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Thank you for that info. It will definitely be something I talk to

our rheumy about. We see him next week.

I hope you find relief soon!

& Grant (11, PA/Uveitis)

" Pat Roche " wrote:

<<Be careful with the Naproxen long-term . . . They finally took me off of it

because of concern about liver damage and increased swelling>>

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  • 2 years later...

Naproxen can be hard on them but Metx was tough on my daughter stomach. I

know it is hard to see them on meds . How long before he moves to the next

step? Naproxen will not put them in remission? Please ask questions. Terri

Berube

From:

Sent: Saturday, February 12, 2011 7:20 PM

Subject: naproxen

my daughter isnt officially diagnosed. im assuming a diagnosis can take a

while??? however with her knee and foot symptoms the rheumy wants her to take

naproxen once daily. im nervous as she has several GI problems and has a

sensitive tummy with a g tube. does this med cause some GI problems? what has

your experience been? my daughter Sophie is 6.

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Naproxen is actually one of the oldest and safest anti-inflammatories. All

nsaids (non steroidal anti inflammatories) can be tough on your stomach. The

best thing to do is add a proton-pump inhibitor like prilosec, prevacid, nexium,

etc. This will add protection.

The goal is to decrease pain and increase quality of life. Unfortunately, the

best choice for long term usage is NSAIDS. Steroids are harmful in the long

term. With a child, you have to think long term as their organs and joints will

be around a while.

We have been through MANY nsaids at this house. I am on Naproxen. It works and

doesn't hurt my tummy. My daughter is on diclofenac. This works for her and her

tummy. Indocin made her throw up. My son is on Feldene. It is his miracle

drug, didn't work for his sister at all.

So, work closely with your doctor. Watch for symptoms. There are lots and lots

of nsaids to choose from. I know you are concerned, you have every right to be.

It is difficult to choose to releive pain in one area and potentially harm

another. I do think Naproxen would be a good first one to start with.

Audra

14 poly 07

Peyton 13 poly 08

>

> my daughter isnt officially diagnosed. im assuming a diagnosis can take a

while??? however with her knee and foot symptoms the rheumy wants her to take

naproxen once daily. im nervous as she has several GI problems and has a

sensitive tummy with a g tube. does this med cause some GI problems? what has

your experience been? my daughter Sophie is 6.

>

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My son was on Naproxen for a short time, but it hurt his stomach so bad he would

beg me not to have to take it - and he was 13 at the time and pretty tough! He

was put on Celebrex once he saw the ped rheumy and it did not bother him at all.

If your daughter does have some form of JA she will probably be moved on to a

DMARD (such as mtx) rather than stay only on an NSAID only for too long. That

has been one change I have seen over the years - that drs treat the arthritis

aggressively by trying to modify the disease rather than treating only the

symptoms, which is what an anti inflammatory like Naproxen does. It is a useful

tool, but as someone noted already it does not lead to remission. It can be a

drug that is tough on the body so make sure the dr is monitoring the use of it.

Blood tests should be done to monitor the liver for any issues.

Diagnosis can take some time, but it seems that some drs are quicker to

recognize it than others. I cannot remember if you are seeing a ped rheumy, but

that would be recommended. I personally think that a dr attached to a university

hospital or a hospital with a teaching program is a bit more up to date with

treatment, but of course that is my opinion. Michele ( 23, spondy)

From: [mailto: ] On Behalf Of

Sent: Saturday, February 12, 2011 6:21 PM

Subject: naproxen

my daughter isnt officially diagnosed. im assuming a diagnosis can take a

while??? however with her knee and foot symptoms the rheumy wants her to take

naproxen once daily. im nervous as she has several GI problems and has a

sensitive tummy with a g tube. does this med cause some GI problems? what has

your experience been? my daughter Sophie is 6.

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Or rheumy is a ped and at a univeristy childrens hospital in madison WI.

I expressed my concerns with naproxen with my daughters gi issues and she said

it should be ok. She already takes a PPI daily. She said she isnt ready for the

JRA diagnosis yet. Not sure if thats the norm. She has taken naproxen for 4 days

and she has some significant bruising on her legs that i dont know where it came

from. Coincidence or problem? How long can she safely take naproxen? She wants

to see her again in 2 months.

naproxen

my

[The entire original message is not included]

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Using NSAID's can definitely cause bruising. Even a slight bump can cause bad

bruises when you are taking them. Since my son has been off of them with

regularity he does not bruise easy any more. I am not sure how long you can

safely take them; I would think as long as it is monitored it should be ok. I

will say this, when my son was on Celebrex and at the max dose of 800 mgs a day,

the rheumy wanted him off of it. was on Methotrexate also and we gradually

decreased the Celebrex so that he was on only the mtx after a while. The ped

rheumy did not like his patients taking the NSAID's long term. He wanted the

disease modifying drugs - DMARDs - to do the work and get the patients to

remission.

What does the dr mean about not being ready for the JRA diagnosis? Did she

explain that to your satisfaction? I am sure she has her reasons and it can take

awhile to be diagnosed, but I am curious what she is looking for? Hope this

helps a bit, Michele (23, spondy)

From: [mailto: ] On Behalf Of

jacobson

Sent: Monday, February 14, 2011 10:31 AM

Subject: RE: naproxen

Or rheumy is a ped and at a univeristy childrens hospital in madison WI.

I expressed my concerns with naproxen with my daughters gi issues and she said

it should be ok. She already takes a PPI daily. She said she isnt ready for the

JRA diagnosis yet. Not sure if thats the norm. She has taken naproxen for 4 days

and she has some significant bruising on her legs that i dont know where it came

from. Coincidence or problem? How long can she safely take naproxen? She wants

to see her again in 2 months.

naproxen

my

[The entire original message is not included]

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Her blood tests were all normal. She only noticed some differences in her leg

she cries about. It was longer and the knee and foot felt diff from her normal

leg. The nurse just said she wasnt calling it jra yet and to come back in 2

months.

RE: naproxen

Or rheumy is a ped and at a univeristy childrens hospital in madison WI.

I expressed my concerns with naproxen with my daughters gi issues and she said

it should be ok. She already takes a PPI daily. She said she isnt ready for the

JRA diagnosis y

[The entire original message is not included]

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Oh and also prescribed naproxen and was told to record any pain. So far she has

been pain free on the naproxen.

RE: naproxen

Using NSAID's can definitely cause bruising. Even a slight bump can cause bad

bruises when you are taking them. Since my son has been off of them with

regularity he does not bruise easy any more. I am not sure how long you can

safely take them; I would think as long as it is monitored it should be ok. I

will say this, when my son was on Celebrex and at the max dose of 800 mgs a day,

the rheumy wanted him off of it. was on Methotrexate also and we gradually

decreased the Celebrex so that he was on only the mtx after a while. The ped

rheumy did not like his patients taking the NSAID's long term. He wanted the

disease modifying drugs - DMARDs - to do the work and get the patients to

remission.

What does the dr mean about not being ready for the JRA diagnosis? Did she

explain that to your satisfaction? I am sure she has her reasons and it can take

awhile to be diagnosed, but I am curious what she is looking for? Hope this

helps a bit, Michele (Chr

[The entire original message is not included]

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