Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 Our teenage daughter has this. Chest tightness, soreness, . Diagnosed with chest Inflammation from pediatrician's office. I feel it is from one of the infections. She has Lyme, Bart, Erh, Myco P. She says it feels like she is not breathing too. Seem to start when she began Biaxin. At times she will wake up because she says she feels like she is not breathing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 My daughter had this a lot when she was young. Her doctor suggested she breath through a washcloth soaked in warm water. The moist air seemed to open the airways and usually had her breathing easier. She had lots of tests and never found another cause, but the air hunger was very real. Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 great tip-- thanks! natasha ________________________________ From: Faces <faces@...> Sent: Sun, October 24, 2010 5:44:32 PM Subject: Re: [ ] Re:: difficulty breathing My daughter had this a lot when she was young. Her doctor suggested she breath through a washcloth soaked in warm water. The moist air seemed to open the airways and usually had her breathing easier. She had lots of tests and never found another cause, but the air hunger was very real. Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Thank you for another great tip. I was so surprised and saddened to learn so many of your children suffer with this symptom as well. Since her last " episode " of breathing difficulty I have noticed a change. She seems to just be overall short of breath and easily winded. Just a flight of stairs can slow her down. Praying for all of you and your families, as we press forward together through this illness. Thought I might share this article that was printed in our local paper here http://www.healthzone.ca/Health/Yourhealth/Article/874377. There is hope the tide is turning for Lyme suffers, maybe not soon enough for our infected children but for our families as we still have to live in theses endemic areas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I couldn't get the article when I put in the url but I tracked it down with a slight change of url http://www.healthzone.ca/health/yourhealth/article/874377--scientist-makes-inroa\ ds-on-lyme-disease It made me laugh to read about the " first " vaccine that is supposedly coming out -- hahahaha -- guess they forgot about the on that the IDSA docs created, that gave people Lyme. With the turn in the weather here in CA, we are all struggling more with pain -- my daughter was sobbing yesterday with frustration. I had to remind her that she HAS progressed wince July -- she just expected to be well by now. I hate Lyme and what it does to my kids. Don't love it for myself, but it just destroys me to see my kids suffering. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 5:58:22 AM Subject: Re: [ ] Re:: difficulty breathing Thank you for another great tip. I was so surprised and saddened to learn so many of your children suffer with this symptom as well. Since her last " episode " of breathing difficulty I have noticed a change. She seems to just be overall short of breath and easily winded. Just a flight of stairs can slow her down. Praying for all of you and your families, as we press forward together through this illness. Thought I might share this article that was printed in our local paper here http://www.healthzone.ca/Health/Yourhealth/Article/874377. There is hope the tide is turning for Lyme suffers, maybe not soon enough for our infected children but for our families as we still have to live in theses endemic areas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 It kills me inside to see my kids suffer........it's something one never gets over.......we are acute right now also......my kids are suffering so bad.......WI weather is NO GOOD for us!! Us moms have everything on our shoulders........and yes, I also would take every single pain and med for them.......they don't deserve this and breaks my heart from the minute I wake up till I pass out at night. Sending prayers to all of you.......as I truly know what you feel and want to hit the wall so bad....but always have to talk myself out of it because I need my hand to give out meds and hold my girls when they want to give up. Thanks for the article - it didn't work for me also - but I will try the new one...... Bless you all and keep fighting!! Diane B. (WI) ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Mon, October 25, 2010 8:40:44 AM Subject: Re: [ ] Re:: difficulty breathing  I couldn't get the article when I put in the url but I tracked it down with a slight change of url http://www.healthzone.ca/health/yourhealth/article/874377--scientist-makes-inroa\ ds-on-lyme-disease It made me laugh to read about the " first " vaccine that is supposedly coming out -- hahahaha -- guess they forgot about the on that the IDSA docs created, that gave people Lyme. With the turn in the weather here in CA, we are all struggling more with pain -- my daughter was sobbing yesterday with frustration. I had to remind her that she HAS progressed wince July -- she just expected to be well by now. I hate Lyme and what it does to my kids. Don't love it for myself, but it just destroys me to see my kids suffering. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 5:58:22 AM Subject: Re: [ ] Re:: difficulty breathing Thank you for another great tip. I was so surprised and saddened to learn so many of your children suffer with this symptom as well. Since her last " episode " of breathing difficulty I have noticed a change. She seems to just be overall short of breath and easily winded. Just a flight of stairs can slow her down. Praying for all of you and your families, as we press forward together through this illness. Thought I might share this article that was printed in our local paper here http://www.healthzone.ca/Health/Yourhealth/Article/874377. There is hope the tide is turning for Lyme suffers, maybe not soon enough for our infected children but for our families as we still have to live in theses endemic areas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 what paper was that in, since we live near each other ?? From: Pavone <pavone1@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 8:58 AM Thank you for another great tip. I was so surprised and saddened to learn so many of your children suffer with this symptom as well. Since her last " episode " of breathing difficulty I have noticed a change. She seems to just be overall short of breath and easily winded. Just a flight of stairs can slow her down. Praying for all of you and your families, as we press forward together through this illness. Thought I might share this article that was printed in our local paper here http://www.healthzone.ca/Health/Yourhealth/Article/874377. There is hope the tide is turning for Lyme suffers, maybe not soon enough for our infected children but for our families as we still have to live in theses endemic areas. Â Â Â ------------------------------------ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Did you see the episode of conspiracy theory last week about the Lyme and Plum island ??? Shocking, it was used as a bio warfare weapon against the nazi's...they call it the biowarfare virus of plum island. From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing  Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 ooh I'll have to watch. ________________________________ From: Tiffanie <tiffanies_towing@...> Sent: Tue, October 26, 2010 10:59:35 AM Subject: Re: [ ] Re:: difficulty breathing Did you see the episode of conspiracy theory last week about the Lyme and Plum island ??? Shocking, it was used as a bio warfare weapon against the nazi's...they call it the biowarfare virus of plum island. From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 it was good - but what about follow up on this......someone needs to blow this open and we should be able to sue for letting this happen to us and our children......they knew what they were doing.......we are just Ginni pigs to them......I'll give them a Ginni pig!!!!! Try to watch it I think someone said it should be on youtube or someplace it was on tru tv I think....... One thing I am really frustrated with today is that we are huge on giving out information and helping others with info on lyme right - but I have three women who now thing they might have this and have no money to get tested or see a LLMD.....they have lost there job and have been denied by disability.......so what do I do then??? What kind of help am I really doing by telling them what they might have if they cant help themselves??????? uggggg      thanks for listening......Diane B (WI) ________________________________ From: Natasha Moiseyev <nmoiseyev@...> Sent: Tue, October 26, 2010 3:33:39 PM Subject: Re: [ ] Re:: difficulty breathing  ooh I'll have to watch. ________________________________ From: Tiffanie <tiffanies_towing@...> Sent: Tue, October 26, 2010 10:59:35 AM Subject: Re: [ ] Re:: difficulty breathing Did you see the episode of conspiracy theory last week about the Lyme and Plum island ??? Shocking, it was used as a bio warfare weapon against the nazi's...they call it the biowarfare virus of plum island. From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 The Article was in Newsday, Oct. 12th I think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 oh thank you. From: Pavone <pavone1@...> Subject: Re: [ ] Re:: difficulty breathing Date: Tuesday, October 26, 2010, 4:46 PM The Article was in Newsday, Oct. 12th I think. Â Â Â ------------------------------------ Lyme Disease News continually updated from thousands of sources around the net: http://www.topix.net/health/lyme-disease MedWorm: The latest items on: Lyme Disease http://tinyurl.com/23dgy8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 So i guess you saw the show, huh ? I understand what you mean, my house is in foreclosure because of all the $$ I've spent since got this disease.Its ridiculous. Back to Connecticut on Nov. 22nd. thats gonna cost me another $close to $500.00 for dr. visit, gas, tolls, etc. then thanksgiving, then Sun. the 29th is my daughters baby shower, more money, I dont know how I will even afford to buy Christmas gifts for my kids this year.... From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 also when you look on you tube, watch about what randy sykes has to say about it..his interview. From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing  Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 I am so sorry!! We are almost done with our bankrupsy - it & #39;s so sad how all of us have to live!! Breaks my heart - and we also have no idea how to pay for our next dr visit - can & #39;t even think about Christmas....... You are not alone.... So sorry . Diane B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 I know, I'm trying to figure out the $$ for the dr. too.. From: Diane Biel <dkbmama@...> Subject: Re: [ ] Re:: difficulty breathing Date: Wednesday, October 27, 2010, 11:55 AM I am so sorry!! We are almost done with our bankrupsy - it's so sad how all of us have to live!! Breaks my heart - and we also have no idea how to pay for our next dr visit - can't even think about Christmas....... You are not alone.... So sorry .  Diane B    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Hello! I am fairly new to this group, so I will introduce myself quickly. My name is and I live in NC. I have two sons with Lyme Disease- 17 and 19 years old. My 17 year old started manifesting symptoms when he was in 5th grade. He had panic attacks, anxiety, depression, fatigue, and seemed to stay sick quite often. I had him at the doctor so many times, but unfortunately, our doctors (for the most part) are ignorant of Lyme. It wasn't until Caleb was in the 9th grade that I did my own research and figured out he had late stage Lyme. I was shocked! But, it all made sense-- the symptoms all those years. He was mis-diagnosed with depression and bi-polar disorder, blah, blah, blah...... But, none of the psychiatric stuff made sense. He was the happiest child on the planet and the most pleasant, and then one day he woke up and said he was sad. God, how I wish I had known. Caleb has been in treatment since June 09. He did IVs for about 7 months and now is on orals, some herbals and supplements.  He is definitely better mentally than he was before treatment, but his physical pain is still high. To me, he seemed better back in the spring of this year. My oldest son was then diagnosed with Lyme and co-infections. He, too, suffers with the mental stuff. He has lots of anxiety and depression. He really didn't manifest physical symptoms until he started treatment last December. He is on orals and some herbals and supplements. Anyway, as I read your emails, I have to tell you that I so feel your pain and how your hearts are broken over watching your children suffer. There are no words for what we deal with everyday. And to think that this disease was manufactured on Plum Island!! I saw the Ventura Conspiracy Theory on Plum Island. It was very evident that the disease was man-made. I just wonder if someone is " holding out " on the antidote. It's all about power and money at the expense of the lives of our children. I am so thankful to find a support group for parents who have children with Lyme. Healthy families don't get " it "   at all!!! ________________________________ From: Tiffanie <tiffanies_towing@...> Sent: Wed, October 27, 2010 11:39:30 AM Subject: Re: [ ] Re:: difficulty breathing  also when you look on you tube, watch about what randy sykes has to say about it..his interview. From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing  Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Welcome to the group. I'm sorry for what you're going through but its great to have people to talk to and understand that deal with this. I'm glad you saw that show, I couldnt believe it. I never watch it, just channel surfing and saw a tick on tv and stopped and watched..lol. From: Natasha Moiseyev <nmoiseyev@...> Subject: Re: [ ] Re:: difficulty breathing Date: Monday, October 25, 2010, 10:40 AM I keep telling my daughter that. And she IS getting better, but with rampant symptoms for 5 years, she is now 15 months into treatment and definitely better (no longer spends the days and nights alone in her dark room in bed moaning) she wants to be better NOW. Her little sister, also congenital, is bouncing back more quickly but this morning also woke up in pain. I wake up in the night with my heart racing, worrying about hem, what they have due for school, how to push it through, how to make money for living. I believe that the Lyme we have encountered is actually genetically engineered -- probably on Plum Island or the like. Whoever created it should rot in hell. Natasha ________________________________ From: Pavone <pavone1@...> Sent: Mon, October 25, 2010 7:14:27 AM Subject: Re: [ ] Re:: difficulty breathing  Natasha, It was disappointing that they didn't even mention the " first " vaccine that caused such pain and suffering for so many. Still there is hope for a better future for all of us. The more progress gained through research the better. My heart goes out to you and your girls. Watching your child suffer is torture... I can't imagine how difficult it must be to deal with it all when you yourself are sick. I'm so sorry your family is going through all of this. I have two sick also, my oldest and first to be treated is 7 months in treatment now and doing amazingly well. He was unable to pick his head up off a pillow last spring and now he is back in school. My daughter has only just begun and I know that it gets worse before it gets better. I'm just hanging in there right now as I watch her spiral downward, its scary, I keep looking to my sons progress for encouragement and hope for her. My first trip to a Lyme Ped. I meet a woman who was there for a follow up with her son and she said " they do get better " and i hung onto that for a long time last spring and now I can say that to you first hand, " they do get better " . Hang in there! Quote Link to comment Share on other sites More sharing options...
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