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Nosebleeds

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,

I am sorry to read that you have something else to add to your list. I have been

reading your notes but do not think I have responded. You certainly have your

hands full. I pray that things will soon get better for you and that you will

have some definitive answers. There is nothing more difficult and painful then

to watch your child be in pain and not be able to help them.

Veri & Jaye 13 poly

nosebleeds

I know that everytime we go to the rheumy's they ask has he had any

nosebleeds in the last week and ask us 2-3 times if we are sure. Ok

our answer is always no. Well starting yesterday Caleb had a small

nosebleed, today he had 2 small nosebleeds then just a little while ago

he had the rushin flood, it took almost 15 mintues to get it stopped.

I was just wondering what the realvance of nosebleeds was with JRA or

is there any connection. HE goes back on Wednesday to the rheumy and

the eye dr in the am. I am just concerned since this is somethng new

he also is complianing of his elbow hurting. He has been off of his

naproxyn for a few days now. HE does not have any cough/congestion or

runny nose or facial tnederness all of the things you would think of

that would explain a bloody nose......ahhh to add to our saga. LOL

and Caleb ? systemic

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:

If you live in a cold climate nosebleeds can happen when the air is really dry.

My son (no arthritis) gets the same nosebleeds you described. We keep a

humidifier running in his room at night during the winter and helps immensely.

Our ped also suggested saline nasal spray if the humidifier alone does not work.

I would mention it at the appointment and ask what the connection could be.

You certainly have a lot on your plate and I truly feel for you. I also know

the feeling of what now???

Beth & Hannah 11, unspecified arthritis with hypermobility; asthma; gerd;

migraines

Sending prayers & happy thoughts,

Beth :-)

nosebleeds

I know that everytime we go to the rheumy's they ask has he had any

nosebleeds in the last week and ask us 2-3 times if we are sure. Ok

our answer is always no. Well starting yesterday Caleb had a small

nosebleed, today he had 2 small nosebleeds then just a little while ago

he had the rushin flood, it took almost 15 mintues to get it stopped.

I was just wondering what the realvance of nosebleeds was with JRA or

is there any connection. HE goes back on Wednesday to the rheumy and

the eye dr in the am. I am just concerned since this is somethng new

he also is complianing of his elbow hurting. He has been off of his

naproxyn for a few days now. HE does not have any cough/congestion or

runny nose or facial tnederness all of the things you would think of

that would explain a bloody nose......ahhh to add to our saga. LOL

and Caleb ? systemic

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My guess is the nosebleed Question might be becuse they are making sure he isn't

having platelett problems

Sent via BlackBerry by AT & T

nosebleeds

I know that everytime we go to the rheumy's they ask has he had any

nosebleeds in the last week and ask us 2-3 times if we are sure. Ok

our answer is always no. Well starting yesterday Caleb had a small

nosebleed, today he had 2 small nosebleeds then just a little while ago

he had the rushin flood, it took almost 15 mintues to get it stopped.

I was just wondering what the realvance of nosebleeds was with JRA or

is there any connection. HE goes back on Wednesday to the rheumy and

the eye dr in the am. I am just concerned since this is somethng new

he also is complianing of his elbow hurting. He has been off of his

naproxyn for a few days now. HE does not have any cough/congestion or

runny nose or facial tnederness all of the things you would think of

that would explain a bloody nose......ahhh to add to our saga. LOL

and Caleb ? systemic

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is right. It might indicate platelet issues. (n,

19, systemic and MAS survivor)

On Jan 21, 2008, at 5:51 PM, lsalvucci42@... wrote:

> My guess is the nosebleed Question might be becuse they are making

> sure he isn't having platelett problems

> Sent via BlackBerry by AT & T

>

> nosebleeds

>

>

> I know that everytime we go to the rheumy's they ask has he had any

> nosebleeds in the last week and ask us 2-3 times if we are sure. Ok

> our answer is always no. Well starting yesterday Caleb had a small

> nosebleed, today he had 2 small nosebleeds then just a little

> while ago

> he had the rushin flood, it took almost 15 mintues to get it stopped.

> I was just wondering what the realvance of nosebleeds was with JRA or

> is there any connection. HE goes back on Wednesday to the rheumy and

> the eye dr in the am. I am just concerned since this is somethng new

> he also is complianing of his elbow hurting. He has been off of his

> naproxyn for a few days now. HE does not have any cough/congestion or

> runny nose or facial tnederness all of the things you would think of

> that would explain a bloody nose......ahhh to add to our saga. LOL

> and Caleb ? systemic

>

>

>

>

>

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  • 1 year later...
Guest guest

I've had nosebleeds all my life too. Fortunately they've never been as severe

as what you describe; I'm really sorry to hear that you go through this

frequently!

Mine are more the annoying " drip, drip, drip " kind which are controllable but

cause me to sniff a lot and have to use a lot of Kleenex.

My youngest daughter, Cheryl, has had much worse problems with nosebleeds since

she was little; I remember many times being called to her school to pick her up

in the nurse's office because she had just had a gusher.

Chronic nosebleeds can be associated with autoimmune diseases such as lupus and

celiac disease (I was recently diagnosed with celiac disease and Cheryl has

lupus) as well as other AIs not as well known, such as Autoimmune

Lymphoproliferative Syndrome and Autoimmune Thrombocytopenia.

Have you discussed these episodes with your doctor since you were diagnosed with

liver disease? Remember if you have one AI you're far more likely to develop

another (I have seven so far).

JoAnn

>

> Hello:

> Does anyone have frequent nosebleeds of varying degrees of severity/duration?

I've had nosebleeds all my life so I'm really not sure if there is a connection

between nosebleeds and liver disease.

> I ruined many pillowcases during childhood because I had no idea I was

bleeding while sleeping (or,if I did, I was too tired to get out of a warm, cozy

bed and try to clean myself up or ask for parental help). I spent more than a

few recesses all alone, except for the company of ice packs, in the school

office. I never really went to the doctor as a child, and because I threw

tantrums, my mom pretty much let me off the hook. Who knows? Maybe I've had

liver problems all along.

> Even in college and grad school, I've had the unfortunate experience of

bleeding from the snout during exams (well, maybe it was fortunate in that

perhaps professors let me off a bit easier; they usually did give me extra time

to finish tests without any supervision!).

> Anyway, I still get these " bloody " annoying nosebleeds. It's awful when you

don't have time to patiently wait it out (if you don't properly stop the

bleeding, chances are that it will bleed again with any type of activity or

movement)or when it happens when you're working with the public. In fact, I had

a massive nosebleed a few weeks ago when I was picking up the liver meds that

I'm oh-so-fond of at the pharmacy. I was mortified--it was all over my hands

and face and I had no other choice but to sit pitifully in the corner of the

pharmacy with the very " luxurious " brown institutional paper towels provided by

the unconcerned pharmacist. Some of my nosebleeds produce that thick, dark,

gooey, clotted, jelly-like blood. Ewww. I hope you've enjoyed my vivid

descriptions. I try to add " color " to the lives of friends and fellow fighters

of liver disease. Sorry if I've " leaked " too much information or " blown " the

problem out of proportion.

>

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Guest guest

For those with nosebleeds, make sure to use the correct procedure: DON'T

lean back!

Instead, lean forward. Prop your elbows on your knees. Press firmly on the

affected nostril for as long as possible. If a cool, wet cloth is

available, use it; it helps some.

Learning backward drains blood down your throat, which can cause stomach

upsets. Pressing on the nostril stanches the flow of blood and allows healing

to begin.

Harper

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  • 10 months later...
Guest guest

>

> My son is experiencing constant nosebleeds. They are very light. It is a

continual problem all day long but it doesn't flow out. It pretty much gathers

in his nose and he blows it out periodically during the day. He has never had a

nosebleed before this.

> Any idea what is going on here?

+++Hi Darlene B. Since your son has been vomiting a lot lately, it may be

causing little blood vessels in his nose to repture a little.

Bee

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  • 10 months later...

I would like to know if anyone has had trouble with chronic nosebleeds on

Humira? For the past two months, I am getting horrible nosebleeds at least

twice a week. Wake up at night with them and even had to go to the ER once to

stop the bleeding. Curious if this has any relevance to PA or Humira? Thank

you.

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