Angry

[Guest guest]

That is so awful Marie. The same happened to a friend of mine, but unfortunately she died.

Everyone of us could see she was ill and there was something seriously wrong, yet her GP told her there was nothing wrong with her.

She was losing weight rapidly, and all he said was that she could do with losing weight.

He even asked her husband if she was putting it on.

Oh how I wish I could lose a stone a month just 'putting it on'.

Finally after five months and hardly anything left of her he decided to send her for a CAT scan. However the cancer had got so bad there was nothing they could do.

What happened was that she had gone into hospital for an operation on her gall bladder. When she came out she was not recovering properly. When telling the GP (incidentally he was mine too), she was still unwell, he told her she had to let herself get over the operation.

A few weeks later she was vomiting everything, even water. When she went back to the GP he told her there was nothing wrong with her. He said the surgeon (also a carp one where another friend of mine would have died under him had she not been able to afford a second opinion) had informed him that there was nothing else wrong with her. And, instead of using his own common sense and seeing there obviously was something wrong, regardless of what the surgeon said, he did precisely nothing.

Lilian

Hi all Marie here ,i get so angry when i read that a G.P. or endo tells a patient it is in there head or some such other phrase.

[Guest guest]

What a shame LIlian and they get away with it time after time because

you are to ill to fight them or if you do recover you just dont want

the hassle . Surely if you have a so called vocation you can try and

do the job properly . My husbands G.P. sends you the hospital with a

scratch . Marie xx

> That is so awful Marie. The same happened to a friend of mine,

but unfortunately she died.

>

>

[Guest guest]

Hi there,

I totally know how you feel. I have a sister who has all sorts of

symptoms that relate to candida - irritable bowels, hair loss,

depression, skin lesions, migraines - but she refuses to do anything

about it. Her husband also has major unexplained stomach issues that

she says seems to be set off by food. A big hint, right there!

Well, when I told her about this diet, she told me that his stomach

problems were just stress related because he didn't have any problems

when he was on holidays and as for a special diet, they were

simply " not interested " .

So let me get this right... She would much rather have all these

problems, including really bad skin and a huge bald spot and he

doesn't mind suffering with stomach pains for 50 weeks out of the

year [i'm subtracting the 2 weeks he has off for holidays] and

they're NOT INTERESTED?????

Maybe I'm just vain, but if I had skin lesions like that and a huge

bald spot at the front of my head, I'd be doing everything in my

power to get rid of them!

At least the rest of my family has seen the light. My other sister

has herself and her two kids on the diet (her husband is a carbaholic

and refuses) and they have all gotten really good results. Her one

son is autistic and is much less agitated and can concentrate much

better on the diet. For them it's been a miracle. My parents are

also working towards getting rid of no-no foods and will getting on

the diet as soon as they are able.

I guess some people just need to work through things in their own way

and we can't change them. In the meantime, we just have to bite our

tongues and love them in spite of it all. It's not always easy.

>

> I'm so angry and frustrated by the people around me. My mother has

an obvious case of

> Candida, chronic symptoms. I have given her all the information

and support I can and she is

> still eating toast for breakfast and such nonsense. She went to

hospital today thinking she

> had a stroke, which was doubtless blood pressure combined with

headache and other

> Candida symptoms. It's so irresponsible!!!

> Another friend is likewise making excuse after excuse. I think she

feels she has to 'deal with'

> other problems first, but I know the Candida just compounds

everything and has to be the

> priority.

> It is really depressing and frustrating to see people I care about

wasting themselves, when

> the cure is really so simple. Sure it can be hard at times, but

just changing your diet and

> taking some basic vitamins is not complicated or expensive. And

just trying it for a week or

> two to see if there are improvements...!

> Has anyone helped someone else 'see the light'? I feel like I am

living proof and those around

> me are just refusing to see.

> Sorry to rant.

>

[Guest guest]

You can rant away with us my friend! I, too, have several situations

in my family where they refuse to help themselves. My one daughter

even says she can't take the time to improve her health with diet and

supplements since she wants " quick fixes. " So she got accutane for

severe acne, suffered horribly and since has had obvious health

problems because of it.

She also had 3 female operations (with a final hysterectomy) in the

last year and 2 months, to help with menstrual problems, PMS, etc.

which could have been corrected with proper nutrients.

I love her immensely, in spite of her decisions, but it was very

rough on me to take care of her and see her in so much pain, when it

was totally unnecessary.

My parents also had health problems that I researched. Dad had

congestive heart failure and Mom has Parkinson's. My Dad had their

water tested and it was devoid of minerals. Of course Mom loved it

because she had to use so little soap for dishes and laundry.

However, water is the main source of minerals for the body and their

foods were okay, but they ate too many improperly prepared grains,

and " bad " fats (my Mom is so frugal she pays the least she can no

matter what the nutrient content is). The combination caused a

severe lack of minerals so they both had health issues directly

related to it. I bought them proper minerals, but without telling me

they stopped taking them (and they cost) " because they didn't help

after 1 month. " Duh?

Dad died of congestive heart failure last November. Mom moved into

an apartment in town and her Parkinson's symptoms have been improving

a lot (no doubt due to the water containing minerals).

Two people in my family listen to me about their health. My brother,

who cured his 20 year Crohn's Disease (diarrhea) on my program (which

took him over 20 months), and my dear 23 year old Grandson, who is

called " the organic freak " by his friends. LOL! I count my

blessings that even 2 important people in my life are taking

responsiblity for their own health.

Luv & Hugs, Bee

[Guest guest]

I have tried to help others also including my mother..she did get off her HB

pills but is not on Bees on diet.I'm still trying! People think I'm crazy, odd,

I guess...and don't think that yeast can do that much damage! I'm not doing the

diet as well as I would like too...but I'm doing the best I can with very little

$....

This is for others on a budget.......

I boil a chicken and debone it...I keep a large amount in the fridge and make

egg drop soup out some of it...sometimes put veggies in it too...freeze some in

small containers...I don't waste anything.LOL.You have no idea how many meals I

can get out of one small chicken!

Geri....

I'm so angry and frustrated by the people around me. My mother has an obvious

case of

Candida, chronic symptoms. I have given her all the information and support I

can and she is

still eating toast for breakfast and such nonsense. She went to hospital today

thinking she

had a stroke, which was doubtless blood pressure combined with headache and

other

Candida symptoms. It's so irresponsible!!!

Another friend is likewise making excuse after excuse. I think she feels she

has to 'deal with'

other problems first, but I know the Candida just compounds everything and has

to be the

priority.

It is really depressing and frustrating to see people I care about wasting

themselves, when

the cure is really so simple. Sure it can be hard at times, but just changing

your diet and

taking some basic vitamins is not complicated or expensive. And just trying it

for a week or

two to see if there are improvements...!

Has anyone helped someone else 'see the light'? I feel like I am living proof

and those around

me are just refusing to see.

Sorry to rant.

[Guest guest]

>

> I have tried to help others also including my mother..she did get

off her HB pills but is not on Bees on diet.I'm still trying! People

think I'm crazy, odd, I guess...and don't think that yeast can do

that much damage! I'm not doing the diet as well as I would like

too...but I'm doing the best I can with very little $....

> This is for others on a budget.......

> I boil a chicken and debone it...I keep a large amount in the

fridge and make egg drop soup out some of it...sometimes put veggies

in it too...freeze some in small containers...I don't waste

anything.LOL.You have no idea how many meals I can get out of one

small chicken!

+++Geri, that's great you've been able to get so much nutrition out

of 1 chicken. My favorite bone broth is made from chicken feet, but

it is harder to get them because of meat inspectors being crazy about

their cleanliness. And chicken feet are cheap if you can find them.

Chinese markets are are great place to get them.

I understand your frustration with " other people " who think you are

crazy, odd, etc. I'm known as a " nut case! " LOL! When my daughter

was here from Alberta, I asked for my hamburger raw. She looked at

me as I ate, with her eyes open in disbelief. Finally she couldn't

resist and asked: Mom, why do you feel it is safe to eat uncooked

meat? (That was a good way to ask about it too. It wasn't

accusatory either.) I simply replied " uncooked meat is healthier and

I'm not concerned about germs since they are everywhere, and if we

could catch them we'd all be sick all of the time. " I don't know if

she got that, but no one at the table said a word.

I've dropped other bombs on people too. For example: the family

discussing illness and taking all their drugs, I'll say " no one gets

sick from a lack of drugs. " It becomes so quiet you could hear a pin

drop. Provoking logical thought in others can be very helpful.

Cheers, Bee

[Guest guest]

-

Thank you Bee........

>

> I have tried to help others also including my mother..she did get

off her HB pills but is not on Bees on diet.I'm still trying! People

think I'm crazy, odd, I guess...and don't think that yeast can do

that much damage! I'm not doing the diet as well as I would like

too...but I'm doing the best I can with very little $....

> This is for others on a budget.......

> I boil a chicken and debone it...I keep a large amount in the

fridge and make egg drop soup out some of it...sometimes put veggies

in it too...freeze some in small containers...I don't waste

anything.LOL.You have no idea how many meals I can get out of one

small chicken!

+++Geri, that's great you've been able to get so much nutrition out

of 1 chicken. My favorite bone broth is made from chicken feet, but

it is harder to get them because of meat inspectors being crazy about

their cleanliness. And chicken feet are cheap if you can find them.

Chinese markets are are great place to get them.

I understand your frustration with " other people " who think you are

crazy, odd, etc. I'm known as a " nut case! " LOL! When my daughter

was here from Alberta, I asked for my hamburger raw. She looked at

me as I ate, with her eyes open in disbelief. Finally she couldn't

resist and asked: Mom, why do you feel it is safe to eat uncooked

meat? (That was a good way to ask about it too. It wasn't

accusatory either.) I simply replied " uncooked meat is healthier and

I'm not concerned about germs since they are everywhere, and if we

could catch them we'd all be sick all of the time. " I don't know if

she got that, but no one at the table said a word.

I've dropped other bombs on people too. For example: the family

discussing illness and taking all their drugs, I'll say " no one gets

sick from a lack of drugs. " It becomes so quiet you could hear a pin

drop. Provoking logical thought in others can be very helpful.

Cheers, Bee

[Guest guest]

Can you send us a link for the interview?

>

> I am trying to read my digest and can't. I am so angry at pharmaceutical

companies, the government, and ignorant inbetweens!

> We just had a baby in our community die 4 days after her 15mo round of shots!

My son was injured at his same set of shots 6 yrs ago and is now autistic.

> When I first heard this news I thanked God for everything that didn't happen

to AJ and could have. I sat down to start collecting information for this

mother and I can't! The more I read, the angrier I get!

> I forget who posted that article about the population conspiracy, but I kinda

laughed as I read it, but you know what, I have heard it 3 times since it was

posted here. What human has the right to control population, why don't they

start with their own families and self? Makes sense to me, then if each of us

decide that the population is still too high then we can kill ourselves too.

> By the way, Art Bell interviewed Dr. Horowitz last night (I haven't listened

to it yet but my mom says I need to). Informative vaccine info. Art Bell has a

web sight and I think you can real audio his taped shows...don't quote me.

> Please observe a moment of silence for another life lost due to vaccine

antics.

> This news group is more important than we realize. Thank you for

taking the time to monitor it!

> Kim P

>

[Guest guest]

I'm sure you're not the first to feel that way. It's a hard position to be in.Funny thing is I'm good friend with a terp now who is holistic and have unvaxed kids and she was there interpeting for me when I had my daughter vaccinated at the dr office and she couldn't say anything. Now that I woke up, she told me how she felt at that moment. It was difficult for her too.Sent on the Now Network™ from my Sprint® BlackBerryFrom: " Petric" <bluheron@...>Date: Mon, 21 Dec 2009 16:19:11 -0500<Vaccinations >Subject: Angry The student I interpret for got BOTH his H1N1 and flu shot ! Mommy dearest signed him up. He didn't want to get either, but...Asked which he wanted in the H1N1 and he didn't know, and I couldn't say, DON'T GET EITHER, because he is not MY son ! He got the mist. Also, a girl was passed out in the hall later, I saw her getting her shots.....this is so bad...and I can't say nothing about my student like I said, saw he was getting a rash on his arms, and he got a headache after. GRRRRR!!! Western NY

[Guest guest]

Oh, how awful to see that. I cringe just hearing that parents I know give it to their kids. One parent in particular I had spoken to in detail about the whole scam months ago, knowing they vaccinate, and they gave it to their child anyway. This child eats crap, is pale and always looks sick (although is somehow a very good student and athlete). I have been holding by breath ever since waiting for him to have a reaction.

If I had to see it given, I would probably be writing this from jail.

Winnie AngryVaccinations > The student I interpret for got BOTH his H1N1 and flu shot ! > Mommy dearest signed him up. He didn't want to get either, but...> Asked which he wanted in the H1N1 and he didn't know, and I > couldn't say, DON'T GET EITHER, because he is not MY son ! He > got the mist. > > Also, a girl was passed out in the hall later, I saw her getting > her shots.....this is so bad...and I can't say nothing about my > student like I said, saw he was getting a rash on his arms, and > he got a headache after. GRRRRR!!!> > > Western NY>

[Guest guest]

,

Reading your post, it sounded like I could have written it myself, except we're

in Loudoun Co. I get so angry at the blatant discrimination by the school! We've

filed a complaint with the US Dept. Of Education. We know we can't make up for

time lost, but at least if enough people complain the schools might be forced to

handle things differently.

Lynn Nordseth

[Guest guest]

Lynn,

I am sorry you are going through this as well. Is there an easy way to make

a complaint. I complained to a guy at VDOE and he was really nice but what

needs to happen is either mediation or due process. He sent me all these

brochures and to do either takes lots of paperwork and does not sound at all

like they will do anything. I have always thought that if I hit it where

they hurt (Special Ed funding), it would make more of an impression. Here

in Fairfax it is like a Good ole' Boys network and everybody just agrees

with what the schools decide. I have talked or left messages with everyone

and it has gone no where. My husband wants me to go on 7 on your side, (the

news station). I have decided I would rather die before I sit in another

IEP meeting, and I have two teens going through this. It makes me sick to

think that these are the people that are in charge of most of the kids, most

of the time. I do not trust them at all.

Thanks for responding,

On Fri, May 21, 2010 at 7:10 AM, Rusty N <rnordseth@...> wrote:

>

>

> ,

>

> Reading your post, it sounded like I could have written it myself, except

> we're in Loudoun Co. I get so angry at the blatant discrimination by the

> school! We've filed a complaint with the US Dept. Of Education. We know we

> can't make up for time lost, but at least if enough people complain the

> schools might be forced to handle things differently.

>

> Lynn Nordseth

>

>

[Guest guest]

If you can make a petition we can all sign it and back you including

all the Lyme Docs.

Suzanne

On May 21, 2010, at 10:03 PM, Farrell wrote:

> Lynn,

> I am sorry you are going through this as well. Is there an easy way

> to make

> a complaint. I complained to a guy at VDOE and he was really nice

> but what

> needs to happen is either mediation or due process. He sent me all

> these

> brochures and to do either takes lots of paperwork and does not

> sound at all

> like they will do anything. I have always thought that if I hit it

> where

> they hurt (Special Ed funding), it would make more of an impression.

> Here

> in Fairfax it is like a Good ole' Boys network and everybody just

> agrees

> with what the schools decide. I have talked or left messages with

> everyone

> and it has gone no where. My husband wants me to go on 7 on your

> side, (the

> news station). I have decided I would rather die before I sit in

> another

> IEP meeting, and I have two teens going through this. It makes me

> sick to

> think that these are the people that are in charge of most of the

> kids, most

> of the time. I do not trust them at all.

> Thanks for responding,

>

>

> On Fri, May 21, 2010 at 7:10 AM, Rusty N <rnordseth@...> wrote:

>

> >

> >

> > ,

> >

> > Reading your post, it sounded like I could have written it myself,

> except

> > we're in Loudoun Co. I get so angry at the blatant discrimination

> by the

> > school! We've filed a complaint with the US Dept. Of Education. We

> know we

> > can't make up for time lost, but at least if enough people

> complain the

> > schools might be forced to handle things differently.

> >

> > Lynn Nordseth

> >

> >

[Guest guest]

My heart and prayers go out to all of you who are dealing with issues with your

school system. Our school did not believe my 2 children have Lyme so when they

were to sick to attend school we decided to homeschool them both. My son had an

IEP that they pushed us to change to a 504 plan. Needless to say we are living

every parents worst nightmare. Once we pulled our kids and were approved for

homeschooling we received a notice in the mail that we were being prosecuted by

the State OF Ohio for contributing to the deliquency of a minor and unruliness

of a minor, a CRIMINAL sentence which carries jail time. The school sent the

case to the Attendance Officer who then told us we had nothing to worry about,

then he turned it over to the juevinle court system. We knew where it all came

from ONE PERSON at the school that we had issues with because she never has ever

believed our kids were sick with LYME. This one person pulled info. off the

internet about Dr. J who is my kids Doc and then tried to question us about if

our kids really even had Lyme. So now we are defending our self and had to hire

a lawyer who has told us this cost us up to $30,000 for the 2 day trial they

have set. So my advice is do not trust that your school has your kids best

interest in mind cause it normally is not the case. I have 3 other children who

attend the same school yet they have no attendance issues yet they think I just

allowed my other 2 kids to stay home for no reason. At 3 different time my son

(13)was so sick he couldnt even walk or stand on his own, to top if off had a

Doc excuse for everyday he missed. But that wasnt good enough for them.

I will pray for you all, I know God will see us all trough.

And I'm sure they were really happy to hear that my daughter's western Blot was

positive. NOT!! They look like a fool now but its to late. The damage is

already done. I had to leave my job making $22 an hr to stay home with my kids

cause they are so sick.

GOD BLESS YOU ALL

> >

> > >

> > >

> > > ,

> > >

> > > Reading your post, it sounded like I could have written it myself,

> > except

> > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > by the

> > > school! We've filed a complaint with the US Dept. Of Education. We

> > know we

> > > can't make up for time lost, but at least if enough people

> > complain the

> > > schools might be forced to handle things differently.

> > >

> > > Lynn Nordseth

> > >

> > >

[Guest guest]

Suzanne,

Are you saying to make a petition to the U.S. Department of Education (maybe

Special Education)?

It really amazes me that in my school district they leave it up to the

individual schools to decide what to do. They act like we are the only ones

with this problem, they ignore the letters from the doctors, and they can

not understand how it effects the child. I know that some of the kids in our

district are getting help, even we got help at one point, but then in our

school the administrators took over and everything that worked was pulled.

If I was able to get to the teachers first they would work with the tutors,

but if the school found out they would demand more. Now unfortunately it is

almost like they convince the teachers to not work with us, or pick teachers

that they can control. The biggest complaint I have had is that they will

not let the tutors teach. The tutors (who are teachers in this district),

are required to have the girls do whatever the assigned teacher sends them.

It would make so much more sense to have the teachers send the curriculum,

test and quizzes, and let the tutors teach whatever way works for the girls

to pass the assessments, have them take the assessments and let that be the

grades. All the busy work is just delaying what the girls need to learn.

The tutors are not allowed to teach, there is not enough time, they are only

couriers. Plus in our situation the school has delayed many times by not

giving us tutors.

There should be a designated program that is set up for these ill students

that allows them to learn what is needed and move on. There should not be

deadlines and as long as they pass the tests and show progression they can

move on. I have an 18 year old that has attempted 10th grade three times and

she still does not have grades for first quarter. She should be graduating

today and it is the school that has delayed everything. My advocating has

just made them dig their heals in harder.

It really is a shame that these are the people that should be mentoring our

kids and instead are robbing them of their education. I could go on and on

about how we have asked for help and instead have been told we are already

getting it. I have email after email that just shows how vague and

unresponsive the help has been, but I can not get anyone to listen to me.

Like they say, You don't get it until you get it. This is so true and

unfortunately I believe they will get it one day and it breaks my heart that

many more will suffer until that happens. My girls truly want to be able to

learn and get ahead, but they have been treated like they have done

something wrong and are home doing nothing and should be held accountable

for all the work.

Most of our tutors have been great, but even they feel like they have no

voice when it comes to advocating for my girls. That's a real shame in

itself. They do not even trust their own teachers.

On Sat, May 22, 2010 at 3:15 PM, Suzanne <suzlwilliams@...>wrote:

> If you can make a petition we can all sign it and back you including

> all the Lyme Docs.

> Suzanne

>

> On May 21, 2010, at 10:03 PM, Farrell wrote:

>

> > Lynn,

> > I am sorry you are going through this as well. Is there an easy way

> > to make

> > a complaint. I complained to a guy at VDOE and he was really nice

> > but what

> > needs to happen is either mediation or due process. He sent me all

> > these

> > brochures and to do either takes lots of paperwork and does not

> > sound at all

> > like they will do anything. I have always thought that if I hit it

> > where

> > they hurt (Special Ed funding), it would make more of an impression.

> > Here

> > in Fairfax it is like a Good ole' Boys network and everybody just

> > agrees

> > with what the schools decide. I have talked or left messages with

> > everyone

> > and it has gone no where. My husband wants me to go on 7 on your

> > side, (the

> > news station). I have decided I would rather die before I sit in

> > another

> > IEP meeting, and I have two teens going through this. It makes me

> > sick to

> > think that these are the people that are in charge of most of the

> > kids, most

> > of the time. I do not trust them at all.

> > Thanks for responding,

> >

> >

> > On Fri, May 21, 2010 at 7:10 AM, Rusty N <rnordseth@...> wrote:

> >

> > >

> > >

> > > ,

> > >

> > > Reading your post, it sounded like I could have written it myself,

> > except

> > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > by the

> > > school! We've filed a complaint with the US Dept. Of Education. We

> > know we

> > > can't make up for time lost, but at least if enough people

> > complain the

> > > schools might be forced to handle things differently.

> > >

> > > Lynn Nordseth

> > >

> > >

[Guest guest]

Charlotte,

Thank you. I think I have the current law and it clearly says that the

tutors can modify and grade the curriculum. My school says that yes the

tutors can teach anyway they want but they still have to have the student

complete the paperwork that the teachers of record require. Some of it has

been modified by the teachers, but they still are requiring allot that is

not necessary to get the children through. I have argued this until I was

blue and they always seem to go around the law. I have gone up to the

Assistant superintendent of my area and they just put me back in touch with

the same people that have been unsupported in the past. We have IEP but it

is clear that they do not understand the Individual of the I in IEP. I want

my girls to learn, and unfortunately because of their brain fog and short

term memories it has been a struggle, but if they would let the tutors teach

to the assessments then it would work. What are the alternatives? Dropping

out or getting their GED, that is not the schools teaching them. The sad

part is that I know my girls already had a good basis on their education.

We had them in private schools up until 9th grade and they were not only

good students, but athlete's as well. Too bad they still can not play

sports, because I know for a fact if they were helping the school

athletically, we would be getting anything we asked for.

One of our tutors is the teacher of record as well and she has been able to

modify the curriculum and it is working great. As a matter of fact my

daughter is getting almost the best grade in her class on all the

assessments and she is still doing projects, but just not as much. This

tutor has told me that in her 12th grade classes there are a few students

that really can not read but the school has past them on because of sports.

How sad is that. To deprive my ill children a chance to get ahead and

maybe hold on to some of their self esteem, the schools are instead making

it so difficult that they are just hoping we go away. This is after we had

to spend over $20,000.00 and hire a lawyer just to get them to agree to

test for the IEP which we finally received. We have also had to endure

having to go to court for truancy when the school denied homebound, and the

school called Child Protective Services on us for truancy when we had the

tutors that were coming to our house. It has truly been a nightmare that we

can not get out of.

On Sat, May 22, 2010 at 4:47 PM, CT <iamwhimsy@...> wrote:

>

>

> Every state has laws regarding homebound schooling and there is federal law

> as well.

>

> If you wish to send me the state you are in, I will look up the info on the

> laws for you and assist however I'm able. I've helped with advocating for

> several friends who live out-of-state from me.

>

> Charlotte

> iamwhimsy@... <iamwhimsy%40gmail.com>

> http://whimsy.t35.com

>

> Re: [ ] Angry

>

> Suzanne,

> Are you saying to make a petition to the U.S. Department of Education

> (maybe

> Special Education)?

> It really amazes me that in my school district they leave it up to the

> individual schools to decide what to do. They act like we are the only ones

> with this problem, they ignore the letters from the doctors, and they can

> not understand how it effects the child. I know that some of the kids in

> our

> district are getting help, even we got help at one point, but then in our

> school the administrators took over and everything that worked was pulled.

> If I was able to get to the teachers first they would work with the tutors,

> but if the school found out they would demand more. Now unfortunately it is

> almost like they convince the teachers to not work with us, or pick

> teachers

> that they can control. The biggest complaint I have had is that they will

> not let the tutors teach. The tutors (who are teachers in this district),

> are required to have the girls do whatever the assigned teacher sends them.

> It would make so much more sense to have the teachers send the curriculum,

> test and quizzes, and let the tutors teach whatever way works for the girls

> to pass the assessments, have them take the assessments and let that be the

> grades. All the busy work is just delaying what the girls need to learn.

> The tutors are not allowed to teach, there is not enough time, they are

> only

> couriers. Plus in our situation the school has delayed many times by not

> giving us tutors.

>

> There should be a designated program that is set up for these ill students

> that allows them to learn what is needed and move on. There should not be

> deadlines and as long as they pass the tests and show progression they can

> move on. I have an 18 year old that has attempted 10th grade three times

> and

> she still does not have grades for first quarter. She should be graduating

> today and it is the school that has delayed everything. My advocating has

> just made them dig their heals in harder.

> It really is a shame that these are the people that should be mentoring our

> kids and instead are robbing them of their education. I could go on and on

> about how we have asked for help and instead have been told we are already

> getting it. I have email after email that just shows how vague and

> unresponsive the help has been, but I can not get anyone to listen to me.

>

> Like they say, You don't get it until you get it. This is so true and

> unfortunately I believe they will get it one day and it breaks my heart

> that

> many more will suffer until that happens. My girls truly want to be able to

> learn and get ahead, but they have been treated like they have done

> something wrong and are home doing nothing and should be held accountable

> for all the work.

>

> Most of our tutors have been great, but even they feel like they have no

> voice when it comes to advocating for my girls. That's a real shame in

> itself. They do not even trust their own teachers.

>

> On Sat, May 22, 2010 at 3:15 PM, Suzanne

<suzlwilliams@...<suzlwilliams%40>

> >wrote:

>

> > If you can make a petition we can all sign it and back you including

> > all the Lyme Docs.

> > Suzanne

> >

> > On May 21, 2010, at 10:03 PM, Farrell wrote:

> >

> > > Lynn,

> > > I am sorry you are going through this as well. Is there an easy way

> > > to make

> > > a complaint. I complained to a guy at VDOE and he was really nice

> > > but what

> > > needs to happen is either mediation or due process. He sent me all

> > > these

> > > brochures and to do either takes lots of paperwork and does not

> > > sound at all

> > > like they will do anything. I have always thought that if I hit it

> > > where

> > > they hurt (Special Ed funding), it would make more of an impression.

> > > Here

> > > in Fairfax it is like a Good ole' Boys network and everybody just

> > > agrees

> > > with what the schools decide. I have talked or left messages with

> > > everyone

> > > and it has gone no where. My husband wants me to go on 7 on your

> > > side, (the

> > > news station). I have decided I would rather die before I sit in

> > > another

> > > IEP meeting, and I have two teens going through this. It makes me

> > > sick to

> > > think that these are the people that are in charge of most of the

> > > kids, most

> > > of the time. I do not trust them at all.

> > > Thanks for responding,

> > >

> > >

> > > On Fri, May 21, 2010 at 7:10 AM, Rusty N

<rnordseth@...<rnordseth%40>>

> wrote:

> > >

> > > >

> > > >

> > > > ,

> > > >

> > > > Reading your post, it sounded like I could have written it myself,

> > > except

> > > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > > by the

> > > > school! We've filed a complaint with the US Dept. Of Education. We

> > > know we

> > > > can't make up for time lost, but at least if enough people

> > > complain the

> > > > schools might be forced to handle things differently.

> > > >

> > > > Lynn Nordseth

> > > >

> > > >

[Guest guest]

Laina ~

Email me directly what exactly you're having trouble with. I'm researching the

specifics of RI Dept of Ed laws now, and will do whatever I can to help you.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

Re: [ ] Angry

Charlotte,

Are you familiar w/ the law in RI?

:)Laina

> >

> > >

> > >

> > > ,

> > >

> > > Reading your post, it sounded like I could have written it myself,

> > except

> > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > by the

> > > school! We've filed a complaint with the US Dept. Of Education. We

> > know we

> > > can't make up for time lost, but at least if enough people

> > complain the

> > > schools might be forced to handle things differently.

> > >

> > > Lynn Nordseth

> > >

> > >

[Guest guest]

This is unbelievable...

Sent from iPhone

On May 22, 2010, at 3:57 PM, " spiritliftersonline " <michellerwood@...

> wrote:

> My heart and prayers go out to all of you who are dealing with

> issues with your school system. Our school did not believe my 2

> children have Lyme so when they were to sick to attend school we

> decided to homeschool them both. My son had an IEP that they pushed

> us to change to a 504 plan. Needless to say we are living every

> parents worst nightmare. Once we pulled our kids and were approved

> for homeschooling we received a notice in the mail that we were

> being prosecuted by the State OF Ohio for contributing to the

> deliquency of a minor and unruliness of a minor, a CRIMINAL sentence

> which carries jail time. The school sent the case to the Attendance

> Officer who then told us we had nothing to worry about, then he

> turned it over to the juevinle court system. We knew where it all

> came from ONE PERSON at the school that we had issues with because

> she never has ever believed our kids were sick with LYME. This one

> person pulled info. off the internet about Dr. J who is my kids Doc

> and then tried to question us about if our kids really even had

> Lyme. So now we are defending our self and had to hire a lawyer who

> has told us this cost us up to $30,000 for the 2 day trial they have

> set. So my advice is do not trust that your school has your kids

> best interest in mind cause it normally is not the case. I have 3

> other children who attend the same school yet they have no

> attendance issues yet they think I just allowed my other 2 kids to

> stay home for no reason. At 3 different time my son (13)was so sick

> he couldnt even walk or stand on his own, to top if off had a Doc

> excuse for everyday he missed. But that wasnt good enough for them.

> I will pray for you all, I know God will see us all trough.

> And I'm sure they were really happy to hear that my daughter's

> western Blot was positive. NOT!! They look like a fool now but its

> to late. The damage is already done. I had to leave my job making

> $22 an hr to stay home with my kids cause they are so sick.

> GOD BLESS YOU ALL

>

>

> > >

> > > >

> > > >

> > > > ,

> > > >

> > > > Reading your post, it sounded like I could have written it

> myself,

> > > except

> > > > we're in Loudoun Co. I get so angry at the blatant

> discrimination

> > > by the

> > > > school! We've filed a complaint with the US Dept. Of

> Education. We

> > > know we

> > > > can't make up for time lost, but at least if enough people

> > > complain the

> > > > schools might be forced to handle things differently.

> > > >

> > > > Lynn Nordseth

> > > >

> > > >

[Guest guest]

That was my husnband's first reaction but then we were worried about our other 3

kids in the school system which is two of my brothers children. He died of

brain cancer in oct so I dont want them to suffer by anyone at the school taking

anything out on them.

We have so many teachers and staff we are friends with and they all wrote

letters on our behalf. Two of them were my son's tutor's who used to come to

our home so they know what kind of parents we are along with how sick our kids

truly are.

It's sad cause all it did was make things even harder on my son cause he thinks

its all his fault for being so sick. My husband and I are doing to the school

board once its all done to make sure it doesnt happen to anyone else. I feel

they need to know what she has done to our family cause know I'm terrified to

even think of putting them back in school for fear of the end result if they

miss any school.

--

R. Wood

michellerwood@...

Happiness keeps you sweet, Trials keep you strong, Sorrows Keep you Human,

Failures keep you humble, Success keeps you glowing, but only GOD keeps you

Going!

---- Suzanne <suzlwilliams@...> wrote:

> I wonder if you counter charged that person for harassment if that

> would have made a difference in your case? Why can't people mind

> their own business?

>

> Suzanne

>

> On May 22, 2010, at 2:57 PM, spiritliftersonline wrote:

>

> > My heart and prayers go out to all of you who are dealing with

> > issues with your school system. Our school did not believe my 2

> > children have Lyme so when they were to sick to attend school we

> > decided to homeschool them both. My son had an IEP that they pushed

> > us to change to a 504 plan. Needless to say we are living every

> > parents worst nightmare. Once we pulled our kids and were approved

> > for homeschooling we received a notice in the mail that we were

> > being prosecuted by the State OF Ohio for contributing to the

> > deliquency of a minor and unruliness of a minor, a CRIMINAL sentence

> > which carries jail time. The school sent the case to the Attendance

> > Officer who then told us we had nothing to worry about, then he

> > turned it over to the juevinle court system. We knew where it all

> > came from ONE PERSON at the school that we had issues with because

> > she never has ever believed our kids were sick with LYME. This one

> > person pulled info. off the internet about Dr. J who is my kids Doc

> > and then tried to question us about if our kids really even had

> > Lyme. So now we are defending our self and had to hire a lawyer who

> > has told us this cost us up to $30,000 for the 2 day trial they have

> > set. So my advice is do not trust that your school has your kids

> > best interest in mind cause it normally is not the case. I have 3

> > other children who attend the same school yet they have no

> > attendance issues yet they think I just allowed my other 2 kids to

> > stay home for no reason. At 3 different time my son (13)was so sick

> > he couldnt even walk or stand on his own, to top if off had a Doc

> > excuse for everyday he missed. But that wasnt good enough for them.

> > I will pray for you all, I know God will see us all trough.

> > And I'm sure they were really happy to hear that my daughter's

> > western Blot was positive. NOT!! They look like a fool now but its

> > to late. The damage is already done. I had to leave my job making

> > $22 an hr to stay home with my kids cause they are so sick.

> > GOD BLESS YOU ALL

> >

> >

> > > >

> > > > >

> > > > >

> > > > > ,

> > > > >

> > > > > Reading your post, it sounded like I could have written it

> > myself,

> > > > except

> > > > > we're in Loudoun Co. I get so angry at the blatant

> > discrimination

> > > > by the

> > > > > school! We've filed a complaint with the US Dept. Of

> > Education. We

> > > > know we

> > > > > can't make up for time lost, but at least if enough people

> > > > complain the

> > > > > schools might be forced to handle things differently.

> > > > >

> > > > > Lynn Nordseth

> > > > >

> > > > >

[Guest guest]

I didn't think this was possible either, but Dr. J went along with the

school.I'm pretty angry over this myself!

Hugs

Judy

________________________________

From: CT <iamwhimsy@...>

Sent: Sun, May 23, 2010 9:08:25 PM

Subject: Re: [ ] Angry

 

No, the school does not have the power to decide what meds your child is on.

They do not have a medical degree, they can not override a dr.

When I and the dr requested homebound schooling for my daughter, the only

requirement by law that we had to provide was a letter from the dr stating the

dx, the prognosis and the estimated time frame. When the spec ed director for

the district (who I think has it out for me ) ) requested that I sign an

information release so that they could talk to the dr. I very specifically wrote

on the release that the dr could tell them the dx, the prognosis and the

estimated time frame for treatment. No other information could be discussed (I

didn't have to release any other info, so I wouldn't). Now that the spec ed

director knows that I am fully aware of the law and will not give them anything

other than what is specifically required by law, I haven't had any more issues

with her.

My daughter's caseworker is great and I've never had issues with her through all

this.

Most states limit what you have to release (if anything) to get an IEP, this is

in terms of medical dr, psych dr, therapist, etc. I don't have to allow them to

speak to my children's dr's at all, other than the basic info required for the

homebound instruction. For their IEP's, the doctors never have to be contacted.

It pays to know your state laws in addition to the federal law.

I have found it helpful to always have a binder with me that has a full

print-out of IDEA in it, along with all our state requirements. I have

highlighted the areas that are most pertinent to our situations and I take this

to any and all meetings with the school, along with my binder for the specific

child in question (that binder has current IEP, all school evals, pharmacy

printouts of all side effects for each med my child is on, recent report cards,

and a few other things that may be of importance in meetings).

In addition, rather than list all the meds my child is on for their emergency

card, I now type up a list, put it in a sealed envelope and mark it " to be

opened by First Responders only " . This way the information is there in case of

an emergency, but the school personnel can't see what meds my kids are on. I

discovered the hard way when I tried to be a good parent and gave the school a

list of all the meds, dosages, and schedule. My daughter was on a high dose of

vicodin and the district spec ed director called CPS.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

Re: [ ] Angry

My heart and prayers go out to all of you who are dealing with issues with your

school system. Our school did not believe my 2 children have Lyme so when they

were to sick to attend school we decided to homeschool them both. My son had an

IEP that they pushed us to change to a 504 plan. Needless to say we are living

every parents worst nightmare. Once we pulled our kids and were approved for

homeschooling we received a notice in the mail that we were being prosecuted by

the State OF Ohio for contributing to the deliquency of a minor and unruliness

of a minor, a CRIMINAL sentence which carries jail time. The school sent the

case to the Attendance Officer who then told us we had nothing to worry about,

then he turned it over to the juevinle court system. We knew where it all came

from ONE PERSON at the school that we had issues with because she never has ever

believed our kids were sick with LYME. This one person pulled info. off the

internet about Dr. J

who is my kids Doc and then tried to question us about if our kids really even

had Lyme. So now we are defending our self and had to hire a lawyer who has told

us this cost us up to $30,000 for the 2 day trial they have set. So my advice is

do not trust that your school has your kids best interest in mind cause it

normally is not the case. I have 3 other children who attend the same school yet

they have no attendance issues yet they think I just allowed my other 2 kids to

stay home for no reason. At 3 different time my son (13)was so sick he couldnt

even walk or stand on his own, to top if off had a Doc excuse for everyday he

missed. But that wasnt good enough for them.

I will pray for you all, I know God will see us all trough.

And I'm sure they were really happy to hear that my daughter's western Blot was

positive. NOT!! They look like a fool now but its to late. The damage is already

done. I had to leave my job making $22 an hr to stay home with my kids cause

they are so sick.

GOD BLESS YOU ALL

> >

> > >

> > >

> > > ,

> > >

> > > Reading your post, it sounded like I could have written it myself,

> > except

> > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > by the

> > > school! We've filed a complaint with the US Dept. Of Education. We

> > know we

> > > can't make up for time lost, but at least if enough people

> > complain the

> > > schools might be forced to handle things differently.

> > >

> > > Lynn Nordseth

> > >

> > >

[Guest guest]

,

I am from Virginia and we have elected school board members. We elect

them.. If you can get to them then you have every right to have your say .

Also if you can document that the school is treating the rest of your family

wrong because of your advocating for one of your children then you really

have a case. In my situation, my two girls are so close in age that

everything that happens to one happens to the other. There is no

discrimination. It is all bad. We too have all the support from tutors

etc., but they can only go so far because it may effect their jobs, and I

understand.

What we really need to do is some type of media thing in all states at the

same time that, affects how they do business. It has to undermine their

plan. It has to cost them so that they have to take an action. I just have

not figured out what that is. I think probably if we did not have ill

children the inhuman situation we are in would probably drive us to act and

we would have the energy to do something about it. I am constantly living

on zero sleep and so much stress that I second guess everything I feel I

need to do and it all becomes more of an issue.

There has to be something we can do. Maybe we all need to contact ilads

and see if they have a lawyer that wants to take on the United States

Education Department. I would gladly pay a fee if I knew the person working

for me understood exactly what was going on. Everyone so far we have hired

will get us to a certain place, and then throw up their hands. Normal

people, lawyers do not understand. There is still this box that every

disabled person fits in that Lyme patients do not. They are disabled now,

but they may not be and they may not have been before, and the schools do

not have a box for us. They are use to working with students that will

always be behind and they need to find a place for them, or they are use to

students that become ill and will never get well. Although all of this is

sad and to just think that these families are going through what we are is

incomprehensible, but our kids are different. With treatment they will get

better (at least we hope),and go on to lead productive lives and need their

education to move on. We need to get them through this void they are in so

they can heal.

Is that horrible that I think this way?

On Mon, May 24, 2010 at 1:25 PM, <michellerwood@...> wrote:

>

>

> That was my husnband's first reaction but then we were worried about our

> other 3 kids in the school system which is two of my brothers children. He

> died of brain cancer in oct so I dont want them to suffer by anyone at the

> school taking anything out on them.

> We have so many teachers and staff we are friends with and they all wrote

> letters on our behalf. Two of them were my son's tutor's who used to come to

> our home so they know what kind of parents we are along with how sick our

> kids truly are.

> It's sad cause all it did was make things even harder on my son cause he

> thinks its all his fault for being so sick. My husband and I are doing to

> the school board once its all done to make sure it doesnt happen to anyone

> else. I feel they need to know what she has done to our family cause know

> I'm terrified to even think of putting them back in school for fear of the

> end result if they miss any school.

> --

> R. Wood

> michellerwood@... <michellerwood%40windstream.net>

> Happiness keeps you sweet, Trials keep you strong, Sorrows Keep you Human,

> Failures keep you humble, Success keeps you glowing, but only GOD keeps you

> Going!

>

>

> ---- Suzanne <suzlwilliams@... <suzlwilliams%40>>

> wrote:

> > I wonder if you counter charged that person for harassment if that

> > would have made a difference in your case? Why can't people mind

> > their own business?

> >

> > Suzanne

> >

> > On May 22, 2010, at 2:57 PM, spiritliftersonline wrote:

> >

> > > My heart and prayers go out to all of you who are dealing with

> > > issues with your school system. Our school did not believe my 2

> > > children have Lyme so when they were to sick to attend school we

> > > decided to homeschool them both. My son had an IEP that they pushed

> > > us to change to a 504 plan. Needless to say we are living every

> > > parents worst nightmare. Once we pulled our kids and were approved

> > > for homeschooling we received a notice in the mail that we were

> > > being prosecuted by the State OF Ohio for contributing to the

> > > deliquency of a minor and unruliness of a minor, a CRIMINAL sentence

> > > which carries jail time. The school sent the case to the Attendance

> > > Officer who then told us we had nothing to worry about, then he

> > > turned it over to the juevinle court system. We knew where it all

> > > came from ONE PERSON at the school that we had issues with because

> > > she never has ever believed our kids were sick with LYME. This one

> > > person pulled info. off the internet about Dr. J who is my kids Doc

> > > and then tried to question us about if our kids really even had

> > > Lyme. So now we are defending our self and had to hire a lawyer who

> > > has told us this cost us up to $30,000 for the 2 day trial they have

> > > set. So my advice is do not trust that your school has your kids

> > > best interest in mind cause it normally is not the case. I have 3

> > > other children who attend the same school yet they have no

> > > attendance issues yet they think I just allowed my other 2 kids to

> > > stay home for no reason. At 3 different time my son (13)was so sick

> > > he couldnt even walk or stand on his own, to top if off had a Doc

> > > excuse for everyday he missed. But that wasnt good enough for them.

> > > I will pray for you all, I know God will see us all trough.

> > > And I'm sure they were really happy to hear that my daughter's

> > > western Blot was positive. NOT!! They look like a fool now but its

> > > to late. The damage is already done. I had to leave my job making

> > > $22 an hr to stay home with my kids cause they are so sick.

> > > GOD BLESS YOU ALL

> > >

> > >

> > > > >

> > > > > >

> > > > > >

> > > > > > ,

> > > > > >

> > > > > > Reading your post, it sounded like I could have written it

> > > myself,

> > > > > except

> > > > > > we're in Loudoun Co. I get so angry at the blatant

> > > discrimination

> > > > > by the

> > > > > > school! We've filed a complaint with the US Dept. Of

> > > Education. We

> > > > > know we

> > > > > > can't make up for time lost, but at least if enough people

> > > > > complain the

> > > > > > schools might be forced to handle things differently.

> > > > > >

> > > > > > Lynn Nordseth

> > > > > >

> > > > > >

[Guest guest]

Not knowing the entire situation on how and why Dr. J " went along " with the

school, I'm wondering if perhaps the feedback he was hearing from the school,

concern for the child at school while on the medication and how much of a

reduction in ability to complete schoolwork, could of been the reasoning behind

the withdrawal of the meds. Just a thought, and perhaps totally off base.

It's extremely frustrating dealing with the unknowning schools, friends, other

parents, etc who just don't understand the nature of this disease and how much

it takes out of our kids (and in turn us). Especially when it looks as though

they are doing just fine. My daughter will use up all her " energy points " for a

couple of days to spend a few hours with a friend, so everyone who sees her then

thinks that she isn't sick and is doing just fine. When in reality, she knows

what those few hours are going to cost her in terms of no energy, constant

fatigue, pain, etc for the next couple of days, and she chooses to push herself

to have that time so that she can be " normal " for a short time.

It's hard to convince people that in reality, she's struggling and is in a lot

of pain, has diminished cognitive abilities, and her body is " turning on her "

(deformed joints, tachychardia, etc).

~sigh~ We can only continue to educate and advocate.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

Re: [ ] Angry

My heart and prayers go out to all of you who are dealing with issues with

your school system. Our school did not believe my 2 children have Lyme so when

they were to sick to attend school we decided to homeschool them both. My son

had an IEP that they pushed us to change to a 504 plan. Needless to say we are

living every parents worst nightmare. Once we pulled our kids and were approved

for homeschooling we received a notice in the mail that we were being prosecuted

by the State OF Ohio for contributing to the deliquency of a minor and

unruliness of a minor, a CRIMINAL sentence which carries jail time. The school

sent the case to the Attendance Officer who then told us we had nothing to worry

about, then he turned it over to the juevinle court system. We knew where it all

came from ONE PERSON at the school that we had issues with because she never has

ever believed our kids were sick with LYME. This one person pulled info. off the

internet about Dr. J

who is my kids Doc and then tried to question us about if our kids really even

had Lyme. So now we are defending our self and had to hire a lawyer who has told

us this cost us up to $30,000 for the 2 day trial they have set. So my advice is

do not trust that your school has your kids best interest in mind cause it

normally is not the case. I have 3 other children who attend the same school yet

they have no attendance issues yet they think I just allowed my other 2 kids to

stay home for no reason. At 3 different time my son (13)was so sick he couldnt

even walk or stand on his own, to top if off had a Doc excuse for everyday he

missed. But that wasnt good enough for them.

I will pray for you all, I know God will see us all trough.

And I'm sure they were really happy to hear that my daughter's western Blot

was positive. NOT!! They look like a fool now but its to late. The damage is

already done. I had to leave my job making $22 an hr to stay home with my kids

cause they are so sick.

GOD BLESS YOU ALL

> >

> > >

> > >

> > > ,

> > >

> > > Reading your post, it sounded like I could have written it myself,

> > except

> > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > by the

> > > school! We've filed a complaint with the US Dept. Of Education. We

> > know we

> > > can't make up for time lost, but at least if enough people

> > complain the

> > > schools might be forced to handle things differently.

> > >

> > > Lynn Nordseth

> > >

> > >

[Guest guest]

I am wondering why because lyme is what most doctors will call Chronic Fatigue

Syndrome - and the school will listen to that why not have both diagnosed by the

doctor so we do not have to fight this on top of the other? 

I am in a terrible spot right now - my 15 year olds father (who doesn't

understand) doesn't believe in Chronic Lyme disease - (even though his

girlfriend is the one who figured this out) now they are against me because they

hate me - but anyways they have gone into the school system and told them that

my daughter isnt not sick and she doesn't have CLD...........even have made the

doctor drop us as patients...........(life ending) but at this time because she

misses soooooo much school the school feels they have no supporting doctor for

her EIP (use to be 504) - she sees another doctor in the " system " that just

recently diagnosed my 11 year old with Chronic Fatigue Syndrome two weeks ago -

and now is going to see my 15 year old in a few weeks.  I feel that everyone is

out to get me............can they take my daughter away because she has missed

so much school?  She just seen a migraine specialist yesterday and this lady

states that migraines will not

make fatigue like Sam has and says migraines go along with IBS - IBS specialist

states that IBS will not make this much fatigue..........the CFS specialist says

headaches and IBS do go along with fatigue....it just all makes me sick - they

act like I am lying about my child being ill - and her father pushing that I

just let her stay home.....even though he has only has about 1-5% placement with

her in his life!!  Why do we have to stress about sick kids and then stress

about school - I would give my life up in a heartbeat if my child could live a

" normal " life............why is this world so sick!!!!!

I sent the special Ed person in charge of my daughters case an email - and she

sent it to the school nurse and my child's pediatrician behind my

back..........nothing in it was bad but when we visited the doctor yesterday she

said to me oh I got your letter - I was like what letter?  And then she stated

what was in it and I told her that was an email I sent to school PE

teacher..........

Hate this - why would anyone " want " to be in this situation.............

Diane

________________________________

From: Farrell <lesliebfarrell@...>

Sent: Mon, May 24, 2010 9:17:18 PM

Subject: Re: [ ] Angry

 

,

I am from Virginia and we have elected school board members. We elect

them.. If you can get to them then you have every right to have your say .

Also if you can document that the school is treating the rest of your family

wrong because of your advocating for one of your children then you really

have a case. In my situation, my two girls are so close in age that

everything that happens to one happens to the other. There is no

discrimination. It is all bad. We too have all the support from tutors

etc., but they can only go so far because it may effect their jobs, and I

understand.

What we really need to do is some type of media thing in all states at the

same time that, affects how they do business. It has to undermine their

plan. It has to cost them so that they have to take an action. I just have

not figured out what that is. I think probably if we did not have ill

children the inhuman situation we are in would probably drive us to act and

we would have the energy to do something about it. I am constantly living

on zero sleep and so much stress that I second guess everything I feel I

need to do and it all becomes more of an issue.

There has to be something we can do. Maybe we all need to contact ilads

and see if they have a lawyer that wants to take on the United States

Education Department. I would gladly pay a fee if I knew the person working

for me understood exactly what was going on. Everyone so far we have hired

will get us to a certain place, and then throw up their hands. Normal

people, lawyers do not understand. There is still this box that every

disabled person fits in that Lyme patients do not. They are disabled now,

but they may not be and they may not have been before, and the schools do

not have a box for us. They are use to working with students that will

always be behind and they need to find a place for them, or they are use to

students that become ill and will never get well. Although all of this is

sad and to just think that these families are going through what we are is

incomprehensible, but our kids are different. With treatment they will get

better (at least we hope),and go on to lead productive lives and need their

education to move on. We need to get them through this void they are in so

they can heal.

Is that horrible that I think this way?

On Mon, May 24, 2010 at 1:25 PM, <michellerwood@...> wrote:

>

>

> That was my husnband's first reaction but then we were worried about our

> other 3 kids in the school system which is two of my brothers children. He

> died of brain cancer in oct so I dont want them to suffer by anyone at the

> school taking anything out on them.

> We have so many teachers and staff we are friends with and they all wrote

> letters on our behalf. Two of them were my son's tutor's who used to come to

> our home so they know what kind of parents we are along with how sick our

> kids truly are.

> It's sad cause all it did was make things even harder on my son cause he

> thinks its all his fault for being so sick. My husband and I are doing to

> the school board once its all done to make sure it doesnt happen to anyone

> else. I feel they need to know what she has done to our family cause know

> I'm terrified to even think of putting them back in school for fear of the

> end result if they miss any school.

> --

> R. Wood

> michellerwood@... <michellerwood%40windstream.net>

> Happiness keeps you sweet, Trials keep you strong, Sorrows Keep you Human,

> Failures keep you humble, Success keeps you glowing, but only GOD keeps you

> Going!

>

>

> ---- Suzanne <suzlwilliams@... <suzlwilliams%40>>

> wrote:

> > I wonder if you counter charged that person for harassment if that

> > would have made a difference in your case? Why can't people mind

> > their own business?

> >

> > Suzanne

> >

> > On May 22, 2010, at 2:57 PM, spiritliftersonline wrote:

> >

> > > My heart and prayers go out to all of you who are dealing with

> > > issues with your school system. Our school did not believe my 2

> > > children have Lyme so when they were to sick to attend school we

> > > decided to homeschool them both. My son had an IEP that they pushed

> > > us to change to a 504 plan. Needless to say we are living every

> > > parents worst nightmare. Once we pulled our kids and were approved

> > > for homeschooling we received a notice in the mail that we were

> > > being prosecuted by the State OF Ohio for contributing to the

> > > deliquency of a minor and unruliness of a minor, a CRIMINAL sentence

> > > which carries jail time. The school sent the case to the Attendance

> > > Officer who then told us we had nothing to worry about, then he

> > > turned it over to the juevinle court system. We knew where it all

> > > came from ONE PERSON at the school that we had issues with because

> > > she never has ever believed our kids were sick with LYME. This one

> > > person pulled info. off the internet about Dr. J who is my kids Doc

> > > and then tried to question us about if our kids really even had

> > > Lyme. So now we are defending our self and had to hire a lawyer who

> > > has told us this cost us up to $30,000 for the 2 day trial they have

> > > set. So my advice is do not trust that your school has your kids

> > > best interest in mind cause it normally is not the case. I have 3

> > > other children who attend the same school yet they have no

> > > attendance issues yet they think I just allowed my other 2 kids to

> > > stay home for no reason. At 3 different time my son (13)was so sick

> > > he couldnt even walk or stand on his own, to top if off had a Doc

> > > excuse for everyday he missed. But that wasnt good enough for them.

> > > I will pray for you all, I know God will see us all trough.

> > > And I'm sure they were really happy to hear that my daughter's

> > > western Blot was positive. NOT!! They look like a fool now but its

> > > to late. The damage is already done. I had to leave my job making

> > > $22 an hr to stay home with my kids cause they are so sick.

> > > GOD BLESS YOU ALL

> > >

> > >

> > > > >

> > > > > >

> > > > > >

> > > > > > ,

> > > > > >

> > > > > > Reading your post, it sounded like I could have written it

> > > myself,

> > > > > except

> > > > > > we're in Loudoun Co. I get so angry at the blatant

> > > discrimination

> > > > > by the

> > > > > > school! We've filed a complaint with the US Dept. Of

> > > Education. We

> > > > > know we

> > > > > > can't make up for time lost, but at least if enough people

> > > > > complain the

> > > > > > schools might be forced to handle things differently.

> > > > > >

> > > > > > Lynn Nordseth

> > > > > >

> > > > > >

[Guest guest]

i wouldn't blame dr. j. he is under enormous pressure himself and ultimtely it

is our fight. the school probably put him in a no choice position. we just left

dr. j. i feel very sad but did not have a choice with older daughter and younger

daughter wanted to go elsewhere. hugs

From: jchabot@...

Date: Mon, 24 May 2010 17:17:10 -0700

Subject: Re: [ ] Angry

I didn't think this was possible either, but Dr. J went along with the

school.I'm pretty angry over this myself!

Hugs

Judy

________________________________

From: CT <iamwhimsy@...>

Sent: Sun, May 23, 2010 9:08:25 PM

Subject: Re: [ ] Angry

No, the school does not have the power to decide what meds your child is on.

They do not have a medical degree, they can not override a dr.

When I and the dr requested homebound schooling for my daughter, the only

requirement by law that we had to provide was a letter from the dr stating the

dx, the prognosis and the estimated time frame. When the spec ed director for

the district (who I think has it out for me ) ) requested that I sign an

information release so that they could talk to the dr. I very specifically wrote

on the release that the dr could tell them the dx, the prognosis and the

estimated time frame for treatment. No other information could be discussed (I

didn't have to release any other info, so I wouldn't). Now that the spec ed

director knows that I am fully aware of the law and will not give them anything

other than what is specifically required by law, I haven't had any more issues

with her.

My daughter's caseworker is great and I've never had issues with her through all

this.

Most states limit what you have to release (if anything) to get an IEP, this is

in terms of medical dr, psych dr, therapist, etc. I don't have to allow them to

speak to my children's dr's at all, other than the basic info required for the

homebound instruction. For their IEP's, the doctors never have to be contacted.

It pays to know your state laws in addition to the federal law.

I have found it helpful to always have a binder with me that has a full

print-out of IDEA in it, along with all our state requirements. I have

highlighted the areas that are most pertinent to our situations and I take this

to any and all meetings with the school, along with my binder for the specific

child in question (that binder has current IEP, all school evals, pharmacy

printouts of all side effects for each med my child is on, recent report cards,

and a few other things that may be of importance in meetings).

In addition, rather than list all the meds my child is on for their emergency

card, I now type up a list, put it in a sealed envelope and mark it " to be

opened by First Responders only " . This way the information is there in case of

an emergency, but the school personnel can't see what meds my kids are on. I

discovered the hard way when I tried to be a good parent and gave the school a

list of all the meds, dosages, and schedule. My daughter was on a high dose of

vicodin and the district spec ed director called CPS.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

Re: [ ] Angry

My heart and prayers go out to all of you who are dealing with issues with your

school system. Our school did not believe my 2 children have Lyme so when they

were to sick to attend school we decided to homeschool them both. My son had an

IEP that they pushed us to change to a 504 plan. Needless to say we are living

every parents worst nightmare. Once we pulled our kids and were approved for

homeschooling we received a notice in the mail that we were being prosecuted by

the State OF Ohio for contributing to the deliquency of a minor and unruliness

of a minor, a CRIMINAL sentence which carries jail time. The school sent the

case to the Attendance Officer who then told us we had nothing to worry about,

then he turned it over to the juevinle court system. We knew where it all came

from ONE PERSON at the school that we had issues with because she never has ever

believed our kids were sick with LYME. This one person pulled info. off the

internet about Dr. J

who is my kids Doc and then tried to question us about if our kids really even

had Lyme. So now we are defending our self and had to hire a lawyer who has told

us this cost us up to $30,000 for the 2 day trial they have set. So my advice is

do not trust that your school has your kids best interest in mind cause it

normally is not the case. I have 3 other children who attend the same school yet

they have no attendance issues yet they think I just allowed my other 2 kids to

stay home for no reason. At 3 different time my son (13)was so sick he couldnt

even walk or stand on his own, to top if off had a Doc excuse for everyday he

missed. But that wasnt good enough for them.

I will pray for you all, I know God will see us all trough.

And I'm sure they were really happy to hear that my daughter's western Blot was

positive. NOT!! They look like a fool now but its to late. The damage is already

done. I had to leave my job making $22 an hr to stay home with my kids cause

they are so sick.

GOD BLESS YOU ALL

> >

> > >

> > >

> > > ,

> > >

> > > Reading your post, it sounded like I could have written it myself,

> > except

> > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > by the

> > > school! We've filed a complaint with the US Dept. Of Education. We

> > know we

> > > can't make up for time lost, but at least if enough people

> > complain the

> > > schools might be forced to handle things differently.

> > >

> > > Lynn Nordseth

> > >

> > >

[Guest guest]

Charlotte,

I understand completely. Have you read the " Spoon Theory " which talks about

this issue with using up the energy. It is also hard for us as parents to

see this as well. I know that I have to bite my tongue allot when my oldest

daughter makes plans that I know will later keep her in bed for days. I

have to keep reminding myself that they have lost so much and that we have

to be able to let them live a little. We have a constant fight in our house

at how messy my daughters room is, but she occasionally wants to go out with

a friend. I want her to use that energy getting things back in order, and

she could care less. She has her priorities, and when I remember how tough

it has been I have to step back and let some of the issue slides. When you

get the school involved, there is this guilt that if they are ever seen out

having a little bit of normal life, but have not completed something for

school, how will that look? I hate living this way.

On Mon, May 24, 2010 at 11:53 PM, CT <iamwhimsy@...> wrote:

>

>

> Not knowing the entire situation on how and why Dr. J " went along " with the

> school, I'm wondering if perhaps the feedback he was hearing from the

> school, concern for the child at school while on the medication and how much

> of a reduction in ability to complete schoolwork, could of been the

> reasoning behind the withdrawal of the meds. Just a thought, and perhaps

> totally off base.

>

> It's extremely frustrating dealing with the unknowning schools, friends,

> other parents, etc who just don't understand the nature of this disease and

> how much it takes out of our kids (and in turn us). Especially when it looks

> as though they are doing just fine. My daughter will use up all her " energy

> points " for a couple of days to spend a few hours with a friend, so everyone

> who sees her then thinks that she isn't sick and is doing just fine. When in

> reality, she knows what those few hours are going to cost her in terms of no

> energy, constant fatigue, pain, etc for the next couple of days, and she

> chooses to push herself to have that time so that she can be " normal " for a

> short time.

>

> It's hard to convince people that in reality, she's struggling and is in a

> lot of pain, has diminished cognitive abilities, and her body is " turning on

> her " (deformed joints, tachychardia, etc).

>

> ~sigh~ We can only continue to educate and advocate.

>

>

> Charlotte

> iamwhimsy@... <iamwhimsy%40gmail.com>

> http://whimsy.t35.com

> Re: [ ] Angry

>

> My heart and prayers go out to all of you who are dealing with issues with

> your school system. Our school did not believe my 2 children have Lyme so

> when they were to sick to attend school we decided to homeschool them both.

> My son had an IEP that they pushed us to change to a 504 plan. Needless to

> say we are living every parents worst nightmare. Once we pulled our kids and

> were approved for homeschooling we received a notice in the mail that we

> were being prosecuted by the State OF Ohio for contributing to the

> deliquency of a minor and unruliness of a minor, a CRIMINAL sentence which

> carries jail time. The school sent the case to the Attendance Officer who

> then told us we had nothing to worry about, then he turned it over to the

> juevinle court system. We knew where it all came from ONE PERSON at the

> school that we had issues with because she never has ever believed our kids

> were sick with LYME. This one person pulled info. off the internet about Dr.

> J

> who is my kids Doc and then tried to question us about if our kids really

> even had Lyme. So now we are defending our self and had to hire a lawyer who

> has told us this cost us up to $30,000 for the 2 day trial they have set. So

> my advice is do not trust that your school has your kids best interest in

> mind cause it normally is not the case. I have 3 other children who attend

> the same school yet they have no attendance issues yet they think I just

> allowed my other 2 kids to stay home for no reason. At 3 different time my

> son (13)was so sick he couldnt even walk or stand on his own, to top if off

> had a Doc excuse for everyday he missed. But that wasnt good enough for

> them.

> I will pray for you all, I know God will see us all trough.

> And I'm sure they were really happy to hear that my daughter's western Blot

> was positive. NOT!! They look like a fool now but its to late. The damage is

> already done. I had to leave my job making $22 an hr to stay home with my

> kids cause they are so sick.

> GOD BLESS YOU ALL

>

>

> > >

> > > >

> > > >

> > > > ,

> > > >

> > > > Reading your post, it sounded like I could have written it myself,

> > > except

> > > > we're in Loudoun Co. I get so angry at the blatant discrimination

> > > by the

> > > > school! We've filed a complaint with the US Dept. Of Education. We

> > > know we

> > > > can't make up for time lost, but at least if enough people

> > > complain the

> > > > schools might be forced to handle things differently.

> > > >

> > > > Lynn Nordseth

> > > >

> > > >