Re: A year of chelation and my son is still non-verbal

[Guest guest]

Hi there,

I am sorry about your situation. I will probably be frustrated as well. Big

hugs

Have you tried any anti-viral therapy? Just wondering, since I have read

that viruses can affect speech as well.

Hang in there. I hope " the experts " chime in with more input.

Leo

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.175 / Virus Database: 270.8.5/1764 - Release Date: 11/3/2008

4:59 PM

[Guest guest]

I'm assuming you've tried tackling yeast in all of this. Wanted to say

that yeast was what caused my son's language barriers though. I know

that there are other things that can cause it, like viruses. Mostly,

wanted to let you know that I read your mail and an rooting for you and

your son!! It will happen.

P.

lvtoeat2 wrote:

>

> It is with a heavy heart that I write this... My son will be turning 5

> next month and we've been chelating, using the Cutler protocol, for a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

>

> We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> enzymes, supplements, mB12, and almost all of the biomedical

> interventions. I've been waiting and waiting for some purposeful

> expressive language and still nothing. What is left to try? We plan

> on starting private speech therapy again, in addition to the 4 sessions

> he gets from the school district a week. What else can we do? Has

> anyone tried OSR (Oxidative Stress Relief) on this board?

>

> I'm just so beyond frustrated right now... how can I motivate my son to

> talk??

>

>

[Guest guest]

I feel your frustration and I so hope you get good answers.One thought I had,

does he have apraxia, dyspraxia? I have heard that it makes sense to work with

a very specialized speech therapist for this, and the results will be better. A

dear friend of mine's son with a similar speech pattern had an explosion in

expressive language by adding the Dynavox augmentative device. The spontaneous

sentences were in his head, he just couldn't get them out of his mouth. Once

the device was there, his spontaneous utterances began to improve as well and he

uses both now with growing language and decreased frustration. I also wanted to

know if you have tried anything for mito issues? MB12, carnosine, carnotime,

coQ10 sometimes my increase language. My best to you, Alison M

-------------- Original message ----------------------

From: " lvtoeat2 " <lvtoeat2@...>

> It is with a heavy heart that I write this... My son will be turning 5

> next month and we've been chelating, using the Cutler protocol, for a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

>

> We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> enzymes, supplements, mB12, and almost all of the biomedical

> interventions. I've been waiting and waiting for some purposeful

> expressive language and still nothing. What is left to try? We plan

> on starting private speech therapy again, in addition to the 4 sessions

> he gets from the school district a week. What else can we do? Has

> anyone tried OSR (Oxidative Stress Relief) on this board?

>

> I'm just so beyond frustrated right now... how can I motivate my son to

> talk??

>

>

> ------------------------------------

>

> =======================================================

>

[Guest guest]

> > It is with a heavy heart that I write this... My son will be turning 5

> > next month and we've been chelating, using the Cutler protocol, for a

> > full year now. While he has improved in other areas, expressive

> > language is still lacking. He hardly initiates any language, and

> > his " words " are mostly one syllable sounds, as he cannot articulate

> > souns other than very basic syllable sounds.

1. See figure 15 on page 52 of Amalgam Illness

www.noamalgam.com

and be patient another few months.

2. Consider trials of GABA agonist medications and supplements (GABA and the

antiseizure medications).

3. Don't panic and hurt him by doing all the faddish stuff below that the

doctors are going

to use your fear to get you to buy into.

> > We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> > enzymes, supplements, mB12, and almost all of the biomedical

> > interventions. I've been waiting and waiting for some purposeful

> > expressive language and still nothing. What is left to try?

The above, to start.

Also talk to an acupuncturist/chinese herbalist.

If you haven't ended up with that EEG and MRI that the mainstream insurance

work-ups

usually result in, those may indeed be relevant.

> > We plan

> > on starting private speech therapy again, in addition to the 4 sessions

> > he gets from the school district a week. What else can we do?

See a developmental optometrist. They know a surprising amount about neurology

(more

of it than neurologists for practical things like actually getting better). Also

try a

chiropractic neurologist.

> > Has

> > anyone tried OSR (Oxidative Stress Relief) on this board?

I'd love some public discussion on OSR. I've heard a lot of (predictably)

negative stories,

no positive ones yet.

> > I'm just so beyond frustrated right now... how can I motivate my son to

> > talk??

> >

> >

>

[Guest guest]

Andy,

Can you list the names of the medicines to try for speech? Did you say they are

meds for seizures? Do you feel possible seizures in the part of the brain that

controls speech, may be what is causing lack of speech even if improvements have

been seen in other areas?

andrewhallcutler wrote:

> > > It is with a heavy heart that I write this... My son will be

turning 5

>> > next month and we've been chelating, using the Cutler protocol, for a

>> > full year now. While he has improved in other areas, expressive

>> > language is still lacking. He hardly initiates any language, and

>> > his " words " are mostly one syllable sounds, as he cannot articulate

>> > souns other than very basic syllable sounds.

> 1. See figure 15 on page 52 of Amalgam Illness

> www.noamalgam. com

> and be patient another few months.

> 2. Consider trials of GABA agonist medications and supplements (GABA and the

> antiseizure medications) .

> 3. Don't panic and hurt him by doing all the faddish stuff below that the

doctors are going

> to use your fear to get you to buy into.

>> > We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

>> > enzymes, supplements, mB12, and almost all of the biomedical

>> > interventions. I've been waiting and waiting for some purposeful

>> > expressive language and still nothing. What is left to try?

> The above, to start.

> Also talk to an acupuncturist/ chinese herbalist.

> If you haven't ended up with that EEG and MRI that the mainstream insurance

work-ups

> usually result in, those may indeed be relevant.

>> > We plan

>> > on starting private speech therapy again, in addition to the 4 sessions

>> > he gets from the school district a week. What else can we do?

> See a developmental optometrist. They know a surprising amount about neurology

(more

> of it than neurologists for practical things like actually getting better).

Also try a

> chiropractic neurologist.

>> > Has

>> > anyone tried OSR (Oxidative Stress Relief) on this board?

> I'd love some public discussion on OSR. I've heard a lot of (predictably)

negative stories,

> no positive ones yet.

>> > I'm just so beyond frustrated right now... how can I motivate my son to

>> > talk??

>> >

>> >

>>

>

[Guest guest]

Sign language really helped my son learn to communicate. Once he

realized it was easier to get what he wanted, or get a message across

to me he became more interested in using it. The language led to

speech (my son is 5 as well) and I really credit anti-virals and sign

language for opening the door. Also, have you tried Verbal Behavior?

It's an aspect of ABA but concentrates on verbal intervention. It

really has done wonders for us.

>

> It is with a heavy heart that I write this... My son will be

turning 5

> next month and we've been chelating, using the Cutler protocol, for

a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

>

> We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> enzymes, supplements, mB12, and almost all of the biomedical

> interventions. I've been waiting and waiting for some purposeful

> expressive language and still nothing. What is left to try? We

plan

> on starting private speech therapy again, in addition to the 4

sessions

> he gets from the school district a week. What else can we do? Has

> anyone tried OSR (Oxidative Stress Relief) on this board?

>

> I'm just so beyond frustrated right now... how can I motivate my

son to

> talk??

>

[Guest guest]

How are you supporting lipids and associated fatty acid metabolism

processes?

lvtoeat2 wrote:

>

> It is with a heavy heart that I write this... My son will be turning 5

> next month and we've been chelating, using the Cutler protocol, for a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

>

> We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> enzymes, supplements, mB12, and almost all of the biomedical

> interventions. I've been waiting and waiting for some purposeful

> expressive language and still nothing. What is left to try? We plan

> on starting private speech therapy again, in addition to the 4 sessions

> he gets from the school district a week. What else can we do? Has

> anyone tried OSR (Oxidative Stress Relief) on this board?

>

> I'm just so beyond frustrated right now... how can I motivate my son to

> talk??

>

>

[Guest guest]

Yes I will second what Maggie says..about the sign language.. My son

is non verbal too but communicates a lot with the sign language...

Even more so after all of this homeopathic chelation we are doing...

I would suggest having his parietal lobes checked out..to make sure

all the metals and such are fully chelated out..

My son is chelating the metals out of his brain... I believe it is

my son's Right Parietal lobe that is currently being detoxed from the

metals.. Do some researh on the parietal lobes of the brain.... It

will explain exactly how important the brain function is in speech

and how important it is to get all these toxins out...

Since detoxing, my son has been communicating even more with the sign

language than he used to and also he has started to babble even more..

I am so excited to hear him making more sounds out of his mouth...

A good naturopath who uses applied kinesiology will be able to tell

you if there is still metals and such in that right lobe which would

effect the speech development..

HTH,

R

> >

> > It is with a heavy heart that I write this... My son will be

> turning 5

> > next month and we've been chelating, using the Cutler protocol,

for

> a

> > full year now. While he has improved in other areas, expressive

> > language is still lacking. He hardly initiates any language, and

> > his " words " are mostly one syllable sounds, as he cannot

articulate

> > souns other than very basic syllable sounds.

> >

> > We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> > enzymes, supplements, mB12, and almost all of the biomedical

> > interventions. I've been waiting and waiting for some purposeful

> > expressive language and still nothing. What is left to try? We

> plan

> > on starting private speech therapy again, in addition to the 4

> sessions

> > he gets from the school district a week. What else can we do?

Has

> > anyone tried OSR (Oxidative Stress Relief) on this board?

> >

> > I'm just so beyond frustrated right now... how can I motivate my

> son to

> > talk??

> >

>

[Guest guest]

Comments interspersed.

S S

A year of chelation and my son is still non-verbal

Posted by: " lvtoeat2 " lvtoeat2@... lvtoeat2

Mon Nov 3, 2008 11:17 am (PST)

It is with a heavy heart that I write this... My son will be turning 5

next month and we've been chelating, using the Cutler protocol, for a

full year now. While he has improved in other areas, expressive

language is still lacking. He hardly initiates any language, and

his " words " are mostly one syllable sounds, as he cannot articulate

souns other than very basic syllable sounds.

*Does he point? Does he tap you to get your attention? Does he make choices

between two items, by touching or taking one? Does he use PECs or sign

language? Consider PECS, sign language or a communication device. How is his

receptive language? Has his hearing been tested? Does he respond to his name

when called by looking toward the speaker? Does he startle to loud noises?

We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

enzymes, supplements, mB12, and almost all of the biomedical

interventions. I've been waiting and waiting for some purposeful

expressive language and still nothing. What is left to try? We plan

on starting private speech therapy again, in addition to the 4 sessions

he gets from the school district a week.

*What was the speech therapist working on with him before? Did it help any?

What else can we do? Has

anyone tried OSR (Oxidative Stress Relief) on this board?

I'm just so beyond frustrated right now... how can I motivate my son to talk??

One of the kids I worked with liked to have his feet massaged. I taught him the

signs for " more " and " stop " and we made a game of it. See if your local library

has any of the " Signing Time " videos or DVDs. I think it's important for the

goal to be for him to be able to communicate, rather than to talk specifically.

Often other modes of communication help individuals begin to talk.

------------------------------------------------------------

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[Guest guest]

Hmm. Have you done the epsom salt baths? That was one of the first

interventions we tried when we started our biomedical journey and it

was the most instant burst of language we've ever seen. our son was

obviously needing the sulfate. You are doing a great job, hang in there.

Kes

>

> I feel your frustration and I so hope you get good answers.One

thought I had, does he have apraxia, dyspraxia? I have heard that it

makes sense to work with a very specialized speech therapist for this,

and the results will be better. A dear friend of mine's son with a

similar speech pattern had an explosion in expressive language by

adding the Dynavox augmentative device. The spontaneous sentences were

in his head, he just couldn't get them out of his mouth. Once the

device was there, his spontaneous utterances began to improve as well

and he uses both now with growing language and decreased frustration.

I also wanted to know if you have tried anything for mito issues?

MB12, carnosine, carnotime, coQ10 sometimes my increase language. My

best to you, Alison M

> -------------- Original message ----------------------

> From: " lvtoeat2 " <lvtoeat2@...>

> > It is with a heavy heart that I write this... My son will be

turning 5

> > next month and we've been chelating, using the Cutler protocol, for a

> > full year now. While he has improved in other areas, expressive

> > language is still lacking. He hardly initiates any language, and

> > his " words " are mostly one syllable sounds, as he cannot articulate

> > souns other than very basic syllable sounds.

> >

> > We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> > enzymes, supplements, mB12, and almost all of the biomedical

> > interventions. I've been waiting and waiting for some purposeful

> > expressive language and still nothing. What is left to try? We plan

> > on starting private speech therapy again, in addition to the 4

sessions

> > he gets from the school district a week. What else can we do? Has

> > anyone tried OSR (Oxidative Stress Relief) on this board?

> >

> > I'm just so beyond frustrated right now... how can I motivate my

son to

> > talk??

> >

> >

> > ------------------------------------

> >

> > =======================================================

> >

[Guest guest]

I have heard recently that it might take over 60 dives to see results...and you

are at

48....so I wouldn't give up on that. My son is 8 and does not speak words to

communicate, after 6 + years of biomedical intervention, homeopathy, GFCF,

PROMPT

speech therapy, OT, PT, sensory integration, a brief series of IV GSH, and more.

However,

he has become good at communicating with sign and pecs, and his receptive

language is

amazing. We are starting HBOT this month and are considering Namenda. Never

give up!!

Did you see " Finding the Words? " One of the boys, Dillon, was learning to speak

at 15.

Keri

>

> It is with a heavy heart that I write this... My son will be turning 5

> next month and we've been chelating, using the Cutler protocol, for a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

>

> We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> enzymes, supplements, mB12, and almost all of the biomedical

> interventions. I've been waiting and waiting for some purposeful

> expressive language and still nothing. What is left to try? We plan

> on starting private speech therapy again, in addition to the 4 sessions

> he gets from the school district a week. What else can we do? Has

> anyone tried OSR (Oxidative Stress Relief) on this board?

>

> I'm just so beyond frustrated right now... how can I motivate my son to

> talk??

>

[Guest guest]

Dont b disappointed there are still things that you might consider looking into

..One is glutathione reduced for ofcourse a product called lipoceutical

glutathione is good for daily oral use.Have you done antiviral protocol what

about high dose vit A protocol ,look for PANDAS and Lyme disease for sure they

are the main things to look into for recovery .Good luck and dont give up .For

therapies an excellent place to go to is NACD.Check out www.nacd..org. for

details.

________________________________

From: Keri <rkzbh@...>

Sent: Monday, November 3, 2008 11:38:41 PM

Subject: [ ] Re: A year of chelation and my son is still non-verbal

I have heard recently that it might take over 60 dives to see results...and you

are at

48....so I wouldn't give up on that. My son is 8 and does not speak words to

communicate, after 6 + years of biomedical intervention, homeopathy, GFCF,

PROMPT

speech therapy, OT, PT, sensory integration, a brief series of IV GSH, and more.

However,

he has become good at communicating with sign and pecs, and his receptive

language is

amazing. We are starting HBOT this month and are considering Namenda. Never give

up!!

Did you see " Finding the Words? " One of the boys, Dillon, was learning to speak

at 15.

Keri

>

> It is with a heavy heart that I write this... My son will be turning 5

> next month and we've been chelating, using the Cutler protocol, for a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

>

> We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> enzymes, supplements, mB12, and almost all of the biomedical

> interventions. I've been waiting and waiting for some purposeful

> expressive language and still nothing. What is left to try? We plan

> on starting private speech therapy again, in addition to the 4 sessions

> he gets from the school district a week. What else can we do? Has

> anyone tried OSR (Oxidative Stress Relief) on this board?

>

> I'm just so beyond frustrated right now... how can I motivate my son to

> talk??

>

[Guest guest]

> >

> > It is with a heavy heart that I write this... My son will be

> turning 5

> > next month and we've been chelating, using the Cutler protocol,

for

> a

> > full year now. While he has improved in other areas, expressive

> > language is still lacking. He hardly initiates any language, and

> > his " words " are mostly one syllable sounds, as he cannot

articulate

> > souns other than very basic syllable sounds.

> >

> > We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> > enzymes, supplements, mB12, and almost all of the biomedical

> > interventions. I've been waiting and waiting for some purposeful

> > expressive language and still nothing. What is left to try? We

> plan

> > on starting private speech therapy again, in addition to the 4

> sessions

> > he gets from the school district a week. What else can we do?

Has

> > anyone tried OSR (Oxidative Stress Relief) on this board?

> >

> > I'm just so beyond frustrated right now... how can I motivate my

> son to

> > talk??

> >

>

[Guest guest]

Have you done high dose virastop and antivirals? Have you done cod liver oil and

cholines? Have you done grapeseed extract, and have you tried zinc loading?

Have you got a handle on yeast? Have you tried antibacterials? Is your home

and cleaners toxic (are you putting in as many toxins as you are taking out,

such as ongoing lead poisoning that you don't know about)? Bottled water? Do

you live in a polluted area?

Our son could do things because he was well enough but he didn't because he

didn't realize he could yet. We had to find the thing he wanted the most to

dangle as a carrot in front of him to get him to learn life skills. Talking came

from cod liver oil, cholines, and grapeseed extract though.

[Guest guest]

>

> It is with a heavy heart that I write this... My son will be turning 5

> next month and we've been chelating, using the Cutler protocol, for a

> full year now. While he has improved in other areas, expressive

> language is still lacking. He hardly initiates any language, and

> his " words " are mostly one syllable sounds, as he cannot articulate

> souns other than very basic syllable sounds.

Chelation did not help my son with language, other things did. The

most important were anti-fungals, anti-virals, and B1/B12/folic

acid/carnitine.

I wrote everything that helped my son's language here

http://www.danasview.net/issues.htm

Dana

[Guest guest]

> > > > It is with a heavy heart that I write this... My son will be

turning 5

> >> > next month and we've been chelating, using the Cutler protocol, for a

> >> > full year now. While he has improved in other areas, expressive

> >> > language is still lacking. He hardly initiates any language, and

> >> > his " words " are mostly one syllable sounds, as he cannot articulate

> >> > souns other than very basic syllable sounds.

> > 1. See figure 15 on page 52 of Amalgam Illness

> > www.noamalgam. com

> > and be patient another few months.

> > 2. Consider trials of GABA agonist medications and supplements (GABA and the

> > antiseizure medications) .

> > 3. Don't panic and hurt him by doing all the faddish stuff below that the

doctors are

going

> > to use your fear to get you to buy into.

> >> > We've done 48 dives in hard HBOT, 3 IVIGs, Diflucan, Acyclovir,

> >> > enzymes, supplements, mB12, and almost all of the biomedical

> >> > interventions. I've been waiting and waiting for some purposeful

> >> > expressive language and still nothing. What is left to try?

> > The above, to start.

> > Also talk to an acupuncturist/ chinese herbalist.

> > If you haven't ended up with that EEG and MRI that the mainstream insurance

work-

ups

> > usually result in, those may indeed be relevant.

> >> > We plan

> >> > on starting private speech therapy again, in addition to the 4 sessions

> >> > he gets from the school district a week. What else can we do?

> > See a developmental optometrist. They know a surprising amount about

neurology

(more

> > of it than neurologists for practical things like actually getting better).

Also try a

> > chiropractic neurologist.

> >> > Has

> >> > anyone tried OSR (Oxidative Stress Relief) on this board?

> > I'd love some public discussion on OSR. I've heard a lot of (predictably)

negative

stories,

> > no positive ones yet.

> >> > I'm just so beyond frustrated right now... how can I motivate my son to

> >> > talk??

> >> >

> >> >

> >>

> >

>

[Guest guest]

After trying the biomedical route for so long, you really need to look at

the functional neurology. Many times, I see a 'functional disconnection' in my

patients, where one side of the brain is working less that the other. Many

times, these kids respond to intensive brain-based therapies like vestibular

training, NDT and specific pathway stimulaton.

A. Gruttadauria, DC, DACAN

Defeat Autism Now! Clinician

Diplomate of the American Chiropractic Academy of Neurology

Long Island Spectrum Center, Inc.

100 Manetto Hill Road, Suite 106

Plainview, NY 11803

516-470-9525 Office

516-470-9524 Fax

_www.lispectrum.com _ (http://www.lispectrum.com/)

**************AOL Search: Your one stop for directions, recipes and all other

Holiday needs. Search Now.

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[Guest guest]

Are you talking about the therapies like Institute of Human Potential or NACD

offers?

From: summate1@... <summate1@...>

Subject: [ ] Re: A year of chelation and my son is still non-verbal

Date: Wednesday, November 5, 2008, 10:29 AM

After trying the biomedical route for so long, you really need to look at

the functional neurology. Many times, I see a 'functional disconnection' in my

patients, where one side of the brain is working less that the other. Many

times, these kids respond to intensive brain-based therapies like vestibular

training, NDT and specific pathway stimulaton.

A. Gruttadauria, DC, DACAN

Defeat Autism Now! Clinician

Diplomate of the American Chiropractic Academy of Neurology

Long Island Spectrum Center, Inc.

100 Manetto Hill Road, Suite 106

Plainview, NY 11803

516-470-9525 Office

516-470-9524 Fax

_www.lispectrum. com _ (http://www.lispectr um.com/)

************ **AOL Search: Your one stop for directions, recipes and all other

Holiday needs. Search Now.

(http://pr.atwola. com/promoclk/ 100000075x121279 2382x1200798498/ aol?redir=

http://searchblo g.aol.com/ 2008/11/04/ happy-holidays- from

-aol-search/ ?ncid=emlcntusse ar00000001)