RE: Neurontin - How long until we know if it is going to work for us?

[Guest guest]

We are considering this also. Have you seen any negative side effects?

Pamela

From: [mailto: ]

On Behalf Of dana pope

Sent: Monday, December 22, 2008 12:16 PM

Subject: [ ] Neurontin - How long until we know if it is going

to work for us?

My two boys have been put on Neurontin for possible seizures in the parietal

lobe that may be why they have not acquired speech. They are building up a

little at a time. How long until we know if this medication is going to be

effective for them? If it does not work, do we taper back down?

Thanks, Dana

[Guest guest]

Hey Pamela!

 

I have seen nothing negative.  I was warned it may make them sleepy but I have

not even seen that.  They have the same energy level and seem to be doing fine. 

I just don't know yet if it is helping but they are not at full dose yet.  We

are taking 10 days to get up to the full dose.

 

Dana

From: Pamela <pamelaleigh99@...>

Subject: RE: [ ] Neurontin - How long until we know if it is going

to work for us?

Date: Monday, December 22, 2008, 4:33 PM

We are considering this also. Have you seen any negative side effects?

Pamela

From: [mailto: ]

On Behalf Of dana pope

Sent: Monday, December 22, 2008 12:16 PM

Subject: [ ] Neurontin - How long until we know if it is going

to work for us?

My two boys have been put on Neurontin for possible seizures in the parietal

lobe that may be why they have not acquired speech. They are building up a

little at a time. How long until we know if this medication is going to be

effective for them? If it does not work, do we taper back down?

Thanks, Dana

[Guest guest]

Neurontin is a non narcotic so it generally doesn't require any

tapering down. I personally still stand strong on Lyrica - it is the

replacement for neurontin and seems to show it's working very quick.

For treatment of siezures I found that nuerontin took alot of doses

and that could be hard for a child, Lyrica is generally one a day.

Neurontin also took about a month or so until we could see any

significant signs of it helping..and was discontinued after those

signs went away - we are all individuals internally as well as

externally so it may be different for each child. Out of the 20 plus

diff meds they have put me on over the years I do have to say that

Neurontin was one of the 'lightest'. Have you noticed a 'marked'

difference ?

E. , Sr.

-- In , dana pope <danamichellepope@...>

wrote:

>

> My two boys have been put on Neurontin for possible seizures in the

parietal lobe that may be why they have not acquired speech.  They are

building up a little at a time.  How long until we know if this

medication is going to be effective for them?  If it does not work, do

we taper back down?

>  

> Thanks, Dana

>

>

>

>

>

>

>

>

[Guest guest]

Dana..possible seizures? Can't they verify it somehow?

I had a negative reaction to this drug when given it many years ago,

for supposed temporal lobe damage....

I do not have seizures though, but suffered a severe head injury with

one gran mal seizure, and that left me with mood/memory problems and

terrible migraines. So anyway...I took it for two days and ended up

not being able to get out of bed. I was shaky, and weak all over and I

felt really really cold. This is not a " typical " reaction I'm sure,

but the pharmacist told me to stop taking it ASAP.

Again, I'm sure that was rare, but read the package insert and know

the possibilities. Weight the benefits versus possible issues...etc.

My sister in law consequently was also prescribed this drug for

neurofibramatoisis (sp?) pain. It helped her with the pain and I don't

think she had any serious effects to it, but I know that she did not

stay on it long.

-- In , " Pamela " <pamelaleigh99@...> wrote:

>

> We are considering this also. Have you seen any negative side effects?

>

>

>

> Pamela

>

>

>

> From:

[mailto: ]

> On Behalf Of dana pope

> Sent: Monday, December 22, 2008 12:16 PM

>

> Subject: [ ] Neurontin - How long until we know if it

is going

> to work for us?

>

>

>

> My two boys have been put on Neurontin for possible seizures in the

parietal

> lobe that may be why they have not acquired speech. They are

building up a

> little at a time. How long until we know if this medication is

going to be

> effective for them? If it does not work, do we taper back down?

>

> Thanks, Dana

>

>

[Guest guest]

Thanks to those who have responded.  We have seen nothing negative and are

slowly moving up the dosage right now.  The doctor is having us take close to

two weeks to get to full dosage.

 

Dana

From: Pamela <pamelaleigh99@ verizon.net>

Subject: RE: [ ] Neurontin - How long until we know if it is going

to work for us?

Date: Monday, December 22, 2008, 4:33 PM

We are considering this also. Have you seen any negative side effects?

Pamela

From: [mailto:Autism- Mercury@ groups.

com]

On Behalf Of dana pope

Sent: Monday, December 22, 2008 12:16 PM

Subject: [ ] Neurontin - How long until we know if it is going

to work for us?

My two boys have been put on Neurontin for possible seizures in the parietal

lobe that may be why they have not acquired speech. They are building up a

little at a time. How long until we know if this medication is going to be

effective for them? If it does not work, do we taper back down?

Thanks, Dana

[Guest guest]

Please keep us posted. Thanks, Pamela

From: [mailto: ]

On Behalf Of dana pope

Sent: Tuesday, December 23, 2008 1:22 AM

Subject: RE: [ ] Neurontin - How long until we know if it is

going to work for us?

Thanks to those who have responded. We have seen nothing negative and are

slowly moving up the dosage right now. The doctor is having us take close

to two weeks to get to full dosage.

Dana

From: Pamela <pamelaleigh99@ verizon.net>

Subject: RE: [ ] Neurontin - How long until we know if it is

going to work for us?

Date: Monday, December 22, 2008, 4:33 PM

We are considering this also. Have you seen any negative side effects?

Pamela

From: [mailto:Autism- Mercury@ groups.

com]

On Behalf Of dana pope

Sent: Monday, December 22, 2008 12:16 PM

Subject: [ ] Neurontin - How long until we know if it is going

to work for us?

My two boys have been put on Neurontin for possible seizures in the parietal

lobe that may be why they have not acquired speech. They are building up a

little at a time. How long until we know if this medication is going to be

effective for them? If it does not work, do we taper back down?

Thanks, Dana

[Guest guest]

*Did you do some sort of test to determine this. I was just wondering, because I

did inquire about this a few weeks ago at Dr. Miranda's office. They claim that

when things work for the child, you see the changes in them that are so amazing

prior to treatment.

From: Pamela <pamelaleigh99@ verizon.net>

Subject: RE: [ ] Neurontin - How long until we know if it is going

to work for us?

Date: Monday, December 22, 2008, 4:33 PM

We are considering this also. Have you seen any negative side effects?

Pamela

From: [mailto:Autism- Mercury@ groups.

com]

On Behalf Of dana pope

Sent: Monday, December 22, 2008 12:16 PM

Subject: [ ] Neurontin - How long until we know if it is going

to work for us?

My two boys have been put on Neurontin for possible seizures in the parietal

lobe that may be why they have not acquired speech. They are building up a

little at a time. How long until we know if this medication is going to be

effective for them? If it does not work, do we taper back down?

Thanks, Dana

[Guest guest]

It takes 2-6 wks to really effect the kids. My son has had bad experiences from

various seizure meds- including causing more and different seizures and loss of

language. Unless your child truly has seizures I strongly suggest keeping them

off these drugs. ALso, Depakote is associated with causing autism.

From: Pamela <pamelaleigh99@ verizon.net>

Subject: RE: [ ] Neurontin - How long until we know if it is going

to work for us?

Date: Monday, December 22, 2008, 4:33 PM

We are considering this also. Have you seen any negative side effects?

Pamela

From: [mailto:Autism- Mercury@ groups.

com]

On Behalf Of dana pope

Sent: Monday, December 22, 2008 12:16 PM

Subject: [ ] Neurontin - How long until we know if it is going

to work for us?

My two boys have been put on Neurontin for possible seizures in the parietal

lobe that may be why they have not acquired speech. They are building up a

little at a time. How long until we know if this medication is going to be

effective for them? If it does not work, do we taper back down?

Thanks, Dana