. Would appreciate any help.

Thanks.

Irene

[Guest guest]

Irene

My nt food allergy child is so allergic to soy. I'm haven't even tried vit e,

too scared.

Have you tried any flax seed like just in baked goods? Has he tolerated that?

I'm even scared to try that!

I myself would let his body settle for a couple days, get the skin clear and go

from there. My sons shows on his skin first but as he's gotten older, he's just

6, it is cold like symptoms. We even have spice issues that I haven't figured

out, gurrrrr.

Please post if you have any luck with any e vit working. I'd be so interested!

We haven't had any reactions for a year or so, but Benadryl always does the

trick here. I see Kirkman has a hypoallergenic (I think) charcoal I should

really get next time. I get all my sons probiotics and vitamins with Kirkman

and he does great with their products.

Best of luck, I feel for ya!

Tammy

[ ] Vit E Disaster - help! need advice

My son is very reactive to soy - IGg allergy, courtesy of the soy formula our

ped put our

son on at 11 weeks when he developed chronic diarrhea, instead of course we

lived with

chronic constipation - Anyway, I posted here about vit E, and I gave the soy

containing

stuff a try, because it had only soy oil but no soy proteins, and my son

tolerates the CLO

with the small amount of vit e from refined soybean oil. Gave a high gamma

mixed

tocopherol that was recommended here for three days, after 3 days he developed

bad

eczema and diarrhea, just like when he was a baby.

So I stopped that and waited a couple of days, then I tried the Unique E

formula from A.C.

Grace co., which they said they remove all soy oil and soy proteins from, and

they claim is

gluten free. I gave it this am. He was fine during school, and then like all

IGg allergies,

after school all hell broke loose. He has eczema all over his body and is an

insane, crazy

maniac, running and yelling unintelligibly. I am going nuts, it is like pre

biomed all over

again. I forgot how terrible those days were... What do I do? Should I try

giving him the

synthetic stuff from Kirkman, the acetate? This has nothing whatsoever to do

with

soybeans, right? It is supposed to be gfcf too. What is this then, something

made in the

lab? Also, what to do now? I gave him an epsom salt bath. Hopefully by

tomorrow it will

pass. I don't have charcoal on hand, I do have alka seltzer gold, but I can't

get him to take

it... Should I wait a day and get his system back to normal before trying the

synthetic

stuff? Is anyone intolerant to the synthetic? If he can't tolerate that, I

guess he just is not

meant to have the vitamin e. I haven't added anything to his regimen for so

long, and now

this.

I feel so bad that I inadvertently did this to him. Would appreciate any help.

Thanks.

Irene

[Guest guest]

Irene,

CRUD!! So sorry he reacted this way. If it were me, I would wait at

least at week or two before trying again with the synthetic Vit E.

Let his system settle down, get the eczema gone etc. before trying it

again. I honestly don't know if the problem is the soy or if his

body can't tolerate/absorb or ??? the Vitamin E. We had behavior

issues initially with Vit E, but not physical problems.

Here is info on Vit E that includes food sources.

http://lpi.oregonstate.edu/infocenter/vitamins/vitaminE/

Anyway, if he can't tolerate the synthetic, you might have to just

try to work in some more Vit E food sources or just let it go for a

while.

(Max's Mom)

>

> My son is very reactive to soy - IGg allergy, courtesy of the soy

formula our ped put our

> son on at 11 weeks when he developed chronic diarrhea, instead of

course we lived with

> chronic constipation - Anyway, I posted here about vit E, and I

gave the soy containing

> stuff a try, because it had only soy oil but no soy proteins, and

my son tolerates the CLO

> with the small amount of vit e from refined soybean oil. Gave a

high gamma mixed

> tocopherol that was recommended here for three days, after 3 days

he developed bad

> eczema and diarrhea, just like when he was a baby.

>

> So I stopped that and waited a couple of days, then I tried the

Unique E formula from A.C.

> Grace co., which they said they remove all soy oil and soy proteins

from, and they claim is

> gluten free. I gave it this am. He was fine during school, and

then like all IGg allergies,

> after school all hell broke loose. He has eczema all over his body

and is an insane, crazy

> maniac, running and yelling unintelligibly. I am going nuts, it is

like pre biomed all over

> again. I forgot how terrible those days were... What do I do?

Should I try giving him the

> synthetic stuff from Kirkman, the acetate? This has nothing

whatsoever to do with

> soybeans, right? It is supposed to be gfcf too. What is this

then, something made in the

> lab? Also, what to do now? I gave him an epsom salt bath.

Hopefully by tomorrow it will

> pass. I don't have charcoal on hand, I do have alka seltzer gold,

but I can't get him to take

> it... Should I wait a day and get his system back to normal before

trying the synthetic

> stuff? Is anyone intolerant to the synthetic? If he can't

tolerate that, I guess he just is not

> meant to have the vitamin e. I haven't added anything to his

regimen for so long, and now

> this.

>

> I feel so bad that I inadvertently did this to him. Would

appreciate any help. Thanks.

> Irene

>

[Guest guest]

If it were me, I would wipe his skin down with either peroxide or diet

tonic water (or both), possibly also wipe it down with coconut oil

(spot test first) and have him take a warm bath, possibly with salt in

it, to try to get as much of it out of his skin as possible. Skin is

the largest human organ and a major pathway for dumping stuff when the

system is overwhelmed.

Then I would do stuff to try to flush it from his gut once he is calm

enough to try to cooperate. If he tolerates rice, I might see if he

would eat some rice. I have begun to suspect that one of the reasons

that rice can cause constipation is because it absorbs things in the

system. I have been eating rice here lately and have had constipation

of a type I ONLY get from drugs. I have concluded the rice is drawing

old drug residues from my system.

Other gut cleansers: lots of water/fluids, coconut oil taken orally

(either as a supplement or used in cooking), sea salt, gelatin might

help (pour boiling hot water in a cup, add a packet of plain gelatin

and stir vigorously, add cold juice to cool it off and flavor it,

drink rapidly) and glycontutrients if you have them.

Michele

http://www.healthgazelle.org

http://www.kidslikemine.org

http://www.solanorail.org

[Guest guest]

> So I stopped that and waited a couple of days, then I tried the

Unique E formula from A.C.

> Grace co., which they said they remove all soy oil and soy proteins

from, and they claim is

> gluten free. I gave it this am. He was fine during school, and

then like all IGg allergies,

> after school all hell broke loose. He has eczema all over his body

and is an insane, crazy

> maniac, running and yelling unintelligibly. I am going nuts, it is

like pre biomed all over

> again. I forgot how terrible those days were... What do I do?

I would give activated charcoal to try to minimize the effets.

>>Should I try giving him the

> synthetic stuff from Kirkman, the acetate?

After he settles down, maybe after a week or so, you can try that. So

far as I know, it does not contain soy, but you can call Kirkman and ask.

Dana

[Guest guest]

Hi Irene, Dana is right, charcoal is the best way to go immediately

after an infraction/bad reaction ASAP.

I'm so sorry you're going through this, my son has very sensitive soy

allergies too (cannot tolerate soy lethicin even). We use a product

called Toco-Sorb by Jarrow. Maybe you could try that after things

calm down. My son seems to tolerate it fine. Anyone else use Toco-

Sorb?

>

> My son is very reactive to soy - IGg allergy, courtesy of the soy

formula our ped put our

> son on at 11 weeks when he developed chronic diarrhea, instead of

course we lived with

> chronic constipation - Anyway, I posted here about vit E, and I

gave the soy containing

> stuff a try, because it had only soy oil but no soy proteins, and

my son tolerates the CLO

> with the small amount of vit e from refined soybean oil. Gave a

high gamma mixed

> tocopherol that was recommended here for three days, after 3 days

he developed bad

> eczema and diarrhea, just like when he was a baby.

>

> So I stopped that and waited a couple of days, then I tried the

Unique E formula from A.C.

> Grace co., which they said they remove all soy oil and soy proteins

from, and they claim is

> gluten free. I gave it this am. He was fine during school, and

then like all IGg allergies,

> after school all hell broke loose. He has eczema all over his body

and is an insane, crazy

> maniac, running and yelling unintelligibly. I am going nuts, it is

like pre biomed all over

> again. I forgot how terrible those days were... What do I do?

Should I try giving him the

> synthetic stuff from Kirkman, the acetate? This has nothing

whatsoever to do with

> soybeans, right? It is supposed to be gfcf too. What is this

then, something made in the

> lab? Also, what to do now? I gave him an epsom salt bath.

Hopefully by tomorrow it will

> pass. I don't have charcoal on hand, I do have alka seltzer gold,

but I can't get him to take

> it... Should I wait a day and get his system back to normal before

trying the synthetic

> stuff? Is anyone intolerant to the synthetic? If he can't

tolerate that, I guess he just is not

> meant to have the vitamin e. I haven't added anything to his

regimen for so long, and now

> this.

>

> I feel so bad that I inadvertently did this to him. Would

appreciate any help. Thanks.

> Irene

>

[Guest guest]

Thanks to all who posted with advice. Today, my son awoke and was

seemingly normal, still with the eczema, and his appetite is off a bit

though. I put some natural cream on his skin. This is the one thing I

noticed after 7 rounds of chelation, a dietary infraction results in

one day of hell, instead of 4 to 7 days of hell. Hopefully, as we

move on with chelation, the food sensitivities will lessen even more.

Soy is the worst offender, then gluten, hence the trouble with the

vit e. My gut told me the natural e was going to be a problem. Don't

know why we get away with the CLO though, maybe because the e is so

low, and such a small portion. Can't figure it out.

I will leave his supps alone for a couple of weeks, then try the

synthetic e. If that doesn't work, then I will try to give him some

food sources of it,that will have to do, then I will continue on with

the other missing supps of the mito cocktail - coQ10 and l carnitine.

Both formulations of those I have are completely, gfcf, sf.

Again, thanks for the help. And a word of caution for those with soy

allergy, when supplementing with e, just go a lot lower and slower

than I did, and see how your child reacts, before continuing with the

vit e supplementation.

Irene