Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Hi Katrina/CS The title of my post was somewhat clumsy.. I was just trying to jump from the minutiae of the discussion about the Yasko protocol to the big question....Is this going to get me where I need to be? Remission, cure, being able to work.. whatever. I guess I was asking if anyone is far enough along with the Yasko protocol to see any cognitive improvements. I'm an occasional user of this list, but from what I've read, it seems the folks (early adopters) who are on the protocol are not there yet.....and that's what I'm waiting for before I embark on another protocol. CS: You say chelating and gallbladder support should yield cognitive improvements. Can you say what treatments you have used? Chorella, DMSA? I have significantly improved my physical health with supplements and diet, but the brain fog is killing me. Thanks Louella kattemayo <kattemayo@...> wrote: Hi Louella, This is nothing negative to you, but I was wondering why you thought brain function is off topic, or off topic from what? This list was formed by and for people who have the Neurological (but poorly named) disease " Chronic Fatigue Syndrome " . The sole place that CFS is listed in the World Health Organization Code of diseases, is in the Neurological section, under " other diseases of the brain " ... along with Myalgic Encephalomyelitis (ME), and (I think), Post Viral Fatigue Syndrome. A Diagnosis of CFS, under any of the 9 widely varied definitions of CFS in the World today...requires some form of impairment in thinking, not present prior to the illness. ME/CFS Research in the last 20 years has revealed multiple abnormalities involving the brain. These include low blood flow, metabolic dysfunction including Lactate spikes, lesions, or " UBO " s, shrinking grey matter, evidence of organic impairment in Neuropsychiatric testing, disordered brain waves, new and unusual headaches, , seizures, visual changes, viruses known to infect the brain, Movement Disorders, Autonomic disorders, problems with receptors and neurotransmitters, short and long term memory loss, acquired Dyslexia, sensitivity to light, smell and noise, sleep disorders, and numerous other things. Some research has found portions of the CFS brain to be more disordered than Alzheimer's or AIDS related dementia. Some patients have some of these findings, from moderate to severe, and some have them all. In the last couple of months, some people on this list have decided to try the Yasko program. Others are working on brain function from dozens of other approaches, such as Microcirculation, restoration of blood flow, detoxing of metals and chemicals, modulating the immune system, balancing receptors and neurotransmitters, eliminating pathogens (antivirals, antobiotics, anti fungals), avoidance of toxins, excitotoxins(?), and a host of other methods. with a host of herbs, supplements and medications. In other words, your subject could not be any more ON TOPIC! :-) TC, Katrina PWC/ME 22 years Listmember since 1999 > > I know this is somewhat off topic,... but does anyone know if this Yasko protocol offers any hope for restoring brain function? > > > I mean if you heal the body, does the brain come back? > > Louella > > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 In a message dated 23/08/2006 16:38:47 GMT Standard Time, lmonrovia@... writes: Hi Katrina/CS The title of my post was somewhat clumsy.. I was just trying to jump from the minutiae of the discussion about the Yasko protocol to the big question....I was just trying to jump from the minutiae Remission, cure, being able to work.. whatever. I guess I was asking if anyone is far enough along with the Yasko protocol to see any cognitive improvements. I'm an occasional user of this list, but from what I've read, it seems the folks (early adopters) who are on the protocol are not there yet.....and that's what I'm waiting for before I embark on another protocol. CS: You say chelating and gallbladder support should yield cognitive improvements. Can you say what treatments you have used? Chorella, DMSA? I have significantly improved my physical health with supplements and diet, but the brain fog is killing me. Thanks Louella Hi I have been unwell for the last 16 years . I suspect total recovery can take upto 24 months ( 2 years ) so Im not too far away - and I mean TOTAL recovery! This is what I have done over the last 16 months: 1)Low carb diet - no wheat or dairy 2) Raising glutathione & thyroid - whey protein 3) Killing infections - lactoferrin / coconut oil / Manuka Honey 4) Improving adrenals - licorice / salt 5) Improving digestion - probiotics / digestive enzyme with oxbile 6) Liver / Galbladder flush - Olive oil / grapefruit juice / turmeric / Apple juice / Minerals 7) Antioxidants - Vit C and OPC's 8) Dealing with Heavy Metals - Coriander herb /Chlorella/ Garlic / Evening primrose oil 9) Immune /Gut - Vits 10) Improving Lymphatics - Dental work / Exercise / Saunas I have tried almost every supplement and this is the order and supplements that have been most effective! Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Louella Have you read The Edge Effect by Braverman, MD? Your neurotransmitters may need some help via specific amino acids. mjh " The Basil Book " _http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/) I have significantly improved my physical health with supplements and diet, but the brain fog is killing me. Thanks Louella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Loulla, There appear to be so many ways to deal with the fog. Hope you will keep trying until you find what you need. At one time here there was a very strong consensus that b12 injections helped- and they sure did for me. Didn't get me all the way there, but most defintely removed the worst of it. In my recent posts of the past couple of months, I have detailed the other things I use for the sake of my brain. Othe people have found other solutions. One of the main things is to address any chronic sleep problems. Adrienne Re: brain function Hi Katrina/CS The title of my post was somewhat clumsy.. I was just trying to jump from the minutiae of the discussion about the Yasko protocol to the big question....Is this going to get me where I need to be? Remission, cure, being able to work.. whatever. I guess I was asking if anyone is far enough along with the Yasko protocol to see any cognitive improvements. I'm an occasional user of this list, but from what I've read, it seems the folks (early adopters) who are on the protocol are not there yet.....and that's what I'm waiting for before I embark on another protocol. CS: You say chelating and gallbladder support should yield cognitive improvements. Can you say what treatments you have used? Chorella, DMSA? I have significantly improved my physical health with supplements and diet, but the brain fog is killing me. Thanks Louella kattemayo <kattemayo@...> wrote: Hi Louella, This is nothing negative to you, but I was wondering why you thought brain function is off topic, or off topic from what? This list was formed by and for people who have the Neurological (but poorly named) disease " Chronic Fatigue Syndrome " . The sole place that CFS is listed in the World Health Organization Code of diseases, is in the Neurological section, under " other diseases of the brain " ... along with Myalgic Encephalomyelitis (ME), and (I think), Post Viral Fatigue Syndrome. A Diagnosis of CFS, under any of the 9 widely varied definitions of CFS in the World today...requires some form of impairment in thinking, not present prior to the illness. ME/CFS Research in the last 20 years has revealed multiple abnormalities involving the brain. These include low blood flow, metabolic dysfunction including Lactate spikes, lesions, or " UBO " s, shrinking grey matter, evidence of organic impairment in Neuropsychiatric testing, disordered brain waves, new and unusual headaches, , seizures, visual changes, viruses known to infect the brain, Movement Disorders, Autonomic disorders, problems with receptors and neurotransmitters, short and long term memory loss, acquired Dyslexia, sensitivity to light, smell and noise, sleep disorders, and numerous other things. Some research has found portions of the CFS brain to be more disordered than Alzheimer's or AIDS related dementia. Some patients have some of these findings, from moderate to severe, and some have them all. In the last couple of months, some people on this list have decided to try the Yasko program. Others are working on brain function from dozens of other approaches, such as Microcirculation, restoration of blood flow, detoxing of metals and chemicals, modulating the immune system, balancing receptors and neurotransmitters, eliminating pathogens (antivirals, antobiotics, anti fungals), avoidance of toxins, excitotoxins(?), and a host of other methods. with a host of herbs, supplements and medications. In other words, your subject could not be any more ON TOPIC! :-) TC, Katrina PWC/ME 22 years Listmember since 1999 > > I know this is somewhat off topic,... but does anyone know if this Yasko protocol offers any hope for restoring brain function? > > > I mean if you heal the body, does the brain come back? > > Louella > > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Hi Louella, I am not currently on a protocol due to financial constraints but will begin the Yasko as income allows. In the past, though, I have been successful in improving brain fog with gentle detoxification. Caffiene cleanses, chlorophyll, charcoal capsules. I have used piracetem (sp?) as well and found it to be effective. I try to stay away from pharmaceuticals though so I found other solutions. Also, I noticed that my brain was clearer after a chelation treatment (by IV). As mentioned earlier, sleep is key although restful sleep eludes most of us. Most recently, I have found that getting my viral symptoms under control has improved my cognitive abilities. Much less brain fog. Blessings, Marti Z. > > Hi Katrina/CS > > The title of my post was somewhat clumsy.. > > I was just trying to jump from the minutiae of the discussion about the Yasko protocol to the big question....Is this going to get me where I need to be? > > Remission, cure, being able to work.. whatever. > > I guess I was asking if anyone is far enough along with the Yasko protocol to see any cognitive improvements. > > I'm an occasional user of this list, but from what I've read, it seems the folks (early adopters) who are on the protocol are not there yet.....and that's what I'm waiting for before I embark on another protocol. > > CS: You say chelating and gallbladder support should yield cognitive improvements. > > Can you say what treatments you have used? Chorella, DMSA? > > I have significantly improved my physical health with supplements and diet, but the brain fog is killing me. > > Thanks > Louella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Has anyone here tried piracetam w/ choline, for brain fog? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Or vinpocetine, which is also cheap and widely available.. On 8/24/06, LiveSimply <quackadillian@...> wrote: > Has anyone here tried piracetam w/ choline, for brain fog? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Hi there, Yes, I have been on piracetam some years ago. Did not take choline with it. I prefer to limit pharmaceuticals so I did not stay on it for long - perhaps a year. I believe it takes a little while to kick in. Blessings, Marti Zavala > > Has anyone here tried piracetam w/ choline, for brain fog? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 > > Has anyone here tried piracetam w/ choline, for brain fog? > Yes, I have taken both. I will post additional info later... i think there may be better alternatives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 The record of the piracetam-type supplements is pretty amazing.. 40 years of positive results on all sorts of neurological conditions. Most US research is being done on the newer 'racetams' (because they are the ones still under patent protection) but the cost of the older ones is low and they work.. Its strange that the US medical community doesn't know more about them, they are very well known - and used widely - in Europe and Japan. For example, Aniracetam is very widely used in Japan for age-related mental decline..stroke, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Here yeast control made that difference. I believe you are already working on that, right? One of the things I had to remember is that it took a long time for my kids to get this way, it was going to take some time to get them back. Some progress is immediate, but overall, it has taken a lot of time for most of the progress. I'll be anxious to see what others have to say has helped. P. Arias wrote: > > Can I get some of your opinions on what you think is the one thing > that helped the most with brain function. What would help the child be > more focused and less irritable? Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 For us that was yeast first but next taurine. > > > > Can I get some of your opinions on what you think is the one thing > > that helped the most with brain function. What would help the child be > > more focused and less irritable? Thanks. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 1. Cutler protocol chelation 2. Extensive lipid support Arias wrote: > > Can I get some of your opinions on what you think is the one thing > that helped the most with brain function. What would help the child be > more focused and less irritable? Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 This week or so has been so great because I really now know yeast is such a big problem. As soon as she went off the Diflucan she started going crazy. So now I am treating pretty agressively, I think, for the yeast, and she has had 7 stable days. I am so thrilled. She is actually happy and not wanting to sleep all day...hurt herself...or hurt others. And she is slowing down at night! Oh my gosh, it is about time I am seeing some results!!!!! I think the lithium is helping too, cause she really wasn't slowing down at night while doing the Diflucan. She started slowing down when I added the Lithium. On Nov 1, 2008, at 4:56 PM, P. wrote: > Here yeast control made that difference. I believe you are already > working on that, right? One of the things I had to remember is that it > took a long time for my kids to get this way, it was going to take > some > time to get them back. Some progress is immediate, but overall, it has > taken a lot of time for most of the progress. > > I'll be anxious to see what others have to say has helped. > P. > > Arias wrote: > > > > Can I get some of your opinions on what you think is the one thing > > that helped the most with brain function. What would help the > child be > > more focused and less irritable? Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 What is lipid support? On Nov 1, 2008, at 5:40 PM, Reynolds wrote: > 1. Cutler protocol chelation > 2. Extensive lipid support > > Arias wrote: > > > > Can I get some of your opinions on what you think is the one thing > > that helped the most with brain function. What would help the > child be > > more focused and less irritable? Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 so bile salts has a lot to do with fats? On Nov 1, 2008, at 6:25 PM, Reynolds wrote: > Fats and oils. Fatty acid metabolism. Brain relies on it a lot.... as > does cellular function. > > That includes things like taurine (via helping the production of bile > salts, which will also help with A, D, E), which people have > mentioned. > > Andy has a lot to say about it in amalgam illness. > > Arias wrote: > > > > What is lipid support? > > On Nov 1, 2008, at 5:40 PM, Reynolds wrote: > > > > > 1. Cutler protocol chelation > > > 2. Extensive lipid support > > > > > > Arias wrote: > > > > > > > > Can I get some of your opinions on what you think is the one > thing > > > > that helped the most with brain function. What would help the > > > child be > > > > more focused and less irritable? Thanks. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Cool. Taurine is on my list of things to try! On Nov 1, 2008, at 6:25 PM, Reynolds wrote: > Fats and oils. Fatty acid metabolism. Brain relies on it a lot.... as > does cellular function. > > That includes things like taurine (via helping the production of bile > salts, which will also help with A, D, E), which people have > mentioned. > > Andy has a lot to say about it in amalgam illness. > > Arias wrote: > > > > What is lipid support? > > On Nov 1, 2008, at 5:40 PM, Reynolds wrote: > > > > > 1. Cutler protocol chelation > > > 2. Extensive lipid support > > > > > > Arias wrote: > > > > > > > > Can I get some of your opinions on what you think is the one > thing > > > > that helped the most with brain function. What would help the > > > child be > > > > more focused and less irritable? Thanks. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Fats and oils. Fatty acid metabolism. Brain relies on it a lot.... as does cellular function. That includes things like taurine (via helping the production of bile salts, which will also help with A, D, E), which people have mentioned. Andy has a lot to say about it in amalgam illness. Arias wrote: > > What is lipid support? > On Nov 1, 2008, at 5:40 PM, Reynolds wrote: > > > 1. Cutler protocol chelation > > 2. Extensive lipid support > > > > Arias wrote: > > > > > > Can I get some of your opinions on what you think is the one thing > > > that helped the most with brain function. What would help the > > child be > > > more focused and less irritable? Thanks. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 What is good for extensive lipid support? Reynolds wrote: > 1. Cutler protocol chelation > 2. Extensive lipid support > Arias wrote: >> >> Can I get some of your opinions on what you think is the one thing >> that helped the most with brain function. What would help the child be >> more focused and less irritable? Thanks. >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 I don't know that it is just ONE thing that has made the most difference.. I think it is a group of things that have helped.. We are on ALA and Arsenicum right now.. I believe the EFA's are contributing a bunch too.. The laser therapy we are doing is helping a lot too.. DETOX and living an overall nontoxic lifestyle...has helped a TON.. The less toxins you are taking the the better.. Chiropractic has helped as well.. We are homeopathically detoxing for metals in his brain.. His parietal lobe is messed up due to the heavy metals in his brain... Once we detox that out, He will be even closer to saying his first real word.. I am anxiously awaiting that day..believe me... R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 We give a LOT of oils. In general health circles the importance of omega 3s is promoted, but often at the neglect of omega 6's. Andy's got the 6's covered and he makes significant mention in amalgam illness of borage oil, for GLA. In general for ASD kids we want a ratio of roughly 2:1 of omega 3: omega 6. A lot of products have a much higher omega 3 content, hence the need to supplement extra omega 6 with borage oil, or evening primrose, hemp, or black current oil. These have different quantities of GLA so you can adjust the dose to compensate. (or borage oil as we are about to test out). For the omega 3s we get alpha linolenic acid and from that the body can derive EPA (eicosapentaenoic acid) and DHA (docosahexaenoic acid). However to do so the body needs to be metabolising certain things correctly such as magnesium, zinc, B vitamins, vit C, etc, and many ASD kids a obviously low in these or not metabolising them correctly, or both, so this is why it is a good idea to give a cod liver oil, even if you are giving other oils (eg flaxseed), because the CLO has the EPA and DHA directly in it (where is if you were giving flaxseed oil only, the body would definitely need to convert it, and it may not be able to). In relation to EPA and DHA it is meant to be better to be giving a bit more EPA for ASD kids. For omega 6s we start with linoleic acid LA and from this we get GLA gamma lenolenic acid and DGLA dihomogamma linolenic acid, and arachidonic acid AA. Again we need magnesium, zinc, B vitamins, C, etc to be working correctly to get to the derivative versions, so again it is good to supplement some things directly. Evening primrose, flaxseed, and black current oils are good for GLA, and borage oil has even more direct GLA. Then there are other supplements that provide support. Taurine was mentioned, which helps with bile salt production which in turn helps with lipid metabolism including A, D and E. Taurine also helps with many other things as well including anxiety, and the immune system. However not everyone needs taurine supplementation by default. So if you don't need it, don't do it or it could cause issues. Generally if the stool was pale and not dark, I would suspect issues with fatty acid metabolism as one possibility and you could get a stool test, or do a trial of taurine to see if it helps. We've also used other supplements that play various lipid related roles including phosphatidycholine, phosphatidylserine, dimethylaminoethanol (DAME), and acetyl-L-carnitine which have also been useful. Again Andy covers these in amalgam illness. We use organic/biodynamic cold pressed where possible and for any fish oils we prefer those that are tested for mercury. Hope that helps. dana pope wrote: > > What is good for extensive lipid support? > > Reynolds wrote: > > 1. Cutler protocol chelation > > 2. Extensive lipid support > > Arias wrote: > >> > >> Can I get some of your opinions on what you think is the one thing > >> that helped the most with brain function. What would help the child be > >> more focused and less irritable? Thanks. > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 A agree with that sentiment. While in answer to the question, we have seen the biggest gains from Cutler protocol chelation and lipid support, I cannot discount the importance of general nutrition and many other things that support general health. There are often so many things going wrong for an ASD child they need support in a lot of areas. cafefanatik wrote: > > I don't know that it is just ONE thing that has made the most > difference.. I think it is a group of things that have helped.. > > We are on ALA and Arsenicum right now.. I believe the EFA's are > contributing a bunch too.. > > The laser therapy we are doing is helping a lot too.. > > DETOX and living an overall nontoxic lifestyle...has helped a TON.. > The less toxins you are taking the the better.. > > Chiropractic has helped as well.. > > We are homeopathically detoxing for metals in his brain.. His > parietal lobe is messed up due to the heavy metals in his brain... > Once we detox that out, He will be even closer to saying his first real > word.. I am anxiously awaiting that day..believe me... > > R > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Glyconutrients helped with faceblindness for my son. It has an anecdotal track record of healing nerve damage. For example, I no longer have a numb spot on the top of one foot. I have heard similar stories from other folks. Sea salt and coconut oil have generally helped with healing and with brain function. We made a chocolate cake completely from scratch last night using organic butter and other wonderful real food ingredients. He told me today his sense of balance is improved as well as his body sense/awareness. We will be making this again. :-) And, like someone else said, removing toxins from our environment and generally getting the kids well. Michele http://www.healthgazelle.org http://www.kidslikemine.org http://www.solanorail.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 , just a heads up, Taurine lowers blood sugar and so does ALA, so my son had a really hard time when I did a round using both these two. He was a mess inbetween doses because we weren't eating often enough to keep his blood sugar right. > > > > > > > > > > Can I get some of your opinions on what you think is the one > > thing > > > > > that helped the most with brain function. What would help the > > > > child be > > > > > more focused and less irritable? Thanks. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 How old is ? I pray that you hear that word real soon. And I mean really soon. On Nov 1, 2008, at 6:54 PM, cafefanatik wrote: > I don't know that it is just ONE thing that has made the most > difference.. I think it is a group of things that have helped.. > > We are on ALA and Arsenicum right now.. I believe the EFA's are > contributing a bunch too.. > > The laser therapy we are doing is helping a lot too.. > > DETOX and living an overall nontoxic lifestyle...has helped a TON.. > The less toxins you are taking the the better.. > > Chiropractic has helped as well.. > > We are homeopathically detoxing for metals in his brain.. His > parietal lobe is messed up due to the heavy metals in his brain... > Once we detox that out, He will be even closer to saying his first > real > word.. I am anxiously awaiting that day..believe me... > > R > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.