B12 injections- pros or cons

December 3, 2008

We are considering giving the B12 injections so I am really interested in

hearing people's stories about good OR bad effects from the injections. I

have the syringes in my refrigerator and am planning to start in 2 weeks. I was

told that it could jump start his language which is the most concerning thing at

this point for him developmentally. There is very limited sound production.

My son started folinic acid 4 days ago and I think there is a mild improvement

in his receptive language already and he is spontaneously laughing more

frequently at silly/funny things throughout the day. I am crossing my fingers

that this is helpful to him. I read that folinic acid deficiencies may be

linked to depression (and other psychiatric conditions) so I find it interesting

that he is laughing more since starting this med.

Anyone have experience with giving folinic acid via injection? And if so, what

is the pro or con? My son has severe GI dysfunction (eosinophillic duodenitis)

so the thought is that giving the injections and not involving the gut (which we

are trying to heal) is perhaps the best approach and may help with better

absorption of the B12 and folinic acid. Any thoughts?

Anyone have experience with Metafolin?

From: tavalon_2000 <yeaitsteresa@...>

Subject: [ ] I've been giving my son B12 shots per the Neubrander

protocol

Date: Wednesday, December 3, 2008, 3:57 PM

for about 3 months. We ran out just before Thanksgiving and the

pharmacy couldn't get them to us until yesterday so he ended up being

off for the last week. I noticed a little regression but I had

forgotten how spacey he was when he first started on the shots. I got

a reminder this morning. He was such a space cadet. I had to tell him

to do things using short sentences and much repetition.

These shots are so amazing for him, though, even with that small side

effect. Because his progress was somewhat subtle, I hadn't realized

how quickly I had come to rely on his receptive language being so much

higher while on the shots.

As an aside for anyone thinking about doing the shots but afraid of

giving them or causing their children pain. I took one of the shots

early on and I couldn't really call the feeling pain - it was more of

a mosquito bite and a mild one at that. We started this whole thing

with emla cream and sneaking at night but these days, I just pull out

the shot and my kiddo pulls his pants down, he watches me give it and

then he pulls his pants back on and continues on his way - he doesn't

even rub it.

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