Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 What other abx is she on... if you dont mind me asking? From: White <jeanmw1361@...> Subject: Re: [ ] Side effects of tindamax? 12 yr old Date: Tuesday, May 4, 2010, 10:21 PM  Three days at the end of each month, we usually start on Friday morning, takes a tablet twice a day for three days. She is taking additional atibiotics on a daily basis. ____________ _________ _________ __ From: Diane Biel <dkbmama (DOT) com> Sent: Tue, May 4, 2010 9:45:32 AM Subject: Re: [ ] Side effects of tindamax? 12 yr old  My daughter didnt leave a dark bedroom for over five weeks at one time........ ...hang in there - make sure your LLMD knows about this........ my prayers are with you - to - you do three day at the end of every month or week??? thanks, Diane ____________ _________ _________ __ From: White <jeanmw1361@ . com> Sent: Mon, May 3, 2010 10:37:34 PM Subject: Re: [ ] Side effects of tindamax? 12 yr old  My 13 yo daughter started taking Tindamax for three days at the end of each month back in January 2010. After the initial 3 day cycle she was wiped out for at least a week with exhaustion and body pain. Each cycle following has been much better, with the recent cycle having minimal negative reaction. Hope your son begins to improve. Jean ____________ _________ _________ __ From: lainamariepedro <Lainamariepedro> Sent: Mon, May 3, 2010 7:10:02 PM Subject: [ ] Side effects of tindamax? 12 yr old  My son got lyme in July, had the bulls eye took abx from Dr. (azithromyacin) from Sept to Feb.... In Feb he was symptom free and we stopped abx and then by March he was regressing quickly...back to Dr. . He is now on azithromyacin again along w/ tindamax on the w/ends only. This was his first w/end and the side effects are so bad he couldnt leave his bed all w/end, seeing floaters, extreme fatigue, headaches, body aches, spaghetti legs, and jitters. He hasn't had the meds since Sunday am and now it is Monday pm and he is still sick from it... Does anyone have any experience with this medication / and it's side effects? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 I am " on call " at my job, so unfortunatley it's not possible.  I have been trying to get him into a school for kids with " special needs " for 4 years, and they won't even consider it. I'm wondering how long this " effect " from the med is going to last. He hs really gone downhill since starting the flagyl. Hugs Judy ________________________________ From: <ecckwalk@...> Sent: Tue, May 4, 2010 10:42:48 PM Subject: Re: [ ] Side effects of tindamax? 12 yr old  Would 1/2 days of school be an option? ____________ _________ _________ __ From: jchabot <jchabotsnet (DOT) net> Sent: Tue, May 4, 2010 5:46:32 PM Subject: Re: [ ] Side effects of tindamax? 12 yr old  My 8 yr old sees Dr. as well and is on Zith and Rifampin. We also added Metron, and now I have the school sending home notes saying he has taken a dramatic turn for the worse. He has declined tremendously academically and behaviorally, and cannot do the work suddenly. I don't know what to do at this point either. Hugs Judy ____________ _________ _________ __ From: Aviva Gerson <avivagverizon (DOT) net> Sent: Tue, May 4, 2010 2:47:57 PM Subject: Re: [ ] Side effects of tindamax? 12 yr old My 11 year old daughter started taking Tindamax 2 days/week about 2 months ago. She's additionally on Rifampin and Zithromax. She has had neither adverse effects nor improvement. She's been on various abx for 15 months now. She also sees Dr. . We're also following an herbal protocol (Buhner). I would get in touch with the office. They may have some suggestions either in dosage or just explaining what is happening. I know it is difficult to get through (always have to leave a message with the service), but they will get back to you. I wish you well, Aviva On May 3, 2010, at 7:10 PM, lainamariepedro wrote: > My son got lyme in July, had the bulls eye took abx from Dr.  > (azithromyacin) from Sept to Feb.... In Feb he was symptom free and > we stopped abx and then by March he was regressing quickly...back > to Dr. . > > He is now on azithromyacin again along w/ tindamax on the w/ends > only. This was his first w/end and the side effects are so bad he > couldnt leave his bed all w/end, seeing floaters, extreme fatigue, > headaches, body aches, spaghetti legs, and jitters. > > He hasn't had the meds since Sunday am and now it is Monday pm and > he is still sick from it... > > Does anyone have any experience with this medication / and it's > side effects? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 I 'll give it another week or two, and if he is still this way, I'll call Dr. . I can't wait to hear what the school says in the morning. Hugs Judy ________________________________ From: laina pedro <Lainamariepedro@...> Sent: Wed, May 5, 2010 7:26:45 AM Subject: Re: [ ] Side effects of tindamax? 12 yr old  That happened w/ my son also.... We told Dr. J and he switched up the meds a little...we' ll see how it goes.My son has never had poor grades or difficulty paying attention until this relapse so I knew for sure it was due to lyme and meds.Dr. J. understood and made some changes last week so I will see if school improves or not. > My son got lyme in July, had the bulls eye took abx from Dr.  > (azithromyacin) from Sept to Feb.... In Feb he was symptom free and > we stopped abx and then by March he was regressing quickly...back > to Dr. . > > He is now on azithromyacin again along w/ tindamax on the w/ends > only. This was his first w/end and the side effects are so bad he > couldnt leave his bed all w/end, seeing floaters, extreme fatigue, > headaches, body aches, spaghetti legs, and jitters. > > He hasn't had the meds since Sunday am and now it is Monday pm and > he is still sick from it... > > Does anyone have any experience with this medication / and it's > side effects? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 Minocycline, Zithromax ( M, W, F), Plaquenil daily. She is also following the buhner protocol along with other supplements. We recently added D-Ribose, has been helping with the fatique. She is much improved. We are just beginning to scale back slowly on the antibiotics. ________________________________ From: laina pedro <Lainamariepedro@...> Sent: Wed, May 5, 2010 7:28:19 AM Subject: Re: [ ] Side effects of tindamax? 12 yr old  What other abx is she on... if you dont mind me asking? From: White <jeanmw1361 (DOT) com> Subject: Re: [ ] Side effects of tindamax? 12 yr old Date: Tuesday, May 4, 2010, 10:21 PM  Three days at the end of each month, we usually start on Friday morning, takes a tablet twice a day for three days. She is taking additional atibiotics on a daily basis. ____________ _________ _________ __ From: Diane Biel <dkbmama (DOT) com> Sent: Tue, May 4, 2010 9:45:32 AM Subject: Re: [ ] Side effects of tindamax? 12 yr old  My daughter didnt leave a dark bedroom for over five weeks at one time........ ...hang in there - make sure your LLMD knows about this........ my prayers are with you - to - you do three day at the end of every month or week??? thanks, Diane ____________ _________ _________ __ From: White <jeanmw1361@ . com> Sent: Mon, May 3, 2010 10:37:34 PM Subject: Re: [ ] Side effects of tindamax? 12 yr old  My 13 yo daughter started taking Tindamax for three days at the end of each month back in January 2010. After the initial 3 day cycle she was wiped out for at least a week with exhaustion and body pain. Each cycle following has been much better, with the recent cycle having minimal negative reaction. Hope your son begins to improve. Jean ____________ _________ _________ __ From: lainamariepedro <Lainamariepedro> Sent: Mon, May 3, 2010 7:10:02 PM Subject: [ ] Side effects of tindamax? 12 yr old  My son got lyme in July, had the bulls eye took abx from Dr. (azithromyacin) from Sept to Feb.... In Feb he was symptom free and we stopped abx and then by March he was regressing quickly...back to Dr. . He is now on azithromyacin again along w/ tindamax on the w/ends only. This was his first w/end and the side effects are so bad he couldnt leave his bed all w/end, seeing floaters, extreme fatigue, headaches, body aches, spaghetti legs, and jitters. He hasn't had the meds since Sunday am and now it is Monday pm and he is still sick from it... Does anyone have any experience with this medication / and it's side effects? Quote Link to comment Share on other sites More sharing options...
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