Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hi I have never responded, but I want to tell u I am very sucessful with remicade, after trying enbrel. They give me an antihistmine and I dose thru the iv. I also take gamma gobulin Iv every 3 weeks to build up my sytem. Get a good book to listen to, or my doctor has a tv in the room, and I dose!! Use the time as a quiet time!! Think positive!. Marietta <mariettashirk@...> wrote: Just love my compromised immmune system! After being ill with something undiagnoseable for a MONTH (low grade fevers, etc), I finally came down with bronchitis and ended up in the ER last Saturday. After prednisone and several other drugs, and a trip back to my primary, I finally have a nebulizer for at home to get my lungs to open up so I can at least cough them out. I don't have asthma, and have never had bronchitis or pneumonia. I feel weak as a kitten, and my husband has had to take a week off work to take care of me AND the kids. The dr said I must try and avoid getting sick for 3 weeks, gave me my flu shot, and sent me home. Now I just recover! When I am recovered, my rheumy is going to start Remicade... after 5 yrs on Enbrel, it's just not cutting it anymore. I'm TERRIFIED of the Remicade... nothing gives me more stress than I.V.'s... including surgery, dental work, having a car accident... I'm going to have to get Valium or something to cope. <sigh> -Marietta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 In a message dated 11/18/2006 3:38:24 A.M. Pacific Standard Time, mariettashirk@... writes: utting it anymore. I'm TERRIFIED of the Remicade... nothing gives me more stress than I.V.'s... Marietta, I was the same way. I don't love it, but I get through it (even after last months disaster of getting stuck 5 times, I'm going back tomorrow!). I've tried to make it as pleasant for myself as possible...sometimes I nap (wrapped up in the Remicade blankie), other times I let myself read the trashy mags in the office....I bring a nice coffee or treat too. The good news is that it goes pretty quick after the first time...I'm now down to 90 minutes. A few things that will make your life easier...drink a lot of fluids the day before and morning of...well hydrated veins make the infusion more comfortable. Also, ask them to put a heating pad on the vein before the first stick, and ask for a smaller gage needle. All of this will help:-) And if they have to take any blood, ask them to do it from the IV before the Remicade starts, this way you get less sticks over the long run. When I first got sick (about 5 years ago), I had to have a test where I was hooked up to an IV for 4 hours and I made my mom fly in (from Baltimore to Orlando) because I couldn't handle it. So I've come a long way and I know you will too - if the Remicade works for you, you will tolerate it:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 In a message dated 19/11/2006 12:01:21 GMT Standard Time, fetchinn@... writes: I have never responded, but I want to tell u I am very sucessful with remicade, after trying enbrel Hi Ann, Well, its good to see that you have now. Welcome to you as you take a little holiday from Lurkland. lol Its nice to hear from you. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Thanks so much !! Your words mean a lot, and lots of great info! I'm calling this morning to check on the status of the Remicade setup, and hopefully make the appt. for my 1st infusion. I'm glad to know I'm not the only one with I.V. phobia. Blood draws, shots, no problems. I.V.'s, UGH! -Marietta > Marietta, I was the same way. I don't love it, but I get through it (even > after last months disaster of getting stuck 5 times, I'm going back > tomorrow!). I've tried to make it as pleasant for myself as possible...sometimes I nap > (wrapped up in the Remicade blankie), other times I let myself read the > trashy mags in the office....I bring a nice coffee or treat too. The good news > is that it goes pretty quick after the first time...I'm now down to 90 > minutes. > > A few things that will make your life easier...drink a lot of fluids the day > before and morning of...well hydrated veins make the infusion more > comfortable. Also, ask them to put a heating pad on the vein before the first stick, > and ask for a smaller gage needle. All of this will help:-) And if they > have to take any blood, ask them to do it from the IV before the Remicade > starts, this way you get less sticks over the long run. > > When I first got sick (about 5 years ago), I had to have a test where I was > hooked up to an IV for 4 hours and I made my mom fly in (from Baltimore to > Orlando) because I couldn't handle it. So I've come a long way and I know you > will too - if the Remicade works for you, you will tolerate it:-) > > Quote Link to comment Share on other sites More sharing options...
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