Re: NEWBIE looking for answers....Unsure if my son has recovered

[Guest guest]

,

I have 2 kids w/lyme and my daugther also has babeosis. They were

both treated w/ amox for 6 weeks but my daughter never got better.

It took us 2 years to figure out that she has a tick-borne co-

infection. I strongly urge you to test for the co-infections

(erlichiosis, mycoplasma, babeosis, bartonella, etc.). After my

daughter was diagnosed w/ babeosis my research found that 44% of

ticks in my area have babeosis.

The symptoms you describe (high fever) sound like Bartonella. I've

also found out that abdominal pain is VERY common in kids w/ lyme.

I say-- you're the mom-- you know if something's not right. Go with

your gut. I took my kid to the eminent Dr. J in New Haven, Ct.

Knowing what I know now, I would sell my wedding ring and mortgage my

house to get treatment. I was lucky 'cause some was covered by

insurance. You could also look into Dr. H in Hyde Park, NY- very

lyme literate but your son is at the young end of his practice in

terms of age.

Best of luck. Trust yourself and for the sake of you child, pursue

this!!! My daughter was a completely different person within 10 days

of beginning anti-malarial drugs. She went from drawing only frownie

faces for 2 years to actually experiencing happiness and energy.

The untreated tick-borne infections are not to be trifled with.

>

> Hi I am new to this group. I have a 12 yo son who was diagnosed w/

> lyme in Jan 06. In June 05 he had a fever and fatigue. The symptoms

> started the week before we were to leave on vacation. The doctors

said

> it was viral but since we'd be out of state started him on

Amoxicylin.

> While on vacation he got a body rash which we thought was from the

> change in laundry soap and it disappeared in a couple of days(after

> changing soap). Over the rest of the summer he was very tired and

> since it was a hot summer we figured it was due to that. He also

was a

> little disoriented a couple of times but at the time I thought it

was

> also due to heat and a busy day at camp. By Jan o6 his

> knees became painful and swelled. At this point the Pediatrician

said

> it was due to bad shoes. But it swelled more and they finally did

> blood work which determined it was lyme. After three months of oral

> antibiotics the symptoms disappeared and the specialist said he was

> cured. That was 2 years ago. But since then he seems more tired and

> weak. He has headaches , neck aches and backaches. In June of this

> year we were on vacation in VA Beach and he became terribly ill. He

> had a high fever (105) and severe headache and stomach pain. We

> brought him to the hospital at which point they determined he had a

> bacterial infection caused by a rare gram negative rod bateria. He

was

> treated on iv antibiotics for his week hospital stay. All doctors

> assured us that this was not related to the prior lyme infection. It

> took him all summer to get his energy back. Now he is good some days

> not so good others as far as fatigue. He complains every other week

> about neck pain. He is also going to be 13 in May and having a 16

and

> 15 yo I know that hormones can make teens tired too.

>

> However, I am not convinced that this isn't still lyme in his

system.

> But doctors say it goes away after treatment. I really don't know

> where to go from here. Does anyone out there have any info on the

> symptoms, cures, aftermath that they could share with me? Or does

> anyone know of an expert I can bring him to in the New York

> City/Rockland/Westchester area.

>

> Thank you...

>

>

>

[Guest guest]

,

I have 2 kids w/lyme and my daugther also has babeosis. They were

both treated w/ amox for 6 weeks but my daughter never got better.

It took us 2 years to figure out that she has a tick-borne co-

infection. I strongly urge you to test for the co-infections

(erlichiosis, mycoplasma, babeosis, bartonella, etc.). After my

daughter was diagnosed w/ babeosis my research found that 44% of

ticks in my area have babeosis.

The symptoms you describe (high fever) sound like Bartonella. I've

also found out that abdominal pain is VERY common in kids w/ lyme.

I say-- you're the mom-- you know if something's not right. Go with

your gut. I took my kid to the eminent Dr. J in New Haven, Ct.

Knowing what I know now, I would sell my wedding ring and mortgage my

house to get treatment. I was lucky 'cause some was covered by

insurance. You could also look into Dr. H in Hyde Park, NY- very

lyme literate but your son is at the young end of his practice in

terms of age.

Best of luck. Trust yourself and for the sake of you child, pursue

this!!! My daughter was a completely different person within 10 days

of beginning anti-malarial drugs. She went from drawing only frownie

faces for 2 years to actually experiencing happiness and energy.

The untreated tick-borne infections are not to be trifled with.

>

> Hi I am new to this group. I have a 12 yo son who was diagnosed w/

> lyme in Jan 06. In June 05 he had a fever and fatigue. The symptoms

> started the week before we were to leave on vacation. The doctors

said

> it was viral but since we'd be out of state started him on

Amoxicylin.

> While on vacation he got a body rash which we thought was from the

> change in laundry soap and it disappeared in a couple of days(after

> changing soap). Over the rest of the summer he was very tired and

> since it was a hot summer we figured it was due to that. He also

was a

> little disoriented a couple of times but at the time I thought it

was

> also due to heat and a busy day at camp. By Jan o6 his

> knees became painful and swelled. At this point the Pediatrician

said

> it was due to bad shoes. But it swelled more and they finally did

> blood work which determined it was lyme. After three months of oral

> antibiotics the symptoms disappeared and the specialist said he was

> cured. That was 2 years ago. But since then he seems more tired and

> weak. He has headaches , neck aches and backaches. In June of this

> year we were on vacation in VA Beach and he became terribly ill. He

> had a high fever (105) and severe headache and stomach pain. We

> brought him to the hospital at which point they determined he had a

> bacterial infection caused by a rare gram negative rod bateria. He

was

> treated on iv antibiotics for his week hospital stay. All doctors

> assured us that this was not related to the prior lyme infection. It

> took him all summer to get his energy back. Now he is good some days

> not so good others as far as fatigue. He complains every other week

> about neck pain. He is also going to be 13 in May and having a 16

and

> 15 yo I know that hormones can make teens tired too.

>

> However, I am not convinced that this isn't still lyme in his

system.

> But doctors say it goes away after treatment. I really don't know

> where to go from here. Does anyone out there have any info on the

> symptoms, cures, aftermath that they could share with me? Or does

> anyone know of an expert I can bring him to in the New York

> City/Rockland/Westchester area.

>

> Thank you...

>

>

>

[Guest guest]

Hi

I agree...follow your gut. and get it all checked out...the longer it goes the

harder to treat..BTW Bartonella for my son and myself also causes GUT pains and

GI sx!!! so definitely check for coinfections

The best choice would be a solid LLMD ( Lyme Literate MD) there are a few on

here from NY who may help with suggestions ( its been a bit slow since the

holidays so you may not get a quick response)...and Id go the the LDA website (

lymedisease.org) on their dr referral section.

and also Lymenet and post requests for a llmd in your area...put it in the

support /need a Dr section as well as general med questions ( more actively

looked at)

good luck and if you need more info or help, we are all here

Finette

[“Pride is concerned with who is right. Humility is concerned with what is

right.†- Ezre Taft Benson]

[ ] NEWBIE looking for answers....Unsure if my son has

" recovered "

Hi I am new to this group. I have a 12 yo son who was diagnosed w/

lyme in Jan 06. In June 05 he had a fever and fatigue. The symptoms

started the week before we were to leave on vacation. The doctors said

it was viral but since we'd be out of state started him on Amoxicylin.

While on vacation he got a body rash which we thought was from the

change in laundry soap and it disappeared in a couple of days(after

changing soap). Over the rest of the summer he was very tired and

since it was a hot summer we figured it was due to that. He also was a

little disoriented a couple of times but at the time I thought it was

also due to heat and a busy day at camp. By Jan o6 his

knees became painful and swelled. At this point the Pediatrician said

it was due to bad shoes. But it swelled more and they finally did

blood work which determined it was lyme. After three months of oral

antibiotics the symptoms disappeared and the specialist said he was

cured. That was 2 years ago. But since then he seems more tired and

weak. He has headaches , neck aches and backaches. In June of this

year we were on vacation in VA Beach and he became terribly ill. He

had a high fever (105) and severe headache and stomach pain. We

brought him to the hospital at which point they determined he had a

bacterial infection caused by a rare gram negative rod bateria. He was

treated on iv antibiotics for his week hospital stay. All doctors

assured us that this was not related to the prior lyme infection. It

took him all summer to get his energy back. Now he is good some days

not so good others as far as fatigue. He complains every other week

about neck pain. He is also going to be 13 in May and having a 16 and

15 yo I know that hormones can make teens tired too.

However, I am not convinced that this isn't still lyme in his system.

But doctors say it goes away after treatment. I really don't know

where to go from here. Does anyone out there have any info on the

symptoms, cures, aftermath that they could share with me? Or does

anyone know of an expert I can bring him to in the New York

City/Rockland/Westchester area.

Thank you...

________________________________________________________________________

More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com