Re: 1st meeting w/ princ, nurse, guidance tomm

[Guest guest]

Wow, it is so late in the school year. I would hope that they can be

flexible enough to work with you. I think it depends on what State you are

in and what final grades he is missing.

We have had a terrible time with our schools and I started out thanking them

and really believing everything they said. It turned us in directions that

we should never had to go down and has damaged my children's ability to get

through school.

Hopefully your son was doing okay for most of the year so that you can use

that as the starting point. There is a good article on CALYME about

education that you may want to look at where it tells some of the problems

students have.

Their is no right and wrong here and unless your school system has had a

number of students with this disease they sure don't have a plan. You need

to make sure they hear you on every issue that relates to getting him

through this year, and let them know that you may need services, (homebound

or a 504) for next year and you want to make sure before the end of this

year what requirements they have for that. Anyway if the tell you something

that you disagree with, ask them to please send that info in a letter

explaining why they can not do this or that. They have to know from the get

go that you are serious about making sure everything goes well and that

there are no misunderstandings.

This late in the year they should be able to let him study with you and take

whatever assessments are necessary and be done with it. If they refuse ask

them how they plan to grade him if he can not complete all the work the

class is doing. In a nice way explain how unacceptable this is when your

child did not plan this and it is out of his control.

Be nice but do not walk out of the room with them promising anything unless

you get it in writing. Our problems began when they promised us homebound if

things deteriorated and 3 weeks later when we asked for it they refused and

said it was too late in the school year. Our time frame was late March

early April, and we did not know what to do because I could not get her to

school. They let her walk away without any support. I found out later that

in our school system, Homebound can be given up until the beginning of

the last week of school. Had we had it a lot of other things would have

played out better.

Let them know that summer school really should not be an option because you

can not predict how the medications will be affecting him and you want to

finish this year so that he is in a better place to start next year. He

should not have to redo the grade because of missing the end. Maybe if the

teachers could work with you on an individual basis it might work out

better. I do not know how things have been all year, but if he has done

okay and has been able until this last time, kept up, then they really

should help you out. Ask them what would they do with a child that had an

infectious disease like (mono). How would they help that child? What about

someone that has been in a serious accident and has been hospitalized. Your

child is having some of the same problems where it is just not possible for

him to do every single piece of work so they should be able to adapt.

Good Luck, I hate these types of meetings where you need help and they can

be nice or not. Just make sure that they explain why in writing if they

refuse to help.

Sorry this is so disjointed. I wanted to say something because your meeting

is tomorrow but I have to get my kids in bed (the well one) for school

tomorrow. Your school may be wonderful and everything will be okay, I hope

so.

On Tue, May 25, 2010 at 8:18 PM, lainamariepedro

<Lainamariepedro@...>wrote:

>

>

> Hey all,

>

> My son 12 is having a really hard time right now and has missed several

> consecutive days of school recently as well as several days earlier in the

> year all due to lyme - dr.'s appts and flare ups

>

> At this point he has missed the past weeks and the teachers are sending

> home EVERY piece of school work and it is just ridiculous.... somedays his

> head hurts so bad (lyme migranes) he can't even look at the tv, he can only

> listen. There is no way he can read the amount of material they need him.

>

> Some teachers are understanding and they are willing to send home tests and

> allow me to read them to him and even write for him and he can just tell me

> the answers but then in other classes like math.... I can't read to him

> 2x+3y-7=15 these problems need to be worked out on paper you know?

>

> So tom I am having a meeting w/ the princ, nurse, and guid to discuss how

> we can help him successfully pass the 7th grade and I was hoping for any

> guidance from the group...

>

> As I am not really sure what I am requesting from them and I am afraid they

> are going to rec summer school and I don't want to agree to this because I

> have no way of knowing if he is in fact going to be better in July... I pray

> he will be.

>

> I f anyone has ANY advice on what to do or say it would be really helpful I

> am kind of nervous....

>

> Also any advice on the migranes would be helpful too he has hardly left his

> dark bedroom in over two week and the light is just so painful...

>

> This is soooo hard

>

>

>

--

Farrell

lesliebfarrell@...

[Guest guest]

OH my gosh I so feel for you - my girls go to two different school and it's been

a nightmare this year.  My one has to have all her homework done by June 20th

or she fails - have to hire a tutor for $17.00/hr to help..........isn't that

the cats meow.......

I am praying for you - been there done that - my one daughter has picked up all

of the virus's going around since November and has missed so much school this

last half can even count any more..........is just going back half

days.........why does this have to be so hard on us and them?  Most days I get

up in the morning and wonder where the candid camera is.......and then I realize

this is really my life and then I go and cry in the bathroom.............

Sending prayers and blessings...........hang in there!!!  I will ask on my

other post what is good for migraine's....

diane

________________________________

From: lainamariepedro <Lainamariepedro@...>

Sent: Tue, May 25, 2010 7:18:31 PM

Subject: [ ] 1st meeting w/ princ, nurse, guidance tomm

 

Hey all,

My son 12 is having a really hard time right now and has missed several

consecutive days of school recently as well as several days earlier in the year

all due to lyme - dr.'s appts and flare ups

At this point he has missed the past weeks and the teachers are sending home

EVERY piece of school work and it is just ridiculous.... somedays his head hurts

so bad (lyme migranes) he can't even look at the tv, he can only listen. There

is no way he can read the amount of material they need him.

Some teachers are understanding and they are willing to send home tests and

allow me to read them to him and even write for him and he can just tell me the

answers but then in other classes like math.... I can't read to him 2x+3y-7=15

these problems need to be worked out on paper you know?

So tom I am having a meeting w/ the princ, nurse, and guid to discuss how we can

help him successfully pass the 7th grade and I was hoping for any guidance from

the group...

As I am not really sure what I am requesting from them and I am afraid they are

going to rec summer school and I don't want to agree to this because I have no

way of knowing if he is in fact going to be better in July... I pray he will be.

I f anyone has ANY advice on what to do or say it would be really helpful I am

kind of nervous....

Also any advice on the migranes would be helpful too he has hardly left his dark

bedroom in over two week and the light is just so painful...

This is soooo hard

Oh my gosh

[Guest guest]

First, do not sign anything without taking it home to read it and digest what

you read.

Second, document all of his symptoms, how it affects his ability to attend

school and/or complete the work at home, and then what accomodations can solve

or help solve the problem.

Third, do not request a 504, you always want to request an eval for an IEP, and

then if you can't get your child qualified on an IEP and the only chance you

have of receiving accomodations is a 504, you agree to that. A 504 is not

legally binding and doesn't carry the weight that an IEP does. Though to be

honest, it's too late in the year for either a 504 or an IEP. However, you can

inform the school that you are requesting an eval to begin at the beginning of

the coming school year. Most states have at least a 30 day time period for the

school to complete the eval (New Mexico is 60 and there are some others that I

know are 60 also). If by chance you are lucky enough to have be in a state that

has a 30 day or less (and you have that many days left of school), you may be

able to push enough to get the process done, stating that you want it in place

on day 1 of the new 2010 - 2011 school year. (It's doubtful this will work, it

may be worth a try if you have enough days of school left though.)

Fourth, remember that you will need to educate the school personnel on your

son's illness. They do not understand, and they don't have a lot of time to

learn, you need to be concise with your information. A 1 page summary of ways

the disease affects people is helpful, most especially if a majority of it is

bullet-pointed. If it's straight and to the point, they are more likely to read

it. At the end, or on the reverse side, list some web site links that have

truthful Lyme info. Many teachers and administrators will search out more info

and you want to insure that info is accurate (not all will, but there are many).

Fifth, be confident in yourself and your son. Teachers and administrators do

not know everything. We know our child best, we now how they work and what they

are capable of. Your knowledge and experience with your child is every bit as

important as a teachers training. Do not let yourself be intimidated. Question

things that don't seem reasonable to you. If they tell you it's what the

guidelines, policy or laws state, ask to see that particular law, policy, or

guideline in writing. And then remember, that policy and guidelines are just

that...... guidelines and policies. There is always " wiggle room " in policies

and guidelines. Policies can be changed, amended, and taken on a case-by-case

basis. Guidelines are guidelines, not set in stone.

Good luck,

Charlotte

iamwhimsy@...

http://whimsy.t35.com

[ ] 1st meeting w/ princ, nurse, guidance tomm

Hey all,

My son 12 is having a really hard time right now and has missed several

consecutive days of school recently as well as several days earlier in the year

all due to lyme - dr.'s appts and flare ups

At this point he has missed the past weeks and the teachers are sending home

EVERY piece of school work and it is just ridiculous.... somedays his head hurts

so bad (lyme migranes) he can't even look at the tv, he can only listen. There

is no way he can read the amount of material they need him.

Some teachers are understanding and they are willing to send home tests and

allow me to read them to him and even write for him and he can just tell me the

answers but then in other classes like math.... I can't read to him 2x+3y-7=15

these problems need to be worked out on paper you know?

So tom I am having a meeting w/ the princ, nurse, and guid to discuss how we

can help him successfully pass the 7th grade and I was hoping for any guidance

from the group...

As I am not really sure what I am requesting from them and I am afraid they

are going to rec summer school and I don't want to agree to this because I have

no way of knowing if he is in fact going to be better in July... I pray he will

be.

I f anyone has ANY advice on what to do or say it would be really helpful I am

kind of nervous....

Also any advice on the migranes would be helpful too he has hardly left his

dark bedroom in over two week and the light is just so painful...

This is soooo hard

[Guest guest]

Laina,

The school desperately needs training. Have them put this in the IEP ( " Each

teacher will undergo training related to the social, emotional, cognitive, and

physical implications of chronic lyme disease... as facilitated by parent at no

cost to district " . I will come over there and do it for free. I can speak from

the perspective of a LL School Social Worker and private practice therapist.

Others may consider doing the same with regard to 504s and IEPs if such is avail

in your areas (check with local lyme task forces/LDA groups for this). Good luck

Laina and let me know what you need. Kim

Sent on the Sprint® Now Network from my BlackBerry®

[ ] 1st meeting w/ princ, nurse, guidance tomm

Hey all,

My son 12 is having a really hard time right now and has missed several

consecutive days of school recently as well as several days earlier in the year

all due to lyme - dr.'s appts and flare ups

At this point he has missed the past weeks and the teachers are sending home

EVERY piece of school work and it is just ridiculous.... somedays his head hurts

so bad (lyme migranes) he can't even look at the tv, he can only listen. There

is no way he can read the amount of material they need him.

Some teachers are understanding and they are willing to send home tests and

allow me to read them to him and even write for him and he can just tell me the

answers but then in other classes like math.... I can't read to him 2x+3y-7=15

these problems need to be worked out on paper you know?

So tom I am having a meeting w/ the princ, nurse, and guid to discuss how we can

help him successfully pass the 7th grade and I was hoping for any guidance from

the group...

As I am not really sure what I am requesting from them and I am afraid they are

going to rec summer school and I don't want to agree to this because I have no

way of knowing if he is in fact going to be better in July... I pray he will be.

I f anyone has ANY advice on what to do or say it would be really helpful I am

kind of nervous....

Also any advice on the migranes would be helpful too he has hardly left his dark

bedroom in over two week and the light is just so painful...

This is soooo hard

[Guest guest]

We don't have an IEP....

Maybe they coould put this in place for next year if needed?

What do I ask for today....

I had the guidance and the nurse watch under our skin

but I wish I had a handout or something that explained how lyme can interfere w/

learning, create ADHD like symptoms, etc

Do you have any type of handout like this?

Thank you for your help and support

> From: kimperrymsw@... <kimperrymsw@...>

> Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance tomm

>

> Date: Wednesday, May 26, 2010, 6:58 AM

> Laina,

> The school desperately needs training. Have them put this

> in the IEP ( " Each teacher will undergo training related to

> the social, emotional, cognitive, and physical implications

> of chronic lyme disease... as facilitated by parent at no

> cost to district " . I will come over there and do it for

> free. I can speak from the perspective of a LL School Social

> Worker and private practice therapist. Others may consider

> doing the same with regard to 504s and IEPs if such is avail

> in your areas (check with local lyme task forces/LDA groups

> for this). Good luck Laina and let me know what you need.

> Kim

> Sent on the Sprint® Now Network from my BlackBerry®

>

> [ ] 1st meeting w/ princ, nurse,

> guidance tomm

>

> Hey all,

>

> My son 12 is having a really hard time right now and has

> missed several consecutive days of school recently as well

> as several days earlier in the year all due to lyme - dr.'s

> appts and flare ups

>

> At this point he has missed the past weeks and the teachers

> are sending home EVERY piece of school work and it is just

> ridiculous.... somedays his head hurts so bad (lyme

> migranes) he can't even look at the tv, he can only listen.

> There is no way he can read the amount of material they need

> him.

>

> Some teachers are understanding and they are willing to

> send home tests and allow me to read them to him and even

> write for him and he can just tell me the answers but then

> in other classes like math.... I can't read to him

> 2x+3y-7=15 these problems need to be worked out on paper you

> know?

>

> So tom I am having a meeting w/ the princ, nurse, and guid

> to discuss how we can help him successfully pass the 7th

> grade and I was hoping for any guidance from the group...

>

> As I am not really sure what I am requesting from them and

> I am afraid they are going to rec summer school and I don't

> want to agree to this because I have no way of knowing if he

> is in fact going to be better in July... I pray he will be.

>

> I f anyone has ANY advice on what to do or say it would be

> really helpful I am kind of nervous....

>

> Also any advice on the migranes would be helpful too he has

> hardly left his dark bedroom in over two week and the light

> is just so painful...

>

> This is soooo hard

>

>

>

>

>

[Guest guest]

laina,

If you have afax number I will fax you some stuff. What time is your

meeting?

On Wed, May 26, 2010 at 7:31 AM, laina pedro <Lainamariepedro@...>wrote:

>

>

> We don't have an IEP....

> Maybe they coould put this in place for next year if needed?

> What do I ask for today....

> I had the guidance and the nurse watch under our skin

> but I wish I had a handout or something that explained how lyme can

> interfere w/ learning, create ADHD like symptoms, etc

> Do you have any type of handout like this?

> Thank you for your help and support

>

>

>

> > From: kimperrymsw@... <kimperrymsw%40> <

> kimperrymsw@... <kimperrymsw%40>>

> > Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance

> tomm

>

> > < %40>

> > Date: Wednesday, May 26, 2010, 6:58 AM

>

> > Laina,

> > The school desperately needs training. Have them put this

> > in the IEP ( " Each teacher will undergo training related to

> > the social, emotional, cognitive, and physical implications

> > of chronic lyme disease... as facilitated by parent at no

> > cost to district " . I will come over there and do it for

> > free. I can speak from the perspective of a LL School Social

> > Worker and private practice therapist. Others may consider

> > doing the same with regard to 504s and IEPs if such is avail

> > in your areas (check with local lyme task forces/LDA groups

> > for this). Good luck Laina and let me know what you need.

> > Kim

> > Sent on the Sprint® Now Network from my BlackBerry®

>

> >

> > [ ] 1st meeting w/ princ, nurse,

> > guidance tomm

> >

> > Hey all,

> >

> > My son 12 is having a really hard time right now and has

> > missed several consecutive days of school recently as well

> > as several days earlier in the year all due to lyme - dr.'s

> > appts and flare ups

> >

> > At this point he has missed the past weeks and the teachers

> > are sending home EVERY piece of school work and it is just

> > ridiculous.... somedays his head hurts so bad (lyme

> > migranes) he can't even look at the tv, he can only listen.

> > There is no way he can read the amount of material they need

> > him.

> >

> > Some teachers are understanding and they are willing to

> > send home tests and allow me to read them to him and even

> > write for him and he can just tell me the answers but then

> > in other classes like math.... I can't read to him

> > 2x+3y-7=15 these problems need to be worked out on paper you

> > know?

> >

> > So tom I am having a meeting w/ the princ, nurse, and guid

> > to discuss how we can help him successfully pass the 7th

> > grade and I was hoping for any guidance from the group...

> >

> > As I am not really sure what I am requesting from them and

> > I am afraid they are going to rec summer school and I don't

> > want to agree to this because I have no way of knowing if he

> > is in fact going to be better in July... I pray he will be.

> >

> > I f anyone has ANY advice on what to do or say it would be

> > really helpful I am kind of nervous....

> >

> > Also any advice on the migranes would be helpful too he has

> > hardly left his dark bedroom in over two week and the light

> > is just so painful...

> >

> > This is soooo hard

> >

> >

> >

> >

> >

[Guest guest]

Oh my god you are an angel.Thank you so much.I am going to have you fax to my

mothers house b/c my fax is broken her number is 401-848-9675Can you tell me

about what time you will be sending it and I will call and make sure they have

the machine on...If for some reason this doesnt work out I will get the fax

number for the local staples store and have you send it there.Will you be able

to receive email all day?Meeting is at 1100Thank you Thank you

>

> > From: kimperrymsw@... <kimperrymsw%40> <

> kimperrymsw@... <kimperrymsw%40>>

> > Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance

> tomm

>

> > < %40>

> > Date: Wednesday, May 26, 2010, 6:58 AM

>

> > Laina,

> > The school desperately needs training. Have them put this

> > in the IEP ( " Each teacher will undergo training related to

> > the social, emotional, cognitive, and physical implications

> > of chronic lyme disease... as facilitated by parent at no

> > cost to district " . I will come over there and do it for

> > free. I can speak from the perspective of a LL School Social

> > Worker and private practice therapist. Others may consider

> > doing the same with regard to 504s and IEPs if such is avail

> > in your areas (check with local lyme task forces/LDA groups

> > for this). Good luck Laina and let me know what you need.

> > Kim

> > Sent on the Sprint® Now Network from my BlackBerry®

>

> >

> > [ ] 1st meeting w/ princ, nurse,

> > guidance tomm

> >

> > Hey all,

> >

> > My son 12 is having a really hard time right now and has

> > missed several consecutive days of school recently as well

> > as several days earlier in the year all due to lyme - dr.'s

> > appts and flare ups

> >

> > At this point he has missed the past weeks and the teachers

> > are sending home EVERY piece of school work and it is just

> > ridiculous.... somedays his head hurts so bad (lyme

> > migranes) he can't even look at the tv, he can only listen.

> > There is no way he can read the amount of material they need

> > him.

> >

> > Some teachers are understanding and they are willing to

> > send home tests and allow me to read them to him and even

> > write for him and he can just tell me the answers but then

> > in other classes like math.... I can't read to him

> > 2x+3y-7=15 these problems need to be worked out on paper you

> > know?

> >

> > So tom I am having a meeting w/ the princ, nurse, and guid

> > to discuss how we can help him successfully pass the 7th

> > grade and I was hoping for any guidance from the group...

> >

> > As I am not really sure what I am requesting from them and

> > I am afraid they are going to rec summer school and I don't

> > want to agree to this because I have no way of knowing if he

> > is in fact going to be better in July... I pray he will be.

> >

> > I f anyone has ANY advice on what to do or say it would be

> > really helpful I am kind of nervous....

> >

> > Also any advice on the migranes would be helpful too he has

> > hardly left his dark bedroom in over two week and the light

> > is just so painful...

> >

> > This is soooo hard

> >

> >

> >

> >

> >

[Guest guest]

I an going to try it now, if it does not work, let me know. I have to take

my youngest to the bus. Where are you again?

On Wed, May 26, 2010 at 8:01 AM, laina pedro <Lainamariepedro@...>wrote:

>

>

> Oh my god you are an angel.Thank you so much.I am going to have you fax to

> my mothers house b/c my fax is broken her number is 401-848-9675Can you tell

> me about what time you will be sending it and I will call and make sure they

> have the machine on...If for some reason this doesnt work out I will get the

> fax number for the local staples store and have you send it there.Will you

> be able to receive email all day?Meeting is at 1100Thank you Thank you

>

>

>

> >

>

> > > From: kimperrymsw@... <kimperrymsw%40> <kimperrymsw%

> 40> <

>

> > kimperrymsw@... <kimperrymsw%40> <kimperrymsw%40>>

>

>

>

> > > Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance

>

> > tomm

>

> >

>

> > > < %40>

> < %40>

>

>

> > > Date: Wednesday, May 26, 2010, 6:58 AM

>

> >

>

> > > Laina,

>

> > > The school desperately needs training. Have them put this

>

> > > in the IEP ( " Each teacher will undergo training related to

>

> > > the social, emotional, cognitive, and physical implications

>

> > > of chronic lyme disease... as facilitated by parent at no

>

> > > cost to district " . I will come over there and do it for

>

> > > free. I can speak from the perspective of a LL School Social

>

> > > Worker and private practice therapist. Others may consider

>

> > > doing the same with regard to 504s and IEPs if such is avail

>

> > > in your areas (check with local lyme task forces/LDA groups

>

> > > for this). Good luck Laina and let me know what you need.

>

> > > Kim

>

> > > Sent on the Sprint® Now Network from my BlackBerry®

>

> >

>

> > >

>

> > > [ ] 1st meeting w/ princ, nurse,

>

> > > guidance tomm

>

> > >

>

> > > Hey all,

>

> > >

>

> > > My son 12 is having a really hard time right now and has

>

> > > missed several consecutive days of school recently as well

>

> > > as several days earlier in the year all due to lyme - dr.'s

>

> > > appts and flare ups

>

> > >

>

> > > At this point he has missed the past weeks and the teachers

>

> > > are sending home EVERY piece of school work and it is just

>

> > > ridiculous.... somedays his head hurts so bad (lyme

>

> > > migranes) he can't even look at the tv, he can only listen.

>

> > > There is no way he can read the amount of material they need

>

> > > him.

>

> > >

>

> > > Some teachers are understanding and they are willing to

>

> > > send home tests and allow me to read them to him and even

>

> > > write for him and he can just tell me the answers but then

>

> > > in other classes like math.... I can't read to him

>

> > > 2x+3y-7=15 these problems need to be worked out on paper you

>

> > > know?

>

> > >

>

> > > So tom I am having a meeting w/ the princ, nurse, and guid

>

> > > to discuss how we can help him successfully pass the 7th

>

> > > grade and I was hoping for any guidance from the group...

>

> > >

>

> > > As I am not really sure what I am requesting from them and

>

> > > I am afraid they are going to rec summer school and I don't

>

> > > want to agree to this because I have no way of knowing if he

>

> > > is in fact going to be better in July... I pray he will be.

>

> > >

>

> > > I f anyone has ANY advice on what to do or say it would be

>

> > > really helpful I am kind of nervous....

>

> > >

>

> > > Also any advice on the migranes would be helpful too he has

>

> > > hardly left his dark bedroom in over two week and the light

>

> > > is just so painful...

>

> > >

>

> > > This is soooo hard

>

> > >

>

> > >

>

> > >

>

> > >

>

> > >

[Guest guest]

Go to ilads.org and go to the pamphlets section. Download which ones you want.

Bring them with you. Ask for a 504 if you don't have that or request

consideration for an iep if he needs the specialized instruction. You are a

member of both teams. Don't give up!

Kim

Sent on the Sprint® Now Network from my BlackBerry®

[ ] 1st meeting w/ princ, nurse,

> guidance tomm

>

> Hey all,

>

> My son 12 is having a really hard time right now and has

> missed several consecutive days of school recently as well

> as several days earlier in the year all due to lyme - dr.'s

> appts and flare ups

>

> At this point he has missed the past weeks and the teachers

> are sending home EVERY piece of school work and it is just

> ridiculous.... somedays his head hurts so bad (lyme

> migranes) he can't even look at the tv, he can only listen.

> There is no way he can read the amount of material they need

> him.

>

> Some teachers are understanding and they are willing to

> send home tests and allow me to read them to him and even

> write for him and he can just tell me the answers but then

> in other classes like math.... I can't read to him

> 2x+3y-7=15 these problems need to be worked out on paper you

> know?

>

> So tom I am having a meeting w/ the princ, nurse, and guid

> to discuss how we can help him successfully pass the 7th

> grade and I was hoping for any guidance from the group...

>

> As I am not really sure what I am requesting from them and

> I am afraid they are going to rec summer school and I don't

> want to agree to this because I have no way of knowing if he

> is in fact going to be better in July... I pray he will be.

>

> I f anyone has ANY advice on what to do or say it would be

> really helpful I am kind of nervous....

>

> Also any advice on the migranes would be helpful too he has

> hardly left his dark bedroom in over two week and the light

> is just so painful...

>

> This is soooo hard

>

>

>

>

>

[Guest guest]

Laina,

I faxed some sheets over. If you were unable to get them or need me to fax

them somewhere else, let me know. I have no idea what time line you are in

so I am hoping we are able to get you help. Call me 703-963-8503 if you

need me to send them somewhere else.

On Tue, May 25, 2010 at 8:18 PM, lainamariepedro

<Lainamariepedro@...>wrote:

>

>

> Hey all,

>

> My son 12 is having a really hard time right now and has missed several

> consecutive days of school recently as well as several days earlier in the

> year all due to lyme - dr.'s appts and flare ups

>

> At this point he has missed the past weeks and the teachers are sending

> home EVERY piece of school work and it is just ridiculous.... somedays his

> head hurts so bad (lyme migranes) he can't even look at the tv, he can only

> listen. There is no way he can read the amount of material they need him.

>

> Some teachers are understanding and they are willing to send home tests and

> allow me to read them to him and even write for him and he can just tell me

> the answers but then in other classes like math.... I can't read to him

> 2x+3y-7=15 these problems need to be worked out on paper you know?

>

> So tom I am having a meeting w/ the princ, nurse, and guid to discuss how

> we can help him successfully pass the 7th grade and I was hoping for any

> guidance from the group...

>

> As I am not really sure what I am requesting from them and I am afraid they

> are going to rec summer school and I don't want to agree to this because I

> have no way of knowing if he is in fact going to be better in July... I pray

> he will be.

>

> I f anyone has ANY advice on what to do or say it would be really helpful I

> am kind of nervous....

>

> Also any advice on the migranes would be helpful too he has hardly left his

> dark bedroom in over two week and the light is just so painful...

>

> This is soooo hard

>

>

>

--

Farrell

lesliebfarrell@...

[Guest guest]

-

Any way you could scan them and then send them to my email?  This is not Laina

so this is someone totally different....let me know thanks -----

dkbmama@...

Diane

________________________________

From: Farrell <lesliebfarrell@...>

Sent: Wed, May 26, 2010 9:33:51 AM

Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance tomm

 

Laina,

I faxed some sheets over. If you were unable to get them or need me to fax

them somewhere else, let me know. I have no idea what time line you are in

so I am hoping we are able to get you help. Call me 703-963-8503 if you

need me to send them somewhere else.

On Tue, May 25, 2010 at 8:18 PM, lainamariepedro

<Lainamariepedro@...>wrote:

>

>

> Hey all,

>

> My son 12 is having a really hard time right now and has missed several

> consecutive days of school recently as well as several days earlier in the

> year all due to lyme - dr.'s appts and flare ups

>

> At this point he has missed the past weeks and the teachers are sending

> home EVERY piece of school work and it is just ridiculous.... somedays his

> head hurts so bad (lyme migranes) he can't even look at the tv, he can only

> listen. There is no way he can read the amount of material they need him.

>

> Some teachers are understanding and they are willing to send home tests and

> allow me to read them to him and even write for him and he can just tell me

> the answers but then in other classes like math.... I can't read to him

> 2x+3y-7=15 these problems need to be worked out on paper you know?

>

> So tom I am having a meeting w/ the princ, nurse, and guid to discuss how

> we can help him successfully pass the 7th grade and I was hoping for any

> guidance from the group...

>

> As I am not really sure what I am requesting from them and I am afraid they

> are going to rec summer school and I don't want to agree to this because I

> have no way of knowing if he is in fact going to be better in July... I pray

> he will be.

>

> I f anyone has ANY advice on what to do or say it would be really helpful I

> am kind of nervous....

>

> Also any advice on the migranes would be helpful too he has hardly left his

> dark bedroom in over two week and the light is just so painful...

>

> This is soooo hard

>

>

>

--

Farrell

lesliebfarrell@...

[Guest guest]

This is simply not true about a 504 so please be cautious here.  A 504 is

absolutely legally binding and holds plenty of weight.  The Office of Civil

Liberties can come in and shut down an entire school and/or hold individuals

personally liable for not abiding by the accommodations set forth within the

plan.  IDEA makes sure of this.  It is often beneficial to have a 504 plan,

particularly if a child does not qualify for an IEP based upon the qualifying

conditions for special education regulations.  Having a Lyme diagnosis may not

qualify a child for SS if it " seems " not to be impacting their education and/or

does not require specialized instruction.  The 504 is to ensure that a student

receives the needed accommodations based upon their particular disability.  

Laina, the school dept has 60 days to complete evals, then 10 days to develop

and implement an IEP.   If that is what your child needs, don't let another

day go by.  Document everything.  Put everything in writing to the school.

Kim 

 

________________________________

From: CT <iamwhimsy@...>

Sent: Tue, May 25, 2010 11:40:08 PM

Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance tomm

 

First, do not sign anything without taking it home to read it and digest what

you read.

Second, document all of his symptoms, how it affects his ability to attend

school and/or complete the work at home, and then what accomodations can solve

or help solve the problem.

Third, do not request a 504, you always want to request an eval for an IEP, and

then if you can't get your child qualified on an IEP and the only chance you

have of receiving accomodations is a 504, you agree to that. A 504 is not

legally binding and doesn't carry the weight that an IEP does. Though to be

honest, it's too late in the year for either a 504 or an IEP. However, you can

inform the school that you are requesting an eval to begin at the beginning of

the coming school year. Most states have at least a 30 day time period for the

school to complete the eval (New Mexico is 60 and there are some others that I

know are 60 also). If by chance you are lucky enough to have be in a state that

has a 30 day or less (and you have that many days left of school), you may be

able to push enough to get the process done, stating that you want it in place

on day 1 of the new 2010 - 2011 school year. (It's doubtful this will work, it

may be worth a try if you

have enough days of school left though.)

Fourth, remember that you will need to educate the school personnel on your

son's illness. They do not understand, and they don't have a lot of time to

learn, you need to be concise with your information. A 1 page summary of ways

the disease affects people is helpful, most especially if a majority of it is

bullet-pointed. If it's straight and to the point, they are more likely to read

it. At the end, or on the reverse side, list some web site links that have

truthful Lyme info. Many teachers and administrators will search out more info

and you want to insure that info is accurate (not all will, but there are many).

Fifth, be confident in yourself and your son. Teachers and administrators do not

know everything. We know our child best, we now how they work and what they are

capable of. Your knowledge and experience with your child is every bit as

important as a teachers training. Do not let yourself be intimidated. Question

things that don't seem reasonable to you. If they tell you it's what the

guidelines, policy or laws state, ask to see that particular law, policy, or

guideline in writing. And then remember, that policy and guidelines are just

that...... guidelines and policies. There is always " wiggle room " in policies

and guidelines. Policies can be changed, amended, and taken on a case-by-case

basis. Guidelines are guidelines, not set in stone.

Good luck,

Charlotte

iamwhimsy@...

http://whimsy.t35.com

[ ] 1st meeting w/ princ, nurse, guidance tomm

Hey all,

My son 12 is having a really hard time right now and has missed several

consecutive days of school recently as well as several days earlier in the year

all due to lyme - dr.'s appts and flare ups

At this point he has missed the past weeks and the teachers are sending home

EVERY piece of school work and it is just ridiculous.... somedays his head hurts

so bad (lyme migranes) he can't even look at the tv, he can only listen. There

is no way he can read the amount of material they need him.

Some teachers are understanding and they are willing to send home tests and

allow me to read them to him and even write for him and he can just tell me the

answers but then in other classes like math.... I can't read to him 2x+3y-7=15

these problems need to be worked out on paper you know?

So tom I am having a meeting w/ the princ, nurse, and guid to discuss how we can

help him successfully pass the 7th grade and I was hoping for any guidance from

the group...

As I am not really sure what I am requesting from them and I am afraid they are

going to rec summer school and I don't want to agree to this because I have no

way of knowing if he is in fact going to be better in July... I pray he will be.

I f anyone has ANY advice on what to do or say it would be really helpful I am

kind of nervous....

Also any advice on the migranes would be helpful too he has hardly left his dark

bedroom in over two week and the light is just so painful...

This is soooo hard

[Guest guest]

" On September 25, 2008, the President signed the Americans with Disabilities Act

Amendments Act of 2008 (ADAAA) . The Act, effective January 1, 2009, emphasizes

that the definition of disability should be construed in favor of broad coverage

of individuals to the maximum extent permitted by the terms of the ADA.

ADAAA Changes Apply to Section 504. Section 504 was amended so that it now

incorporates the ADAAA by reference and applies to public school students under

Section 504. Read more.

On March 31, 2008, in Draper, a District Court issued a decision denying the

motion by the Atlanta Public School District (“APSâ€) to dismiss Jarron

Draper’s civil rights claims for monetary damages after APS discriminated

against him, harassed him, and retaliated against him and his family over a

period of many years. Read story. Download decision. See this other ruling in

Draper, click here.

Section 504 is a civil rights law that prohibits discrimination against

individuals with disabilities. Section 504 ensures that the child with a

disability has equal access to an education. The child may receive

accommodations and modifications.

Unlike the Individuals with Disabilities Education Act (IDEA), Section 504 does

not require the school to provide an individualized educational program (IEP)

that is designed to meet the child's unique needs and provides the child with

educational benefit. Under Section 504, fewer procedural safeguards are

available to children with disabilities and their parents than under IDEA. "

A 504 does not afford the same protections as an IEP. An IEP is much easier to

enforce and requires individualized education. A 504 is accomodations and

modifications. There is definitely a difference. Some school districts will

tell you that a 504 is for physical disabilities and an IEP is for emotional and

cognitive (such as autism). Either can be used in either circumstance provided

the criteria is met.

While there are some cases of success in enforcing a 504, it is much easier with

an IEP. I know several individuals that have not received what has been needed

in a 504, and they struggle to get the help for their child that they should

have.

Charlotte

iamwhimsy@...

http://whimsy.t35.com

[ ] 1st meeting w/ princ, nurse, guidance tomm

Hey all,

My son 12 is having a really hard time right now and has missed several

consecutive days of school recently as well as several days earlier in the year

all due to lyme - dr.'s appts and flare ups

At this point he has missed the past weeks and the teachers are sending home

EVERY piece of school work and it is just ridiculous.... somedays his head hurts

so bad (lyme migranes) he can't even look at the tv, he can only listen. There

is no way he can read the amount of material they need him.

Some teachers are understanding and they are willing to send home tests and

allow me to read them to him and even write for him and he can just tell me the

answers but then in other classes like math.... I can't read to him 2x+3y-7=15

these problems need to be worked out on paper you know?

So tom I am having a meeting w/ the princ, nurse, and guid to discuss how we

can help him successfully pass the 7th grade and I was hoping for any guidance

from the group...

As I am not really sure what I am requesting from them and I am afraid they

are going to rec summer school and I don't want to agree to this because I have

no way of knowing if he is in fact going to be better in July... I pray he will

be.

I f anyone has ANY advice on what to do or say it would be really helpful I am

kind of nervous....

Also any advice on the migranes would be helpful too he has hardly left his

dark bedroom in over two week and the light is just so painful...

This is soooo hard

[Guest guest]

Kim, It's true a 504 is legally binding, but often the school will balk at

giving a 504 (reality) -- so many people have advised me to ask for an IEP and

back down to a 504 for my daughters.  In our case, the school gave my homebound

daughter a tutor for the month of December -- she came twice, went on vacation

and was completely lame in every way.  The counselor just volunteered to me

this week that my daughter is in a tricky position because if she were just at

home all the time she would qualify for a tutor but because she has been at

school for 4 weeks and 2 days this semester she does not qualify!  I am sure

this is not true and that I could really push it but the reality is that at this

point I have no problem educating her myself at home (we do extensions and are

basically anchored by the school assignments) without having to worry about

being a legally certified homeschooling parent.  Besides the fact that my

daughter desperately wants to be

in school any part of any day that she possibly can.  Schools are not equipped

for the chronically ill child.  They just deal very badly with it in general,

with exceptions.  At least our school is being good about not prosecuting and

persecuting us, and I'm very grateful for that.

Anyway, just to say that asking for an IEP can be a negotiating point from which

you negotiate o the less rigorous 504 plan (your child may just need to have

flexible deadlines, for example).  With the IEP, my daughter is actually

getting all pass/fail grades this year, turning in the homework, and taking

tests at home (or not at all, in the case of math).  At this point, just

teaching her the material is the goal.  And the choir and art teachers have

been absolutely amazing about my daughters, really kind and loving and

appreciative.  Goes a long way, let me tell you.

Good luck on the meeting.

Natasha

From: Kim <kimperrymsw@...>

Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance tomm

Date: Wednesday, May 26, 2010, 8:14 AM

 

This is simply not true about a 504 so please be cautious here.  A 504 is

absolutely legally binding and holds plenty of weight.  The Office of Civil

Liberties can come in and shut down an entire school and/or hold individuals

personally liable for not abiding by the accommodations set forth within the

plan.  IDEA makes sure of this.  It is often beneficial to have a 504 plan,

particularly if a child does not qualify for an IEP based upon the qualifying

conditions for special education regulations.  Having a Lyme diagnosis may not

qualify a child for SS if it " seems " not to be impacting their education and/or

does not require specialized instruction.  The 504 is to ensure that a student

receives the needed accommodations based upon their particular disability.  

Laina, the school dept has 60 days to complete evals, then 10 days to develop

and implement an IEP.   If that is what your child needs, don't let another

day go by.  Document everything.  Put everything in writing to the school.

Kim 

 

________________________________

From: CT <iamwhimsy@...>

Sent: Tue, May 25, 2010 11:40:08 PM

Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance tomm

 

First, do not sign anything without taking it home to read it and digest what

you read.

Second, document all of his symptoms, how it affects his ability to attend

school and/or complete the work at home, and then what accomodations can solve

or help solve the problem.

Third, do not request a 504, you always want to request an eval for an IEP, and

then if you can't get your child qualified on an IEP and the only chance you

have of receiving accomodations is a 504, you agree to that. A 504 is not

legally binding and doesn't carry the weight that an IEP does. Though to be

honest, it's too late in the year for either a 504 or an IEP. However, you can

inform the school that you are requesting an eval to begin at the beginning of

the coming school year. Most states have at least a 30 day time period for the

school to complete the eval (New Mexico is 60 and there are some others that I

know are 60 also). If by chance you are lucky enough to have be in a state that

has a 30 day or less (and you have that many days left of school), you may be

able to push enough to get the process done, stating that you want it in place

on day 1 of the new 2010 - 2011 school year. (It's doubtful this will work, it

may be worth a try if you

have enough days of school left though.)

Fourth, remember that you will need to educate the school personnel on your

son's illness. They do not understand, and they don't have a lot of time to

learn, you need to be concise with your information. A 1 page summary of ways

the disease affects people is helpful, most especially if a majority of it is

bullet-pointed. If it's straight and to the point, they are more likely to read

it. At the end, or on the reverse side, list some web site links that have

truthful Lyme info. Many teachers and administrators will search out more info

and you want to insure that info is accurate (not all will, but there are many).

Fifth, be confident in yourself and your son. Teachers and administrators do not

know everything. We know our child best, we now how they work and what they are

capable of. Your knowledge and experience with your child is every bit as

important as a teachers training. Do not let yourself be intimidated. Question

things that don't seem reasonable to you. If they tell you it's what the

guidelines, policy or laws state, ask to see that particular law, policy, or

guideline in writing. And then remember, that policy and guidelines are just

that...... guidelines and policies. There is always " wiggle room " in policies

and guidelines. Policies can be changed, amended, and taken on a case-by-case

basis. Guidelines are guidelines, not set in stone.

Good luck,

Charlotte

iamwhimsy@...

http://whimsy.t35.com

[ ] 1st meeting w/ princ, nurse, guidance tomm

Hey all,

My son 12 is having a really hard time right now and has missed several

consecutive days of school recently as well as several days earlier in the year

all due to lyme - dr.'s appts and flare ups

At this point he has missed the past weeks and the teachers are sending home

EVERY piece of school work and it is just ridiculous.... somedays his head hurts

so bad (lyme migranes) he can't even look at the tv, he can only listen. There

is no way he can read the amount of material they need him.

Some teachers are understanding and they are willing to send home tests and

allow me to read them to him and even write for him and he can just tell me the

answers but then in other classes like math.... I can't read to him 2x+3y-7=15

these problems need to be worked out on paper you know?

So tom I am having a meeting w/ the princ, nurse, and guid to discuss how we can

help him successfully pass the 7th grade and I was hoping for any guidance from

the group...

As I am not really sure what I am requesting from them and I am afraid they are

going to rec summer school and I don't want to agree to this because I have no

way of knowing if he is in fact going to be better in July... I pray he will be.

I f anyone has ANY advice on what to do or say it would be really helpful I am

kind of nervous....

Also any advice on the migranes would be helpful too he has hardly left his dark

bedroom in over two week and the light is just so painful...

This is soooo hard

[Guest guest]

Yes I will work on that now. I needed my husbancd to help because I do not

understand his scanner.

On Wed, May 26, 2010 at 10:49 AM, Diane Biel <dkbmama@...> wrote:

>

>

> -

> Any way you could scan them and then send them to my email? This is not

> Laina so this is someone totally different....let me know thanks -----

> dkbmama@... <dkbmama%40>

> Diane

>

> ________________________________

> From: Farrell <lesliebfarrell@...<lesliebfarrell%40gmail.com>>

>

>

> < %40>

> Sent: Wed, May 26, 2010 9:33:51 AM

>

> Subject: Re: [ ] 1st meeting w/ princ, nurse, guidance tomm

>

>

> Laina,

> I faxed some sheets over. If you were unable to get them or need me to fax

> them somewhere else, let me know. I have no idea what time line you are in

> so I am hoping we are able to get you help. Call me 703-963-8503 if you

> need me to send them somewhere else.

>

>

> On Tue, May 25, 2010 at 8:18 PM, lainamariepedro

> <Lainamariepedro@... <Lainamariepedro%40>>wrote:

>

> >

> >

> > Hey all,

> >

> > My son 12 is having a really hard time right now and has missed several

> > consecutive days of school recently as well as several days earlier in

> the

> > year all due to lyme - dr.'s appts and flare ups

> >

> > At this point he has missed the past weeks and the teachers are sending

> > home EVERY piece of school work and it is just ridiculous.... somedays

> his

> > head hurts so bad (lyme migranes) he can't even look at the tv, he can

> only

> > listen. There is no way he can read the amount of material they need him.

> >

> > Some teachers are understanding and they are willing to send home tests

> and

> > allow me to read them to him and even write for him and he can just tell

> me

> > the answers but then in other classes like math.... I can't read to him

> > 2x+3y-7=15 these problems need to be worked out on paper you know?

> >

> > So tom I am having a meeting w/ the princ, nurse, and guid to discuss how

> > we can help him successfully pass the 7th grade and I was hoping for any

> > guidance from the group...

> >

> > As I am not really sure what I am requesting from them and I am afraid

> they

> > are going to rec summer school and I don't want to agree to this because

> I

> > have no way of knowing if he is in fact going to be better in July... I

> pray

> > he will be.

> >

> > I f anyone has ANY advice on what to do or say it would be really helpful

> I

> > am kind of nervous....

> >

> > Also any advice on the migranes would be helpful too he has hardly left

> his

> > dark bedroom in over two week and the light is just so painful...

> >

> > This is soooo hard

> >

> >

> >

>

> --

> Farrell

> lesliebfarrell@... <lesliebfarrell%40gmail.com>

>

>