Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi Dana, My daughter started out as an early walker, early talker. Very bright and chirpy little girl, interested in everything and everyone. After vaccine damage we lost ALL of that. All speech gone. All interaction gone. At her worst she would often scream if anyone was even in the same room as her. Screaming had become the only form of communication she could manage. Very painful to take such extreme rejection from your child. It was very clear she was in pain and distress, but a lot of the time would not even let anyone comfort her (in any conventional sense). I'm happy to say after a lot of hard work, we now have full speech back. The biggest gains I have seen directly from AC protocol would have to be cognition. General cognition has improved dramatically. My daughter is able to comprehend so much more now, her awareness of the world is so much better. She can now listen and understand instructions. Just yesterday we went to the gardens, a big park in the city. My daughter decided to run off down a hill (because running down hills is fun!). My wife and my mother in law immediately panicked (as you do when anychild runs away, but particularly for an ASD child or a child with heavy metals issues). Anyway I told grandma and mum to stop and be quiet and to stand back. I was confident my daughter could handle this now. Sure enough once she reached a certain distance, she stopped and turned around to check if I was there. I beckoned with my arm for her to come back. She responded with a cheeky smile and a laugh and the same hand gesture indicating I should go to her. I shook my head and gestured again. This time she came running back up the hill. " did you see me running dada? " " Yes I did. " " I'm so fast " Mum and grandma were relieved and thrilled to see her " natural awareness " to not go too far (like normal kids have) had returned. Biotin at low dose is a good long term solution for yeast, so I would make sure you are doing that. 100 to 200 mcg a day is fine. However the biotin will probably not fix things in the short term. Saccharomyces Boulardii is also a good long term option for yeast, so I would give that trial as well. However again its probably not the quick fix. Saccharomyces Boulardii can sometimes cause constipation, so we don't give it during a round. Grapefruit seed extract works well for some people and this has worked well for us most of the time. Failing that one thing that definitely worked for us for yeast related night waking issues was nystatin at a strength of 1,000,000 IU, giving 4 times a day. (So they get 4 million UI in a day) A lot of people report nystatin to be useless, however I think it is often because they are doing it at a much lower strength, like 100,000 IU, in which case I agree at that strength it often will be useless. Nystatin is not systemic. It does not get into the blood, so this makes it a safer/less stressful option than something like fluconazole. However this is also the reason it needs to be given at a high strength, as it just passes straight through the digestive tract, and whatever yeast it gets along the way, is dealt with, however any yeast it misses is then free to remultiply again. That's why the high strength is more effective as it has a better chance of getting all (or at least a lot more) of the yeast. Even so, for some people this is not enough. If that fails then you could try something like fluconazole. However with fluxonazole it is systemic and can potentially stress the liver, so if you do end up doing fluconazole, make sure you only do it for a few weeks to a month, don't use it for a prolonged period wilth out regular liver function tests. We used fluconazole as well. I did not seen any benefit from it, however we may have dealt with the yeast already by the time we introduced it. So I think in the first instance, I would be inclined to try the natural options, failing those then I'd try nystatin at high dose before considering the systemic solutions. Some people have also reported good results with sodium bicarbonate. We did not try this for yeast as we did not know about it at the time. We did know about it for alkalising, however we found lemon juice a much better option for that purpose. If you do try sodium bicarbonate, make sure you give it well away from meal times as it will alkalise the stomach. At meal times you want a very acidic stomach for proper digestion. Hope that helps. dana pope wrote: > > , what all have you used to help with yeast? Do you mind sharing > what all the AC protocol has helped your daughter with? Was she > developmentally delayed or language delayed at all? > > Thanks for your answer on my question regarding if I should use just > ALA or start with DMSA first. > > Dana > > > > > > Guys, > > > > I am starting AC chelation in January with my 19 yr son (Aspergers, > > cognitive delays). I plan to start with DMSA and ALA (at end?). I know > > he has high mercury, lead, and aluminum. > > > > My question is, DAN! protocol does not use the AC method because yeast > > issues often occur with oral chelation. Should I address that right > > away? If so, how? He has had yeast problems in the past. > > > > sally > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Thanks for sharing. How about Candex? I started using candex for yeast management about 1 week ago. It's an yeast enzymes supposedly dissolve the cell wall of candida and destroying them without any die off effect. The manufacturer told me that people usually see results in 7-30 days. Does anyone has good results from using of yeast enzymes for yeast control? Thanks On Tue, Dec 30, 2008 at 10:23 AM, Reynolds <peter@...> wrote: > Hi Dana, > > My daughter started out as an early walker, early talker. Very bright > and chirpy little girl, interested in everything and everyone. After > vaccine damage we lost ALL of that. All speech gone. All interaction > gone. At her worst she would often scream if anyone was even in the > same room as her. Screaming had become the only form of communication > she could manage. Very painful to take such extreme rejection from your > child. It was very clear she was in pain and distress, but a lot of the > time would not even let anyone comfort her (in any conventional sense). > > I'm happy to say after a lot of hard work, we now have full speech > back. The biggest gains I have seen directly from AC protocol would > have to be cognition. General cognition has improved dramatically. My > daughter is able to comprehend so much more now, her awareness of the > world is so much better. She can now listen and understand > instructions. Just yesterday we went to the gardens, a big park in the > city. My daughter decided to run off down a hill (because running down > hills is fun!). My wife and my mother in law immediately panicked (as > you do when anychild runs away, but particularly for an ASD child or a > child with heavy metals issues). Anyway I told grandma and mum to stop > and be quiet and to stand back. I was confident my daughter could > handle this now. Sure enough once she reached a certain distance, she > stopped and turned around to check if I was there. I beckoned with my > arm for her to come back. She responded with a cheeky smile and a > laugh and the same hand gesture indicating I should go to her. I shook > my head and gestured again. This time she came running back up the hill. > > " did you see me running dada? " > " Yes I did. " > " I'm so fast " > > Mum and grandma were relieved and thrilled to see her " natural > awareness " to not go too far (like normal kids have) had returned. > > Biotin at low dose is a good long term solution for yeast, so I would > make sure you are doing that. 100 to 200 mcg a day is fine. > > However the biotin will probably not fix things in the short term. > > Saccharomyces Boulardii is also a good long term option for yeast, so I > would give that trial as well. However again its probably not the quick > fix. Saccharomyces Boulardii can sometimes cause constipation, so we > don't give it during a round. > > Grapefruit seed extract works well for some people and this has worked > well for us most of the time. > > Failing that one thing that definitely worked for us for yeast related > night waking issues was nystatin at a strength of 1,000,000 IU, giving 4 > times a day. (So they get 4 million UI in a day) A lot of people > report nystatin to be useless, however I think it is often because they > are doing it at a much lower strength, like 100,000 IU, in which case I > agree at that strength it often will be useless. Nystatin is not > systemic. It does not get into the blood, so this makes it a safer/less > stressful option than something like fluconazole. However this is also > the reason it needs to be given at a high strength, as it just passes > straight through the digestive tract, and whatever yeast it gets along > the way, is dealt with, however any yeast it misses is then free to > remultiply again. That's why the high strength is more effective as it > has a better chance of getting all (or at least a lot more) of the > yeast. Even so, for some people this is not enough. > > If that fails then you could try something like fluconazole. However > with fluxonazole it is systemic and can potentially stress the liver, so > if you do end up doing fluconazole, make sure you only do it for a few > weeks to a month, don't use it for a prolonged period wilth out regular > liver function tests. We used fluconazole as well. I did not seen any > benefit from it, however we may have dealt with the yeast already by the > time we introduced it. > > So I think in the first instance, I would be inclined to try the natural > options, failing those then I'd try nystatin at high dose before > considering the systemic solutions. > > Some people have also reported good results with sodium bicarbonate. We > did not try this for yeast as we did not know about it at the time. We > did know about it for alkalising, however we found lemon juice a much > better option for that purpose. If you do try sodium bicarbonate, make > sure you give it well away from meal times as it will alkalise the > stomach. At meal times you want a very acidic stomach for proper digestion. > > Hope that helps. > > > > > dana pope wrote: > > > > , what all have you used to help with yeast? Do you mind sharing > > what all the AC protocol has helped your daughter with? Was she > > developmentally delayed or language delayed at all? > > > > Thanks for your answer on my question regarding if I should use just > > ALA or start with DMSA first. > > > > Dana > > > > > > > > > > Guys, > > > > > > I am starting AC chelation in January with my 19 yr son (Aspergers, > > > cognitive delays). I plan to start with DMSA and ALA (at end?). I know > > > he has high mercury, lead, and aluminum. > > > > > > My question is, DAN! protocol does not use the AC method because yeast > > > issues often occur with oral chelation. Should I address that right > > > away? If so, how? He has had yeast problems in the past. > > > > > > sally > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 , Thank you so much! You are always so helpful! I have just ordered our DMSA today and will start with that first and then later add the ALA. How old is your daughter? What a wonderful story to be able to share. We still panic if our boys get to far from us because they have no sense of danger at all. Thanks, again. Dana > > > > Guys, > > > > I am starting AC chelation in January with my 19 yr son (Aspergers, > > cognitive delays). I plan to start with DMSA and ALA (at end?). I know > > he has high mercury, lead, and aluminum. > > > > My question is, DAN! protocol does not use the AC method because yeast > > issues often occur with oral chelation. Should I address that right > > away? If so, how? He has had yeast problems in the past. > > > > sally > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi Dana, My daughter is 5. I know that panic feeling well. You go off to do something that should be enjoyable, but you spend most of the day stressing about the potentially dangerous situations that your kids seem to just walk right into. I'm glad its improving for my daughter, because I don't know how I could handle a lifetime of constant stress. I'm sure that sort of prolonged stress brings about all sorts of health complications for parents. dana pope wrote: > > , > > Thank you so much! You are always so helpful! I have just ordered > our DMSA today and will start with that first and then later add the > ALA. > > How old is your daughter? What a wonderful story to be able to > share. We still panic if our boys get to far from us because they > have no sense of danger at all. > > Thanks, again. > > Dana > > > > > > > > Guys, > > > > > > I am starting AC chelation in January with my 19 yr son (Aspergers, > > > cognitive delays). I plan to start with DMSA and ALA (at end?). I know > > > he has high mercury, lead, and aluminum. > > > > > > My question is, DAN! protocol does not use the AC method because yeast > > > issues often occur with oral chelation. Should I address that right > > > away? If so, how? He has had yeast problems in the past. > > > > > > sally > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I know what you mean about " no sense of danger " ... Ugh! I am happy to report that my dd now wears the appropriate clothing in freezing cold weather... and she also thinks before running into traffic. Yeah!!! On Dec 29, 2008, at 10:08 PM, Reynolds wrote: > Hi Dana, > > My daughter is 5. > > I know that panic feeling well. You go off to do something that should > be enjoyable, but you spend most of the day stressing about the > potentially dangerous situations that your kids seem to just walk > right > into. I'm glad its improving for my daughter, because I don't know how > I could handle a lifetime of constant stress. I'm sure that sort of > prolonged stress brings about all sorts of health complications for > parents. > > > > dana pope wrote: > > > > , > > > > Thank you so much! You are always so helpful! I have just ordered > > our DMSA today and will start with that first and then later add the > > ALA. > > > > How old is your daughter? What a wonderful story to be able to > > share. We still panic if our boys get to far from us because they > > have no sense of danger at all. > > > > Thanks, again. > > > > Dana > > > > > > > > > > > > Guys, > > > > > > > > I am starting AC chelation in January with my 19 yr son > (Aspergers, > > > > cognitive delays). I plan to start with DMSA and ALA (at > end?). I know > > > > he has high mercury, lead, and aluminum. > > > > > > > > My question is, DAN! protocol does not use the AC method > because yeast > > > > issues often occur with oral chelation. Should I address that > right > > > > away? If so, how? He has had yeast problems in the past. > > > > > > > > sally > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 great story, thanks for sharing. maggie d. > > Hi Dana, > > My daughter started out as an early walker, early talker. Very bright > and chirpy little girl, interested in everything and everyone. After > vaccine damage we lost ALL of that. All speech gone. All interaction > gone. At her worst she would often scream if anyone was even in the > same room as her. Screaming had become the only form of communication > she could manage. Very painful to take such extreme rejection from your > child. It was very clear she was in pain and distress, but a lot of the > time would not even let anyone comfort her (in any conventional sense). > > I'm happy to say after a lot of hard work, we now have full speech > back. The biggest gains I have seen directly from AC protocol would > have to be cognition. General cognition has improved dramatically. My > daughter is able to comprehend so much more now, her awareness of the > world is so much better. She can now listen and understand > instructions. Just yesterday we went to the gardens, a big park in the > city. My daughter decided to run off down a hill (because running down > hills is fun!). My wife and my mother in law immediately panicked (as > you do when anychild runs away, but particularly for an ASD child or a > child with heavy metals issues). Anyway I told grandma and mum to stop > and be quiet and to stand back. I was confident my daughter could > handle this now. Sure enough once she reached a certain distance, she > stopped and turned around to check if I was there. I beckoned with my > arm for her to come back. She responded with a cheeky smile and a > laugh and the same hand gesture indicating I should go to her. I shook > my head and gestured again. This time she came running back up the hill. > > " did you see me running dada? " > " Yes I did. " > " I'm so fast " > > Mum and grandma were relieved and thrilled to see her " natural > awareness " to not go too far (like normal kids have) had returned. > > Biotin at low dose is a good long term solution for yeast, so I would > make sure you are doing that. 100 to 200 mcg a day is fine. > > However the biotin will probably not fix things in the short term. > > Saccharomyces Boulardii is also a good long term option for yeast, so I > would give that trial as well. However again its probably not the quick > fix. Saccharomyces Boulardii can sometimes cause constipation, so we > don't give it during a round. > > Grapefruit seed extract works well for some people and this has worked > well for us most of the time. > > Failing that one thing that definitely worked for us for yeast related > night waking issues was nystatin at a strength of 1,000,000 IU, giving 4 > times a day. (So they get 4 million UI in a day) A lot of people > report nystatin to be useless, however I think it is often because they > are doing it at a much lower strength, like 100,000 IU, in which case I > agree at that strength it often will be useless. Nystatin is not > systemic. It does not get into the blood, so this makes it a safer/less > stressful option than something like fluconazole. However this is also > the reason it needs to be given at a high strength, as it just passes > straight through the digestive tract, and whatever yeast it gets along > the way, is dealt with, however any yeast it misses is then free to > remultiply again. That's why the high strength is more effective as it > has a better chance of getting all (or at least a lot more) of the > yeast. Even so, for some people this is not enough. > > If that fails then you could try something like fluconazole. However > with fluxonazole it is systemic and can potentially stress the liver, so > if you do end up doing fluconazole, make sure you only do it for a few > weeks to a month, don't use it for a prolonged period wilth out regular > liver function tests. We used fluconazole as well. I did not seen any > benefit from it, however we may have dealt with the yeast already by the > time we introduced it. > > So I think in the first instance, I would be inclined to try the natural > options, failing those then I'd try nystatin at high dose before > considering the systemic solutions. > > Some people have also reported good results with sodium bicarbonate. We > did not try this for yeast as we did not know about it at the time. We > did know about it for alkalising, however we found lemon juice a much > better option for that purpose. If you do try sodium bicarbonate, make > sure you give it well away from meal times as it will alkalise the > stomach. At meal times you want a very acidic stomach for proper digestion. > > > Hope that helps. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 , your daughter's history sounds a lot like my son's! > > > > > > Guys, > > > > > > I am starting AC chelation in January with my 19 yr son (Aspergers, > > > cognitive delays). I plan to start with DMSA and ALA (at end?). I know > > > he has high mercury, lead, and aluminum. > > > > > > My question is, DAN! protocol does not use the AC method because yeast > > > issues often occur with oral chelation. Should I address that right > > > away? If so, how? He has had yeast problems in the past. > > > > > > sally > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 , Thanks for sharing and for being so helpful. Your daughter and the many other children who are recovering with AC protocol just give me so much hope! My two guys are 4 1/2. Dana > > > > Guys, > > > > I am starting AC chelation in January with my 19 yr son (Aspergers, > > cognitive delays). I plan to start with DMSA and ALA (at end?). I know > > he has high mercury, lead, and aluminum. > > > > My question is, DAN! protocol does not use the AC method because yeast > > issues often occur with oral chelation. Should I address that right > > away? If so, how? He has had yeast problems in the past. > > > > sally > > > > > > Quote Link to comment Share on other sites More sharing options...
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