Re: does this sound like lyme?

June 6, 2008

OMG, are you nursing?

I hate to say that, but borrelia is proved to be living in breast

milk.

Many mothers swear their kids got lyme this way or intrauterine.

I nursed my child, but if I had lyme then, or had suspicions of lyme,

I wouldn't have nursed. I would have stopped. 100% sure. Borrelia

loves the intestines.

Well, sorry for the bad post. I hate to write these kind of posts.

But is your neck just a bit stiff or is it VERY STIFF? A bit stiff

can be anything. Very stiff could be a strong indication of lyme

either in your neck muscles or already somewhere in the nervous

system. I had my first clue I had lyme with my stiff neck. It was

very hard.

You're still newly bitten, maybe a standard Western blot can show

something? You got to wait 6 weeks after tick bite though. If you

have the budget, go for the Igenex directly.

My first symptoms were a bit like yours, then new symptoms arose very

fast, one after the other, like fatigue, light sensitivity, sound

sensitivity, difficulty falling asleep, air hunger, then joint pains

slowly started. Every one is though different.

You're in a vulnerable situation, gave birth recently ?, lack of

sleep due to nursing, etc. I would take some doxy as emergency, for

at least a month to see how you react, but babies cannot take doxy,

so you will have to stop breast feeding.

Amoxy in my opinion does too little to help acute lyme and co-

infections, as it doesn't cross the blood brain barrier and it gets

NONE of the co-infections that I know. Kids can take amoxy though.

While you're taking doxy, you could read more about this disease and

various treatments, and then decide what to do after. But I wouldn't

risk leaving the bacteria invade your body (just in case), as one can

live in hell after, for very long.

Maybe you could start with amoxy while you try giving the bottle to

your baby? Then shift to doxy.

I lived in hell with lyme and having to take care of a small child.

Small children need our attention, and getting VERY sick then is the

worst of all. Don't think of it as a flu, that goes out after a week.

Lyme may take months, very often years to get rid of.

I'm just painting here the worst scenario, I sincerely HOPE it won't

be your case. I'm doing that so that you move and get some treatment

soon, so that you don't become chronic like all of us.

Buhner recommends a month treatment of antibiotic for acute lyme. The

ILADS recommends at least 6 weeks. I am not sure these preventive

treatments do help with the increasing number of coinfections, but at

least, that's what is considered 'standard'.

Wishing you good luck,

Selma

-------------

>

> I posted in an introduction in another post although I don't see it

yet.

>

> Anyhow, I got bit by a tick a month ago. I've generally felt fine

> until this weekend when I started to get this sort of " out of body "

> feeling. Almosts lightheadedness or perhaps low bloodsugarish. A

> little shaky. It comes & goes but today it is more present. I also

> have a stiff neck but I've been sleeping in weird positions while

> nursing. Does this sound Lymish?

>

> Also, has anyone nursed through lyme treatment?

>

June 6, 2008

Thanks for the scare. My neck is just about as sore as it usually

gets from nursing. It's really the " weird " out of body feeling that

is new. However, I felt real shaky at one point today & tested my

blood sugar & it was 55. Not sure what is up with that.

My doc did the usual tests. Igg & Igm & parasites were all negative.

Western blot is not in yet. I'm going to try & get my blood drawn

for Igenex on Monday.

February 17, 2011

yes, it sounds like lyme, potentially. Could be a coinfection with the being

out of breath. Get to a LLMD and get an Igenex test if you can't convince the

doctors otherwise.

________________________________

From: jchabot <jchabot@...>

Sent: Thu, February 17, 2011 6:06:21 AM

Subject: [ ] does this sound like lyme?

Hi everyone,

I have a question for all of you. As you know I have a 9 yr old with lyme, that

went undiagnosed for several years before we found out.

I have a 14 yr old and I'm suspecting she may have it as well.

these are her symptoms:

Crying all the time

agitated and extremely moody,rude

says she can't concentrate or do anything, and is not doing her homework or

schoolwork(grades went from all B's to D's and F's)

sleeping in class and always tired

sore and weak- cheerleader that can no longer do backhandsprings, etc

says she is always cold and out of breath-worse when she wakes in the morning

nauseaus all the time

headaches

I just know if I bring her to her regular doctor they are not going to test her

for lyme because she has no rash or bite.It took years for me to convince them

to test my son. He never had the bullseye rash either

thanks for any input

Hugs

judy

February 17, 2011

Hi Natasha,

Â

Thank you for replying.

Just as I expected, I called her regular doctor to schedule an appt, and they

told me it sounds like depression. (this is what they told me about my son until

he went to DR.J. They said it was ocd , depression and anxiety) I don't know

what I'm goingÂ to do with her in the meantime. It has gotten really bad over

the past few weeks. Seems like she is getting worse by the day

Â

Does anyone know if the LLMD's give you a break on the payments if you have two?

Hugs

Judy

From: Natasha Moiseyev <nmoiseyev@...>

Subject: Re: [ ] does this sound like lyme?

Date: Thursday, February 17, 2011, 9:42 AM

Â

yes, it sounds like lyme, potentially. Could be a coinfection with the being

out of breath. Get to a LLMD and get an Igenex test if you can't convince the

doctors otherwise.

________________________________

From: jchabot <jchabot@...>

Sent: Thu, February 17, 2011 6:06:21 AM

Subject: [ ] does this sound like lyme?

Hi everyone,

I have a question for all of you. As you know I have a 9 yr old with lyme, that

went undiagnosed for several years before we found out.

I have a 14 yr old and I'm suspecting she may have it as well.

these are her symptoms:

Crying all the time

agitated and extremely moody,rude

says she can't concentrate or do anything, and is not doing her homework or

schoolwork(grades went from all B's to D's and F's)

sleeping in class and always tired

sore and weak- cheerleader that can no longer do backhandsprings, etc

says she is always cold and out of breath-worse when she wakes in the morning

nauseaus all the time

headaches

I just know if I bring her to her regular doctor they are not going to test her

for lyme because she has no rash or bite.It took years for me to convince them

to test my son. He never had the bullseye rash either

thanks for any input

Hugs

judy

February 17, 2011

Yes, sounds like Lyme or co-infection.Â Good luck!

________________________________

From: Natasha Moiseyev <nmoiseyev@...>

Sent: Thu, February 17, 2011 6:42:25 AM

Subject: Re: [ ] does this sound like lyme?

Â

yes, it sounds like lyme, potentially. Could be a coinfection with the being

out of breath. Get to a LLMD and get an Igenex test if you can't convince the

doctors otherwise.

________________________________

From: jchabot <jchabot@...>

Sent: Thu, February 17, 2011 6:06:21 AM

Subject: [ ] does this sound like lyme?

Hi everyone,

I have a question for all of you. As you know I have a 9 yr old with lyme, that

went undiagnosed for several years before we found out.

I have a 14 yr old and I'm suspecting she may have it as well.

these are her symptoms:

Crying all the time

agitated and extremely moody,rude

says she can't concentrate or do anything, and is not doing her homework or

schoolwork(grades went from all B's to D's and F's)

sleeping in class and always tired

sore and weak- cheerleader that can no longer do backhandsprings, etc

says she is always cold and out of breath-worse when she wakes in the morning

nauseaus all the time

headaches

I just know if I bring her to her regular doctor they are not going to test her

for lyme because she has no rash or bite.It took years for me to convince them

to test my son. He never had the bullseye rash either

thanks for any input

Hugs

judy

February 17, 2011

Definitely, Lymes affects many neurologically and it changes your

hormones too. Not to mention her going through puberty!

I was born with Lymes and it pretty much lay dormant in me until

puberty! Then my symptoms came in abundance like hers is doing. I

think the rise and fluctuating hormones stirs up the spirochetes and

they start to really show symptoms with they are angry or threatened

by immunity and of course antibiotics! Also, check her thyroid making

her tired. Spirochetes like to attack the Hypothymus and Thyroid.

Pretty much any hormone producing gland. That's why they get screwed

up.

I would flood her body with probiotics while your waiting for test

results. I don't think you need to see the doctor before you test

her. And that way it saves a lot of time and you have the results

when you get there. All you SHOULD have to do is call and ask for the

IGENX test kit to be sent to you and you pay them directly for the

test anyway, you just need to have the doctors consent and their info

to have the results sent to them. And if you have an appt scheduled

they should be ok with that. I know some of the llmd's will do this.

Good luck,

Suzanne

On Feb 17, 2011, at 8:06 AM, jchabot wrote:

> Hi everyone,

> I have a question for all of you. As you know I have a 9 yr old with

> lyme, that went undiagnosed for several years before we found out.

> I have a 14 yr old and I'm suspecting she may have it as well.

> these are her symptoms:

> Crying all the time

> agitated and extremely moody,rude

> says she can't concentrate or do anything, and is not doing her

> homework or schoolwork(grades went from all B's to D's and F's)

> sleeping in class and always tired

> sore and weak- cheerleader that can no longer do backhandsprings, etc

> says she is always cold and out of breath-worse when she wakes in

> the morning

> nauseaus all the time

> headaches

>

> I just know if I bring her to her regular doctor they are not going

> to test her for lyme because she has no rash or bite.It took years

> for me to convince them to test my son. He never had the bullseye

> rash either

>

> thanks for any input

> Hugs

> judy

>

February 17, 2011

it helps to have a course of abx before the igenex tests....they say it brings

out the antibodies back into the blood........also I have heard if a girl is at

the start of her menses meaning the first few days of the month that could help

also to have more accurate test...........

Diane

________________________________

From: Suzanne <suzlwilliams@...>

Sent: Thu, February 17, 2011 10:08:28 AM