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Re: Digest Number 424

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Hi all--

Happy birthday Becky!

I think it has been about a month now since I found this PA website, and I

need to tell all of you, especially you, Gillian, what a difference it has

made in my life. I look forward to firing up the PC and jumping on the net to

see how all of you are doing- like making many new friends- international ,

to boot!

For apparent reasons, when this " condition " -- " I liked that Gillian)

rears it's angry head from time to time, it is so easy to isolate. (both in

feelings and actuality). When I was diagnosed last year, I realized that I

had suffered from this for a long time- the P is so apparent , but I really

thought I was nuts to have so much pain so much of the time that I just

stopped mentioning it. I am so thankful that when we relocated last year,

it meant finding a new FP who immediately added 1+1= 2 and packed me off to

the rheum. Then I could not use the old block it out/ denial and had to

deal with being scared to death. THAT, ladies and gents, is where all of you

have made such a difference. My attitude has improved so much, and THAT is

so much the key to dealing with this, or having IT deal with me/us!!!! I

really believe that when so much of the tx hinges on doing what others tell

us to do, we must keep close reigns on the things we have control of--- and

that is #1 on the list.

Thanks to all of you for all the help you have been in that department,

and many other ways as well

Wishing Y'aal a pain, itch and flake free day !!!

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  • 1 month later...
Guest guest

In a message dated 3/4/00 4:52:45 AM Eastern Standard Time,

onelist writes:

<<

Kinda makes you sick, doesn't it?

Barbara

>>

sure does, and did, barbara. what a beautiful home melinda had, too.

joanna

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Guest guest

Barbara,

First, let me say that I've received hundreds of emails and calls from the

48-Hours piece.

Although I think they should have included the insurance issues in the story,

I am -- overall -- pleased with the piece. I think CBS network did a

wonderful public service by helping to educate the general public about these

dangerous toxins.

In order to further increase awareness, I'd like to ask you and your

subscribers to participate in a program. I am considering setting up a system

whereby labs and AQ firms involved in testing homes would, once a week,

inform me of the number of homes diagnosed (that week) with a toxic mold

problem.

Because of the large, and ever increasing, number of homes containing this

problem, I think the American public would better understand how very common

this problem is if we kept a weekly record of the number of homes diagnosed

with toxic molds.

I will then send out a weekly news release on the number of homes found to

have the problem during that week.

I believe it's important to continue to educate the general public.

I'd be interested in hearing from you regarding this.

Thanks.

Melinda

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  • 10 months later...

I am a lurker on this list but have found many good suggestions. The best

course that I have taken on ABA has been the Learning to Learn internet

course offered by Dr. Partington's company, Behavior Analysts. It

helped me so much in knowing what and how to do it. It was expensive, but

very worthwhile. I posted privately to who asked about classes, but

wanted to also post here in case anyone had any questions.

Thanks,

in Orlando

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  • 9 months later...

THanks to Tammy and Bridget for replying to my question. The one thing my

sons speech path said to try was to clap out or tap out the syllables, so he

can hear and feel the stopping point of words. Haven't tried it yet.

Has anyone else done this??

THanks.

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