Re: Rheumatologist No. Virginia

[Guest guest]

Jeannette and Debbie, I live in ndale next to NOVA and have a super

Rheumatologist. I am blessed. Betty in VA

[Guest guest]

Hi Betty,

I know where ndale is, I used to live in Springfield among other places.

I am in WV now, my sister still lives in Springfield . I used to work at a

little theatre in ndale, The Americana, I think it is gone now. This was

a long time ago.

Wow, an almost neighbor.

Jeanette

Re: [ ] Rheumatologist No. Virginia

> Jeannette and Debbie, I live in ndale next to NOVA and have a super

> Rheumatologist. I am blessed. Betty in VA

>

>

>

[Guest guest]

Hi Betty,

Could I ask who your Rheumatologist is? I am so frustrated with my

rheumy, since she does not listen to what I say, so I have been

looking for a change.

Thanks,

Debbie

>

> Jeannette and Debbie, I live in ndale next to NOVA and have a

super

> Rheumatologist. I am blessed. Betty in VA

>

>

>

[Guest guest]

Jeanette, where in West By God Virginia do you live? My parents were born in WV

and I attended a community college in Logan County called Southern West Virginia

Community College at Mudfork. Sometimes the school was referred to as Mudfork

University, or MFU. lol. My sister and I used to sing " Mudfork, Mudfork " to the

tune of New York, New York on the way to school each morning. I got quite an

education in WV. Mostly about what is really important in life as WVers seem to

" get " that. My father was a one armed coal mining inspector. He died before my

diagnosis and I know he would have been a great encouragement to me now but I

glean alot of my strength from his wisdom and example. He was not handicapped by

any means. He made it. He found ways to make it work. He was quite funny. He

received a new artificial arm from time to time through disability (which he

only applied for when he was 63 and broke his back in the mine). So he had an

drawer full of arms. lol. One of them had

tiny little holes in it. That was his Dart arm. When he went to throw darts on

Saturday afternoons, he would stick the darts in his arm and throw them from

there, rather than from his pocket. It cracked people up. He looked like

Burns and his personality was a cross between , Fred Sanford, Barney

Phiffe, and Archie Bunker. What a man. Only West Virginia could produce that.

Nuff of that. PA question. Remember I am only 3 years into my diagnosis and I

went in with hand problems and now my body is eaten up with this so it's really

all new to me. Even though I was hospitalized at 19 (I'm 44 now) with hip

issues. I had years of minor aggravation but no serious flares until now. It

still seems like it got bad quickly for me. So I consider myself a rookie and

I'll be asking rookie questions. Here it is. When you get another illness,

bladder infection, flu, virus, sinus mess or just a plain cold, does it

aggravate the PA? It seems that when I am sick, my PA is so

much worse. EVERYthing hurts. I think my hair hurts. My daughter and I are home

sick with some bug today. Also, sometimes I wonder how I will know if I have

something like a bladder infection because of my lower back pain. If I squat

down to clean a mess on the floor, once I stand back up, I walk all bent over

for a few minutes. At the super market, I pray I don't need anything on the

lower shelf. I wish I had one of those pincher arms. Hey...someone should invent

a walking cane that has a pincher on it for shopping! Hmmm....it could be inside

the cane. I bet Ian is technical like that. Remember, I get a cut on this one. I

was going to get my MRI today but I got a bug instead. Oh well. Tel Aviv, as my

sister used to say. We never corrected her. We enjoyed hearing her say it too

much. -Betz

Jeanette French <yonder@...> wrote: Hi Betty,

I know where ndale is, I used to live in Springfield among other places.

I am in WV now, my sister still lives in Springfield . I used to work at a

little theatre in ndale, The Americana, I think it is gone now. This was

a long time ago.

Wow, an almost neighbor.

Jeanette

[Guest guest]

Hi Betz,

I have recently noticed that when I have a cold or such, that my PA hurts even

more than usual... I am curious what the other responses will be.

Glad you brought this up..................

Jody

Betsy Jack <itsbetsy@...> wrote:

Jeanette, where in West By God Virginia do you live? My parents were born in

WV and I attended a community college in Logan County called Southern West

Virginia Community College at Mudfork. Sometimes the school was referred to as

Mudfork University, or MFU. lol. My sister and I used to sing " Mudfork,

Mudfork " to the tune of New York, New York on the way to school each morning. I

got quite an education in WV. Mostly about what is really important in life as

WVers seem to " get " that. My father was a one armed coal mining inspector. He

died before my diagnosis and I know he would have been a great encouragement to

me now but I glean alot of my strength from his wisdom and example. He was not

handicapped by any means. He made it. He found ways to make it work. He was

quite funny. He received a new artificial arm from time to time through

disability (which he only applied for when he was 63 and broke his back in the

mine). So he had an drawer full of arms. lol. One of them

had

tiny little holes in it. That was his Dart arm. When he went to throw darts on

Saturday afternoons, he would stick the darts in his arm and throw them from

there, rather than from his pocket. It cracked people up. He looked like

Burns and his personality was a cross between , Fred Sanford, Barney

Phiffe, and Archie Bunker. What a man. Only West Virginia could produce that.

Nuff of that. PA question. Remember I am only 3 years into my diagnosis and I

went in with hand problems and now my body is eaten up with this so it's really

all new to me. Even though I was hospitalized at 19 (I'm 44 now) with hip

issues. I had years of minor aggravation but no serious flares until now. It

still seems like it got bad quickly for me. So I consider myself a rookie and

I'll be asking rookie questions. Here it is. When you get another illness,

bladder infection, flu, virus, sinus mess or just a plain cold, does it

aggravate the PA? It seems that when I am sick, my PA is so

much worse. EVERYthing hurts. I think my hair hurts. My daughter and I are home

sick with some bug today. Also, sometimes I wonder how I will know if I have

something like a bladder infection because of my lower back pain. If I squat

down to clean a mess on the floor, once I stand back up, I walk all bent over

for a few minutes. At the super market, I pray I don't need anything on the

lower shelf. I wish I had one of those pincher arms. Hey...someone should invent

a walking cane that has a pincher on it for shopping! Hmmm....it could be inside

the cane. I bet Ian is technical like that. Remember, I get a cut on this one. I

was going to get my MRI today but I got a bug instead. Oh well. Tel Aviv, as my

sister used to say. We never corrected her. We enjoyed hearing her say it too

much. -Betz

[Guest guest]

Hi Betsy,

I live in Town, and this is amazing. My Grandfather shot off his arm

while hunting, he was leaning on the gun. And he was a coal miner. He

outworked everyone on the crew to prove he could still hold his job, as he

had a large family. My Mom was born in Junior, WV, next to Elkins. We used

to visit my Grandparents every summer till they died.

What a funny University name...lol.

I also remember all the artificial arms my Grandfather had in his drawer,

though he would never wear them. He used to drive a stick shift, shift it

with his stub and go flying around the turns in the mountains and scare all

us kids to death.

I feel like my hair hurts to some days. I would never have believed that you

could feel this way day after day if I didn't have this. When I get sick it

seems to make me very weak, and fatigue is an everyday issue too.

My low back is pretty bad also. I am always putting ice on it, it helps a

bit, but not much.

We have much in common,

Jeanette

Re: [ ] Rheumatologist No. Virginia

> Jeanette, where in West By God Virginia do you live? My parents were born

> in WV and I attended a community college in Logan County called Southern

> West Virginia Community College at Mudfork. Sometimes the school was

> referred to as Mudfork University, or MFU. lol. My sister and I used to

> sing " Mudfork, Mudfork " to the tune of New York, New York on the way to

> school each morning. I got quite an education in WV. Mostly about what is

> really important in life as WVers seem to " get " that. My father was a one

> armed coal mining inspector. He died before my diagnosis and I know he

> would have been a great encouragement to me now but I glean alot of my

> strength from his wisdom and example. He was not handicapped by any means.

> He made it. He found ways to make it work. He was quite funny. He received

> a new artificial arm from time to time through disability (which he only

> applied for when he was 63 and broke his back in the mine). So he had an

> drawer full of arms. lol. One of them had

> tiny little holes in it. That was his Dart arm. When he went to throw

> darts on Saturday afternoons, he would stick the darts in his arm and

> throw them from there, rather than from his pocket. It cracked people up.

> He looked like Burns and his personality was a cross between

> , Fred Sanford, Barney Phiffe, and Archie Bunker. What a man. Only

> West Virginia could produce that. Nuff of that. PA question. Remember I am

> only 3 years into my diagnosis and I went in with hand problems and now my

> body is eaten up with this so it's really all new to me. Even though I was

> hospitalized at 19 (I'm 44 now) with hip issues. I had years of minor

> aggravation but no serious flares until now. It still seems like it got

> bad quickly for me. So I consider myself a rookie and I'll be asking

> rookie questions. Here it is. When you get another illness, bladder

> infection, flu, virus, sinus mess or just a plain cold, does it aggravate

> the PA? It seems that when I am sick, my PA is so

> much worse. EVERYthing hurts. I think my hair hurts. My daughter and I are

> home sick with some bug today. Also, sometimes I wonder how I will know if

> I have something like a bladder infection because of my lower back pain.

> If I squat down to clean a mess on the floor, once I stand back up, I walk

> all bent over for a few minutes. At the super market, I pray I don't need

> anything on the lower shelf. I wish I had one of those pincher arms.

> Hey...someone should invent a walking cane that has a pincher on it for

> shopping! Hmmm....it could be inside the cane. I bet Ian is technical like

> that. Remember, I get a cut on this one. I was going to get my MRI today

> but I got a bug instead. Oh well. Tel Aviv, as my sister used to say. We

> never corrected her. We enjoyed hearing her say it too much. -Betz

>

> Jeanette French <yonder@...> wrote: Hi Betty,

> I know where ndale is, I used to live in Springfield among other

> places.

> I am in WV now, my sister still lives in Springfield . I used to work at a

> little theatre in ndale, The Americana, I think it is gone now. This

> was

> a long time ago.

> Wow, an almost neighbor.

> Jeanette

[Guest guest]

Jeanette, Daddy drove a stick too...VW Beetle. And he flew around corners as

well. We crammed 3 girls, oboe, sax, trumpet, and all of our books into that

bug. Daddy would make us think he was trying to nail garbage cans left out on

the street. I remember all the sqeals. I know where Junior and Elkins is. It is

amazing. I think Daddy worked extra hard to prove something too. We DO have alot

in common. How's your hair feeling today? -Betz

Jeanette French <yonder@...> wrote: Hi Betsy,

I live in Town, and this is amazing. My Grandfather shot off his arm

while hunting, he was leaning on the gun. And he was a coal miner. He

outworked everyone on the crew to prove he could still hold his job, as he

had a large family. My Mom was born in Junior, WV, next to Elkins. We used

to visit my Grandparents every summer till they died.

What a funny University name...lol.

I also remember all the artificial arms my Grandfather had in his drawer,

though he would never wear them. He used to drive a stick shift, shift it

with his stub and go flying around the turns in the mountains and scare all

us kids to death.

I feel like my hair hurts to some days. I would never have believed that you

could feel this way day after day if I didn't have this. When I get sick it

seems to make me very weak, and fatigue is an everyday issue too.

My low back is pretty bad also. I am always putting ice on it, it helps a

bit, but not much.

We have much in common,

Jeanette

[Guest guest]

Hi Betsy:

Mt hair is not to bad, my sinus's are driving me crazy. I am not sure if I

have another infection or it is just the high pollen count. I made an

appointment with the allergist, but not till July. So have to get by till

then.

I have a few relatives still in West Va., Aunts,Uncles, etc...It was a

really rough life back then, but they sure were healthy kids though...lol.

take care,

Jeanette

Re: [ ] Rheumatologist No. Virginia

> Jeanette, Daddy drove a stick too...VW Beetle. And he flew around corners

> as well. We crammed 3 girls, oboe, sax, trumpet, and all of our books into

> that bug. Daddy would make us think he was trying to nail garbage cans

> left out on the street. I remember all the sqeals. I know where Junior and

> Elkins is. It is amazing. I think Daddy worked extra hard to prove

> something too. We DO have alot in common. How's your hair feeling

> today? -Betz

>

> Jeanette French <yonder@...> wrote: Hi Betsy,

> I live in Town, and this is amazing. My Grandfather shot off his

> arm

> while hunting, he was leaning on the gun. And he was a coal miner. He

> outworked everyone on the crew to prove he could still hold his job, as he

> had a large family. My Mom was born in Junior, WV, next to Elkins. We

> used

> to visit my Grandparents every summer till they died.

> What a funny University name...lol.

> I also remember all the artificial arms my Grandfather had in his drawer,

> though he would never wear them. He used to drive a stick shift, shift it

> with his stub and go flying around the turns in the mountains and scare

> all

> us kids to death.

> I feel like my hair hurts to some days. I would never have believed that

> you

> could feel this way day after day if I didn't have this. When I get sick

> it

> seems to make me very weak, and fatigue is an everyday issue too.

> My low back is pretty bad also. I am always putting ice on it, it helps a

> bit, but not much.

> We have much in common,

> Jeanette