Re: PA and intense burning feet and itching

[Guest guest]

You need to get to a doctor that understands PA. Try a dermatologist- or go to

Mayo. Asking for suggestions is not going to help you in the long run. You have

to get to the problem and then use suggestions. Use diligence to keep pursuing a

doctor. You have got to find a doctor that is willing to help you find a med to

be on. PA is pretty aggressive and if you do not want to start to disfigure....

like bones disfiguring, you have got to get on a med. Call around to people in

your area and ask. I have called doctors offices and asked who they use. Get on

it.... time is a wasting!

cathy barnes <truegrits1@...>

[Guest guest]

Yes indeed. The burning pain on the bottoms of my feet goes with my

pustular P too. Sometimes I just have to place them flat on an icepack

to get a little relief. regards, sherry z

[Guest guest]

Dear Sherry,

Your description of burning feet reminds me of a condition I have called

erythromelalgia, which also causes you skin to turn red and burn like mad.

Mine developed about the same time I was diagnosed with PA, and RA. It has

been linked definitely to RA and several other autoimmune disorders.

Basically it’s very similar to neuropathy only it causes your to turn red

and can affect you just about anywhere. It normally starts in the feet, is

worse with activity, heat, and is relieved by cold water or cold gel packs.

You can actually hurt your skin by placing it in cold water for long periods

of time, so you have to use the cooling items wisely. I also use a personal

fan that is right by my recliner. Luckily, for me, NOT, I have

erythromelalgia on my face, neck, upper chest, bottom of my feet, toes, and

hands. My face and hands are the worse, but my feet can be pretty miserable

at times too. It’s a really torture when you are suffering with PA in you

feet or hands at the same time you have a burning attack.

If you think you also have this condition you can research it on one of the

best sites I’ve found for the condition at

http://www.erythromelalgia.org/tea/skins/cms/index.php EM was recently

placed in NORD. (The national order of rare diseases) As bad as PA is and

I have it in almost every joint now and need many replaced, EM or

erythromelalgia can be worse or just as bad. It totally limits my even

leaving the house in the summertime and I never go anywhere without a large

glass of ice water and my cold gel packs.

I hope you don’t have this as well as PA, but if you do the more information

you can find the better off you’ll be. Very few doctors have even heard of

erythromelalgia, and even fewer know how to treat it. Mayos is one of the

few places that can diagnose you and do some follow up on your medication,

but even they don’t have a cure or any magical answers. More studies are

being done every day, especially at Yale University, so hopefully an answer

will be found soon.

Good luck and hopefully you don’t even need to read this. Take care, Fran

in Florida

[Guest guest]

I am in this group because my son has PA and I have learned a great

deal. In the past several months I have read things that make me

wonder if I have P or even PA but have shrugged it off that I'm too

close to the situation and am just imagining these things. I have

ridges in my toenails and some are thick in spots. I also have very

mild pain my big toe joint where it feels like I just need to " crack "

it and it will feel better, but that never helps. Now I see this

burning feet thing and I get that every winter! I live in Minnesota

and have just explained that as my skin getting too dry in the winter

and then being out in the cold makes them burn and itch.

So what do you think, should I be getting in to see a rheumy? Or

maybe start with a derm? Are nail ridges an automatic dx for

psoriasis? I feel like I am going to get laughed at if I go to a

rheumy or derm with just these concerns. But I have also learned that

treating this before it gets worse is the best course of action.

[Guest guest]

:  I don't have quite the experience of others in the group but if I were

you, I'd see my family physician first. There are some basic tests that he/she

can do that may shed some light on whether or not you have a problem. I don't

have the issue so many have with nails but have a friend who has had thick nails

with ridges most of her life and they are not because of any disease. Hers are

just thick with ridges the way mine are thin and split easily. And if your feet

only get red and dry in the winter, that could just be the MN weather!  But you

are right to think about getting it checked out, particularly since your son has

the disease. 

Joanna Hoelscher

[Guest guest]

" I have the pustular psoriasis on hands and feet. Had the throat inflammation

but I am also having intense horrible burning itching feet.  Has anyone had

this.So bad i couldn't get the fire out fast enough.I used everything until

finally they settle down.>>

 

 

This sounds a lot like me.  Plus, I had hundred of cuts on my hands and feet.  A

dermatologist can likely help.  I used a lot of things before the Humira and

all helped for a very brief period.  The Humira has been great and it is almost

two years now.  I went to an Eye, Ear throat dr. before the pa diagnosis, who

was very surprised at the inflammation and told me before he saw it thought it

was in my head.

 

Carol Frick 

[Guest guest]

Wow I can't believe that we all have so many similar symptoms. It

sure does get you down.

I couldn't do it any longer so today went to my doctor who is a internal

Medicine guy and he gave cortisone SHOT WOW the inflammation really

settled down. I know this only temporary but relief is good. Really

cold snowy windy and yukky in SD

We talked about the antibiotic treatment and he was going to look at

it. Was worried about the bad time of it.

He did give me Ultram ER 200 mg didn't take today cause I was afraid

it would make me really sleepy. Blizzardy weather and didn't want to

drive taking that.

I also take clonazepam (Klonopin). I think if i spread the 2 apart i should be

ok Will try it tomorrow.

He also told me there are some really good new medicines in the 3rd

trial. REALLY good he said. He is going to see if there are any

around here for me. Oh i pray for something.

Thanks for your support and listening. IT is just like someone else

said when someone asks about it they get this glare in there eye.

You don't understand til you have it.

It could be alot worse though. I just get down about it.

Thanks again

" cattlehorse67 " <cattlehorse67@...>

[Guest guest]

I live in Canada, I have blocked off crawlspace heat to the kitchen

floor. I go barefoot in the winter. Though not common by any stretch,

some people (like me) with PsA also get erythromelalgia. So far, it

has only been moderate in its symptomology; even then, it is not much

fun. This may be something to talk with your doctor about.

http://www.erythromelalgia.org/tea/skins/cms/viewpage.php?

pname=Diagnosis

or

http://tinyurl.com/5b6q34

" skrewtz " <brentherman@...>

[Guest guest]

I am mostly a lurker but I do have a question about the nail ridges. Are the

ridges vertical or horizontal? My ridges are vertical. Also if you look at

them endwise, they look like staples - flat on top with short sides at a 90

degree angle.

Drifty Diane

<<I have ridges in my toenails and some are thick in spots. >>

[Guest guest]

Wow this is very enlightening. I just read this. I have PsA and was

diagnosed with complex regional pain syndrome as well. Ill have to research

this.

Jolene

-- [ ] Re: PA and intense burning feet and itching

http://www.erythromelalgia.org/tea/skins/cms/viewpage.php?

pname=Diagnosis

or

http://tinyurl.com/5b6q34

" skrewtz " <brentherman@...>

[Guest guest]

Diane,

 

I have ridges in both directions.  They started years before other outward

signs.  They always accompanied pain in my hands and feet.  They started on my

thumbs at first and a year or two later went to my other fingers. I was

originally told it was nothing.  It wasn't until I had the skin issues I was

diagnosed.

 

Carol Frick

[Guest guest]

, the things you describe don't automatically mean you have P or

PA but they are suggestive of the possibility especially since your

son has PA. I would definitely see a rheumy if it were me. Who

cares if someone laughs? Better that than that you should cry for

not having checked sooner! best regards, sherry z

[Guest guest]

Thanks Carol. My ridges seem unrelated to anything - other than splitting etc.

I've had PA for at least 25 years but did not notice the vertical ridges until

a few years ago. Just another peculiarity I guess.

Drifty Diane