Nosebleeds

[Guest guest]

Hello everyone, woke up last night with quite a nosebleed! Did I read

somewhere that could be a side effect of methotrexate? or maybe just the dry

heat in the house? Thanks, Jane

[Guest guest]

has his dose of mtx been recently altered? tristan would get a slight

nosebleed when his doses were increased. it only lasted a day each occurence.

cheri

[Guest guest]

I'm not sure about that....my daughter is on MTX...she hasn't had any

nosebleeds. But my son has them nightly (since he was 5 months old).

Everything will be covered in blood (even his hair and ears). I wanted to

let you know what we do to prevent them (put vaseline in his nose). Good

luck.

Amy

Mother to (jra-poly) 3 years old

Mother to Andy 2 years old

Mother to Maddie 8 months

Re: nosebleeds

> From: Jitz45@...

>

> Hello everyone, woke up last night with quite a nosebleed! Did I

read

> somewhere that could be a side effect of methotrexate? or maybe just the

dry

> heat in the house? Thanks, Jane

>

> ---------------------------

[Guest guest]

Hi Jane,

How is doing? Have the nosebleeds continued or was it just a

one-time thing? I hope he's feeling good these days. Are you still

gradually lowering the prednisone dose? If so, how much is he taking

now?

Take care,

Georgina

> From: Jitz45@...

>

> Hello everyone, woke up last night with quite a nosebleed! Did I read

> somewhere that could be a side effect of methotrexate? or maybe just the dry

> heat in the house? Thanks, Jane

[Guest guest]

Hi Georgina, Thanks for asking about . He did have another nosebleed

(slight) the other night. We go the pedi rheumy Feb 14 I will ask him if he

thinks its medicine related. Friday night he took his mtx and woke up kind of

stiff in legs,first time in 5 months.. When my husband and I thought about it

we felt it was because Friday night he ate a ton of chourice(which we hardly

ever have) and I think he had so much grease in his stomach that he didn't

absorb the prednisone or mtx...Even the Dr. said that could happen if they

eat a greasy meal, so no more of that grease for while!!He felt pretty good

today, no stiffness, .He is staying on 6 mg for a awhile,he definitley

doesn't have the rosy cheeks he has on higher doses of pred, I kind of miss

that....!I have to get used to him being thin and realize this is his normal

weight...Next visit we will talk more about the growth issue since his

systemic symptoms seem to be under controlHow is Josh doing?I hope ok...

said thankyou for the birthday message!!! Take care, Jane.

[Guest guest]

Hi Jane,

Very interesting story. I never really thought about that, that

medicines might have a harder time getting absorbed, because of eating a

greasy meal. It makes sense, though I know you'll think this is crazy

but what, exactly, is chourice? I've never even heard of that food

before?!? Please .... enlighten me Oh, also. Has there been any

growth recently, since the decreased doses of prednisone? And did the

doctor say anyhting about how long it might take for normal growth

patterns to resume, once you got down to such a low dose?

Stay well,

Georgina

Jitz45@... wrote:

> Hi Georgina, Thanks for asking about . He did have another nosebleed

> (slight) the other night. We go the pedi rheumy Feb 14 I will ask him if he

> thinks its medicine related. Friday night he took his mtx and woke up kind of

> stiff in legs,first time in 5 months.. When my husband and I thought about it

> we felt it was because Friday night he ate a ton of chourice(which we hardly

> ever have) and I think he had so much grease in his stomach that he didn't

> absorb the prednisone or mtx...Even the Dr. said that could happen if they

> eat a greasy meal, so no more of that grease for while!!He felt pretty good

> today, no stiffness, .He is staying on 6 mg for a awhile,he definitley

> doesn't have the rosy cheeks he has on higher doses of pred, I kind of miss

> that....!I have to get used to him being thin and realize this is his normal

> weight...Next visit we will talk more about the growth issue since his

> systemic symptoms seem to be under controlHow is Josh doing?I hope ok...

> said thankyou for the birthday message!!! Take care, Jane.

[Guest guest]

What is chourice the man asks????? oh boy It's a more spicy version of

linguica, both of which are Portuguese sausage -- type things that also come

in patties and franks. Also my favorite food. Tip for the grease is cooking

in the microwave on paper towels....most of it comes out that way and it

largely reduces the fat content. It's yummy

[Guest guest]

Hi,

Thanks for explaining that Now I know why I'm not familiar with it.

We don't eat red meat or pork. Just poultry and fish. So I rarely go

towards that section at the grocery stores. We still make a lot of the

same sorts of meals though, just substituting ground turkey if the

recipe calls for ground beef. Thanks again,

~Georgina

JenZ28@... wrote:

>

> From: JenZ28@...

>

> What is chourice the man asks????? oh boy It's a more spicy version of

> linguica, both of which are Portuguese sausage -- type things that also come

> in patties and franks. Also my favorite food. Tip for the grease is cooking

> in the microwave on paper towels....most of it comes out that way and it

> largely reduces the fat content. It's yummy

[Guest guest]

Yes to the nosebleeds for me, Cheryl.

[Guest guest]

Amy! I my self might tend to wonder about the possbility of the injt.meth

being the trigger to

the, onset of these nose bleeds.

I'm given to say yes, and of course I know you'll be in touch with the

doctor first thing in the morning. And of course my prayers and thoughts

are with you.

Uncle Rusty Limbs

[Guest guest]

Hi Amy,

My daughter Abbie has frequent heavy nose bleeds. Her blood was checked for clotting factor and I think something else, but it was normal. She is also on Remicade, which I think your son is also on? MTX dose is 30 mg subq, 400 mg plaquenil, 400 mg celebrex, as well as allegra-d, flonase and afrin for sinus issues (as well as almost non-stop antibiotics). While she has always had nosebleeds, they greatly subsided as a little girl, only to come back with a massive force when the jra meds came on board. They have increased again with the sinus meds, which are due to infections caused by the Remicade. Abbie will have a ct scan done of her sinuses, and together with the rheumy, we are looking at possibly changing from Remicade to Enbrel or Humira. I would really have reservations, since the Remicade was a miracle worker with the prednisone, but she only experiences relief for about 10 days now. I don't know how much any of this will help the nosebleeds, but I continue to periodically bring it up, or else doctors looking up her nose will ask me about it. They never seem too concerned, and while some are rather heavy, they always stop. But some days she may have 3 or 4. If you find out anything let me know.

Christy (Abbie, 13 systemic)

[Guest guest]

Thank you Christy. Buzz did have to change to Enbrel in Feb. His doctor left our country and they would not continue the Remicade, with it being a procedure. He did do better on it, but Enbrel seems to be doing o.k. He just has a few flares, he wasn't having any on Remicade.

Amy

Re: nosebleeds

Hi Amy,My daughter Abbie has frequent heavy nose bleeds. Her blood was checked for clotting factor and I think something else, but it was normal. She is also on Remicade, which I think your son is also on? MTX dose is 30 mg subq, 400 mg plaquenil, 400 mg celebrex, as well as allegra-d, flonase and afrin for sinus issues (as well as almost non-stop antibiotics). While she has always had nosebleeds, they greatly subsided as a little girl, only to come back with a massive force when the jra meds came on board. They have increased again with the sinus meds, which are due to infections caused by the Remicade. Abbie will have a ct scan done of her sinuses, and together with the rheumy, we are looking at possibly changing from Remicade to Enbrel or Humira. I would really have reservations, since the Remicade was a miracle worker with the prednisone, but she only experiences relief for about 10 days now. I don't know how much any of this will help the nosebleeds, but I continue to periodically bring it up, or else doctors looking up her nose will ask me about it. They never seem too concerned, and while some are rather heavy, they always stop. But some days she may have 3 or 4. If you find out anything let me know.Christy (Abbie, 13 systemic) To leave this mailing list, send request to: -unsubscribe

[Guest guest]

Hi

My daug hter, Jackie 6 syst.poly, has nosebleeds when she is very tired and exhausted. Not if she is just exhausted after an active day at school but more like if she has been through a long travell and move or started school or went to hospital for three weeks. After bleeding it itches in the nose and when she itches back she ends up bleeding again.

Just how it works for her. The bloodtests show nothing wrong.

, mum to Jackie

>From: gazelle34@... >Reply- > >Subject: Re: nosebleeds >Date: Sat, 31 May 2003 08:08:03 EDT > >Hi Amy, > >My daughter Abbie has frequent heavy nose bleeds. Her blood was checked for >clotting factor and I think something else, but it was normal. She is also on >Remicade, which I think your son is also on? MTX dose is 30 mg subq, 400 mg >plaquenil, 400 mg celebrex, as well as allegra-d, flonase and afrin for sinus >issues (as well as almost non-stop antibiotics). While she has always had >nosebleeds, they greatly subsided as a little girl, only to come back with a massive >force when the jra meds came on board. They have increased again with the >sinus meds, which are due to infections caused by the Remicade. Abbie will have a >ct scan done of her sinuses, and together with the rheumy, we are looking at >possibly changing from Remicade to Enbrel or Humira. I would really have >reservations, since the Remicade was a miracle worker with the prednisone, but she >only experiences relief for about 10 days now. I don't know how much any of >this will help the nosebleeds, but I continue to periodically bring it up, or >else doctors looking up her nose will ask me about it. They never seem too >concerned, and while some are rather heavy, they always stop. But some days she may >have 3 or 4. If you find out anything let me know. > >Christy (Abbie, 13 systemic) Tired of spam? Get advanced junk mail protection with MSN 8.

[Guest guest]

They could possibly. Methotrexate works quickly. Call the DR. My daughter had horrible nosebleed when her JRA was active and she was not on methotraxate. Good Luck

[Guest guest]

Hi Amy how is Buzz and the nosebleeds?

I mailed my sister about whether she had experienced and nosebleeds with

the Embrel and Meth she said no, she had never had nose bleeds, but that

the doctor had took her off the Meth.

So that isn't much help. Other than to conclude that the injt. meth. may

well had brought on the severe nosebleeds.

But I do hoep that they are under control now!

HPLTA Uncle Rusty

[Guest guest]

Thanks Rusty,

He is better today, no bleeds. He has been swimming at his grandparents

pool all afternoon. He and his brother and cousins have had a blast

today!!! Even with a little swollen knee, he has been running and swimming

like nothing at all is wrong. I guess we will just wait and see Thur., when

we have another shot. That's what they said to do.

Amy

Re: nosebleeds

>

> Hi Amy how is Buzz and the nosebleeds?

> I mailed my sister about whether she had experienced and nosebleeds with

> the Embrel and Meth she said no, she had never had nose bleeds, but that

> the doctor had took her off the Meth.

> So that isn't much help. Other than to conclude that the injt. meth. may

> well had brought on the severe nosebleeds.

> But I do hoep that they are under control now!

> HPLTA Uncle Rusty

>

>

> To leave this mailing list, send request to:

> -unsubscribe

>

>

[Guest guest]

Go Buzz! swin sounds like fun! and great exercise for the joints too!

Fingers are crossed that there won't be another nosebleed episode on Thur

after the shot!

HPLTA Uncle Rusty (oh for a hot tub) Limbs

[Guest guest]

Hi Amy,

Our kids are so resilient! They really know how to make haste when the sun

shines. I'm happy that Buzz had such a fun day swimming and that he was able

to enjoy the company of his brothers and cousins. Glad to hear that he's

doing better. Sorry to hear about that nosebleed, though. Sounds like that

was awful, taking so long to get it to stop. Figured I'd pipe in, just to

let you know that Josh has only ever had one nosebleed in his lifetime. Neither

of us can even remember the details of the incident, it was so many years

ago, but he accidentally got hit with something and it started bleeding.

It wasn't too bad though. Nothing like Buzz's experience. He's never had

one that just started without a 'trauma' ... though he's been taking Methotrexate

for 8 years now. So I'm not sure if it could be related or not. Might be

a co-incidence ... or it might be something that affects just some people.

I hope it doesn't happen again. And I hope you can get some answers, if it

does.

Take Care,

Georgina

Amy Luker wrote:

Thanks Rusty,

He is better today, no bleeds. He has been swimming at his grandparents

pool all afternoon. He and his brother and cousins have had a blast

today!!! Even with a little swollen knee, he has been running and swimming

like nothing at all is wrong. I guess we will just wait and see Thur., when

we have another shot. That's what they said to do.

Amy

Re: nosebleeds

Hi Amy how is Buzz and the nosebleeds?

I mailed my sister about whether she had experienced and nosebleeds with

the Embrel and Meth she said no, she had never had nose bleeds, but that

the doctor had took her off the Meth.

So that isn't much help. Other than to conclude that the injt. meth. may

well had brought on the severe nosebleeds.

But I do hoep that they are under control now!

HPLTA Uncle Rusty

To leave this mailing list, send request to:

-unsubscribe

[Guest guest]

Thank you Georgia. I guess we will just wait till Thur. and see what happens then, with the next shot. I read where Josh wasn't feeling too well. I hope it is just a cold and nothing else going on. I will keep him in my prayers.

Amy

Re: nosebleeds

Hi Amy how is Buzz and the nosebleeds?

I mailed my sister about whether she had experienced and nosebleeds with

the Embrel and Meth she said no, she had never had nose bleeds, but that

the doctor had took her off the Meth.

So that isn't much help. Other than to conclude that the injt. meth. may

well had brought on the severe nosebleeds.

But I do hoep that they are under control now!

HPLTA Uncle Rusty

To leave this mailing list, send request to:

-unsubscribe

[Guest guest]

I found that my nose bleeds stopped when I upped my vitamin C and

bioflavanoids and ate more foods with vitamin K in. The absence of these

vits makes the veins in the nose weak

nosebleeds

> Does anyone know theories on the causes of nosebleeds (other than dry

air)?

>

> I remember hearing once they had a spiritual/emotional

> significance/cause, but I am not sure what.

>

>

> --

>

> Health * Peace * Love * 4Ever

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[Guest guest]

I found that my nose bleeds stopped when I upped my vitamin C and

bioflavanoids and ate more foods with vitamin K in. The absence of these

vits makes the veins in the nose weak

nosebleeds

> Does anyone know theories on the causes of nosebleeds (other than dry

air)?

>

> I remember hearing once they had a spiritual/emotional

> significance/cause, but I am not sure what.

>

>

> --

>

> Health * Peace * Love * 4Ever

>

> @..@

> (----)

> ( >__< ) Ribbit

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and

other alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here

are for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of

the message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

>

[Guest guest]

At 11:16 PM 1/21/04 -0500, you wrote:

>Does anyone know theories on the causes of nosebleeds (other than dry air)?

Cell weakness, blood thinners, blood pressure, blood clotting

problems, and aspirin.

The thin line between proper blood clotting and excessive bleeding is a

scary thing to study.

Other than when I have been punched in the nose, I have had only one

nosebleed in my life. the cause of it was aspirin.

Since that day, I have not taken an aspirin nor have I had a headache.

The nosebleed is a symptom, not a cause or ailment. Get to the root

cause and you should not have a nosebleed, until someone else causes it by

a direct hit.

Wayne

[Guest guest]

At 11:16 PM 1/21/04 -0500, you wrote:

>Does anyone know theories on the causes of nosebleeds (other than dry air)?

Cell weakness, blood thinners, blood pressure, blood clotting

problems, and aspirin.

The thin line between proper blood clotting and excessive bleeding is a

scary thing to study.

Other than when I have been punched in the nose, I have had only one

nosebleed in my life. the cause of it was aspirin.

Since that day, I have not taken an aspirin nor have I had a headache.

The nosebleed is a symptom, not a cause or ailment. Get to the root

cause and you should not have a nosebleed, until someone else causes it by

a direct hit.

Wayne

[Guest guest]

Kathy-jo,

I learned from the Italians that vit.C strengthens blood vessels...

Kathy

[Guest guest]

Try eating raisins. Back when running cross country in high

school I used to get nose bleeds. I'd eat a bunch of raisins and they

stopped.

Cheyenne

>

> Charlie gets them often! We have the best humidifier on the market. A

> venta airwasher. Any ideas for treatment or prevention.

>