Guest guest Posted June 3, 1999 Report Share Posted June 3, 1999 Hi Bill. In reply to your email regarding the bowel cleanse list, I'd like to remind you of some things. 1. On the internet, qualifications mean vested interest, not expertise. Any claim of expertise is looked on as suspicious because it is just that. It says this: " You should believe me instead of others because I have qualifications. " 2. You are judged by what others see: what you say and how you say it. It is the quality of your argument that matters, not your qualifications. In this way the net is far more scientific and logical than the scientific community could ever hope to be. 3. Internet discussion maintains itself only as a cooperative discussion. Aggression always leads to the death of a topic. If you want people on the internet to listen to what you say, you have to be nice about it. People associate anger with dishonesty, as it is in the real world. Anger comes though on the net as clear as in conversation. It's as simple as that. As well as this, your email has convinced me of nothing with regard to the professionalism and honesty of medically trained professionals. There is nothing you can do or say to bring such professionals into a positive light in my mind. You cannot DEMAND I believe you. It simply wont work. Hope this is helps you understand what happened. . -- Copyright " om1975 " 1999, all rights reserved. You are free to use and redistribute my text, as long as you credit it to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 1999 Report Share Posted June 3, 1999 well said. and HOORAY that we ALL have to learn how to be civil and learn to WATCH what we say and how we say it and that us commoners get to have a valid say in everything that goes on here. I LOVE IT! robin Re: HI FOLKS >From: " o.m. " <om1975@...> > >Hi Bill. > >In reply to your email regarding the bowel cleanse list, I'd like to remind you >of some things. > >1. On the internet, qualifications mean vested interest, not expertise. Any >claim of expertise is looked on as suspicious because it is just that. It >says this: " You should believe me instead of others because I have qualifications. " >2. You are judged by what others see: what you say and how you say it. It >is the quality of your argument that matters, not your qualifications. In >this way the net is far more scientific and logical than the scientific >community could ever hope to be. >3. Internet discussion maintains itself only as a cooperative discussion. >Aggression always leads to the death of a topic. If you want people on the >internet to listen to what you say, you have to be nice about it. People >associate anger with dishonesty, as it is in the real world. Anger comes >though on the net as clear as in conversation. It's as simple as that. > >As well as this, your email has convinced me of nothing with regard to the >professionalism and honesty of medically trained professionals. >There is nothing you can do or say to bring such professionals into a positive >light in my mind. > >You cannot DEMAND I believe you. It simply wont work. > >Hope this is helps you understand what happened. > >. >-- >Copyright " om1975 " 1999, all rights reserved. You are free to use and >redistribute my text, as long as you credit it to me. > > > >------------------------------------------------------------------------ >With more than 18 million e-mails exchanged daily... > >...ONElist is THE place where the world talks! >------------------------------------------------------------------------ >Web Sites: >http://home.sol.no/~dusan/bowel cleanse.html >http://www.prostate90.com/ >http://www.geocities.com/~mycleanse/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Welcome and , We have all been where you are... reeling from the diagnosis of hep c. Joining this support group was a positive step for yourselves; it definitely helps to know you are not in this alone. Many medical plans cover the costs of the interferon treatment. You may have to let your doctor's office deal with the insurance company because initially they fuss, and it may take a few weeks, but the office staff should know how to deal with them. If you don't have insurance, the drug companies have programs that provide the medication free or on a sliding scale. Let us know when you get to that point and we'll give you the information. In the meanwhile, there are some things you should do / learn about. I'm going to enclose a little article that I give to new members of my local support group here in Florida. Best wishes to you two, keep us posted on your journey! Just Diagnosed... What Should I Do? The information you receive when you are first diagnosed with hepatitis C can indeed be overwhelming. You may not even know that much about the disease, much less what should you do next. Unfortunately, some doctors do not communicate clearly with their patients, and it is up to you to educate yourself and advocate for your health. If you are asking yourself " what next? " , these tips will be helpful to you. -Abstain from alcohol. Drinking alcohol is like trying to put a fire out by pouring gasoline on it. Alcohol accelerates the damage to the liver. All the medication and healthy foods in the world can't reverse the damage that alcohol does to your liver. -Know your genotype. There are many different genotypes of hepatitis C. Your genotype may determine the length of treatment, 6 months vs. 1 year. -Get a liver biopsy. It sounds much scarier than it is, but it is the only way to know exactly how much damage the virus has done to the liver. Biopsy results are given in stages and grades of 0-4; with 0 being little or no damage, and 4 being more severe. -Ask your doctor for a copy of your lab & biopsy results. Keep them in a folder and learn what the numbers mean. Bring your lab results to the support group meetings and someone will help you interpret the numbers. -Get vaccinated against Hep A & B. When you have hep C, your liver is under attack. An additional attack of hep A or B can speed up the damage to your liver, or even kill you quickly. Hep A is a series of 2 shots over 1 month, and Hep B is a series of 3 shots over a 6 month period. If you start the vaccinations and don't finish the regimen, you will not be protected against further liver damage. -Ask your doctor questions. If you are not happy with your medical care, get a new doctor! -EDUCATE YOURSELF ! Don't be afraid to ask questions, read articles, surf the web(although not everything on the internet is the truth). Remember: Knowledge is power! -Join a support group. You are not alone! Many other people are dealing with this illness, too. They can provide you with valuable information and a core of emotional support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Welcome and , We have all been where you are... reeling from the diagnosis of hep c. Joining this support group was a positive step for yourselves; it definitely helps to know you are not in this alone. Many medical plans cover the costs of the interferon treatment. You may have to let your doctor's office deal with the insurance company because initially they fuss, and it may take a few weeks, but the office staff should know how to deal with them. If you don't have insurance, the drug companies have programs that provide the medication free or on a sliding scale. Let us know when you get to that point and we'll give you the information. In the meanwhile, there are some things you should do / learn about. I'm going to enclose a little article that I give to new members of my local support group here in Florida. Best wishes to you two, keep us posted on your journey! Just Diagnosed... What Should I Do? The information you receive when you are first diagnosed with hepatitis C can indeed be overwhelming. You may not even know that much about the disease, much less what should you do next. Unfortunately, some doctors do not communicate clearly with their patients, and it is up to you to educate yourself and advocate for your health. If you are asking yourself " what next? " , these tips will be helpful to you. -Abstain from alcohol. Drinking alcohol is like trying to put a fire out by pouring gasoline on it. Alcohol accelerates the damage to the liver. All the medication and healthy foods in the world can't reverse the damage that alcohol does to your liver. -Know your genotype. There are many different genotypes of hepatitis C. Your genotype may determine the length of treatment, 6 months vs. 1 year. -Get a liver biopsy. It sounds much scarier than it is, but it is the only way to know exactly how much damage the virus has done to the liver. Biopsy results are given in stages and grades of 0-4; with 0 being little or no damage, and 4 being more severe. -Ask your doctor for a copy of your lab & biopsy results. Keep them in a folder and learn what the numbers mean. Bring your lab results to the support group meetings and someone will help you interpret the numbers. -Get vaccinated against Hep A & B. When you have hep C, your liver is under attack. An additional attack of hep A or B can speed up the damage to your liver, or even kill you quickly. Hep A is a series of 2 shots over 1 month, and Hep B is a series of 3 shots over a 6 month period. If you start the vaccinations and don't finish the regimen, you will not be protected against further liver damage. -Ask your doctor questions. If you are not happy with your medical care, get a new doctor! -EDUCATE YOURSELF ! Don't be afraid to ask questions, read articles, surf the web(although not everything on the internet is the truth). Remember: Knowledge is power! -Join a support group. You are not alone! Many other people are dealing with this illness, too. They can provide you with valuable information and a core of emotional support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 First and foremost!!! DO NOT PANIC! That out of the way, whoever told you no insurance company pays for interferon is a moron. Even Medi-Cal in Calif pays for it. ALL insurance companies do pay for it. Some pay more than others, some make you pay part of it. Before you even start to worry about treatment, be sure you are seeing a liver specialist, not just a GP or even an internal med specialist. A Hepatologist is the best way to go. You will need certain blood tests: HCV RNA PCR QUANTITATIVE (this is your viral load test) GENOTYPE (this will tell you which of the 26 genotypes you have) CBC (this gives you your blood counts and platelets count) HEPATIC PANEL (this gives you all the liver related tests) Keep in mind that an elevated ALT does not mean you have alot of liver damage. Same with the viral load. Neither has anything to do with the amount of liver damage you may have. Do NOT drink ANY alcohol. It is not known how much is too much so it is widely suggested that we do not drink at all. Why risk further liver damage? Learn all you can about both your disease and the treatment options. Make your treatment decisions AFTER you have gotten your biopsy back, and know your genotype. If you do not have Stage 3 FIBROSIS, you have time and can wait on the treatment. Treatment rarely rids the body of the virus itself, but it WILL stop progression to further liver damage. Hang in there and feel free to ask as many questions here as you want!! Check our LINKS page for lots of very helpful links too! LeighAnn Moderator http://www.geocities.com/1Leighann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 First and foremost!!! DO NOT PANIC! That out of the way, whoever told you no insurance company pays for interferon is a moron. Even Medi-Cal in Calif pays for it. ALL insurance companies do pay for it. Some pay more than others, some make you pay part of it. Before you even start to worry about treatment, be sure you are seeing a liver specialist, not just a GP or even an internal med specialist. A Hepatologist is the best way to go. You will need certain blood tests: HCV RNA PCR QUANTITATIVE (this is your viral load test) GENOTYPE (this will tell you which of the 26 genotypes you have) CBC (this gives you your blood counts and platelets count) HEPATIC PANEL (this gives you all the liver related tests) Keep in mind that an elevated ALT does not mean you have alot of liver damage. Same with the viral load. Neither has anything to do with the amount of liver damage you may have. Do NOT drink ANY alcohol. It is not known how much is too much so it is widely suggested that we do not drink at all. Why risk further liver damage? Learn all you can about both your disease and the treatment options. Make your treatment decisions AFTER you have gotten your biopsy back, and know your genotype. If you do not have Stage 3 FIBROSIS, you have time and can wait on the treatment. Treatment rarely rids the body of the virus itself, but it WILL stop progression to further liver damage. Hang in there and feel free to ask as many questions here as you want!! Check our LINKS page for lots of very helpful links too! LeighAnn Moderator http://www.geocities.com/1Leighann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 and , welcome to our group! Gosh, I wish there was some other way for people to get this news without being scared that death was right around the corner. More doctors need to educate themselves that this is not as fatal a disease as it seems on the surface. I went in for a routine physical last March, and the doctor asked me if I ever had a blood transfusion. I said I did when I was a child, and she asked if she could check my blood for Hepatitis C. I said sure, not knowing what the heck it was. In the mean time, I went on the internet and was shocked to see what Hepatitis C could do to a person. When the test came back positive, I thought my life was over. Since then, through research and wonderful people on this list, I realize this is not the case. I asked my doctor why she thought to check for it in the first place and she told me that her 2 best friends had just been diagnosed, so now she was checking everybody. She was freaked out by her friends' illness, but she steered me in the right direction, I got all the tests and the biopsy, and now know that I have to monitor my health, but not act on anything right now except for some simple lifestyle changes. It may change in the future, but I'm healthy now, and enjoying life more than I have in years. Marilyn Hi folks Hi folks, We are a newly diagnosed couple who is just heading into this pipeline. We are scared as hell but detirmined to take ownership of this thing and ride it out as best we can. So far all we know is we are both tested positive and My wife has had the virus for many years with absolutly no idea she had it. The rest of our results are still to come. We spent a little time reading the posts in this group before posting our note. At this point, I have shown no symptoms, (at least that we can attibute to Hep). My wife has had the tired and weakness symptoms and major hormonal swings we had atributed to the " Change of Life " . We have since learned that issues with the liver can effect the Pituitary gland and hence hormonal activity. This caused Anxiety attacks and every other milady that comes with out of balance hormons. From a trip to the Dr, hoping for some help with mood swings, we came back with two people infected with Hep-C. As you folks well know, we are still in shock, especially when we were teased by the mention of Interferon then had it quickly snuffed by telling us it would cost 2,000 to 2,500 dollars a month for 6 months to a year. Who can pay that price? We were then told it was not covered by any medical plan and the government didn't think it a necessity in the treatment of this disease. We have been Voracious readers since that point and found this group. We are all ears if someone out there can give us any hope on a treatment for regular folks that cannot put out 5 grand a month. Respectfully, and , friends in Hep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 >This is my first posting, although I've been following the exchange with Hi -- welcome to the group! >I'm >currently experimenting with a some devices including the Teslar watch >which contain the Shumann frequency chip, Have you noticed anything from the Teslar watch? I had one, but it didn't do anything for me... >I'm concerned about automobiles. There are a couple devices which you can plug into the cigarette lighter to make automobiles more tolerable, and also a personal device worn on your person can make a big difference. I used to use the Quantum Auto Clear device, which seemed to help, but I also got big shocks whenever I got out of the car and touched the door. Now I just use a Springlife OM pendant in my pocket, which seems just as good (and the shocks stopped when I switched to anti-static souled shoes). But then again, my car is 10 years old, so I don't have any experience with the newer cars with LCD monitor screens inside (although perhaps the Civic doesn't have that?) Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Lilly, Here is one from Vitacost: http://www.vitacost.com/CountryLifeDairyFreeAcidophiluswithPectin Shirley >From: " lilly26health " <lilly26health@...> >does anyone know a cheap acidophlus soy free and dairy free Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 This is only the second time I have posted in a very long time.I'm hoping to get someone who maybe in a similar situation to provide some hope or encourgagement to me . I'm 46 years old have had P since age 13 and PA since age 33.I had a serious of Presdisone before being diagnosed then started on MTX pills from 1997-2002,then began Enbrel injections as well in 2002 along with the pills .Then began MTX injections in 2004 along with the Enbrel.Now my new Rheumy has prescribed Remicade along with the MTX injections.I have only had 2 infusions so far and it is amazing the difference in the P ,I actually cried. For the first time in 33 years I was able to wear short sleeves in Feb month. I do have alot of Redness on the P patches but you can see it is fading. I no longer have to rush home on the rare occassion I do get out ,because the P hurts so bad and got to get the jeans off and it no longer stings in very cold weather. All the dead skin or( scales)as some will call ,them are gone. But..... I am very grateful for this Positive but have not had any relief from the pain Of PA at all. Has anyone experienced this with Remicade? Is it too soon and maybe after a few more infusions it will be different? Should I be prescribed something different to go with the Remicade for Relief of the pain ? The PA started in the spine and has since attacked all other joints and I have not worked in almost 5 years .I use to be so energetic and hyper. Went from working 12 hour shifts then cleaning my house to be confined to my bed mostly now on a heating pad 80% of the time. The Meds that I'm taking now are;Remicade 300 mg each infusion, Mtx 25 mg once weekly,Previcid 30 mg 1 daily for acid reflux ,folic acid 5 mg 1 daily, and for pain Atasol 30 or Flexeril 10 mg both which do very little for the pain Atasol keeps me awake and Flexeril may help me sleep some nights.I would like to have some relief from this pain that is 24/7 and to have some quality of life back. Sitting ,standing and walking are limited to minutes and the more I try to do the worst I feel .Very frustrationg and have gone through bouts of depression because of both the PA & P. If anyone out there can offer some advice or encourgament to me I will certainly appreciate it also some advice on how you all handle those perfet people who never get sick and look at us and becasue we can breath and talk, figure there is nothing wrong with us ? Thanks in advace for any help ! Be well people Quote Link to comment Share on other sites More sharing options...
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