Re: what is congenital Lyme ??

[Guest guest]

Congenital Lyme is Lyme that you are born with -- contracted in utero.

Natasha

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Sun, October 10, 2010 11:17:11 PM

Subject: [ ] what is congenital Lyme ??

What exactly is congenital Lyme ???

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Oh Ok thank you very much, i had a bad problem with my son the other day,

actually an incident in school, something he did and we were in the hospital all

day, Stony brook Emergency Room and they had to monitor his heart and his EKG in

not good, need a follow up in a few days, it was either related to the incident

at the time,damage from it or from Lyme since its in his spinal fluid and brain

now. it says supraventricular complexes with escape junction complexes, no clue

what that means.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Man, I am so sorry.

I gather that Escape Junction complexes are delayed heartbeats and

supraventricular means heartbeat originating somewhere other than the ventricles

-- it sounds like he had excessive heartbeat followed by or alternating with

delayed heartbeat. Poor guy. Abnormal EKG is pretty common for Lyme patients.

Not to blame everything on Lyme, but if it's one of the symptoms and he has

Lyme, pretty reasonable to assume it MAY be the cause.

Good luck to you -- wishing you and your son the best in these trying times.

Natasha

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Sun, October 10, 2010 11:28:12 PM

Subject: Re: [ ] what is congenital Lyme ??

Oh Ok thank you very much, i had a bad problem with my son the other day,

actually an incident in school, something he did and we were in the hospital all

day, Stony brook Emergency Room and they had to monitor his heart and his EKG in

not good, need a follow up in a few days, it was either related to the incident

at the time,damage from it or from Lyme since its in his spinal fluid and brain

now. it says supraventricular complexes with escape junction complexes, no clue

what that means.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

He had an Ekg done a while back and they said it was normal. What happened was

he took 2 xanax that I take for my heart cause I have heart problems. He was

really messed up in school, slurred speech, couldnt walk, really " high " , said he

got something from someone at bus stop, blah,blah,blah and we went to hosp. I

noticed he was going brady, down to 46 then back to 88, up and down, here and

then, when he went brady I'd wake him up to get it faster. The dr. wants follow

up in a few days, could have been the drug he was on at time, or damage from

that or maybe could be from the lyme. I dont know, Im just losing my mind, he

nearlly could have died, it was horrible. He knows he screwed up and almost

died, (I hope he's sincere about it and scared s***less), now we have

administrative hearing at school to see if they'll even let him back. I hope

they decide to get home tutor and pay it, our district is one of the worst and

most violent anywhere. I know he can

get drugs anywhere but I just dont know what to do at this point. Im so worried

and scared.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Tiffanie.........my prayers are with you!!  Went though something like that

last

year with my daughter..........one of the worst things to have to ever go

though..........my daughter was not in school when found she left school earlier

that day - so we didn't have to deal with school........the stress these poor

kids have to deal with besides feeling like shit........how old is he....... my

daughter is 15 now but also was dealing with crap from her father last

year.......sometimes it just to much on them and all they want to do is feel

better and get away for a bit.........not really want to die........... 

dkbmama@...    email me anytime.....

Bless you my friend!!!!!!!!!  Diane

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Mon, October 11, 2010 10:45:38 AM

Subject: Re: [ ] what is congenital Lyme ??

 

He had an Ekg done a while back and they said it was normal. What happened was

he took 2 xanax that I take for my heart cause I have heart problems. He was

really messed up in school, slurred speech, couldnt walk, really " high " , said he

got something from someone at bus stop, blah,blah,blah and we went to hosp. I

noticed he was going brady, down to 46 then back to 88, up and down, here and

then, when he went brady I'd wake him up to get it faster. The dr. wants follow

up in a few days, could have been the drug he was on at time, or damage from

that or maybe could be from the lyme. I dont know, Im just losing my mind, he

nearlly could have died, it was horrible. He knows he screwed up and almost

died, (I hope he's sincere about it and scared s***less), now we have

administrative hearing at school to see if they'll even let him back. I hope

they decide to get home tutor and pay it, our district is one of the worst and

most violent anywhere. I know he can

get drugs anywhere but I just dont know what to do at this point. Im so worried

and scared.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

I don't have any anything to offer other than Lyme can really mess you up and

make you into someone you aren't. I've experienced this mostly w/ my son (12)

and somewhat with myself. I can only say " I'm sorry you are going through this

and we pray for you. "

Elaine

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Mon, October 11, 2010 8:45:38 AM

Subject: Re: [ ] what is congenital Lyme ??

He had an Ekg done a while back and they said it was normal. What happened was

he took 2 xanax that I take for my heart cause I have heart problems. He was

really messed up in school, slurred speech, couldnt walk, really " high " , said he

got something from someone at bus stop, blah,blah,blah and we went to hosp. I

noticed he was going brady, down to 46 then back to 88, up and down, here and

then, when he went brady I'd wake him up to get it faster. The dr. wants follow

up in a few days, could have been the drug he was on at time, or damage from

that or maybe could be from the lyme. I dont know, Im just losing my mind, he

nearlly could have died, it was horrible. He knows he screwed up and almost

died, (I hope he's sincere about it and scared s***less), now we have

administrative hearing at school to see if they'll even let him back. I hope

they decide to get home tutor and pay it, our district is one of the worst and

most violent anywhere. I know he can

get drugs anywhere but I just dont know what to do at this point. Im so worried

and scared.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Ditto...

Lyme amplifies your brain's moods, and impairs its impulse control. A bad

combination, one I talk to my daughters about and prepare them for and watch

for. Good to be vigilant, but it's not totally your son's fault or at least, he

was not entirely in control of himself. It's not a question of trying harder.

It's a question of getting better.

Natasha

________________________________

From: <ecckwalk@...>

Sent: Mon, October 11, 2010 3:18:30 PM

Subject: Re: [ ] what is congenital Lyme ??

I don't have any anything to offer other than Lyme can really mess you up and

make you into someone you aren't. I've experienced this mostly w/ my son (12)

and somewhat with myself. I can only say " I'm sorry you are going through this

and we pray for you. "

Elaine

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Mon, October 11, 2010 8:45:38 AM

Subject: Re: [ ] what is congenital Lyme ??

He had an Ekg done a while back and they said it was normal. What happened was

he took 2 xanax that I take for my heart cause I have heart problems. He was

really messed up in school, slurred speech, couldnt walk, really " high " , said he

got something from someone at bus stop, blah,blah,blah and we went to hosp. I

noticed he was going brady, down to 46 then back to 88, up and down, here and

then, when he went brady I'd wake him up to get it faster. The dr. wants follow

up in a few days, could have been the drug he was on at time, or damage from

that or maybe could be from the lyme. I dont know, Im just losing my mind, he

nearlly could have died, it was horrible. He knows he screwed up and almost

died, (I hope he's sincere about it and scared s***less), now we have

administrative hearing at school to see if they'll even let him back. I hope

they decide to get home tutor and pay it, our district is one of the worst and

most violent anywhere. I know he can

get drugs anywhere but I just dont know what to do at this point. Im so worried

and scared.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Thank you, I dont know if its just the age but I have three other kids, 19 yr

old daughter who is expecting, 23 yr old daughter and 25 yr old son, and never

been through the crap i'm dealing with with this one. the attitude, the

disrespect, everything, now the drugs he took the other day that put him in the

hospital. I am at my wits end, really scared, now this administrative hearing at

the school on wed. They say its a normal 13 yr old but im not so sure...

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

I kind of blame myself, they were on top of my closet not even out in the open

but never in a million yrs would i think he'd take my pills, especially 2, i

dont even take that much, they're each 1mg. I may take 1 and 1/2 if im having a

bad day with my heart or really stressed which causes my heart to go bananas,

but what the hell was he thinking ??? just wanted to try something to get high,

they dont make u high, i dont freakin know, i cant figure it out.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

I tell you, it's not about why ... it's about why not when they are this sick

and deal with this many things -- sort of an attitude of " what's the worst that

could happen? I'm already completely dominated by this illness "

So very sorry.

Natasha

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Mon, October 11, 2010 7:35:13 PM

Subject: Re: [ ] what is congenital Lyme ??

I kind of blame myself, they were on top of my closet not even out in the open

but never in a million yrs would i think he'd take my pills, especially 2, i

dont even take that much, they're each 1mg. I may take 1 and 1/2 if im having a

bad day with my heart or really stressed which causes my heart to go bananas,

but what the hell was he thinking ??? just wanted to try something to get high,

they dont make u high, i dont freakin know, i cant figure it out.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

You cannot blame yourself. Kids will go for stuff no matter if it's hidden or

not. It's the experiment, and the complete reduction in impulse control.

________________________________

From: Tiffanie <tiffanies_towing@...>

Sent: Mon, October 11, 2010 7:35:13 PM

Subject: Re: [ ] what is congenital Lyme ??

I kind of blame myself, they were on top of my closet not even out in the open

but never in a million yrs would i think he'd take my pills, especially 2, i

dont even take that much, they're each 1mg. I may take 1 and 1/2 if im having a

bad day with my heart or really stressed which causes my heart to go bananas,

but what the hell was he thinking ??? just wanted to try something to get high,

they dont make u high, i dont freakin know, i cant figure it out.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Thats what the asst. principal told me, I should be able to trust my kid, the

hosp. said it happens so often more so than i would think, either getting from

others or stealing from parents. I hope hes sincere when he says he learned his

lesson, thank god he told us what he did so we knew what kind of drug it was by

the time we got to the hospital. Now I count them and keep marking the bottle

when I take them, but i still worry when he goes back to school, i was told he

was suppose to get something from a friend taking it from her father and michael

sid he didnt care what it was as long as it gets him really f***** up. Exact

words from principal.

From: margaret_behrns <spamneggs@...>

Subject: [ ] Diagnosing congenital Lyme

Date: Thursday, October 7, 2010, 8:04 AM

For those of you who have kids with congenital Lyme, can you please share the

best diagnostic test to get? I suspect Lyme in my 4 year old but she's tested

negative twice on the Western Blot (but band 41 is reactive same as my first

" negative test. " We saw a LLMD in Vienna and he ran the proxy tests CD57 and C4a

and they do not indicate Lyme infection. He said not to bother with the IGenex

Western Blot or any other antibody test and instead he came up with about 5

different tests that we should do (since no one test is definitive) to the tune

of $1,200 which we just can't do. It is so frustrating that there isn't a good

test to help us know whether this bacteria is affecting my daughter. Any advice?

We've realized that a ton of her symptoms were caused by yeast and working on

that has helped a lot, and she has just been diagnosed with pancreatic

dysfunction (enyzyme are blocked or not being produced) but no cause has been

identified (ruled out Cystic

Fibrosis). She's a former preemie so it is hard to differntiate what caused

what, but I suspect I've had Lyme for 20 years and could very well have passed

it along.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8