Getting worse

[Guest guest]

,

My kids don't have lyme since they are adopted but we all have been suffering

from some virus that seems to have some of the same symptoms. My dd complained

of her heels hurting, stomache, headache, diarrhea and these things come and

go. It also goes into a cold and back and forth. Backaches, and feeling woozy.

So, it could be lymne, but it could also be a virus going around. I live in

MO. My whole family has had it and no one has lyme but me. Easy rememdy to

tell is see if she herxs or is better w/the meds.

Darren D Landon <dclando1@...> wrote:

>

>

> I am so frustrated. I am unsure exactly if it is her Lyme acting up or

> behavioral...advice please. I think it is Lyme.

>

> She didn't scream going to school today but she peed her pants at recess

> this is so unlike her. She was complaining of her stomach and last night

> she was complaining of her heel hurting. I am afraid we might be headed

> for a bad streak for her. I am kind of scared because of her problems.

> I am hoping it is the Lyme and that she isn't being molest id or

> something. But I don't think so she is as far as I know with people

> all day, many of them. She says she isn't being teased or smacked

> around. She has been very clingy lately. She is lashing out at her

> sisters and us. Last time she was doing these kind of things when she

> was put on IV antibiotics she made a complete turn around...she wasn't

> quite as bad then...things are getting worse. I don't want to punish her

> if it is truly the Lyme and I don't want to send a wrong message. Also

> what if it is behavioral then I would be re enforcing her behavior. I

> have been crying the last two weeks not knowing what to do.

>

> But she is so bright...they are talking of later moving her up a grade.

> Since she is the age of most 2nd graders anyway..her birthday falls on

> October so like many kids she started school when she was almost 6.

> Last time she had trouble taking in information and processing it...this

> time it seems to be all psychological...but it is the complaining of her

> stomach ache and other pains that make me think Lyme. So you can tell

> which way I am leaning more towards.

>

> We are thinking of doing the home school thing because that is what we

> wanted to do for our children in the first place. We sent them to school

> because of my health. I don't think to well right now. Matter of fact

> it is sad...many of their grade level work I don't understand. And my

> kids are in 1st and 2nd grade. So how well can I do home schooling. IT

> is so hard right now what to do? I know you guys can only give advice

> right now but that would be very helpful. I need all the support I can

> get right now. My body is a mess and all it seems I have been doing is

> crying. Thanks everyone for listening. I am working on getting a hold

> of Dr. to see what he thinks.

>

> holding on everyday and proud of it,

> Cyntha Landon (Lyme) Idaho

> Myesha (Lyme) Celeste (twin, Lyme) and Landon (Lyme) all of us have

> positive Lyme PCR's.

>

>

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

>

[Guest guest]

Please take into consideration that my daughter had a positive PCR

for Lyme. Which she received in 2002. Only had 28 days of IV

Antibiotics and refused more. Okay so I am leaning towards

Lyme...especially since she was born with it. I so appreciate the

advice. Thankfully Dr. is going to have more testing done for her.

I feel so much better tonight and appreciate all the advice. I am

however a little weary with doctor since in 2001 when she saw him

he felt she did not have Lyme cause she didn't look real sick like a lot

of other children and her and Western Blot was negative other than

a few questional bands...49 or 41 or something like that that was on all

four of our tests. Right now I just don't know where else to turn. When

she had the PCR test done at MDL she tested positive on the very first

one. I am hoping she will be just as lucky this time...again thanks for

all the advice. I have had my daughter seeing the school councilor and

did ask the doctors here for her to see a psychiatrist but they felt it

was not needed although they feel it is all behavioral. They feel the

doctor will want to put her on depressants and I agree with them there

that is not a good thing. Sigh...that is the way life is. I think some

of 's anger also comes from having a pretty sick mommy. We are

praying and hoping the answer will be found. But I however agree that it

is probably good if the whole family works with a councilor to help deal

with the illnesses in the family...thanks again for all the advice.

Cyntha Landon in Idaho

[Guest guest]

Cyntha,

My heart aches for you and your family. I will pray for you today.

Regarding homeschooling.... if you're health is an issue then maybe an

already prepared curriculum would work. There are SOOO many on the market.

One with the lessons prepared, materials provided, and especially all of the

answers! There are also accredited umbrella schools that work hand in hand

with the parent - so many options! I believe it can be done, especially if

your heart was already there and your daughter is showing such distress.

Then you could tell if it was school while you persue the medical angle.

You can do so much more academically in such less time homeschooling so it

wouldn't necessarily take up the entire day. If she's so distressed at

school I would wonder how much schooling she's getting anyway - the

affective filter is a powerful thing in learning. And you can work at her

level regardless of the " grade " she falls in agewise. We were already

homeschooling when I was diagnosed with Lyme, so if you want to e-mail

off-list that'd be fine.

Beth

jdeamohr@...

[ ] getting worse

I am so frustrated. I am unsure exactly if it is her Lyme acting up or

behavioral...advice please. I think it is Lyme.

She didn't scream going to school today but she peed her pants at recess

this is so unlike her. She was complaining of her stomach and last night

she was complaining of her heel hurting. I am afraid we might be headed

for a bad streak for her. I am kind of scared because of her problems.

I am hoping it is the Lyme and that she isn't being molest id or

something. But I don't think so she is as far as I know with people

all day, many of them. She says she isn't being teased or smacked

around. She has been very clingy lately. She is lashing out at her

sisters and us. Last time she was doing these kind of things when she

was put on IV antibiotics she made a complete turn around...she wasn't

quite as bad then...things are getting worse. I don't want to punish her

if it is truly the Lyme and I don't want to send a wrong message. Also

what if it is behavioral then I would be re enforcing her behavior. I

have been crying the last two weeks not knowing what to do.

But she is so bright...they are talking of later moving her up a grade.

Since she is the age of most 2nd graders anyway..her birthday falls on

October so like many kids she started school when she was almost 6.

Last time she had trouble taking in information and processing it...this

time it seems to be all psychological...but it is the complaining of her

stomach ache and other pains that make me think Lyme. So you can tell

which way I am leaning more towards.

We are thinking of doing the home school thing because that is what we

wanted to do for our children in the first place. We sent them to school

because of my health. I don't think to well right now. Matter of fact

it is sad...many of their grade level work I don't understand. And my

kids are in 1st and 2nd grade. So how well can I do home schooling. IT

is so hard right now what to do? I know you guys can only give advice

right now but that would be very helpful. I need all the support I can

get right now. My body is a mess and all it seems I have been doing is

crying. Thanks everyone for listening. I am working on getting a hold

of Dr. to see what he thinks.

holding on everyday and proud of it,

Cyntha Landon (Lyme) Idaho

Myesha (Lyme) Celeste (twin, Lyme) and Landon (Lyme) all of us have

positive Lyme PCR's.

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

<<<<But she is so bright...they are talking of later moving her up a grade.

Since she is the age of most 2nd graders anyway..her birthday falls on

October so like many kids she started school when she was almost 6.>>>>

Does your daughter want to move up? Is she aware of the discussions of moving

her ahead a grade? How does she feel about leaving the kids that she is with.

Does she have a lot of apprehension about not being the " brightest " student in

her class when she makes the move?

This could be quite upsetting to your daughter.

Connieknwnj

[Guest guest]

Yes, we have been discussing with her about that. We are going to home

school her when she reaches 5th grade. So we feel it may be the best.

But we are taking all things into consideration. One of the reasons she

is so ahead of other students is because we started home schooling her

since she was 2 1/2 years old. So she knew a lot already. She is so

ahead in her reading and math. But for now we have decided to keep her

with the others until she makes the decision (she is working with some of

the higher grade learning for a few hours). We are giving her time to

think about it. The school said they don't usually like to do it but

because of her case and because she seems to hate it right now they don't

think she is being challenged enough. If she loved where she is at then

they wouldn't recommend it. Right now though her behavior seems to be

improving. She is constantly complaining of stomach and leg pain. So

perhaps some of it was behavior. They have working part time with

other kids a grade higher and she seems to be enjoying it but can also

play and be with her friends she has already made. Thanks for your

e-mail it was great.

Cyntha Landon

Idaho

[Guest guest]

Yea, I've been feeling like that two for 2-3 days now although today seems

to be a bit better.

[ ] Getting Worse

I used to have ok days with times of die-off. Now I feel pretty

horrible all the time. Yesterday I had my whole family here for

Thanksgiving, all 13 of us, kids and grandkids. No one knew that I was

so sick I could hardly stand up. I was fatigued, head was heavy and had

a headache, terrible anxiety off and on, pains in my back, two knawing

spots one right and one left in my middle. I felt that the anxiety and

the lousy feeling was coming from these two spots. How strange.

For now I am just doing the diet. I have not added anything in yet. I

seem to be feeling this bad every day all day long. I might get a break

or two for an hour or so here and there.

Am I so sick just because I have systemic candida off the charts, or

can this be die off every day for days and weeks on end. Does anyone

else feel this bad on a daily basis????? Thanks for listening.

Faith

[Guest guest]

If I had 13 people to feed foods I can't eat & all

that much standing up work to do & commotion, I'd be sick & exhausted too.

The acid reflux/heartburn for me has gotten worse the past few days but not

anything else, thankfully.

I stayed home alone yesterday & stayed on the diet. So far being on this

diet for 3 months has eliminated huge amounts of aches & pains in joints,

hands, feet, muscles.

My hands used to be all stiffened up & I was dropping things...from

scleroderma & arthritis. That's all gone now & it's wonderful! No more

itching or rashes either which drove me crazy. I'd have more energy if I

could get some decent sleep,

I'm sure, but the reflux/heartburn keeps me awake too much which is

exhausting. It's my worst

problem aside from chronic low back/hip pain.

Caroline

From: " Mike "

> Yea, I've been feeling like that two for 2-3 days now although today seems

> to be a bit better.

>

> From: Faith

> I used to have ok days with times of die-off. Now I feel pretty horrible

> all the time......so sick I could hardly stand up...fatigued, head was

> heavy and had a headache, terrible anxiety off and on, pains in my back,

> two knawing spots one right and one left in my middle..... I seem to be

> feeling this bad every day all day long. I might get a break

> or two for an hour or so here and there.

Does anyone else feel this bad on a daily basis?????

[Guest guest]

Faith wrote:

>

> I used to have ok days with times of die-off. Now I feel pretty

> horrible all the time. Yesterday I had my whole family here for

> Thanksgiving, all 13 of us, kids and grandkids. No one knew that I

was so sick I could hardly stand up. I was fatigued, head was heavy

and had a headache, terrible anxiety off and on, pains in my back,

two knawing spots one right and one left in my middle. I felt that

the anxiety and the lousy feeling was coming from these two spots.

How strange.

==>Even though the holidays are wonderful and everyone enjoys getting

together it can be very stressful. Stress in and of itself can cause

the body to create more healing symptoms because it is trying so hard

to keep everything balanced when it is being bombarded by stress

hormones, esp. higher adrenaline and cortisoe outputs. One of the

best things you can do during those times is to stop, find a quiet

place and take 3 deep slow breaths in a row (breath in and out very

slowly). This will switch your body over from the sympathetic system

to the parasympathetic system which will stop the flow of adrenaline

and relax you.

>

> For now I am just doing the diet. I have not added anything in yet.

I > seem to be feeling this bad every day all day long. I might get a

break > or two for an hour or so here and there.

==>Take more time for yourself by doing the breathing exercises

above, do dry skin brushing, take epsom salt baths, and the simple

relaxation technique in my article, which is:

- For relaxation do this for 15 minutes every day. Lie on the floor

with your feet on a chair so your thighs are at a right angle to the

seat of the chair and the calves of your legs are lying across the

seat of the chair. It is as simple as that.

> Am I so sick just because I have systemic candida off the charts,

or > can this be die off every day for days and weeks on end. Does

anyone > else feel this bad on a daily basis????? Thanks for

listening.

==>I totally understand and know how you feel. My fight to cure

candida back in the mid 1980s was horrendous. I had to stay on the

diet for 6 months before I could even think about taking an

antifungal. I lost my job because I was so sick, and I had to go on

welfare. I was seeing my doctor every week day, and during one

period of time I was losing 3 lbs. a day. You can read Bee's Personal

Candida Story in the files. Hang in there Faith. You will get

through this!

==>You could use some good enemas at this point to help your body

detoxify better - start with the coffee one - see the Enema folder.

Big hugs, Bee

[Guest guest]

>

>

>

> Bee, The typical die off symptoms were the first week I was on the

diet. Now it's different, like my worst symptoms from before coming

back to haunt me. I'm starving and losing weight.

>

> Ever since I've had the GERD I become intolerent to a food after

> eating it more than once, yes even " safe " foods, so I probably have

> leaky gut right?

==>The leaky gut theory isn't a factor because it doesn't make sense -

see this article:

http://www.healingnaturallybybee.com/articles/dig12.php

My body right now is saying " No more meat! " So what

> does that leave me with? I'm hungry and my baby's hungry. What do

I

> eat? I add the good fats to my vegetables already. Oh and I

cannot

> eat any raw vegetable, I cannot even swallow them, so salads are

> out.

>

> I'm scared and I feel like I'm doing all of this for nothing

because

> the GERD's not even getting better. Something else has to be wrong

> with me. I don't want to feed the candida, but right now I'm hardly

> feeding me. What do I do? My stomach is so tight and painful and

> just a little bit of food makes it want to erupt. I was told this

> isn't a classic pregnancy problem since I don't have nausea or

> vomiting, so what is it? Any ideas on what they could be missing?

> Like I said, this was not gradual, it just hit one day. I've never

> heard of a worse case of GERD than mine. I can hardly move. I'm

> sorry to sound so winey, but I'm scared to death. Got any ideas

for me?

==>I believe you should see your doctor.

Bee

[Guest guest]

--- bethanyjhnstn <bethanyjhnstn@...> wrote:

> I'm hungry and my baby's

> hungry. What do I

> eat?

I really feel with you. I've felt like that many

times these last years trying different diets. I've

often felt like crying in the grocery store due to

seeing all this wonderful food that I know I can't

digest. I've had so much food go straight through me.

It's very frightening. I've always been skinny and I

also was anorexic as a teenager so it's a terrifying

feeling for me to be loosing weight. It's probably a

good idea to speak with a doctor if you've got a good

one that's understanding. Also, I'm not sure yet if

bentonite clay is recommended on this program but that

is often the only thing that helps stop my stomach

from freaking out. It usually fixes things within 24

hours for me cause it sucks up all toxins in the

intestine and bowels. It's disgusting to drink

though. lol.

Well, good luck! Also, I sometimes talk with my

stomach in meditation like many monks do

(communicating directly to the body part that is

having problems). For me it has proven very powerful

to do so, even when the problem is strictly physical,

the body mind connection has been very useful for me.

Hope you'll feel better soon!

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[Guest guest]

Does your child have strep issues? My son does and Threelac put him over

the edge.

Kerrie

In a message dated 11/3/2008 8:33:36 P.M. Eastern Standard Time,

danamichellepope@... writes:

,

Some do not tolerate Threelac. You might consider dropping that and see if

that helps.

Dana

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[Guest guest]

While she was on Diflucan she was stable. We stopped the Diflucan and

we are giving about 3mg. Biotin and 3 packets of Threelac. She was

doing OK, but is getting worse. From what I understand...I can really

up the Biotin, right?

[Guest guest]

,

 

Some do not tolerate Threelac.  You might consider dropping that and see if that

helps.

 

Dana

From: Arias <thinkingheads@...>

Subject: [ ] Getting worse

Date: Monday, November 3, 2008, 8:13 PM

While she was on Diflucan she was stable. We stopped the Diflucan and

we are giving about 3mg. Biotin and 3 packets of Threelac. She was

doing OK, but is getting worse. From what I understand.. .I can really

up the Biotin, right?

[Guest guest]

>

> While she was on Diflucan she was stable. We stopped the Diflucan and

> we are giving about 3mg. Biotin and 3 packets of Threelac. She was

> doing OK, but is getting worse. From what I understand...I can really

> up the Biotin, right?

You can. I gave my son 20mg 3x per day.

Or, go back to the Diflucan.

Dana

[Guest guest]

What condidtion are you taking it for?

Three weeks is a REALLY short time to trial something. At least 6 months would

be a realistic time frame. There is no need to wait any certain time to increase

your dose. Years ago everyone automatically started at 4.5mg anyway but now

many people prefer to start at a lower dose.

In the case of MS, for example, some old symptoms may reoccur for a while but

I`ve never heard of them staying or making anyone worse. If you can tolerate the

immediate discomfort, whatever that may be, it will probably pass and you should

feel much better.

If it were me, I would double up now and see what happens! Good luck!

[Guest guest]

I am sorry you are having trouble. I have been on LDN for more than 2 years and

I would not take anything else. I have rheumatoid arthritis and fibromyalgia,

and ldn has totally stopped the progression of the disease. It is not cured,as

when I stop taking ldn it revs up again (I foolishly thought I was healed and

stopped taking it for a while...huge mistake). Initially I was frightened of it

and built up apprehension while waiting for my prescription. No need for that.

I started on 1.5 which did nothing for me. Then I went to 4.5 which was too

much and really caused sleep issues. I now take 3.0 to 3.5 mg adjusting when I

feel the need. LDN is a miracle drug in my book. It beats all the other RA

drugs which have horrific side effects some of which can be fatal. Just don't

give up. You haven't given LDN a fair chance as 1.5 mg is not working for you.

Also, I get the 50 mg tablets and dilute one tablet with 50 ml of water. Then I

measure out 3.5 mg (use a baby syringe from local pharmacy) and mix in a small

amount of juice. This is the cheapest way as a one month supply of 50mg ldn

will last close to a year. Also, it is the most effective way as you don't have

problems with fillers or have to find a compounding pharmacy. I wish you the

very best and hope you have an excellent outcome.