Congenital Lyme

[Guest guest]

Darcie,

I can think of two good places to look for information about Lyme disease.

One is www.lymenet.org under " Medical Abstracts " . You can search the

database and/or browse the recommended articles, depending on what you're

looking for.

The other place to check out is 's sister list Lyme Documents at

Lyme-Documents . You can search or browse the

archive there under " Messages " .

Without knowing specifically what kind of information you need this is the

best I can do.

=)

Robynn

-Owner

[ ] Congenital Lyme

> I am wondering if any of you can help? I just recently found out I

> have lyme disease. After 30 years of doctors and poor health.

>

> I am taking my 13 year old daughter to the doctor tomorrow to have

> her tested. She has been sick all her life and can't even go to

> school.

>

> Do you now of any articles I can take to show the doctor? Or any

> studies that have been done? Or diagnosis/treatment recommendations?

>

> Thank you so much for your help! I have been doing my own search for

> this info, but so far haven't had much luck.

>

> Thank you,

> Darcie

[Guest guest]

Hi Darcie,

Try this link:

http://www.geocities.com/HotSprings/Oasis/6455/children-links.html

Order or borrow this book:

Everything You Need to Know About Lyme Disease and Other Tick-Borne

Disorders

http://www.amazon.com/exec/obidos/ASIN/047116061X/thelymediseafoun/102-42111

78-8199310

Hope this helps,

Marta

----- Original Message -----

From: " Darcie " <daliddle1@...>

> I am wondering if any of you can help? I just recently found out I

> have lyme disease. After 30 years of doctors and poor health.

>

> I am taking my 13 year old daughter to the doctor tomorrow to have

> her tested. She has been sick all her life and can't even go to

> school.

>

> Do you now of any articles I can take to show the doctor? Or any

> studies that have been done? Or diagnosis/treatment recommendations?

>

> Thank you so much for your help! I have been doing my own search for

> this info, but so far haven't had much luck.

>

> Thank you,

> Darcie

[Guest guest]

Both my kids are Congenital Lyme and pts of Dr. .  They both tested

positive on IGENEX for Lyme.  They are also positive for Babesia and Bartonella;

and other things too.  One was treated for a year and a half and is miraculously

better now, and he is 21.  He was sick his whole life before being diagnosed and

treated.  The other is still struggling a great deal and is about to go on IV

again.  Both had very abnormal SPECT scans and my younger son also has 3 white

matter lesions on his brain.