JAN

[Guest guest]

In a message dated 8/16/03 1:07:18 PM Pacific Daylight Time,

K979@... writes:

> Glad the doc was able to convince

> him to tone it down until he is past the danger zone for injuring his

> breastbone area.

Martha,

Me, too!!

Sandi

[Guest guest]

Congrats on BEn's weight gain and increase in height!!!! That is excellent

news!

Pattie

> Sandi,

> Ben takes Cyproheptadine ( a generic of Periactin). He takes the liquid.

> It has really helped with his appetite. He gained 17 pounds this past year

> (age 15) taking the med and nothing the year before (age 14). He has grown

1.25

> inches this summer (Yeah!) and looks quite thin. He had to work up to the

> prescribed dose as the full dose made him very sleepy and irritable, but

> working up to

> the dose he has done just fine. I do not know if it is a med that can be

> used with heart problems. I believe it is an older antihistamine. I'm sure

> 's doctor will be very careful in what is prescribed. I have been amazed

at

> 's progress.

> Jan

[Guest guest]

Jan (and others), I can only imagine your painting, as I can't see attachments. I think that's true for all of us getting the Digest format. Nevertheless -- thanks for sending the image.

Harper

[Guest guest]

I agree with Anita. When my boxer pup was just 2 months old, I ran out to the 7-11.

I was only going to be gone for a few mins. so I didn't put the bottom to her crate in. It was airing out side. When I came home she had pulled the linoleum up in the crate area. I then let her out to try to figure out what to do with the floor and she ran upstairs and chewed the most expensive pair of shoes I had in my closet. I had only worn them once and felt very embarrassed about what I had paid for them. I guess she figured that out and thought "I'll teach her to spend that much on a pair of shoes, again"

Fortunately, that stage didn't last long and she never chews things now that she is 5 years old. I just gave up and put up to quote Anita.

Hang in there, it gets better.

[Guest guest]

Yes, I sure do have the glow in the dark palms. The only time it looks worse is when my billirubin is very high and they get to pealing. Now that's a pretty sight. "Glow in the Dark, pealing palms." Very ATTRACTIVE as my son says.

My sweet little boxer pooch is laying here looking so angelic. Little would anyone know that when I came home there had been a thunder storm which she hates and she gets very upset. She had Pooped and chewed her crate to the point that her gums bleed. She does this everytime there is a storm. You would think she had been left outside in one. The dog hardly sees the ground, except to take a potty break. I guess she thought it was time and I wasn't home. What a suprise to walk into. Not really though. I tried to get home before the storm but it hit on this side of town first. I knew what awaited me. If I'm at home I give her "doggy herbal sedatives" if I know a storm is going to happen. Only I would be the one with the dog who needs Prozac to get through a storm. But what do you do? They are part of the family. I certainly hope no one gets rid of me because of my medication list. If so, I'm doomed.

Have a nice night.

[Guest guest]

, please tell me

more of these doggie herbs? My dog is hyper all the time, thunder storm

or not!

Debby

Re: [ ] Jan

Yes, I sure do have the glow in the

dark palms. The only time it looks worse is when my billirubin is very

high and they get to pealing. Now that's a pretty sight. " Glow in

the Dark, pealing palms. " Very ATTRACTIVE as my son says.

My sweet little boxer pooch is laying here looking so angelic. Little

would anyone know that when I came home there had been a thunder storm which

she hates and she gets very upset. She had Pooped and chewed her crate to

the point that her gums bleed. She does this everytime there is a

storm. You would think she had been left outside in one. The dog

hardly sees the ground, except to take a potty break. I guess she thought

it was time and I wasn't home. What a suprise to walk into. Not

really though. I tried to get home before the storm but it hit on this

side of town first. I knew what awaited me. If I'm at home I give

her " doggy herbal sedatives " if I know a storm is going to

happen. Only I would be the one with the dog who needs Prozac to get

through a storm. But what do you do? They are part of the

family. I certainly hope no one gets rid of me because of my medication

list. If so, I'm doomed.

Have a nice night.

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[Guest guest]

Dear Jan,

I share your sorrow and concern over your friend's husband. What a weird and shocking thing to have happen! Guess when it's time, it's time. It just makes it really hard on those left behind especially when she needs so much support right now!

Take Care!!!!!

Amy

[Guest guest]

Hi Jan:

Yes, now I know the difference, I should... We know

one of CLiff's friends, has melanoma (sp)-- he has 4- 6 months to live-- He was told about a month and half ago.

He had some skin about 7 years ago removed from his back- maybe it was a mole. And doctors, never checked him later when he sprained his ankle. It was getting huge and not healing... There was a tumor in it- he has problems with his feet. We feel terrible fo r and his family, and wife. His mother and father taking him on a cruise, and his one brother took him and his wife to las Vegas. He went to Boston for check up-- they cannot do anything for him. It is terminal. We should be careful about the sun.. and to protect ourselves. I haven't been much of a sun person, was always to to hyper to just there or lay there. I am out in it- around the house, with the flowers and all... Anyways, went to the casino , here , it is in Connecticut-- we went to Foxwoods last night.

on quarter machine won $1254. 25 - have to pay taxes on anythng over $1199.00- oh , well will claim it at the end of year-- we will put down our losses for other times we lost .

Well Jan good luck--and take care--

Love, Gaynel

[Guest guest]

Hey Jan, I'm still here and reading. I guess everyone is just busy. I came home and found only your message. I was beginning to wonder if I was having a problem with my computer. I'm sure as the weekend approaches and people start getting home they will have time to post. Hope all is well with you.

I'm hanging in there. Just today got all 200+ patients rescheduled and most of them seen from a week without power at the office thanks to the hurricane. This has been the week from ????. I don't think I could have gone another second.

We had 3 extra clinics this week which means 3 times more typing at home this weekend. After this weekend is over I think we have it licked. Fortunately, no one in my family or any of my friends were injured. For that I am greatly thankful.

You hang in too.

Talk to you later.

[Guest guest]

from that ithyroid website the man who wrote all those articles

(john) says the body needs 300mg a day of thyroid to work --so if a

person is taking in only 50mgs that means her thyroid has to be

producing the difference here of 250mg. So if your friend is taking

in 200mg and has no thyroid where is the rest coming from?? This was

in one of the last articles I posted---tina??? is this a correct

assumption the the required amount used by the body?? does anyone

else know?

[Guest guest]

I was thinking the same thing!

That means that either the person is " doing great " like the people I

mentioned, or that the 300mcg is just an average and that some people

actually produce way less.

Jan

> from that ithyroid website the man who wrote all those articles

> (john) says the body needs 300mg a day of thyroid to work --so if a

> person is taking in only 50mgs that means her thyroid has to be

> producing the difference here of 250mg. So if your friend is taking

> in 200mg and has no thyroid where is the rest coming from?? This

was

> in one of the last articles I posted---tina??? is this a correct

> assumption the the required amount used by the body?? does anyone

> else know?

[Guest guest]

The temperature is still very low, but up a half-degree Celsius (too

lazy to go convert to Farenheit now), so that is good news. I am

doing the salt, and it has helped the edema. I wake up looking like a

water balloon, but go to sleep looking like myself (well, like a 10-

22lb fatter version of myself, depending on how bad of an edema day

it was...). The salt is working as a diuretic, at least.

My T3 is gonna arrive any moment though, that should help the cold.

Thanks again for all the help, Tina.

Jan

> Jan I meant to ask did the salt work out for you??? and is your

temp.

> still very low? tina

[Guest guest]

You know I just don't know this answer here---does anyone know for

sure the required amount the average thyroid produces in a day?

> I was thinking the same thing!

>

> That means that either the person is " doing great " like the people

I

> mentioned, or that the 300mcg is just an average and that some

people

> actually produce way less.

>

> Jan

>

>

>

[Guest guest]

Well the salt is really not working as a diuretic what it is doing is

refueling your body with the needed salt--the body swells up to

retain the salt and when you added more to your body it didn't need

to continue swelling. So you have to think here with me---if you are

hashi's with possible adrenals??--low blood pressure too?? I know you

have low temps. and even taking t3 will make you feel so much better--

it will, daughter has the same conversion problem---

But what is so interesting is that you need salt and what is in salt--

-Iodine--so you need to have that checked---if your goiter or

swelling in your throat went down with the added salt that means you

need iodine--Your very low temps is still a strong signal for adrenal

mixed into your illness here, and especially since you said dhea has

really helped you big time--that is adrenal as well. I would like to

see you on your new meds and still supporting the adrenals for really

feeling great--you may need (isocort or would say cortisol as

well)

It would be great for you to have your adrenal and iodine checked

from this new doctor so you know what kind of hashi's you really are.

One that needs it or one that does not.

Since the salt worked for you---I am guessing here that you are one

that needs it, which is also a big sign for adrenal problems.

The reason why I bring this up is you have to support and repair the

adrenals when you are taking t3---another reason why---I have read

and I'll have to find it somewhere that if one assumes t3 and

adrenals go together--so if you have weak adrenals it shows up in low

t3 numbers.

Now when you add t3 with weak adrenals like we did with my daughter,

we added in too much in the third week, what was so weird is that if

she did not have an adrenal problem she should of been fine with the

increased dosage (it wasn't your typical reaction) (it was headaches,

stomach aches, not the kind you expect which should have been

increased heart, palpitations)---so looking into it we discovered the

weak adrenals have a hard time keeping up with the higher dose of the

t3--so I am suggesting to add it in very slowly (and I know you have

taken this before, but maybe not with adrenal problems before?? maybe

the adrenal problems are new???

this is just a precaution only because it happened for us. If the

adrenals really need isocort (Val takes in 8 a day or cortisol) than

you may achieve really feeling great. I don't know but from all the

posts you have written on the other boards I just wonder?????

Gee one more thing that might help, my daughter's temps were still

all over the place when she was taking t3 only----and it's only been

stable with the adrenal glandulars that she takes now. And if she

goes off of them it drops back to her typical 96. So she learned her

lesson that she has to take them.

tina (sorry this is written a bit crazy)

> > Jan I meant to ask did the salt work out for you??? and is your

> temp.

> > still very low? tina

[Guest guest]

kosher salt does not contain iodine. craving salt (sodium) is different

from needing iodine. Use kosher salt if you are autoimmune.

Gracia

> Well the salt is really not working as a diuretic what it is doing is

> refueling your body with the needed salt--the body swells up to

> retain the salt and when you added more to your body it didn't need

> to continue swelling.

[Guest guest]

You know when I went to bed last night it was around 1:00am after I

posted the letter to Jan and I did think---opps maybe she wasn't

using iodized salt---but most people do--so it was a chance to assume

that this could have been the cause of her neck swelling decreasing

and or it could have been from a cold in that case salt really does

help swelling. So Jan you will have to let us know what kind of salt

you use???

-- In hypothyroidism , " Gracia " <circe@g...> wrote:

>

> kosher salt does not contain iodine. craving salt (sodium) is

different

> from needing iodine. Use kosher salt if you are autoimmune.

> Gracia

>

> > Well the salt is really not working as a diuretic what it is

doing is

> > refueling your body with the needed salt--the body swells up to

> > retain the salt and when you added more to your body it didn't

need

> > to continue swelling.

[Guest guest]

I will answer it in parts, or I'll forget - very brain foggy today.

> Well the salt is really not working as a diuretic what it is doing

is

> refueling your body with the needed salt--the body swells up to

> retain the salt and when you added more to your body it didn't need

> to continue swelling. So you have to think here with me---if you

are

> hashi's with possible adrenals??--low blood pressure too?? I know

you

> have low temps.

Yes, still low temps. BP has always been 90/60, and in my teens it

would get as low as 70/40 and I'd faint and all.

>and even taking t3 will make you feel so much better--

> it will, daughter has the same conversion problem---

I used to feel like myself on the T3.

> But what is so interesting is that you need salt and what is in

salt--

> -Iodine--so you need to have that checked---if your goiter or

> swelling in your throat went down with the added salt that means

you

> need iodine--Your very low temps is still a strong signal for

adrenal

> mixed into your illness here, and especially since you said dhea

has

> really helped you big time--that is adrenal as well.

I think so too, especially cause the adrenals seem to have gotten

WORSE since I upped the T4. When I went from 100 to 125mcg, all the

adrenal symptoms like the cold got worse, and not better.

The goiter didn't improve with the salt, it did when I upped to

125mcg a month ago, and then stabilized. Also this is not iodized

salt. I realize anything from the sea has iodine, duh, but this is

not the extra iodine added kind.

>I would like to

> see you on your new meds and still supporting the adrenals for

really

> feeling great--you may need (isocort or would say cortisol

as

> well)

I think so too. This doctor agreed to check my adrenals, although she

disagrees with my suspicion that because I have unexplained hives,

constant sinus problems, dark circles, and I've always been hairy and

had acne that even Accutaine couldn't get rid of, I might have

adrenal problems. Besides the hypoglycemia, hypothermia, and low BP.

But she did say that first, I am the poster child for autoimmune

disease, so any testing in my case is justified, and second that it

will put my mind at ease, so she will do it. She said that I might

have a problem from undertreated hypothyroid though, so she wants to

get that under control first, then test. She said if she tested an

undertreated thyroid patient, whose tests are bad as mine (she agrees

4.0 TSH is bad - gotta love her!), many times it would show low

adrenal hormones, but once the thyroid were working right, the levels

would be back up to normal.

>

> It would be great for you to have your adrenal and iodine checked

> from this new doctor so you know what kind of hashi's you really

are.

> One that needs it or one that does not.

I decided to take this stand on iodine: I eat deiodized salt, and

take a multi with 100% of the iodine. I do eat fish a few times a

week too, so I feel I am getting enough iodine. I am more afraid I've

been getting too much, I live 2 blocks from the beach so I do breathe

iodized air all the time.

>

> Since the salt worked for you---I am guessing here that you are one

> that needs it, which is also a big sign for adrenal problems.

>

> The reason why I bring this up is you have to support and repair

the

> adrenals when you are taking t3---another reason why---I have read

> and I'll have to find it somewhere that if one assumes t3 and

> adrenals go together--so if you have weak adrenals it shows up in

low

> t3 numbers.

I am starting to believe so too, and this is what the doc was getting

at. She said until my FT3 is good, there is no point in testing

adrenals.

>

> Now when you add t3 with weak adrenals like we did with my

daughter,

> we added in too much in the third week, what was so weird is that

if

> she did not have an adrenal problem she should of been fine with

the

> increased dosage (it wasn't your typical reaction) (it was

headaches,

> stomach aches, not the kind you expect which should have been

> increased heart, palpitations)---so looking into it we discovered

the

> weak adrenals have a hard time keeping up with the higher dose of

the

> t3--so I am suggesting to add it in very slowly (and I know you

have

> taken this before, but maybe not with adrenal problems before??

maybe

> the adrenal problems are new???

Yep, the doc said add 1/4 pill every 3 days, not start on 25mcg all

at once, just as a precaution.

>

> this is just a precaution only because it happened for us. If the

> adrenals really need isocort (Val takes in 8 a day or cortisol)

than

> you may achieve really feeling great. I don't know but from all the

> posts you have written on the other boards I just wonder?????

>

> Gee one more thing that might help, my daughter's temps were still

> all over the place when she was taking t3 only----and it's only

been

> stable with the adrenal glandulars that she takes now. And if she

> goes off of them it drops back to her typical 96. So she learned

her

> lesson that she has to take them.

My temps are most stable now with the DHEA (again, that points to

adrenals!). Since that 94.8 day, it has been 95.7 all the time. Ok,

it is still low, but I've been sleeping much better - no more night

sweats, and no put on jacket/remove jacket/repeat all day long

either.

>

> tina (sorry this is written a bit crazy)

No, thank you for being so knowledgeable and willing to help.

Jan

[Guest guest]

That is what I've been using, I use a mixture of non-iodized light

salt (50% sodium, 50% potassium) and the kosher/sea salt, no iodine

added. The first one I put in foods for the whole family, and I use

the second one to add to my plate. Light is a convenient way to

supplement potassium, but when I was using just that the edema was

even worse.

Jan

>

> kosher salt does not contain iodine. craving salt (sodium) is

different

> from needing iodine. Use kosher salt if you are autoimmune.

> Gracia

>

> > Well the salt is really not working as a diuretic what it is

doing is

> > refueling your body with the needed salt--the body swells up to

> > retain the salt and when you added more to your body it didn't

need

> > to continue swelling.

[Guest guest]

Non iodized is the one I added.

Jan

> >

> > kosher salt does not contain iodine. craving salt (sodium) is

> different

> > from needing iodine. Use kosher salt if you are autoimmune.

> > Gracia

> >

> > > Well the salt is really not working as a diuretic what it is

> doing is

> > > refueling your body with the needed salt--the body swells up to

> > > retain the salt and when you added more to your body it didn't

> need

> > > to continue swelling.

[Guest guest]

Jan I am over at that cushing's website and you may have some of

those symptoms???? they talked about hair growth on face and night

sweats ect.---very interesting site they have--they have a really

super check list--I'll get you the link just to double check--

[Guest guest]

The $ynthroid insert says to rule out adrenal problems BEFORE administering

thyroid hormones.

Val in Boulder, CO

-----Original Message-----

From: janjv1311 [mailto:janaina@...]

She said that I might

have a problem from undertreated hypothyroid though, so she wants to

get that under control first, then test. She said if she tested an

undertreated thyroid patient, whose tests are bad as mine (she agrees

4.0 TSH is bad - gotta love her!), many times it would show low

adrenal hormones, but once the thyroid were working right, the levels

would be back up to normal.

[Guest guest]

What doesn't work for you here is that low BP is not typical problems

with cushings, but it's better to look into it than not.

> Jan I am over at that cushing's website and you may have some of

> those symptoms???? they talked about hair growth on face and night

> sweats ect.---very interesting site they have--they have a really

> super check list--I'll get you the link just to double check--

[Guest guest]

Yep, I told her that.

However, she is positive I have no adrenal problems, and that it is

all the 's/conversion problem. She is ordering the tests just

to indulge me.

Jan

> The $ynthroid insert says to rule out adrenal problems BEFORE

administering

> thyroid hormones.

>

> Val in Boulder, CO

>

> -----Original Message-----

> From: janjv1311 [mailto:janaina@v...]

>

> She said that I might

> have a problem from undertreated hypothyroid though, so she wants to

> get that under control first, then test. She said if she tested an

> undertreated thyroid patient, whose tests are bad as mine (she

agrees

> 4.0 TSH is bad - gotta love her!), many times it would show low

> adrenal hormones, but once the thyroid were working right, the

levels

> would be back up to normal.

[Guest guest]

I've developed a theory here: what if my adrenals are doing a sort of

too much/too little cortisol dance?

In the beginning of my Hashi's, I had hyper symptoms sometimes.

Suppose that I have adrenal antibodies and the same thing is

happening?

Jan

> > Jan I am over at that cushing's website and you may have some of

> > those symptoms???? they talked about hair growth on face and

night

> > sweats ect.---very interesting site they have--they have a really

> > super check list--I'll get you the link just to double check--

[Guest guest]

Well, she meant that with 3 confirmed diagnosis of autoimmune

diseases, it was worth checking for a possible 4th just based on the

previous 3, although she thinks my symptoms are not compatible with

this 4th disease (adrenal problems).

I have antibody testing for Hashi's, a biopsy result that confirms

the endometriosis, and the pancreas testing for the malabsorption, so

it is all tested and documented (the malabsorption not so much, my

mom is not one to keep tests like me, but I have everything from my

teens on, the Glycemic Curves, etc.).

Jan

> One more thing I just thought of responding to from your

doctor " You

> are a poster child for autoimmune diseases " is totally wrong unless

> you have done the auto-antibody testing for them and or viruses--

ect.

> Don't let a doctor broad base your illness----you know as well as

she

> should that it's in your family here. Also when our bodies are ill

we

> will pick up any cold, flu, ect. easier than anyone who has no

> illness. tina