Re: New development in my hip dilemma

[Guest guest]

- great news in that you now have a reason for a new hip that

no surgeon can dispute. Osteonecrosis of the femoral head is the name.

You are lucky in another way - most folks that get this fracture their

hip in short order. Your body must be in very good shape to not have a

fracture yet. So although you are having problems, looks like you're a

tough cookie!!!

Kathy - great editor' comment!!!

Cheers -

> [Editor's Note: You bring up a great point, . People on PA

blame EVERYTHING that goes wrong with them on the disease or the meds

when in reality, " healthy " people have tons of these problems, too.

Glad your doctor got to the bottom of it and that things will be great

after surgery. Kathy F.]

>

[Guest guest]

,

Gosh, thanks for the proper name now I'll look it up online. Well thank

goodness for Yoga maybe that's what has helped me not to fracture the bone.

Thanks again,

math_nawi <math_nawi@...> wrote:

- great news in that you now have a reason for a new hip that

no surgeon can dispute. Osteonecrosis of the femoral head is the name.

You are lucky in another way - most folks that get this fracture their

hip in short order. Your body must be in very good shape to not have a

fracture yet. So although you are having problems, looks like you're a

tough cookie!!!

Kathy - great editor' comment!!!

Cheers -

> [Editor's Note: You bring up a great point, . People on PA

blame EVERYTHING that goes wrong with them on the disease or the meds

when in reality, " healthy " people have tons of these problems, too.

Glad your doctor got to the bottom of it and that things will be great

after surgery. Kathy F.]

>

Please visit our Psoriatic Arthritis Group's informational web page at:

http://www.wpunj.edu/pa/ -- created and edited by list member

aka(raharris@...).

Also,in August 2001,list member Jack aka Cornishpro@... began to

conduct extensive research which he publishes as the " Psoriatic Arthritis

Research Newsletter " , monthly in our email and digest format. Many thanks to

Jack. Back issues of the newsletter are stored on our PA webpage as well as the

archives of the list.

Don't forget that the list archives comprise a tremendous amount of information

(Over three years of messages and answers).Feel free to browse them at your

convenience.

LET'S HEAR FROM SOME OF YOU LURKERS out there! If you have a comment or

question, chances are there is a person who has been around a while who can help

you out with AT LEAST an educated guess for an answer! If not,we can steer you

in the right direction with a good website to go to,

Blessings and Peace,

Atwood-Stack, Founder

Alan , Web & List Editor

Jack , Newsletter Editor

Pat Bias, List Editor

Ron Dotson, List Editor

Orin, List Editor

Kathy F., List Editor

and any others who help in any way (thank you!)

[Guest guest]

,

Gosh, thanks for the proper name now I'll look it up online. Well thank

goodness for Yoga maybe that's what has helped me not to fracture the bone.

Thanks again,

math_nawi <math_nawi@...> wrote:

- great news in that you now have a reason for a new hip that

no surgeon can dispute. Osteonecrosis of the femoral head is the name.

You are lucky in another way - most folks that get this fracture their

hip in short order. Your body must be in very good shape to not have a

fracture yet. So although you are having problems, looks like you're a

tough cookie!!!

Kathy - great editor' comment!!!

Cheers -

> [Editor's Note: You bring up a great point, . People on PA

blame EVERYTHING that goes wrong with them on the disease or the meds

when in reality, " healthy " people have tons of these problems, too.

Glad your doctor got to the bottom of it and that things will be great

after surgery. Kathy F.]

>

[Guest guest]

,

My youngest son has the same problem as you with his hip. I thought his

doctor called vascular necrosis. He has already lost some of the femur bone,

but his doctor will not do the surgery until he is 40. He will be 38 in Aug.

The poor guy can hardly walk, but still has to work every day to support his

family. Please send me more info, if you have any, on how he can get the

surgery sooner. He has insurance so that isn't the problem. I'm so happy to

hear you will get your new hip soon, I hear the relief is immediate. Good

wishes to you.

Janet in Ca

[Guest guest]

you know janet your son should see another rheumatologist . His insurance

will require it anyway .[ a second opinion] some doctors are reluctant because

they know they prescribed large amounts of prednisone and steroids which

cause this problem . why should he suffer for 2 more years ?? Is there some

reason for that . ?/ probably not , cathy from mass. .

[Guest guest]

Hi!

The disease has a few different names from what I've found. Does he have

arthritis as well in the hip? I don't know for sure if I'm getting the operation

my rheumy wants me to have it. There is 4 stages to this disease and mine is in

the 4th stage where the joint and the cup are both affected and the next thing

to happen will be tiny fractures. I can hardly walk either at times. My rheumy

says to keep going to different surgeons until one agree's. He says that someone

will do it because there is absolutely no other cure for this disease. Tell your

son to look at other doctors.

Good luck,

cameronparkmom@... wrote:

,

My youngest son has the same problem as you with his hip. I thought his

doctor called vascular necrosis. He has already lost some of the femur bone,

but his doctor will not do the surgery until he is 40. He will be 38 in Aug.

The poor guy can hardly walk, but still has to work every day to support his

family. Please send me more info, if you have any, on how he can get the

surgery sooner. He has insurance so that isn't the problem. I'm so happy to

hear you will get your new hip soon, I hear the relief is immediate. Good

wishes to you.

Janet in Ca

[Guest guest]

Thank you ,

His femur has already begun to collapse. I did some nosing around on this

last year when I first heard he had this and I found a doctor at Duke

University who is the leading researcher and develper of this type of surgery.

Of

course with my mind nowdays I can't remember his name. I gave all the info I

printed off to my son. He was given a minor surgery last summer where the Dr.

drilled small holes in the dead part of the bone to try to spark more blood

flow in that area. It worked well for him except at the very top where there

was already too much damage. He waited almost 8 months before he went to

the Dr. in the first place. You know how men are. He was afraid he had

cancer. God only knows why he thought it was better not to know for sure. As

far

as we know he doesn't have any arthritis, yet. I fear it could be there, but

since it is so hard to diagose it just hasn't come to the forfront yet. I'm

afraid he's going to end up in a wheelchair before he gets any help. One

other thing we found out that I think keeps him from searching further so far

is

his Dr. told him that other than injury, this disease is caused from

drinking. Since he enjoys a beer now and then I know he's aftraid people are

going

to think he is an alcoholic. Living in a small town narrows the field of

doctors for him also. Good luck with your surgeon search and keep in touch.

Janet

[Guest guest]

Oh gosh no, this is not only from drinking! My doctor didn't even tell me about

the drinking thing I happen to read it on the internet. My doctor said what

usually happens is you have some kind of injury as a child or teenager that you

really don't notice and that is when it happens. He says I've had it for years

and not even known, your son probably has too.

How awful and embarassing that he thinks he got this from drinking! Tell him

to talk to another doctor and do more of his own research.

Take care,

cameronparkmom@... wrote:

Thank you ,

His femur has already begun to collapse. I did some nosing around on this

last year when I first heard he had this and I found a doctor at Duke

University who is the leading researcher and develper of this type of surgery.

Of

course with my mind nowdays I can't remember his name. I gave all the info I

printed off to my son. He was given a minor surgery last summer where the Dr.

drilled small holes in the dead part of the bone to try to spark more blood

flow in that area. It worked well for him except at the very top where there

was already too much damage. He waited almost 8 months before he went to

the Dr. in the first place. You know how men are. He was afraid he had

cancer. God only knows why he thought it was better not to know for sure. As

far

as we know he doesn't have any arthritis, yet. I fear it could be there, but

since it is so hard to diagose it just hasn't come to the forfront yet. I'm

afraid he's going to end up in a wheelchair before he gets any help. One

other thing we found out that I think keeps him from searching further so far

is

his Dr. told him that other than injury, this disease is caused from

drinking. Since he enjoys a beer now and then I know he's aftraid people are

going

to think he is an alcoholic. Living in a small town narrows the field of

doctors for him also. Good luck with your surgeon search and keep in touch.

Janet

[

[Guest guest]

Hi Janet

I agree with . Not your son's fault. He needs to find a more

humanistic and supportive doc.

I can tolerate eccentricities in my docs as long as they keep in mind

why I'm there and address my problem. It they can't or won't I vote

with my feet ( bad pun... ).

Wishing the two of you all the best -