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How do we parents untie under one umbrella with all our different views ?

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Input on this is greatly appreciated - parents HAVE the answers.

Parents, Providers, Listmembers.. is this at all possible ?

Regardless of indifference.. regardless of what some believe to be a

'cure' or a 'treatment' (Normally at really high costs that aren't

covered by insurance companies)...we must unite as a strong Lobby in

America. We have fought independently for quite some time, some

groups have 'Speakers' - yet lately there's been alot of negative talk

about who is 'Speaking' for us. It has to be someone or some

group...why shouldn't it be every last person that can..in whatever

way we can ?

I personally believe we can make a difference if we unite under the

two words " Childhood Disability " . The caucus could be quite

large..literally millions could be members of something such as this.

WE have tried so many things so many times as parents we

sometimes..or alot of the time grow weary. With my case it's a bit

easier for me physically as my exwife/momma bear of my 3 kids is in

California and I don't get to spend as much time as I would like with

my Son who is a BOY to me.. he may be Autistic and non verbal..but

what am I. You know the old saying " I know you are but what am I "

..... hmmm, now that's something to meditate on. We can make a

difference, we just need to have the right non profit allow all

parents input without regard to editing out what we dont' want to see

(unless its rude, or uncalled for behaviors).. if these 'ideas' could

be pushed forth directly to a contact person for the State and with

the US Dept of Oversight on ASD's (Sounds like a great name for this

yet to be made Org.).. if we don't get tied up in too much red tape we

could really help our little ones and that's what it's all about to

me. Once we get our own home in shape...we can then step outside of

it with our own problems and provide some help to the next person.

In a future legislative request I will request that parents be

given some type of relief..whether it's more Respite time or even a

small tax credit... for helping other parents of children with an ASD

to navigate through our system. This sounds good..but not easy to

implement as I don't think that EVERYONE wants to help everyone else.

We as a society are made up of different people..thankfully.

Otherwise the world would be very boring !! But we must remember that

we can't justify our action by the actions of somebody else.

We all must be held accountable for what we do and consider our

neighbor/brother/best friend/old friend/cousin ....it's getting

overwhelming..and it's getting time to create a Lobby that can't

Fought. We CAN DO IT...Any suggestions to help this thought along

will be not only accepted but appreciated. Lets stop the attacks upon

our children and put up a WALL OF PARENTS..Family Members...

VOTERS...PROFESSIONALS..Therapists... The Dreaded Advocates ( please

don't throw eggs at me I'm only trying to help.. hahahaaha), and

whoever else.. So email me offlist or reply on, and lets see if we

can come up with a non taken name..something that everyone with any

kind of therapy can join...Let's make it a huge Lobby.. one so big

that not lawmakers, not ANYONE can turn their backs on..

Please email me at Peace4kids@... and give me feedback, it helps

to compile these needs. Information received onlist and through

anything other then approved email has not been used other then to

create an 'atmosphere' for change by sharing the Lists which I have

already done. With who someone may ask.. 'The Transition Team - I

mass emailed them " We have been given campaign promises.. history

was made.. we want the promise kept. What do we do when someone

promises us something and doesn't give it to us ??

We certainly don't kick back and watch another episode of 'That 70's

Show " !!! We get it ! If we are going to make change occur in a way

that it should then all of us need to be mindful of the other

childrens needs and act accordingly. We must meditate on the thought

of every group of parents that think differently can join up and be

part of one parental coalition.. Cast away our differences...this can

happen.. a certain population will refuse to cast away anything..that

is hurtful to the children. Please do email me as a I stated with

any Idea's you may have towards working to this common goal. I don't

think we should abandon our friends in groups we have online..but one

strong group thats not taunting a treatment, etc. would be best.

It would be nice to be in a Senate or House Hearing and see more then

one other Lobbyist that is preparing to fight off teachers unions,

Pharmy Lobbyists, other inflated special interests....To see 10,000

parents are ready to tell their story or fight off whatever is being

broght on the table we don't agree with. I know our lists have a

great place in our hearts..and I think that should be preserved..but

just Imagine.... What your eyes would see...what we would be able to

do... . Lets stick together as much as possible..we will need to over

the next year - take care and I hope all is well with everyone.

Lets see 10,000 new Advocates next year.. put he ones charging people

out of biz !!!!! http://officeofadvocacy.spaces.live.com/ temp site

until reconstruction is complete. Check it out if you want a quick

link to..... Take care and peace be with all this season.

E. , Sr. The Office of Advocacy for Autistic Children

" We fight with all our might for the Civil Rights of all "

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