new and need help

[Guest guest]

>

> Hi. I am 34 years old and just had a baby four months ago and went

in for some routine

> blood work and it showed a THS level of 0.04. I went for an

ultrasound and it showed 3

> nodules on my thyroid. I am going to see an endocrinologist next

week. I wanted to know if

> that THS level is bad because I don't really feel that bad.

>

> I'm just worn out from nursing a baby and caring for an older

toddler too, but I thought how I

> feel is normal. Also, can nodules go away on their own? Has anyone

else out there breastfed

> a baby with hyperthyroidism? Should I expect to have medicine

started with that kind of THS

> level? I have never had a thyroid problem before in my life. Any

advice and pointers for

> questions to ask my doctor would be appreciated. Thanks!

>

Hi there, I dont know how much help I will be but firstly did you

doctor say anything about medicine when you got your lab work done?

And I have never heard anything about nodules. I had hyperthyroid so

my thyroid became engorged. I dont think I ever had anything on

them... however it sounds more to me like you have Hypothyroid.

There is a small difference there. I dont know if you know all the

symptoms or not but... slugishness is only one of them. Irratic

heart rate...like for instance your sitting on the couch watching tv

and all of a sudden your heart starts beating out of your chest,

your out of breath...also look for shakey hands...its not an all

over shake but just in the hands, look at your eyes...do they look

swollen or does one look bigger than the other? Another sign of

hypothyroid which is low thyroid is weight gain. Now I understand

you just had a new baby...congradulation by the way...but did you

gain an exsesive amount during your pregnacy or are you gain weight

rapidly now...I am talking new pant sizes within a couple months? As

far as medicine goes...my aunt has thyroid problems and shes on

Synthroid to keep it maintained....she had a baby a year ago and

they gave her her meds in the hospital the same day she had the

baby...I dont know about breast feeding because she didnt breast

feed...thats a question for your doctor. Also I would find out

exactly what you have hyper or hypo...this could really effect you

because you have a new born. How do they plan to remove these

nodules thingys? Surgical or Radiation? If its radiation I can tell

you that you wont be able to be anywhere near your newborn for about

24 hours...because of the radition treatment...now this isnt like

kiemo or anything...mine was two small blue pills and there arent

any kind of side effects to it...just that you can not go near new

borns or the elderly for 24 hours...and they suggest not

standing,sitting, or sleeping beside anyone because your radiation

and inturn effect the other person. So check with your doctor about

it. Thats all I know really. I hope I helped a little however I

would research nodules and your ths levels online just to see what

you come up with. That will give you a better understanding of what

you have and the kinds of questions to ask your doctor.

Leanne

[Guest guest]

Hi,

I am 22 months pregnant with hyperthyroid. I have nodules in my thyroid. My

tsh level was 1.05 while conceiving after i got pregnant it dropped to 0.01.

since i m pregnant i cannot take thyroid throu.

I suggest you to read greenlife-herbal.com and ithyroid.com. The tablets

prescribed for hyperthyroid will give you just temporary relief and nothing

more. Instead of thyroid doing its work the medicine take over the work of

thyroid. The tablets stops the production of hormones which may later leave you

being hypothyroid for the rest of your life.

Start taking action now itself before your symptoms increase. You are your

own judge in curing thyroid disease. For time being follow the diet in

ithyroid.com and see how you feel bec i bet you will not like taking any

medication while breast feeding. Once you stop nursing see if you want to try

Thyroid Throu. I m no expert but giving some suggestion on what i know.

Hi. I am 34 years old and just had a baby four months ago and went in for some

routine

blood work and it showed a THS level of 0.04. I went for an ultrasound and it

showed 3

nodules on my thyroid. I am going to see an endocrinologist next week. I

wanted to know if

that THS level is bad because I don't really feel that bad.

I'm just worn out from nursing a baby and caring for an older toddler too, but

I thought how I

feel is normal. Also, can nodules go away on their own? Has anyone else out

there breastfed

a baby with hyperthyroidism? Should I expect to have medicine started with

that kind of THS

level? I have never had a thyroid problem before in my life. Any advice and

pointers for

questions to ask my doctor would be appreciated. Thanks!

---------------------------------

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[Guest guest]

Hello my name is Lorine and I am 62 years old. I was diagnosed with SLE lupus 15

years ago. 13 years ago they said that the lupus was contained and I had

fibromyalgia. The last three years my finger start peeling like some one taken a

knife and peel my skin from my finger and razor blade cut follow the skin peel.

I was diagnosing as having psoriasis of the hand. My condition has gotten worse

this last four months. I was going to see a new rheumatologist before he saw me

he wanted me to take a bone scan where they inject a nuclear shot to show up

more than a MRI would show up. It shows up arthritis in my spinal cord and all

of my back and more places. My doctor said today I had psoriatic arthritis and

he wants me to take Remicade. I have read some literature on this and the side

effect is dangerous. I don't trust doctor fully.

I am concern is his diagnosed right? He is order other blood test for me. What

should I know? Etc

Sometime I have brain fog as well, if I didn't write this right please over look

it.

lorine

[Guest guest]

After arguing for years with a rheumy who was sure I just had fibromyalgia I got

him to diagnose the psoriatic arthritis that runs in my family thanks to a bone

scan. That test worked well for me when blood tests and x-rays didn't. Remicade

is a TNF inhibitor like the Enbrel I take. It has been a great blessing to me

and unlike methotrexate, sulfasalazine and prednisone, I have never experienced

a single side effect with Enbrel.

Janette

[Guest guest]

Thank you for getting back with me. As I said earlier 15 years ago I was told

SLE Lupus, afterward been on disability I was told fibromyalgia. Now this new

doctor tell me it psoriatic arthritis. I forgot to tell you that it started in

Memphis Tennessee, Hawaii now California. This is a new doctor. That the reason

I join this group. I been doing a lots of research. When I though I had lupus I

went to the lupus meeting until I learn all I needed to know, same with fibro.

My doctor want to give me Methotrexate and Leucovorin and surfasalazine. These

two  medication is prone to liver damage,except the Leucovorin. Plus give me the

Remicade. I am trying to learn as much as I can on these medication.

Meanwhile my body is getting worse. It all in my spine area and spinal cord.

Other place in my body as well.

Once again Mahalo (thank you) for your help

Lorine

[Guest guest]

Hi Lorine! I take Remicade and for me it has been a Godsend! I know those side

effects the literature lists sound horrid but please understand very few people

have those worst ones and many people have no or very mild side effects at

first. I was scared too! But by my fourth treatment with all the improvement in

my symptoms I was so glad I decided to try it. When I started Remicade my hands

and feet looked like raw hamburger all the time. The peeling, splitting and

bleeding just like you have. I had to keep them wrapped all the time if I went

out in public to avoid being asked if I had AIDS or if I was contagious. My

right ankle, left knee and lower back were so bad and painful I walked like a

very old woman, hunched over and hobbling. My quality of life was pretty much

non existent. Remicade changed all of that. My hands and feet are usually clear

or very mild in small patches. I still have joint damage but the swelling and

pain are much improved.

Like others here will tell you, I am not a doctor. Only you and your doctor can

decide what the best treatment will be for you. But if you just don't trust and

aren't comfortable with the doctor you have now, then maybe you should check out

other rheumies in your area. Your doctor is a very integral part of your ability

to deal and live with this disease. Discuss all the alternative treatments, the

pros and cons, and what you are comfortable with with your doctor. If need be

keep a notebook just for writing questions or concerns in to take to your doctor

with you. That notebook can also be used to keep track of any new or worsening

symptoms too.

As for the brain fog and fatigue, well we all understand that! I know I live

with those two things all the time. As many others here do. So you have come to

the right place for support and to ask questions.

Gentle hugs!!

Dalene

[Guest guest]

Just wanted to say that y other rheumy also kept wanting to pin fibromyalgia on

me too. I don't know why, because I did not have any of the trigger points.

Finally, I am with another doctor and my psoriatic arthritis is being treated

and I am getting some good results. Why is it that the doctors are so quick to

pin the fibromyalgia on women? I doubt it is the same for men.

-

[Guest guest]

I've found that since I was diagnosed with fibromyalgia several years ago and

something new comes up, some doctors will slap the name on the new problem as a

catch-all diagnosis when they're not sure what it is. I think it's a good lesson

that we have to take on the responsibility of staying on top of our health

concerns - even more so than the docs. Some are arrogant and can't say " I don't

know " . When this happens I assert myself and get a second opinion and I have yet

to fail. Fortunately my family doctor is not one of that kind. He works with me

and will automatically go for a second opinion when the diagnosis is unclear.

The fibro for women does have a higher statistic for some reason, but that's no

excuse. Let's make sure our doctors are looking at the problem and not the

gender...

[Guest guest]

I agree. I was diagnosed with fibro and that seems to be a blanket diagnosis for

anything else that turns up. Its very frustrating when you feel like you're not

being taken seriously.

[Guest guest]

Lorine - PA is very difficult to diagnose, so you could very likely have been

misdiagnosed for a long time. I had the joint pain long before I had any skin

involvement and that is not completely uncommon. I am taking Remicade and it has

changed my life - I am not creaky and in pain, I am not sleepy all the time...it

can give you your life back, so it is worth trying!

[Guest guest]

THANK YOU FOR SAYING THIS.....I START MY TREATMENT THIS MONTH.

LORINE

Lorine - PA is very difficult to diagnose, so you could very likely have

been misdiagnosed for a long time. I had the joint pain long before I had any

skin involvement and that is not completely uncommon. I am taking Remicade and

it has changed my life - I am not creaky and in pain, I am not sleepy all the

time...it can give you your life back, so it is worth trying!

[Guest guest]

Hi, Becky - welcome!

Sorry you're having trouble. you list a long string of problems, some serious.

The " liquids for 24 hours " rule is fine for temporary problems, aimed at resting

the stoma while very minor problems and issues heal.

It is not a CURE for bigger problems!

** ANY ** time we have problems for more than a day or two, it is essential to

see our Band surgeons for an exam and possibly a fluorosopy to look at the stoma

and band position.

Please see your doc at once - you have waited far too long already.

You're correct that the band does not cause immune problems. but those eating

poorly and becoming deficient in many of the vits and minerals we need, surely

do compromise the imune syatem. Has your doc done vitamin studies? Are you

careful about taking a good daily Band vitamin? See the " Vitamin " document in

the files here for much more on this issue.

Good luck - please let us know how you are.

Sandy,RN - group co-owner

banded March 2003

pretty much at goal weight since 2004

>

> Hi All,

> New to the Group and unfortunately I'm here because I need help with some

problems. I had my band surgery 11/4/2010 and until about 2 months ago I was

doing really well. About 2 months ago I started having a lot of food sticking

problems. I hadn't had any issues with food so I kept trying to get food down,

sliming, vomiting etc... I finally checked some online resources and was

reminded that I needed liquids only for a day. Did the liquid only for 24 hours

and went on vacation without any problems. Back from vacation and was fine for

a week until we spent the day at a local College Football game. I had a

headache after the game; attributed it to sitting crooked at the game. Got home

from the game, thought I was hungry and thirsty but about 30 min. after eating I

vomited. My headache lessened so I did feel better. I stuck with liquids only

for the rest of the night. I did have liquids and snacks at the football game

but maybe not enough? In the days after the game I didn't sleep well, didn't

exercise and caught a cold. I started drinking milk 1st thing in the AM to get

a jump on my blood pressure, stool softener, and anti-depressants thinking that

would help me feel better, (if my bp meds were taken before noon) but I started

having problems with the pills sticking. They eventually go down after about

20-30 minutes. I have always cut my anti-depressants in half and my bp pills

are tiny. I don't take them all at once, 2 or 3 at a time then the rest a

couple hours later. Anyway - I've now had the cold, for 2 weeks, with a runny

nose mostly down the back of my throat. I took Sudafed for a couple of days

which dried me up but obviously didn't get rid of the cold. When the pills

started sticking I gave up on the Sudafed because the other drugs are more

important to get down. This morning I woke up feeling like crap and drank a

small amount of milk about an hour after waking and took ½ my pills and I was

fine. About 1.5 hours later I ate a piece of string cheese on the way to the

vet with my cat and thought everything was fine, until I was standing in the

exam room and I started to slime. I didn't want to run out while my cat was

being examined so I swallowed my slime – which I know is bad. I vomited the

slime after leaving the office and am on the liquids only for the next day. My

apologies for being so gross, but I'm not sure how else to explain what's going

on. I wanted to stop at the health food store to find a better way to get rid

of this cold and boost my immune system, but being that I was having issues I

just came home. I'm getting really frustrated, I'm tired of food getting stuck

and I think my cold and the mucous running down the back of my throat is adding

to the problem. The last 2 months I've been more tired and sicker longer than

anything I remember from the past. I don't believe the band would cause a

compromised immune system but I think the way I'm using it may be. Am I just

pissing my band off too often and not being delicate enough after a problem?

I'm wondering if my band has slipped although my gut tells my probably not. Any

suggestions how to boost my immune system, stop this mucous, sleep better

etc.??? In the past I used natural remedies from the health food store but I

don't think those capsules will fit thru the band. I'm a mess and I'm starting

to ramble – so any help would be greatly appreciated.

> Becky Disner

>