Unintentional Offense....

[Guest guest]

Hey group,

I just need to vent a bit.

I am a 27 year old with PA (which some of you know) with symptoms which come and

go. I am recently dealing with a bout which has been affecting me for about 2

years and includes Iritis and some small specs of Psoriasis.

Although I'm dealing with fatigue, shuffling my schedule and changing my diet

around to help my joints stay inflammation free; I agreed to babysit my nieces

and nephew once a week for the summer. One of my nieces had pink eye and no one

told me before I went over there and I was exposed. From what I've known,

Iritis and Pink Eye do not work well together. The pink eye re-inflames the

iritis--which is almost gone.

I trusted that she was contagious--but she wasn't. Luckily I haven't gotten

it, but I feel taken advantage of. I tried to talk to my sister in law--but I'm

home from that conversation now and I feel really brushed off. Like because you

can't see my illness then it can't be that serious--but I could loose my sight.

(I know I won't, but still...)

I have no idea what the point of this e-mail is since I'm not looking for

support or sympathy--I just need to vent. I just needed to tell someone that

I'm pissed off and hurt and want to run away and cry because I can't express

myself any other way.

So, those of you that read this--thanks. I'm glad to have someplace to write

down these bits of my life where they won't hurt or offend anyone else.

[Guest guest]

--

I'm not sure someone without PA can really understand what we go through. I

think you just have to vent here -- and hope that down the road your family

" gets " it.

Interestingly, one of my best friends got cancer this year -- and when she

was going through chemo/radiation she ended up with severe joint pain. She

called me up and cried because she said for the first time she understood

what I live with daily. She felt so bad and couldn't understand how I

handled it. Luckily, she's now in remission -- and her joint pain is gone.

But now, I know that when I'm hurting badly, I have one friend who can

really commiserate with how much I hurt.

So vent all you want! There's plenty of people here who understand how

scary PA can be! And we really do feel for you!

Patty

[Guest guest]

That is what we are here for . LOL It feels good just to be able

type out our feelings, knowing we don't need an answer or a solution

just a " reading eye " .

Hang in the Girl!!

Dotti

>

> Hey group,

>

> I just need to vent a bit.

>

[Guest guest]

- I can totally relate to what you are going through.

Although I don't have PA, my son does, others just don't get it.

They see that he looks fine but have no idea the severity of the

disease.

Grant also has Uveitis. I have never heard that pink eye can cause

a flare up of it. In fact I've always been told they don't know

what causes flare ups. I even googled pink eye and uveitis and

found nothing. If you have anything written about that I would

really like to read it. Thanks!

& Grant ( 11, PsA/Uveitis)

[Guest guest]

,

It get so frustrating sometimes having this disease that other people

can't understand. My in-laws never seemed to understand what I was

going through and one day when I saw them they said " you look great,

you must be feeling good " . In fact, I had been having a rough time and

I answered, " it's amazing what some lipstick will do for you " . They

seemed to get that. Later, they met someone else with fibromyalgia and

learned more. Now they are much more caring towards me and seem to be

more understanding. Unfortunately, it seems to be easier to

underestimate what you own family is going through or take advantage of

them.

Hang in there

Angie