Re: Re: tindamax

[Guest guest]

I took compounded tinidazole (tindamax was not available at that time) 1500

mg a day divided into two or three doses for about four months. I found two

doses a day to be more convenient.

It didn't seem to help my Lyme, but I'd had GI problems for 25 years since a

trip to India and all of the many parasite tests had come back negative.

Tinidazole solved the problem.

Kelley

From: " smd " <merrymom1013@...>

Sent: Sunday, January 27, 2008 4:01 PM

Subject: [ ] Re: tindamax

> Anyone using tindamax to treat persistent lyme? If so, how did did your

> kids tolerate it?

> Sue

[Guest guest]

Ive used compounded tinidazole as well and tolerated it very well..it helped

with my Bart and supposed cystic Lyme...for awhile,anyway. ?a couple years ago

Evan tried Tinidazole also and had little effect but tolerated it well. a short

time ago we put Evan (18) on tindamax, and it upset GI balance, gave him bad

headaches ( it can affect CNS stuff) ?and did ZERO for sx so we stopped and

replenished with probiotics.

This is a very individualized thing so you cant really go by others. Some have

had very awful liver enzyme increases with tinidazole in any form, and all

cautions as per Flagyl apply with Tini as well

you may want to check a good site like http://www.drugs.com/pdr/tinidazole.html

It was once touted as less " dangerous " than Flagyll but I really havent found

any study?to prove this.

be well

Finette

[ ] Re: tindamax

Anyone using tindamax to treat persistent lyme? If so, how did did your kids

tolerate it?

Sue

[Guest guest]

Thanks for the feedback. It sounded very dangerous from what I've read, but I

trust her LLMD (as much as you can trust any doctor) My daughter just started

on it 2 days a week. She tolerated week 1 ok, so we shall see.

Sue

[Guest guest]

My son is doing great on Tindamax, twice a week, plus hes on azithro and

cipro..i worry cause its been 5 mos now and no herxing, dont know if thats good

or bad..

>

>

> Hi Elaine,

> I do tell my son constantly this is the lyme giving you these feelings of

> panic and ocd, but 2 minutes later he's saying " Ocd is telling me this "

>

> Where would I get the Pinella? I never heard of this.

>

> Oh boy, so this is going to  get worse when we stop the rifampin too? It

> never ends does it?

>

> I have so much to learn about all of this and he has been sick for so long

> , you would think I would know all of this by now.I better get doing some

> more research.

> My son started the tindamax 2 months ago and has gone downhill ever since.

>

> Thanks so much for the advice. I really like your idea about the bad

> thought list and burning it, etc. That might help my son as well.

> thanks so much!

> Hugs

> judy

>

> -

>

[Guest guest]

how old is your son ??

From: ecckwalk <ecckwalk@...>

Subject: [ ] Re: tindamax

Date: Monday, January 31, 2011, 10:13 PM

 

HI Judy,

I really don't know much about the scans since my sons and I have not had any. I

know others who have had them though. What I understand is that it can show

lesions. I'm not positive but I think that might be some damage, but I'm pretty

sure that the lesions can improve. And, I don't think there have to be lesions

if you have lyme. Probably like everything else, it can be individual.

I'm looking back at my notes from when my son (12) took Tindamax. Five days

after starting he developed a small bullseye rash on his inner thigh. I couldn't

believe it! I took a photo and my dr confirmed it. She said the rash can emerge

anytime during treatment. I was so excited to see it...This was our first

confirmation of lyme since his WB was negative although tested + for Bart. He

was on it for 6 wks and everything else was fine.

In looking back at when I took Tindamax, lots of stuff got stirred-up; heart

palps, anxiety, achy, strange feelings, fatigue, balance, tingling, feeling hot,

rapid heartbeat, etc, but pressure cleared in my head. I think Tindamax is a

hard-hitter. It looks like I took it for 4 mths and during those months I had a

lot of symptoms.

Do you think your son is herxing? Is it psych issues that have gotten worse? For

me, personally and as a mom, those are the WORST to deal with. Not from Tindamax

but my son and I have had the " I think I'm going crazy feeling. " Are you trying

all the detox stuff? Is your dr aware of his reaction?

I'm so sorry.

Elaine

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[Guest guest]

My sons MRI didnt show much, when they gave him the gadolinium (contrast) he

started projectile vomiting, couldnt get any pics...

From: linlai62 <linlai@...>

Subject: [ ] Re: tindamax

Date: Sunday, January 30, 2011, 8:55 PM

We're waiting for a repeat MRI, but the cyst forms are very tiny -- would be

like trying to see Bb bacteria in blood, as they are another bacterial form, so

unlikely to show on an MRI. What the MRI will show is scarring and lesions -- if

they are present, but they won't show anything at the more microscopic level.

And yes, we are very lucky that my girl is doing as well as she is, especially

with going undiagnosed for a year and getting to the level of disability that

was present before treatment began.

> >

> > Hi Everyone,

> > My 9 yr old son has been on tindamax for 2 months now(weekends only) on top

of the zithromax and rifampin, which he has been on for 15 months. He is telling

me that everyday he feels like he is in a dream that he cannot wake up from (

brainfog?) He cannot remember anything anyone says to him. It is taking him

literally 4 hours to do three homework assignments and his emotions are that of

a 2 year old. His ocd and separation aniety  is horrendous. Any thoughts  on

this???

> >  

> > I don't know if I should put him back on the antipsychotics because his ocd

" bad thoughts "  is just constant.

> >  

> > thanks

> > judy

> >

> >

[Guest guest]

He is nine

From: ecckwalk <ecckwalk@...>

Subject: [ ] Re: tindamax

Date: Monday, January 31, 2011, 10:13 PM

 

HI Judy,

I really don't know much about the scans since my sons and I have not had any. I

know others who have had them though. What I understand is that it can show

lesions. I'm not positive but I think that might be some damage, but I'm pretty

sure that the lesions can improve. And, I don't think there have to be lesions

if you have lyme. Probably like everything else, it can be individual.

I'm looking back at my notes from when my son (12) took Tindamax. Five days

after starting he developed a small bullseye rash on his inner thigh. I couldn't

believe it! I took a photo and my dr confirmed it. She said the rash can emerge

anytime during treatment. I was so excited to see it...This was our first

confirmation of lyme since his WB was negative although tested + for Bart. He

was on it for 6 wks and everything else was fine.

In looking back at when I took Tindamax, lots of stuff got stirred-up; heart

palps, anxiety, achy, strange feelings, fatigue, balance, tingling, feeling hot,

rapid heartbeat, etc, but pressure cleared in my head. I think Tindamax is a

hard-hitter. It looks like I took it for 4 mths and during those months I had a

lot of symptoms.

Do you think your son is herxing? Is it psych issues that have gotten worse? For

me, personally and as a mom, those are the WORST to deal with. Not from Tindamax

but my son and I have had the " I think I'm going crazy feeling. " Are you trying

all the detox stuff? Is your dr aware of his reaction?

I'm so sorry.

Elaine

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[Guest guest]

He was 12 at the time.

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Fri, February 11, 2011 1:51:20 PM

Subject: Re: [ ] Re: tindamax

 

how old is your son ??

From: ecckwalk <ecckwalk@...>

Subject: [ ] Re: tindamax

Date: Monday, January 31, 2011, 10:13 PM

 

HI Judy,

I really don't know much about the scans since my sons and I have not had any. I

know others who have had them though. What I understand is that it can show

lesions. I'm not positive but I think that might be some damage, but I'm pretty

sure that the lesions can improve. And, I don't think there have to be lesions

if you have lyme. Probably like everything else, it can be individual.

I'm looking back at my notes from when my son (12) took Tindamax. Five days

after starting he developed a small bullseye rash on his inner thigh. I couldn't

believe it! I took a photo and my dr confirmed it. She said the rash can emerge

anytime during treatment. I was so excited to see it...This was our first

confirmation of lyme since his WB was negative although tested + for Bart. He

was on it for 6 wks and everything else was fine.

In looking back at when I took Tindamax, lots of stuff got stirred-up; heart

palps, anxiety, achy, strange feelings, fatigue, balance, tingling, feeling hot,

rapid heartbeat, etc, but pressure cleared in my head. I think Tindamax is a

hard-hitter. It looks like I took it for 4 mths and during those months I had a

lot of symptoms.

Do you think your son is herxing? Is it psych issues that have gotten worse? For

me, personally and as a mom, those are the WORST to deal with. Not from Tindamax

but my son and I have had the " I think I'm going crazy feeling. " Are you trying

all the detox stuff? Is your dr aware of his reaction?

I'm so sorry.

Elaine

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