Re: less pain while taking antibiotics

[Guest guest]

Yes, and now read the book " The Road Back " by Henry Scammell. It will tell you

why many people have switched from arthritis medicine to antibiotics. I have and

the three months I have been on antibiotics have helped me to start feeling

better.

Eva

[Guest guest]

Eva, Care to share what type of antibiotics this is and how did you manage to

convince your physician to try this?

nne

[Guest guest]

Hi nne,

my pulmonary doctor realized that I had a problem with my sinus and prescribed

Biaxin 500 mg twice a day and the doctor (new) I went to for my arthritis

prescribed Ketoconazole 200 mg (this is an anti fungal antibiotic) once a day.

My sinus was so bad and with the fungus in my sinus system and also on my hands

plus PsA it was a mess.I was spending almost all day in bed. My pulmonary and

arthritis doctor both belief this needs to be a long series of antibiotics

because any other way I will end up in the hospital again. There was no

convincing necessary, Thank God.

I am doing so much better without the arthritis meds which I had to stop

forever.

I am going now to Occupational and Physical Therapy three times a week to

build up the muscles I lost and straighten my hands out.It is a slow going but

as long as I am persistent about these therapies I know I will get well. My

hands look a loot better and almost no sores. Hurray for that. The Therapist

made me get Aquaphore and put it on my hands very thick and then put vinyl

gloves on for an hour. It helps a lot to soften the skin and loosen the dead

skin.

My scalp is still a mess but I have to figure out what to do about that or

what to use.

What State do you live in? I am in Texas.

Take care, stay well.

Eva

[Guest guest]

Eva --

I use Olux on my scalp and also for my ears. It works quite well, esp

if you apply it when your hair is wet (ie, after shower or

hair washing). It takes away the itch and gets rid of the scales (at

least for me!). I also use Clobestol cream for the rest of my patches,

which is actually related to the Olux.

I have noticed, and there has actually been some research done re:

improvements while on antibiotics. I don't recall that they've found

any particular scientific rationale for it though.

What arthritis meds were you on? biologics?

Hope this helps. If you'd like to correspond more, please feel free to

also email me directly. I am not always online checking everyday, so I

apologize up front if it takes me a day or two to respond!

Cheryl M.

[Guest guest]

Based on this message I was able to locate a Road Back Foundation that

has a lot more information on their website about antibiotic therapy,

history, problems/issues w/mainstream med docs, and links. It focuses

on rheumatoid arthritis, but also recognizes its use throughout

rheumatics, so it may be a helpful resource for people wanting to

explore more.

Cheryl M.

[Guest guest]

Eva, Let me get this straight---you are not on any arthritis meds now? Just

antibiotics? I have no infections and I guarantee my rheumy will not agree to

give me huge doses of antibiotics. Do you know of any studies or documentation

of any kind I could find that might be convincing?

BTW I live in FLA and have had PA 3 yrs now, before that I was a women's

lightweight bodybuilding competitor.... big change for me. I have met only one

other young woman with PA who lives here in Tampa, very difficult to deal with

this with all the weight society places on appearances, especially with my

background.

In ref to your scalp, I use diluted witch hazel-may sound unorthodox but I

tell you it stops all itching and I have no active patches on my scalp since I

started it, about 6 mos ago. A lady in my rheumy's waiting room told me about

it....worth a try?

let me know

nne

[Guest guest]

Hi nne,

Get the book " The Road Back " by Henry Scammell and read it (Amazon.com). Also

you can go on the internet and type in: " Rheumatoid Arthritis and Antibiotics " .

There are many Dr.'s out there that treat people with various antibiotics. You

can also go to " Arthritis Trust.com " and find out info. and there are lots of

Dr.'s on that site.

I take Biaxin 500 mg daily and have done well. I have a few friends that have

gone into remission and have stayed there for years, they doing all the things

they wanted to do again. I feel a lot better. Just got back from a ten day trip

to CA. I live in Houston, TX. did a lot of fun things with my husbands family on

a reunion.

No, I am not on arthritis meds anymore. My new Dr. told me it will take a year

before all the Prednisone is out of my system. My skin is still very thin and I

got the worst sunburn on my hands on this trip, but I have healed up real fast

with Aquaphore and cotton gloves.

In the mean time I am doing phys. & occupational. therapy to ge my strength back

I became so weak from all this arthritis meds that I could hardly walk 1/2 a

mile a day. I am doing at least 4 miles now every day.

Thank you for the tip on the witch hazel, I will give it a try.

Take care, stay positive and get well (it's a long road).

Eva

P.S. let me know if you want to talk to me and I will give you my phone#

(privately).

Eva