tears

[Guest guest]

Thanks Claudine, I was wondering.....How are you

doing? It was my bleeding problem that got me the HCV

in the first place.....Take Care, Connie

--- claudine intexas <claudineintexas@...>

wrote:

>

> --- Constance Dickson

> <constance_clearwater_florida@...> wrote:

>

> > Thanks Gail I will try these. But I am a bit

> > concerned

> > about the Ginger. I have a clotting time disorder

> > called ITP, mine is congenital. It causes the body

> > somehow or another to not produce enough

> Platelets.

> > I was refused surgery on my hands because of

> > bleeding

> > time last November. They said the Platelets were

> > not

> > really at a Bad level (I was also told the blood

> > maybe

> > had a clump of platelets in the sample being

> tested,

> > so that would make the level appear ok, this was

> by

> > a

> > SS Dr that SSA sent me too). But, there seemed to

> > be

> > something having an aspirin type effect on my

> blood.

> >

> > I was referred to a Hematologist, I was unable to

> > go.

> > Thanks again Gail, the suggestions seem to be good

> > ones and I have the Magnesium one already, Connie

> > PS do you know anything that thickens blood?

>

> Connie, with your ITP and clotting problems you

> should

> not take Alleve, or any other NSAID either. All of

> them can make your bleeding problem worse.

> Claudine

>

> __________________________________________________

>

[Guest guest]

Claudine, what about the Amitryptilimine and

Hydroxyzine? I am going to go see if my NFL team is

on TV...The Tampa Bay Buc's, be back

later........smile, Connie

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Thanks Claudine, I was wondering.....How are you

> doing? It was my bleeding problem that got me the

> HCV

> in the first place.....Take Care, Connie

> --- claudine intexas <claudineintexas@...>

> wrote:

> >

> > --- Constance Dickson

> > <constance_clearwater_florida@...> wrote:

> >

> > > Thanks Gail I will try these. But I am a bit

> > > concerned

> > > about the Ginger. I have a clotting time

> disorder

> > > called ITP, mine is congenital. It causes the

> body

> > > somehow or another to not produce enough

> > Platelets.

> > > I was refused surgery on my hands because of

> > > bleeding

> > > time last November. They said the Platelets

> were

> > > not

> > > really at a Bad level (I was also told the blood

> > > maybe

> > > had a clump of platelets in the sample being

> > tested,

> > > so that would make the level appear ok, this was

> > by

> > > a

> > > SS Dr that SSA sent me too). But, there seemed

> to

> > > be

> > > something having an aspirin type effect on my

> > blood.

> > >

> > > I was referred to a Hematologist, I was unable

> to

> > > go.

> > > Thanks again Gail, the suggestions seem to be

> good

> > > ones and I have the Magnesium one already,

> Connie

> > > PS do you know anything that thickens blood?

> >

> > Connie, with your ITP and clotting problems you

> > should

> > not take Alleve, or any other NSAID either. All of

> > them can make your bleeding problem worse.

> > Claudine

> >

> > __________________________________________________

> >

[Guest guest]

----------

>From: Constance Dickson <constance_clearwater_florida@...>

>

> Thanks Gail I will try these. But I am a bit

> concerned

> about the Ginger. I have a clotting time disorder

> called ITP, mine is congenital.

Connie-

Yeah, sigh, it sounds like ginger might not be for you. Don't know of

anything OTC to thicken the blood. Fat-you could eat globs and globs of

fat! Just kidding-it wouldn't work & would only cause you more problems.

If you do decide to try Malic acid, it is of course much cheaper either

online or through the mail-unless you are in an area where some of the

online shops have stores. Are you in Hot-lanta-they have everything there!

Another thing with Malic acid is that you should start out on a low dosage

and work (ramp as docs like to say) your way up. Immunesupport.com is a

very good place to go and find articles on malic acid/pain relief, doses to

take etc.

gail

[Guest guest]

In a message dated 9/15/00 8:42:22 AM Eastern Daylight Time,

constance_clearwater_florida@... writes:

<< Pat or anyone. I want to know if any of you all have

came across something for pain that is OTC. I am in a

catch 22 situation. Where my pain is bad because of

lack of sleep and the only way I have to keep some of

it at bay is to sleep. But, I can't sleep because of

the pain. I also have Fibromyalgia and Rheumatoid

(spelling?) Arthritis...Thanks, Connie >>

Dear Connie,

The newest product that I know about is Arthro-7. It isn't over the counter,

but doesn't require a prescription. Developed by two physicians who had

arthritis, it proclaims to help fibromyalgia, too. I haven't tried it, yet,

but I have a friend who is a physician who swears by it. LOL, Anne

[Guest guest]

Anne,

If it isn't over the counter and is no need for a

script, where do you get it?...Thanks, Connie

--- AVansi7465@... wrote:

> In a message dated 9/15/00 8:42:22 AM Eastern

> Daylight Time,

> constance_clearwater_florida@... writes:

>

> << Pat or anyone. I want to know if any of you all

> have

> came across something for pain that is OTC. I am

> in a

> catch 22 situation. Where my pain is bad because

> of

> lack of sleep and the only way I have to keep some

> of

> it at bay is to sleep. But, I can't sleep because

> of

> the pain. I also have Fibromyalgia and Rheumatoid

> (spelling?) Arthritis...Thanks, Connie >>

> Dear Connie,

> The newest product that I know about is Arthro-7.

> It isn't over the counter,

> but doesn't require a prescription. Developed by

> two physicians who had

> arthritis, it proclaims to help fibromyalgia, too.

> I haven't tried it, yet,

> but I have a friend who is a physician who swears by

> it. LOL, Anne

>

__________________________________________________

[Guest guest]

Connie,

Ask the pharmacist for the medicine. There are

many non-prescription meds that the pharmacy will keep

behind the counter so they can counsel a person buying

it. I haven't ever heard of this Arthro-7, but I had

to get a motion sickness medication my doctor

'prescribed' once this way.

Claudine

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Anne,

> If it isn't over the counter and is no need for a

> script, where do you get it?...Thanks, Connie

__________________________________________________

[Guest guest]

Connie,

Ask the pharmacist for the medicine. There are

many non-prescription meds that the pharmacy will keep

behind the counter so they can counsel a person buying

it. I haven't ever heard of this Arthro-7, but I had

to get a motion sickness medication my doctor

'prescribed' once this way.

Claudine

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Anne,

> If it isn't over the counter and is no need for a

> script, where do you get it?...Thanks, Connie

__________________________________________________

[Guest guest]

Connie,

Ask the pharmacist for the medicine. There are

many non-prescription meds that the pharmacy will keep

behind the counter so they can counsel a person buying

it. I haven't ever heard of this Arthro-7, but I had

to get a motion sickness medication my doctor

'prescribed' once this way.

Claudine

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Anne,

> If it isn't over the counter and is no need for a

> script, where do you get it?...Thanks, Connie

__________________________________________________

[Guest guest]

Connie,

Ask the pharmacist for the medicine. There are

many non-prescription meds that the pharmacy will keep

behind the counter so they can counsel a person buying

it. I haven't ever heard of this Arthro-7, but I had

to get a motion sickness medication my doctor

'prescribed' once this way.

Claudine

--- Constance Dickson

<constance_clearwater_florida@...> wrote:

> Anne,

> If it isn't over the counter and is no need for a

> script, where do you get it?...Thanks, Connie

__________________________________________________

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

I don't remember if I replied or not.. forgive me if I repeat

myself.. before treatment I had bad joint pain.. I used Celebrex and

that helped a little bit, along with other anti-inflammatories like

Lodine and sometimes a shot of Aristacort LA. There are a lot of OTC

meds and depending on what you can tolerate, some of the NSAIDS might

work for you. Good luck. Lemme know what works

[Guest guest]

A lot of my friends seem to feel that I am depressed and that

accounts for a lot of my pain. I cry because of the pain mostly as

it wears you down. I am one of these that I am useless without sleep

or if I miss a meal. Just mention Lassie and I cry!

I do feel down but not especially depressed, lonely but only when I

am alone. People want to see me better I know but I feel like I have

to oblige by looking well. Then they see me close to tears and start

trying to fix me, give me advice on this condition which unless they

have experienced it which no-one around me seems to have, they come

out with some very sensible advice like get some exercise get out

and about and eat well, you will feel better soon.

I feel like I am letting people down when I don't get better and have

a bad day cos they say its just a flare up and will pass soon.

Since last September I have had exactly two weeks of some relief

through cortisone injections.

I hope for some relief soon and I am waiting for a different

medication as MTX and Avara made me really ill.

I am going to try and look at alternatives like aromatherapy and

nutrition and natural antibiotics.

If I have any success I will pass on the info.

I have to get better to make my friends happy!

" jetzsun " <jetzsun@...>

[Guest guest]

<<A lot of my friends seem to feel that I am depressed and that

accounts for a lot of my pain.>>

Sounds as if you need new friends.

nne

[Guest guest]

I know how you feel. I try to do things around the house, then feel

guilty when I hurt and cannot do them. Your friends mean well, they

just don't know how to help you. Suggest that they read some of the

info on this list and some of the sites that tell about PA. Maybe

some education (for them) on the subject will help you more than

anything else.

" shirley_s_2002 " <shirley_s_2002@...>

[Guest guest]

Jennie,

do you have a real close friend? What I did with one of my friends was: I told

her about my illness and made her read a few things. When I needed

transportation she was willing to take me to the doctor and then I had her come

in the treatment with me so she could hear the doctor explain what treatment I

had to have and also the questions I put to the doctor. She understands now a

lot about my illness and even if I look well (which with this illness I have

looked well but felt bad) she will ask how my day has been and she will listen.

I now have several friends like this and I feel soooo much better, I don't have

to pretend anymore. I will write to you as often as possible.

Take care, get well.

Eva

[Guest guest]

Wow, this really describes how I feel in my bouts of pain as well...

it is so true... friends just want to 'fix me and make me better'.

Their intentions are good, of course... but there is nothing they can

do to 'fix us' and how we feel and what we are going through. I have

a very busy and social life that has me out 'looking like the care-

free society wife... '... I can keep up with anyone in conversation

and somehow the energy just 'kicks in' and I give everyone the

impression that nothing is wrong and I am not in pain... but,

occasionally someone will notice and make a comment... just them

noticing almost brings me to tears knowing that someone can see

through all this 'show' that I have to perform all the time.

Everyone sees me as being almost hyperactive when I am out... BUT,

when I am on my way back home I can see and feel the energy just

slipping away from me... I dread the idea of having to walk up the

stairs, brushing my teeth, washing my face, and preparing for bed...

It is as if all the life in me has been zapped and I am running on

fumes.... my family must think I am have the most extreme split

personality... they must wonder why I am so vivacious with others

outside the home and just a tired person at home. If someone drops

by to visit I immediately get back into the hyper mode and sometimes

find myself praying the visitors will leave so I can crash and fall

into my bed... I was always a very athletic person, never sat still,

played piano and clarinet, was in all the social and charitable

associations... but now all I can do is think of resting and hoping

that I will get up feeling wonderful... at least with minimal pain.

Sorry, I rambled... but your message just sounded as I could have

written it, so it seems we are all in good, understanding company...

usually when I have reached rock bottom in exhaustion I find that I

cry easily... or a nice movie, of course . I hope this message will

assure the rest of us that it seems to be quite expected having these

feelings and for those around us to try to 'fix us' or 'help us'...

good luck to all.. I haven't posted in a long, long time... hello to

all.

#2

[Guest guest]

,

I think you're describing my life. When I'm out, most people would never

guess that there's anything wrong but when I get home, I collapse and it is

a huge effort to do anything. It seems like all my energy just drains away.

I know that I can be myself around my family and they don't judge me when I

m tired and just can't do one more thing. They understand. Others see my

hands and see the joint damage but don't understand that what they see is

only a part of a much larger pattern of the disease.

[Guest guest]

hon I understand and others think we're joking!! I know different!! Hang

in there I understand!!! It hurts like hell and I guess we just have to deal

with it!! Hope you're feeling better later!!! I understand, I'm here for ya!!

Bill Middleton <middleton.bill@...>

[Guest guest]

I know the feeling!!! Damn they dont know how bad this hurts!! Oh well maybe

some day!! Just hang in there, thats why we are here!!! at least you have our

support!!

Bill Middleton <middleton.bill@...>