this group

October 19, 2007

In a message dated 10/19/2007 4:11:12 P.M. Eastern Daylight Time,

kkmwn@... writes:

LOL!!!? Aunt Joan...you might be the one remembered because you are one of

the faithful ones that replies to messages on a regular basis.? I have been a

member here for nearly two years and you seem to be just as active now as you

were then.? And you still repeat your same story for the newbies.? Thanks

for hanging in there.? Kudos to you.?

Thanks for the support. I needed it.

AntJoan

************************************** See what's new at http://www.aol.com

October 19, 2007

I finally have some computer time!

LOL!!!? Aunt Joan...you might be the one remembered because you are one of the

faithful ones that replies to messages on a regular basis.? I have been a member

here for nearly two years and you seem to be just as active now as you were

then.? And you still repeat your same story for the newbies.? Thanks for hanging

in there.? Kudos to you.?

I do think there are people from all treatment backgrounds that post here.? I

think it just happens to be that most people that are posting to these message

boards are those looking for more information than what they are getting from

their drs.? Which is considered " alternative " options....as in alternative to

what the medical drs treatment protocols are.? If you want to know what a dr

will say...go see a dr.? If you want to know what may have worked for someone

that a dr may not know about (or he won't repeat) you ask people that are not

drs.? So yes, we probably come off totally alternative and anti RAI (which I

won't do either.)? : )

We're just a bunch of people that share our stories of what has helped us each

individually.? Even those ehlped by RAI are free to share thier experiences.? I

haven't seen one blocked yet.? If someone can be helped then great...That's what

the boards are here for.

Take care everyone,? I think we all need each other....even when we disagree

occasionally.

Have a great weekend everybody,

Kim

aka Hyperkim

Re: This group

In a message dated 10/18/2007 5:41:24 P.M. Eastern Daylight Time,

AIMEECAKES@... writes:

Many in this group are obviously very anti RAI.

I almost died before I had RAI and I am not obese now from having it.

AntJoan, be careful what medical advice you give.

It amazes me what all I read here.

This group was founded as a forum for exploring natural ways to treat

thyroid disease, in conjunction with medication under a doctor's supervision.

In that spirit, we all share our experiences, and the conclusions we have

drawn from them. In no way do I, or anyone else, give medical advice, or claim

to be doctors.

I joined this group after I was cured, purely in the spirit of sharing my

experiences and helping others to explore options available to them.

Why am I the one who's always getting attacked, when I joined this group

purely to help others? It's like they say, " no good deed goes unpunished. "

AntJoan

************************************** See what's new at http://www.aol.com

October 20, 2007

In a message dated 10/20/2007 10:02:12 A.M. Eastern Daylight Time,

mailtopang@... writes:

The reason why there is a seemingly possible slant

towards anti-RAI recommendation is due to the fact

that a huge number of people who took RAI and recover

with little or no side effects never bothered to be

inform further or be involve with mailing list like

this.

Dear Pang,

Thanks for weighing in. The reason why there is an anti-RAI slant to this

list is because this list was founded for the express purpose of exploring

alternative ways of treating thyroid disease through supplements, nutrition,

etc.

Of course, all points of view are welcome, and everyone sharing their

experiences is helpful to all of us.

The original moderator of the list no longer is very active here, but he

does maintain our sister site, iThyroid.com.

Again, the purpose of this list is to explore alternative therapies for

thyroid disease. That is why it was founded. All points of view are welcome,

of

course, but that is the reason for the general anti-RAI stance. Anyone who

is offended that this list seeks to explore alternative means of treatment

should go to another list, rather than attacking those of us who choose to stay

here and explore alternative therapies.

Pang, you have made valuable contributions to the list, but others have

attacked me, and I do take offense.

AntJoan

************************************** See what's new at http://www.aol.com

October 20, 2007

Dear All,

Further to my last, post, I would like to clarify a point regarding RAI.

Most doctors in the West recommend RAI as the first course of treatment for

hyperT. I don't think anyone would argue with me that many people do well on

meds, or are able to go into remission, or even get cured. So, why would

RAI be recommended before other options are exhausted?

When people try everything else, and run out of options, that is another

issue, but my fundamental disagreement with endos is the haste with which they

recommend the most drastic treatment, which is not reversible, before

exploring the options of meds, nutrition, supplements, etc.

Does anyone want to attack me for saying this? Please feel free.

I have a recommendation: That whoever is moderating this list develop a

mission statement, or ask if he originally had one, and post it

periodically to make clear the mission/intent of this group, so that listers

will not be

surprised/offended that we are seeking to address the underlying causes of

thyroid disease, and support the body as it heals.

Again, we support anyone who wants to come here, but there is a purpose to

the list, and that is to explore alternative therapies, supported by

medications as well.

Good health to all,

AntJoan

************************************** See what's new at http://www.aol.com

October 20, 2007

Hi all,

IMHO, this is a group concerning the health of those

suffering from Hyperthyroidism. Any experience sharing

or advice would inevitably be medical in

nature(whether alternative or conventional).

During my period of suffering from the illness, the

last thing I want, is to listen to and follow doctors

advice like Gospel truth. Even in another Christian

mailing list which I am in, we argue relentlessly on

issues affecting the church, doctrine, etc. Our

ultimate aim is to consider every aspect of things

from every possible angle. Different people in the

groups have different view points, and boy, do we

argue...

Similarly, in this group, our common aim is for the

listers to be able to consider every possible aspect

of treatment and be well informed.

The reason why there is a seemingly possible slant

towards anti-RAI recommendation is due to the fact

that a huge number of people who took RAI and recover

with little or no side effects never bothered to be

inform further or be involve with mailing list like

this. As such, majority of the listers would most

probably be those that wish to seek alternative

treatments and those who after taken the path to RAI

suffer tremendously. This is my personal view, hope no

one is offended by this.

God bless.

Pang

_______________________________________________

http://chicken-feet-60.blogspot.com/

Send instant messages to your online friends http://uk.messenger.

October 20, 2007

I agree with everything that AntJoan wrote.

At my 1st visit to my endo he introduced himself and the very next thing he said

was that he recommended RAI for hyperthyroidism. If I hadn't been reading the

posts here I would not have known that there were pharmaceutical alternatives

and that RAI was NOT reversible. This past week after 15 months of methimazole

I was told that I could stop taking my meds. I still have my thryoid. I might

turn hyper again but I didn't enjoy having " doctor induced hypothyroidism

either " (gained 60 pounds). RAI might be the right answer for some. It might be

the only answer for some. But it is NOT the only answer for all.

BTW, does anybody else wonder if there isn't something shady about a doctor

recommending a procedure that in most cases make you dependent upon them for the

rest of your life when there are other procedures which won't make them as much

money or provide them with as much job security? Just a thought.

Please don't attack people. Challenging ideas and opinions, seeking confirmation

of " facts " , etc. is okay and encouraged.

AntJoan@... wrote: Dear All,

Further to my last, post, I would like to clarify a point regarding RAI.

Most doctors in the West recommend RAI as the first course of treatment for

hyperT. I don't think anyone would argue with me that many people do well on

meds, or are able to go into remission, or even get cured. So, why would

RAI be recommended before other options are exhausted?

When people try everything else, and run out of options, that is another

issue, but my fundamental disagreement with endos is the haste with which they

recommend the most drastic treatment, which is not reversible, before

exploring the options of meds, nutrition, supplements, etc.

Does anyone want to attack me for saying this? Please feel free.

I have a recommendation: That whoever is moderating this list develop a

mission statement, or ask if he originally had one, and post it

periodically to make clear the mission/intent of this group, so that listers

will not be

surprised/offended that we are seeking to address the underlying causes of

thyroid disease, and support the body as it heals.

Again, we support anyone who wants to come here, but there is a purpose to

the list, and that is to explore alternative therapies, supported by

medications as well.

Good health to all,

AntJoan

************************************** See what's new at http://www.aol.com

October 22, 2007

Hey Bruce

Great news for you.

Kate

Re: Re: This group

I agree with everything that AntJoan wrote.

At my 1st visit to my endo he introduced himself and the very next thing he

said was that he recommended RAI for hyperthyroidism. If I hadn't been reading

the posts here I would not have known that there were pharmaceutical

alternatives and that RAI was NOT reversible. This past week after 15 months of

methimazole I was told that I could stop taking my meds. I still have my

thryoid. I might turn hyper again but I didn't enjoy having " doctor induced

hypothyroidism either " (gained 60 pounds). RAI might be the right answer for

some. It might be the only answer for some. But it is NOT the only answer for

all.

BTW, does anybody else wonder if there isn't something shady about a doctor

recommending a procedure that in most cases make you dependent upon them for the

rest of your life when there are other procedures which won't make them as much

money or provide them with as much job security? Just a thought.

Please don't attack people. Challenging ideas and opinions, seeking

confirmation of " facts " , etc. is okay and encouraged.

AntJoan@... wrote: Dear All,

Further to my last, post, I would like to clarify a point regarding RAI.

Most doctors in the West recommend RAI as the first course of treatment for

hyperT. I don't think anyone would argue with me that many people do well on

meds, or are able to go into remission, or even get cured. So, why would

RAI be recommended before other options are exhausted?

When people try everything else, and run out of options, that is another

issue, but my fundamental disagreement with endos is the haste with which they

recommend the most drastic treatment, which is not reversible, before

exploring the options of meds, nutrition, supplements, etc.

Does anyone want to attack me for saying this? Please feel free.

I have a recommendation: That whoever is moderating this list develop a

mission statement, or ask if he originally had one, and post it

periodically to make clear the mission/intent of this group, so that listers

will not be

surprised/offended that we are seeking to address the underlying causes of

thyroid disease, and support the body as it heals.

Again, we support anyone who wants to come here, but there is a purpose to

the list, and that is to explore alternative therapies, supported by

medications as well.

Good health to all,

AntJoan

************************************** See what's new at http://www.aol.com

February 21, 2010

If you want to be part of the group and talk about hypothyroidism, how come you

don't make a comment, ask a question or respond to someone else's post. It seems

that it is always the lurkers that contribute nothing and just want to sit back

and pick everyone's brain that have the most complaints.

If you have the courage of your convictions let's see you jump in and start a

thread, instead of just complaining about other people.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

From: Beverly Hammons <beebie10@...>

Subject: This group

hypothyroidism

Date: Saturday, February 20, 2010, 10:54 PM

OMG, does anyone on this group ever write about anything relating to

hypothyroidism, or is it just ' personal venue to vent and insult? Combine

compulsive nit-picking with ego and this is what you get. If I can't write

something without fear of being belittled and insulted, then I will have to go

elsewhere for my " thyroid help. "

Sharing and learning should be what this is all about. And everyone is entitled

to share; not just a so-called expert who can find something wrong with

everything anyone says. There are absolutely bullies here, but Sheila isn't one

of them, as far as I'm concerned.

By the way, I've worked in the Natural Food Industry for 25 years and am plenty

educated. But it's difficult to talk to a person who doesn't want to hear. Nor

do I feel the need to.

And, oh yeah, in part, our ancestors died at an earlier age due to infections

which couldn't be controlled as antibiotics had not yet been invented. I'd be

willing to bet they didn't die from hypothyroidism, which is where diet,

nutrition and supplements come into play.

And if herbs don't work, then it must have been mass delusion, spread over

multiple continents, for multiple millenia.

There are other " groups; " you can remove me from this one.

Beverly

February 21, 2010

Well, I'm glad you found out that this group talks about many, many things, not

just hypothyroidism, but all things that HypoTs might

want to talk about.

Roni

>

> Interestingly, I just went to the group home page to unsubscribe, and found

the following description of what this group was supposed to be all about.

>

> And I quote:

>

> " Description.....

> ...... We are discussing about: ....Amalgam, Diet, Cleansing bowels, Dental

cleanse,liver and Gallbladder cleanse (gallstones), massage, HERBAL FORMULAS,

Parasite killing HERBS, enema, salty water, Zapper, Bob Beck's Silver Pulser,

Magnet pulser, magnets, SUPPLEMENTS(Flaxseed oil Selenium Coenzyme Q10 Shark

Cartilage Essiac Laetrile Cancel Noni Colloidal minerals chelation therapy

chelated minerals VITAMINS B17 Enzymes seaweed kelp kombu shiitake miso), Diet

(Macrobiotic, Max B. Gerson, Dr.Budwig Diet, Blood Type Diet, ...), Foods to

avoid ( sugar aspartame meat)... --...These are only some ideas for

DISCUSSION--General subject is Health! "

>

> So tell me: What would be the point of discussing ANY of these topics, when

none of them " work, " (except for " the placebo " effect.....)?

>

> Beverly

>

February 21, 2010

Beverley - and anybody else who is genuinely seeking help and support

regarding thyroid disease, unless you are already a member, you are

welcome to join us on a group that we keep moderated, as we do not

tolerate bullying.

thyroid treatment

<thyroid treatment> .

Sheila

>

> There are other " groups; " you can remove me from this one.

>

> Beverly

>

February 21, 2010

>

> If you want to be part of the group and talk about hypothyroidism, how

come you don't make a comment, ask a question or respond to someone

else's post. It seems that it is always the lurkers that contribute

nothing and just want to sit back and pick everyone's brain that have

the most complaints.

>

> If you have the courage of your convictions let's see you jump in and

start a thread, instead of just complaining about other people.

>

It's nothing to do with having the courage of our convictions - some of

us get slammed down for whatever we post on this forum. Then there are

others who have absolutely nothing to contribute, because as yet, they

know nothing about this disease, yet they are willing to learn, and

learn by reading. I was a lurker for over a year when I first started

coming to these forums before I decided to contribute. I see nothing

wrong in picking brains - I do it on a daily basis.

Sheila

February 21, 2010

>

February 21, 2010

I have nothing against lurking. My problem is with lurkers who admittedly

contribute nothing to the group, but quickly surface when they have a complaint.

By the way Sheila, I was not referring to you when I wrote that post. It was in

response to someone else. I really wish we could all get along. I see the

problems arise when one or more posters becomes enamored with their own approach

to dealing with our health, and won't tolerate another's opinions. Opinions, in

my mind are just that, and we are all equally entitled to have them, and to

agree or disagree with the opinions of others. I feel we learn the most that

way. I know that in discussions where it didn't seem there was a meeting of the

minds, someone said something at one time or another that increased my

knowledge. All discussion is good, except personal attack and nastiness. I try

hard not to engage in those actions, but I'm sure once in a while, I was

probably guilty too. My problem is that I

really hate arguing, but love debating. I don't see why people get all bent out

of shape if someone doesn't agree with their point of view. When all else fails,

there is still the delete button.

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

From: SheilaT <sheilaturner@...>

Subject: Re: This group

hypothyroidism

Date: Sunday, February 21, 2010, 7:34 AM

>

> If you want to be part of the group and talk about hypothyroidism, how

come you don't make a comment, ask a question or respond to someone

else's post. It seems that it is always the lurkers that contribute

nothing and just want to sit back and pick everyone's brain that have

the most complaints.

>

> If you have the courage of your convictions let's see you jump in and

start a thread, instead of just complaining about other people.

>

It's nothing to do with having the courage of our convictions - some of

us get slammed down for whatever we post on this forum. Then there are

others who have absolutely nothing to contribute, because as yet, they

know nothing about this disease, yet they are willing to learn, and

learn by reading. I was a lurker for over a year when I first started

coming to these forums before I decided to contribute. I see nothing

wrong in picking brains - I do it on a daily basis.

Sheila

------------------------------------

February 21, 2010

The group has evolved. The original owner, who established the original

purpose, has abandoned the group and has not been seen here for many

years. We the members must basically control it.

As I recently posted we discuss both allopathic and alternative

approaches to treating hypothyroidism, both pro and con. If you post

some unsupported claim either pro or con pertaining to either approach

to treatment then any other member is free to point out that your claim

is unsupported.

You referred elsewhere to me as an " expert " . But I've posted here many

times that I am no expert. I have no advanced degrees. I have no

formal medical education, and I present myself exactly as I am: A

person with no credentials whatsoever. Further, I've posted many times

that my world view [how I approach matters] is from the viewpoint of the

scientific method and of allopathic medicine. You're free to consider

my possible bias, and I freely provide the basic info you need to do so.

>

> Posted by: " Beverly53 " beebie10@...

> <mailto:beebie10@...?Subject=%20Re%3AThis%20group>

> beebie10 <beebie10>

>

> Sat Feb 20, 2010 11:18 pm (PST)

>

> Interestingly, I just went to the group home page to unsubscribe, and

> found the following description of what this group was supposed to be

> all about.

February 21, 2010

My post was not aimed at you. There is another woman with your first name. As

for this post of yours, just because one person has an opinion about something,

and has clearly stated several times that he looks at things from an allopathic

point of view, is no reason not to discuss whatever you want. I listen and I

know others do too. If you can't tolerate an opposite opinion that doesn't agree

with you, I don't know what to tell you.

We value your point of view and we are interested in having you remain a member,

and we'd love to hear what you have to say. Not everyone is going to agree with

you all the time. They don't always agree with me all the time either, but I try

to take it with a grain of salt, lots of patience (in the hopes I can bring them

over to my side), and some sense of humor. Debating is not fighting, unless one

of the debaters attacks the other personally. As long as everyone aims their

comments at the discussion, we can all learn things, even when others' opinions

are different from our own. Beverly, I hope this helps.