Re: Restless Legs and Arms

[Guest guest]

Benadryl seems to make my restless legs worse, and when I have my infusion for

remicade, if they give me benadryl iv, too quickly, I am crazy with restless

legs during the infusion. May be coincidental, but it has happened more than

once, and now they do not do benadryl iv. It is a another annoying irritant.

Sorry you have suffered with it. I am so thankful for Mtx and remicade, and

exercise, they are giving me a lifel.

[Editor's Note: I just remembered the name of the FDA approved medication for

RLS in the US (and I guess Canada). It's called Requip. Kathy F.]

<fortheluvofgoldens@...> wrote: Hello Everyone.

Been on MTX 5 pills for about 4 weeks now. I got the restless legs before

taking mtx.

Does anyone else get this and if so, how is it treated. It is torture!!!!

Your arms and legs needed to keep moving every second and you cannot sleep

for anything.

I tried hot bath, another sleeping pill, benadryl, gravol. I tried

everything that I thought would relax my body, but nothing helped.

Thanks

Ontario

[Editor's Note: , I get RLS from time to time but it doesn't sound as bad

as yours. Talk to your doctor. There are prescriptions available now that work

well for some people. There are also RLS support groups that have lots of tips

to share. Good luck. I know it's driving you crazy. Kathy F.]

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[Guest guest]

Thanks so much for the advice. I go to my Dr. today for a checkup and will

ask for some meds (more!) for my legs. It is something you cannot explain

to someone how it feels. You just can't stop moving and can't sleep, its

awful.

Thanks

Ontario

Re: [ ] Restless Legs and Arms

> Benadryl seems to make my restless legs worse, and when I have my infusion

> for remicade, if they give me benadryl iv, too quickly, I am crazy with

> restless legs during the infusion. May be coincidental, but it has

> happened more than once, and now they do not do benadryl iv. It is a

> another annoying irritant. Sorry you have suffered with it. I am so

> thankful for Mtx and remicade, and exercise, they are giving me a lifel.

>

> [Editor's Note: I just remembered the name of the FDA approved medication

> for RLS in the US (and I guess Canada). It's called Requip. Kathy F.]

[Guest guest]

>

> Does anyone else get this and if so, how is it treated. It is

torture!!!! Your arms and legs needed to keep moving every second and

you cannot sleep for anything.

>

My DH gets it from Niaspan (cholesterol). He takes one 65 mg Iron

tablet when he takes the Niaspan and it helps A LOT! Ask your doc. My

DH found it online as a remedy and the doc said it was fine. Our

pharmacist said she'd never heard of it and when I told her she said it

makes sense. I get the iron behind the counter because it's so much

cheaper there. Although I do notice Wal-Mart has some on the OTC

shelves.

C.

[Guest guest]

Am new on this board and not gotten a true diagnosis yet...however,

my instincts and symptoms are leading in this direction. Is Restless

Leg Syn linked to PA, or just common amongst it? And does anyone

know why?

Thanx-

[Guest guest]

I can't believe I missed this whole thread before today!!! I just

developed PA last summer but have suffered from increasingly severe

RLS for 30 years!! For 5 years they said it was a circulatory

problem; for another 20 they treated it as mild progressive MS;

finally I went to the Movement Disorders Clinic at Mt. Sinai in NTC

and got properly diagnosed. Several Parkinson's meds were by then

being used off-label for RLS; I started on Mirapex and it changed my

life. Requip and Mirapex are now approved for RLS. The only

challenge is finding the right dose and making sure you take it on

time. If I forget to take a dose, the symptoms arise, and taking the

does late doesn't quickly resolve the symptoms. I go back to my

neurologist (Velickovic) at Mt. Sinai next week and look forward to

hearing about developments with slow release and derm patch research

for these meds. Good luck!

Liz in North Jersey