Flagyl

[Guest guest]

Flagyl is used for Giardia.....but I wonder if it might also work on a sub

acute C. Difficile infection, or if the Flagyl affects the motility of the B.

Burgdorferi by its action on a flagellar protein?

If it works..it works... thats my attitude.... let the wizards figure out why

or how it works later. <g>

[Guest guest]

Flagyl is used for C. difficile but many strains are resistant to it.

Martha A.

[Guest guest]

Hi everyone,

I don't know about flagyl, it helped with my postsurgical infection, but not

my Lyme. I was so ill and near to death, though I couldn't tell you what it

did.

Connie

[Guest guest]

Hi

I was on Flagyl when I had a postsurgical infection this past summer. It

worked well, he ID doc said it might help my Lyme. I was so ill, I couldn't

tell. I wish you the best.

Connie

[Guest guest]

In a message dated 5/12/99 5:03:23 PM Eastern Daylight Time,

joebur@... writes:

<<

I have c-diff and have been on flagyl about a week. I do not

feel better.... I was hoping

for a cure .........

Looking forward to your replies....josh

>>

Josh,

I start flagyl tomorrow. So I will let you know.

How is your stomach on it?

Take care,

[Guest guest]

In a message dated 5/12/99 9:00:15 PM Eastern Daylight Time,

Prinny328@... writes:

>

> <<

>

> I have c-diff and have been on flagyl about a week. I do not

> feel better.... I was hoping

> for a cure .........

>

>

> Looking forward to your replies....josh

>

> >>

> Josh,

> I start flagyl tomorrow. So I will let you know.

> How is your stomach on it?

>

> Take care,

>

>

what dose of flagyl are people taking daily and is it combined with other abx

thank you in advance

lea

[Guest guest]

In a message dated 5/12/99 9:03:18 PM Eastern Daylight Time, Memyo@...

writes:

<< of flagyl are people taking daily and is it combined with other abx

thank you in advance

lea

------------------------------ >>

Lea,

I'm on 500mg of zith, 2,100,000 billion units of bicillian shots, and I start

tomorrow 750 mg of flaygl.

[Guest guest]

joebur wrote:

> From: joebur <joebur@...>

>

> How are people doing with flagyl?

>

> I have c-diff and have been on flagyl about a week. I do not

> feel better.... I was hoping

> for a cure .........

>

> Looking forward to your replies....josh

>

Josh,

Be careful of your dosage. I was on Flagyl from 4/1 to 4/21, at 750 mg three

times per day. I found out about two weeks into it that that was WAY too

much -- about double what I should have been taking. About four days after I

started the dosage, my hair started to fall out. At first it was subtle,

then more dramatic.

It hasn't let up yet, and my new Lyme doc told me that basically what I did

was put my hair into a die-off phase, similar to what happens during chemo.

She told me it will fall out for a total of about 3 months and then grow

back. I have very thick, shoulder-length dark brown hair. I used to be able

to wrap a rubber band around my ponytail only twice -- now it goes around

easily 3 times. It's getting visibly thin now and I'm contemplating getting

it cut short so it won't be so pathetic looking. The doctor told me that it

will probably all fall out before any grows back.

For what it's worth, she doesn't like Flagyl except as a drug of last

resort, when every combo of orals, IM injections and IV have either been

tried or are not available. She said there are too many side-effects from

Flagyl to make it worthwhile except as a last-ditch med. I too had very high

hopes for Flagyl when I was on it, but it really didn't seem to help my

symptoms much. Right now I'm on Biaxin and Ceftin and it seems to be making

me herx like crazy.

Jean

[Guest guest]

I'm on 750 mg flagyl a day... That's hard on me and I've been on three

antbiotics at once!

I was just on flagyl but just added doxy... I know God is in

Control and if He intends it, I will get well! Josh

Memyo@... wrote:

> From: Memyo@...

>

> In a message dated 5/12/99 9:00:15 PM Eastern Daylight Time,

> Prinny328@... writes:

>

> >

> > <<

> >

> > I have c-diff and have been on flagyl about a week. I do

> not

> > feel better.... I was hoping

> > for a cure .........

> >

> >

> > Looking forward to your replies....josh

> >

> > >>

> > Josh,

> > I start flagyl tomorrow. So I will let you know.

> > How is your stomach on it?

> >

> > Take care,

> >

> >

> what dose of flagyl are people taking daily and is it combined with

> other abx

> thank you in advance

> lea

>

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[Guest guest]

I heard bicillin is enough in some cases.. I've heard that it puts

people in permanent remissions..

Sounds like a broad combination... might do the trick.. Whose

the doc?? josh

Prinny328@... wrote:

> From: Prinny328@...

>

> In a message dated 5/12/99 9:03:18 PM Eastern Daylight Time,

> Memyo@...

> writes:

>

> << of flagyl are people taking daily and is it combined with other abx

>

> thank you in advance

> lea

>

> ------------------------------ >>

> Lea,

> I'm on 500mg of zith, 2,100,000 billion units of bicillian shots, and

> I start

> tomorrow 750 mg of flaygl.

>

>

>

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[Guest guest]

Pierson wrote:

> From: Pierson <Pierson5@...>

>

> I was on 1500mg per day for three months and then three weeks combined

>

> with 2.4 million units of bicillin. Some things got a bit better and

> others a lot worse.

>

I wonder if flagyl is more dangerous than beneficial! I'm only on

it for c-diff but since I have Lyme it's a good time to see if it has

any benefit... Bicillin by itself or with zithromax is suppose to be

excellent. josh

>

>

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[Guest guest]

Josh,

Could you give the symptoms of c-diff and how you were diagnosed with

it?

Thanks,

Marta

-

>From: joebur <joebur@...>

>>

>

> I wonder if flagyl is more dangerous than beneficial! I'm only on

>it for c-diff but since I have Lyme it's a good time to see if it has

>any benefit... Bicillin by itself or with zithromax is suppose to be

>excellent. josh

>

[Guest guest]

In a message dated 5/13/99 8:37:52 AM, joebur@... writes:

<< I wonder if flagyl is more dangerous than beneficial! I'm only on

it for c-diff but since I have Lyme it's a good time to see if it has

any benefit... Bicillin by itself or with zithromax is suppose to be

excellent. josh

>>

Josh, i keep reading your posts about c-diff and have do idea what it is.

could you tellme what this is? Feel better -Val

[Guest guest]

In a message dated 5/13/99 7:44:54 PM, joebur@... writes:

<<C-diff is an organism one may get when he takes many abx for a long

time.. it usuallyhas symptoms but in my case there were none. jsoh

>>

Oh thanks-Val

[Guest guest]

J & M McCoy wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> Josh,

> Could you give the symptoms of c-diff and how you were diagnosed

> with

> it?

> Thanks,

> Marta

>

I had no symptoms.. I was given a stool test to check for yeast

and they also looked forc-diff.

take care

josh

> -

>

> >From: joebur <joebur@...>

> >>

> >

> > I wonder if flagyl is more dangerous than beneficial! I'm only

> on

> >it for c-diff but since I have Lyme it's a good time to see if it has

>

> >any benefit... Bicillin by itself or with zithromax is suppose to be

> >excellent. josh

> >

>

> -

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[Guest guest]

ValP74@... wrote:

> From: ValP74@...

>

> In a message dated 5/13/99 8:37:52 AM, joebur@... writes:

>

> << I wonder if flagyl is more dangerous than beneficial! I'm only on

> it for c-diff but since I have Lyme it's a good time to see if it has

> any benefit... Bicillin by itself or with zithromax is suppose to be

> excellent. josh

> >>

>

> Josh, i keep reading your posts about c-diff and have do idea what it

> is.

> could you tellme what this is? Feel better -Val

>

C-diff is an organism one may get when he takes many abx for a long

time.. it usuallyhas symptoms but in my case there were none. jsoh

> ------------------------------------------------------------------------

>

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[Guest guest]

Josh,

I caught c-diff when I was in the hospital for some surgery. They

treated it with flagyl and I did not get better. They ended up treating me

with Vancomiacin. It knocked the bacteria right out of me....

Re: [Lyme-aid] Flagyl

>From: Scully <jscully@...>

>

>

>

>joebur wrote:

>

>> From: joebur <joebur@...>

>>

>> How are people doing with flagyl?

>>

>> I have c-diff and have been on flagyl about a week. I do not

>> feel better.... I was hoping

>> for a cure .........

>>

>> Looking forward to your replies....josh

>>

>

>Josh,

>Be careful of your dosage. I was on Flagyl from 4/1 to 4/21, at 750 mg

three

>times per day. I found out about two weeks into it that that was WAY too

>much -- about double what I should have been taking. About four days after

I

>started the dosage, my hair started to fall out. At first it was subtle,

>then more dramatic.

>It hasn't let up yet, and my new Lyme doc told me that basically what I did

>was put my hair into a die-off phase, similar to what happens during chemo.

>She told me it will fall out for a total of about 3 months and then grow

>back. I have very thick, shoulder-length dark brown hair. I used to be able

>to wrap a rubber band around my ponytail only twice -- now it goes around

>easily 3 times. It's getting visibly thin now and I'm contemplating getting

>it cut short so it won't be so pathetic looking. The doctor told me that it

>will probably all fall out before any grows back.

>

>For what it's worth, she doesn't like Flagyl except as a drug of last

>resort, when every combo of orals, IM injections and IV have either been

>tried or are not available. She said there are too many side-effects from

>Flagyl to make it worthwhile except as a last-ditch med. I too had very

high

>hopes for Flagyl when I was on it, but it really didn't seem to help my

>symptoms much. Right now I'm on Biaxin and Ceftin and it seems to be making

>me herx like crazy.

>

>Jean

>

>

>

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>

[Guest guest]

Has anyone had good results with Flagyl

thank you in advance

lea

[Guest guest]

anyone being treated for babesea and flagyl at the same same time; if so, I

would appreciate abx and dosages;also, how long to notice improvements for

babesea

thank you

lea

[Guest guest]

There is a lot of information on the sci.med.diseases.lyme newsgroup

about flagyl or you can get into the newsgroup's archives by going to

www.deja.com. Flagyl is still just experimental with Lyme, although it

is an antibiotic that has been around for a long time. It is now being

used experimentally along with other antibiotics. The, theory, and the

scientist who is recommending it says it's still theory, is that flagyl

kills the cyst form of the disease while other antibiotics kill the

motile forms. He thinks that using both kinds of antibiotics at once,

therefore, leave the spirochetes nowhere to hide. Many people on the

newsgroup with chronic Lyme have been getting good results with this.

The herxes, however, seem to be intense.

Ellen

[Guest guest]

Re: Flagyl

Flagyl is not only an antibiotic but also an antihelminitic which means it

kills

intestinal worms and it is also an anti-protozoal which means it might also

have a weakening effect on babesia microti. It has fewer widespread side effects

than Biaxin but has been known to be tough on the liver specifically. Dr.

Atkisson Barr told

me that herxing on this medication can indeed be rough. I am taking 1,200 mgs.

per day along with 2 grams daily of IV Rocephin. Dr. Barr recommended that

I start out with half that dose for one week and gradually add more. What is

great about Flagyl is that it penetrates the blood brain barrier and gets deep

into tissues and the brain. You need to take it on a really full stomach to

protect your gi tract.

I hope I last long on this med because I am allergic to most of the others

except

cephlasporins . With continued high doses , rare side effects include seizures

and this is probably a result of its effect on the liver.

I am using pancreatic glandulars and organic coffee enemas to help rid my blood

stream of endotoxins as I go through these treatments. Already , I have noticed

a good effect from them but I have no idea how I will hold up once the IV

Rocephin

starts next week. I'll let you know. I chose Flagyl because Biaxin will cause

pancytopenias including platelet destruction and I already have a platelet loss

due

to an autoimmune disease. I have high hopes for Flagyl. As for weakness, my

doctor

gives me an injection of low dose anabolic steroids to modify my pre-existing

muscle weakness. He knew the herxes would be too much on top of the fact that

I am 80% disabled from lack of strong hip flexors and deterioration in the

tendons.

Courage to all,

Cheryl

[Guest guest]

Thanks Cheryl,

I downloaded some of the info from the sites you listed. I plan to bring

them to my next doctor's apt. Thanks for the info

Vicki

[Lyme-aid] Re: Flagyl

>From: " Cheryl Robbins-DeVoll " <cjdevoll@...>

>

>Re: Flagyl

>

>Flagyl is not only an antibiotic but also an antihelminitic which means it

kills

>intestinal worms and it is also an anti-protozoal which means it might also

>have a weakening effect on babesia microti. It has fewer widespread side

effects

>than Biaxin but has been known to be tough on the liver specifically. Dr.

Atkisson Barr told

>me that herxing on this medication can indeed be rough. I am taking 1,200

mgs.

>per day along with 2 grams daily of IV Rocephin. Dr. Barr recommended that

>I start out with half that dose for one week and gradually add more. What

is

>great about Flagyl is that it penetrates the blood brain barrier and gets

deep

>into tissues and the brain. You need to take it on a really full stomach to

protect your gi tract.

>I hope I last long on this med because I am allergic to most of the others

except

>cephlasporins . With continued high doses , rare side effects include

seizures

>and this is probably a result of its effect on the liver.

>

>I am using pancreatic glandulars and organic coffee enemas to help rid my

blood

>stream of endotoxins as I go through these treatments. Already , I have

noticed

>a good effect from them but I have no idea how I will hold up once the IV

Rocephin

>starts next week. I'll let you know. I chose Flagyl because Biaxin will

cause

>pancytopenias including platelet destruction and I already have a platelet

loss due

>to an autoimmune disease. I have high hopes for Flagyl. As for weakness, my

doctor

>gives me an injection of low dose anabolic steroids to modify my

pre-existing

>muscle weakness. He knew the herxes would be too much on top of the fact

that

>I am 80% disabled from lack of strong hip flexors and deterioration in the

tendons.

>

>Courage to all,

>

>Cheryl

>

>

>

>---------------------------

[Guest guest]

Hi Cheryl,

I sure hope the Flagyl works for you, so many who have taken it long

term have seen good results. Good luck with the IV Rocephin, I did not

experience any type herx with it, until the 4th week. Keep us posted,

Hugs,

Marta NJ

>From: " Cheryl Robbins-DeVoll " <cjdevoll@...>

>

>Re: Flagyl

>

>Flagyl is not only an antibiotic but also an antihelminitic which means it

kills

>intestinal worms and it is also an anti-protozoal which means it might also

>have a weakening effect on babesia microti. It has fewer widespread side

effects

>than Biaxin but has been known to be tough on the liver specifically. Dr.

Atkisson Barr told

>me that herxing on this medication can indeed be rough. I am taking 1,200

mgs.

>per day along with 2 grams daily of IV Rocephin. Dr. Barr recommended that

>I start out with half that dose for one week and gradually add more. What

is

>great about Flagyl is that it penetrates the blood brain barrier and gets

deep

>into tissues and the brain. You need to take it on a really full stomach to

protect your gi tract.

>I hope I last long on this med because I am allergic to most of the others

except

>cephlasporins . With continued high doses , rare side effects include

seizures

>and this is probably a result of its effect on the liver.

>

>I am using pancreatic glandulars and organic coffee enemas to help rid my

blood

>stream of endotoxins as I go through these treatments. Already , I have

noticed

>a good effect from them but I have no idea how I will hold up once the IV

Rocephin

>starts next week. I'll let you know. I chose Flagyl because Biaxin will

cause

>pancytopenias including platelet destruction and I already have a platelet

loss due

>to an autoimmune disease. I have high hopes for Flagyl. As for weakness, my

doctor

>gives me an injection of low dose anabolic steroids to modify my

pre-existing

>muscle weakness. He knew the herxes would be too much on top of the fact

that

>I am 80% disabled from lack of strong hip flexors and deterioration in the

tendons.

>

>Courage to all,

>

>Cheryl

[Guest guest]

What other antibiotics have been used with Flagyl? I've been on Flagyl

for six months or so and haven't experienced anything I would call

herxing much less intense herxing. I go to my LLMD on Monday and would

like to have some names of antibiotics to ask about.

Thanks,

On Sat, 11 Sep 1999 12:01:08 -0400 (EDT) ellenlu@... (Ellen

Lubarsky) writes:

>From: ellenlu@... (Ellen Lubarsky)

>

>There is a lot of information on the sci.med.diseases.lyme newsgroup

>about flagyl or you can get into the newsgroup's archives by going to

>www.deja.com. Flagyl is still just experimental with Lyme, although

>it

>is an antibiotic that has been around for a long time. It is now

>being

>used experimentally along with other antibiotics. The, theory, and

>the

>scientist who is recommending it says it's still theory, is that

>flagyl

>kills the cyst form of the disease while other antibiotics kill the

>motile forms. He thinks that using both kinds of antibiotics at once,

>therefore, leave the spirochetes nowhere to hide. Many people on the

>newsgroup with chronic Lyme have been getting good results with this.

>The herxes, however, seem to be intense.

>Ellen

>

>

>---------------------------

[Guest guest]

Hi everyone,

I just got on this list last night and just in time it looks like. I

have wrote the fellow lymie here in Oklahoma and hope that in some way I can

help him but at this time there isn't any lyme literate doctors I know of in

Oklahoma. His best bet is the one I see in Kansas City, MO or one of the

ones in Texas. Oklahoma is still trying to deny a problem with Lyme. I try

to educate as much as I can but most wont even listen. It's sad too. I know

many have lyme but are just diagnosed with other things. Seems like half the

town here has either MS, Fibro, Lupus, or Chronic Fatigue. I have grown

tired of trying to help them and having them think I am nuts. Anyway, hello

from Oklahoma and I hope I can help in some way.

, I did the Flagyl also and I did it with Suprax. I took 500mg 3 times

a day of Flagyl along with Suprax 400mg two times a day. I had already done

15 months of Doxycycline and didn't notice any big herxes there either. I

was so sick when I started the Doxy that I may not have been able to tell the

herx from just plain feeling like I was going to die in the beginning anyway.

I didn't notice any big herxes on any of them I just gradually felt better

but it did take a long time to make the progress I have made. I think just

some people herx really bad and others don't. I was told once it depended on

how bad your immune system was if you have really bad herxes. Just a guess

here for me but mine seems to be doing ok and maybe thats why I don't get

really bad herxes. I am at this point 98% my old self and hoping for no

relapses.

Janis