Guest guest Posted November 28, 2010 Report Share Posted November 28, 2010 hi, it took me at least 4 years to get referred to a rheumy. my gp thought all of the pain was in my head. so i finally saw a rheumy, he said i have psa not fibro. well he retired and now my new rheumy says it is fibro and not psa. so i guess i am still trying to figure out what is wrong with me. sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 It took me 9 years to get a diagnosis and only because I had an awesome FNP. Back story: My psoriasis is so mild that even I forget I have it some time. At age 17 I started having hip pain that was severe. It wasn't constant. I went to my local doc who sent me to PT. I was referred to a sports medicine MD at my college- an expert in his field. He and I got on rather poorly and he decided I was " faking " because I was still being physically active. His view point was that I would not be active if my pain was that severe. My view point was I was only 18 once. We finally parted ways and I got by with Advil and a prayer. At 21 I did some practice lab work and found out I was HLA B27 positive (marker for arthritis). I filed that in the back of my mind. At 25 the pain was so debilitating that I finally went to my NP and told her that I would be 100% compliant with everything (pills, PT, etc) if she would also consider arthritis as a culprit. My HLA was positive (*surprise*) and my sed rate was positive. Off to the rheumatologist at 26. My pain is still poorly controlled but I've avoided the pill seeking label by sticking pretty close to anti-inflammatory drugs rather than that opioid meds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Actually I have a great regular doctor he is the one that recommended my other doctors and I so far have had only one of them be a dud... I love my rheumy, I love my others... So for me no... Love and Peace Always Shaun and Barb Aka: ScarlettShaun In Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Yikes, it took me a month I think to get mine here... And that was on a referral I'm so sorry your going threw all this... Its very important to get a good one that you can trust and talk too... I wish you the best in searching... Love and Peace Always Shaun and Barb Aka: ScarlettShaun Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Thanks. I think I finally got a good doctor.(finally) I haven't been in treatment that long, so I can't really tell how it's going yet. At least my rheumatologist doesn't accuse me of faking like my primary care doc does. I think I'm firing him, anyway. My rheumatologist is the one who told my I have PA, and what it even is. It's a relief to know now what it is, but a little unnerving as well. Quote Link to comment Share on other sites More sharing options...
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